Author Topic: Hello from an Intersex male  (Read 372 times)

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Offline dustydan

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Hello from an Intersex male
« on: August 20, 2018, 07:29:28 am »
hello to all, I recently discovered this site while researching intersex of which I also recently discovered as the definition of my birth condition. I knew my whole life of my mess, just not the proper name. I just wish I knew someone else or some sort of support.

I am grateful for this site and as well contributors of  this site who have  given me more information then a lifetime of doctors. I am a 59 year old male but also someone who has grown up with the confusion and lies, disinformation and information withheld from me explaining my abnormalities since birth regarding physical and mental conditions especially my genital ambiguity, growing up internally a male, externally sort of male but never developing mature masculine features in fact, being constantly confused with female even  then, never going through puberty or developing any normal adult male features, being sterile, constantly being confused as a twin of my younger  sister, and the only child in my family  to be named after  a person in the Bible, of which it took me quite a while to put it together.

I am being treated presently for numerous and some very severe neuro-muscular disorders and being treated by a university with non-approved treatments. With that comes many secondary conditions which causes many head scratching shoulder shrugging moments between me and the docs always seeking answers.Now we are learning they seem to be related to the intersex condition of which I suspected, and asked but got shrugged shoulders because I asked the wrong way. But just within the last few weeks my urologist sent info on my web portal, references of endocrines disease with specifics in intersex and underlying areas to study relating to me.

Bottom line, I was always internally  a male, externally people confused me with male and female having never gone through puberty, produced testosterone, developed male masculine features but yet never understanding why. Never knew the normal feeling or look of male genitals, having undeveloped testicles in my abdomen, no scrotum, micro penis and basically an overall  feminine body.

Now, I am not here to  whine, I have long ago gotten over being the spectacle even to ignorant doctors, this has been an enlightening couple years for me, I just felt a need to give thanks for the information provided by the site and contributors.
a very big thank you....

Online HappyMoni

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Re: Hello from an Intersex male
« Reply #1 on: August 20, 2018, 07:49:36 am »
Welcome DustyDan, so glad you are here. I can only imagine the emotional stress you have had to deal with. I hope you feel free to join in, contribute, vent, and/or help others. My name is Moni. I hope you are able to get a handle on your health concerns. See you around the site I hope.
If I ever offend you, let me know. It's not what I am about.
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HRT June 11, 2015. (new birthday) - FFS in late June 2016. (Dr. _____=Ugh!) - Full time June 18, 2016 (Yeah! finally) - GCS June 27, 2017. (McGinn=Yeah!) - Under Eye repair from FFS 8/17/17 - Nose surgery-November 20, 2017 (Dr. Papel=Yeah) - Hair Transplant on June 21, 2018 (Dr. Cooley-yeah) - Breast Augmentation on July 10, 2018 (Dr. Basner in Baltimore) - Removed bad scarring from FFS surgery near ears and hairline in August, 2018 (Dr. Papel) -Sept. 2018, starting a skin regiment on face with Retin A

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Online Alice V

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Re: Hello from an Intersex male
« Reply #2 on: August 20, 2018, 08:46:56 am »
People don't like to think outside of binary gender system. Seems you're okay now, it's cool :) Welcome :)
Name: Alice
Alignment: True Neutral

Members of "Alice club": Alice V, Alice (Nym)  :D

Offline Alaskan Danielle

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Re: Hello from an Intersex male
« Reply #3 on: August 20, 2018, 08:50:34 am »
@dustydan 
DustyDan   
I am so glad that you have become a member of Susan's Place and that you have shared your introduction posting with other members here on the Forums. 

I am thinking that you may lots more questions and concerns, this is the right place for you to be to find out what others have done that may have been in your circumstances.
 
Be aware that there are a lot of members here that can identify with your situation as you feel free to share it.
 
Please allow me to warmly WELCOME you to Susan's Place
You will find this a safe and friendly place to share with others  and to read about others similar trials, tribulations, and successes.
It is nice that you had signed up so you can share with others and involve yourself with some give and take with other like-minded members.  When frustrated or if you have successes you can share it here if you wish and receive support from others and offer support to others. ....
 
***It's a very good chance that you might find that you will make some new friends here. 

Please come in and continue to be involved at your own pace. 
I have included Important LINKS that will tell you about Susan's Place.  Included there is information about the site that will help you navigate around and best utilize the features here.   
Please look closely at the LINKS in RED, answers are there to many questions that new members ask.

Again, Welcome to Susan's Place.
Danielle


Here are some links to the site rules and stuff that all new members should be familiar with:

Things that you should read
Check out my Personal Threads that have more details about myself (click Links):
   "I am the HUNTED PREY : Danielle's Chronicles"
               "Positive Mindset... put away negativity"
                            "Susans Writers and Book Readers"

Started HRT March 2015  3½ years ago, it's been an exciting journey
>>> I've been Full Time since December 2016 :icon_chick:
I am 38 years old, Single, and Self Employed in a small town up in the COLD North.
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Offline V M

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Re: Hello from an Intersex male
« Reply #4 on: August 20, 2018, 01:52:32 pm »
Hi DustyDan  :icon_wave:

Welcome to Susan's Place  :)  Glad to have you here, join on in the fun

Hugs

V M
The main things to remember in life are Love, Kindness, Understanding and Respect - Always make forward progress

Superficial fanny kissing friends are a dime a dozen, a TRUE FRIEND however is PRICELESS

 
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Offline dustydan

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Re: Hello from an Intersex male
« Reply #5 on: August 23, 2018, 10:20:36 am »
Thank you all for the welcome. I am not much of a poster. I do have many questions and am sorting things out now medically as we connect dots. I may be able to contribute , but so many here seem much more educated on things then me  any ways, thanks for the welcome.

Online Jin

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Re: Hello from an Intersex male
« Reply #6 on: August 23, 2018, 10:29:13 am »
Hi Dusty,
I think you have been given an incredible gift. With the body you describe your wardrobe can have much more diversity than average. You can play both teams with confidence that no bulges will break our profile.
Enjoy your uniqueness!
I yam what I yam, and that's all what I yam.
-- Popeye

A wise person can learn more from fools than a fool can learn from a wise person.

Online Alice V

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Re: Hello from an Intersex male
« Reply #7 on: August 23, 2018, 12:02:06 pm »
Feel free to ask your questions. There's a lot of people with different experience and same goals :D
Name: Alice
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Members of "Alice club": Alice V, Alice (Nym)  :D

Offline Doreen

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Re: Hello from an Intersex male
« Reply #8 on: August 23, 2018, 12:19:17 pm »
HI Dusty.   

Feel free to look up AIS / DSD.  (Short for androgen insensitivity syndrome / disorders of sex development).
There are multiple intersexed support forums on facebook and elsewhere and a network of doctors that are actually understanding of intersexed health conditions and problems.

They still haven't completely puzzled mine out yet, but at least they're trying.

Offline dustydan

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Re: Hello from an Intersex male
« Reply #9 on: August 24, 2018, 05:58:56 am »
Hi Dusty,
I think you have been given an incredible gift. With the body you describe your wardrobe can have much more diversity than average. You can play both teams with confidence that no bulges will break our profile.
Enjoy your uniqueness!

This made me chuckle, its so true... But there was a time a bulge is all I ever wanted and one was required, especially in high school and beyond .. actually life altering because of the lack of... :)

Offline dustydan

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Re: Hello from an Intersex male
« Reply #10 on: August 24, 2018, 06:29:35 am »
HI Dusty.   

Feel free to look up AIS / DSD.  (Short for androgen insensitivity syndrome / disorders of sex development).
There are multiple intersexed support forums on facebook and elsewhere and a network of doctors that are actually understanding of intersexed health conditions and problems.

They still haven't completely puzzled mine out yet, but at least they're trying.

Yes thank you for the info, we know I definitely fall within the perimeter of ..
extra Chromosomes, ( AIS (PAIS)Partial or incomplete AIS :) ,Reifenstein syndrome
Neonatal manifestations, Hypogonadism , MEN l, several neuro muscular disorders ect.... .  (PPSH) . I am presently being treated for several Neuro muscular disorders, one which is rather severe and had me on life support for quite a long time.  I have not been diagnosed as Kennedy's although  that will be brought up next visit with neuro as we are still chasing issues.
It seems my system fully crashed and we are unwinding the mess.  There was a time it was  confusing as you get plasma pharisees  every other day, wear a vent and told there is no cure, no reason, no explanation and the you discover there actually is a reason. So fortunately, finally my urologist, cardiologist, endo,  and GP PC  gets it and we are unwinding.

I have searched some of the support groups you mention, I dont seem to find active ones. But,  am limited in vision..

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