Author Topic: Does anyone have POTS or know about it?  (Read 190 times)

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Offline Gertrude

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Does anyone have POTS or know about it?
« on: February 17, 2019, 09:35:00 am »
Around Christmas I started getting palpitations at times. Went to ER and they found nothing wrong. A couple weeks later the same thing. They sent me to a Cardiologist and I've had a calcium scoring, echo, nuclear stress test, coronary artery CT and a tilt table test. The reason for the last one because the stress test was inconclusive due to too fast a heart rate while on the treadmill. I passed out on the tilt table after nitro was given. I have my follow up, but it seems my HR goes up when standing. I went to a vascular doc too and the circulation in my legs, particularly my feet wasn't good. I think I have postural orthostatic tachycardia syndrome or POTS. That's what the cardiologist mumbled when I was on the treadmill. At one time it was considered psychosomatic, but now there are over 12 underlying diseases/disorders that can cause it, a lot autoimmune, some metabolic, others injury, surgery, infections. On top of this, I have spine issues. Had L4-5 fusion around Halloween and now my cervical guy says it's imperative I get c2-4 fused. I already have c4-6 fused. On top of this I have diplopia from 4th cranial nerve palsy that came on in September. I've lost a lot of weight from doing Keto, down to 215 from 382. I try to do the right thing and I am falling apart. Has anyone here gotten POTS?

Offline Gertrude

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Re: Does anyone have POTS or know about it?
« Reply #1 on: February 18, 2019, 04:48:49 pm »
Am I the only one?


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Offline Alaskan Danielle

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Re: Does anyone have POTS or know about it?
« Reply #2 on: February 18, 2019, 04:53:45 pm »
Am I the only one?

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@Gertrude
Dear Gertrude:
I am so sorry to read of your health concerns.   
I have to admit that I never had heard of POTS.   

I sincerely hope and trust that you can find the doctors and specialists that can come to some firm conclusions about what to do about it and what causes it.


Hugs and well wishes for you!!!!
Danielle

Offline Gertrude

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Re: Does anyone have POTS or know about it?
« Reply #3 on: February 18, 2019, 08:25:50 pm »
@Gertrude
Dear Gertrude:
I am so sorry to read of your health concerns.   
I have to admit that I never had heard of POTS.   

I sincerely hope and trust that you can find the doctors and specialists that can come to some firm conclusions about what to do about it and what causes it.


Hugs and well wishes for you!!!!
Danielle

Traditionally, the used to chalk it up to psychosomatic, and some doctors still feel that way. Not many specialize in it. There can be at least 12 different things that cause it, sometimes multiple things. http://www.dysautonomiainternational.org/page.php?ID=30


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Offline Alaskan Danielle

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Re: Does anyone have POTS or know about it?
« Reply #4 on: February 18, 2019, 09:13:25 pm »
Traditionally, the used to chalk it up to psychosomatic, and some doctors still feel that way. Not many specialize in it. There can be at least 12 different things that cause it, sometimes multiple things. http://www.dysautonomiainternational.org/page.php?ID=30


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@Gertrude
Dear Gertrude:
Thank you so much for sharing the followup information...  very interesting for sure.
I am hoping and trusting that you get these health issues under control with your doctors help.
Hugs and well wishes,
Danielle

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