Author Topic: I need to talk to someone  (Read 6045 times)

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Offline Lexxi

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Re: I need to talk to someone
« Reply #80 on: June 19, 2019, 07:50:31 pm »
Okay everybody I got dibs on F_P_M's cervix. Now all I need is a decent vagina and I can trade my boys away.  ;D ;D ;D
Finally started the process of becoming the real me! 5/20/19
Came out online 5/20/19
First time coming out face to face 6/3/19
First therapist appointment for HRT 6/3/19
Got my letter for HRT 6/10/19
Came out to my mom 6/18/19
Started HRT 7/12/19

Offline Linde

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Re: I need to talk to someone
« Reply #81 on: June 19, 2019, 09:01:40 pm »
Okay everybody I got dibs on F_P_M's cervix. Now all I need is a decent vagina and I can trade my boys away.  ;D ;D ;D
But you have to take the pap smear along with it.  And if you ask nice, you can have my one ovary, too, along with the possibility of ovarian cancer. 


Offline F_P_M

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Re: I need to talk to someone
« Reply #82 on: June 20, 2019, 02:30:01 am »
Lol well apparently my ovaries are nice and non cystic atm so you can have them too! I mean i'm shocked by this but hey, right now apparently they look lovely and fine.
The uterus though, it's totally busted.
Ahh well.

Amore, great news about job but eugh, cosmetic? Seriously?

I know what you mean though, people get strangely precious about those specific organs and parts. Like cis women often have the FIGHT to get hysterectomies because of this ridiculous belief they must have some sentimental attachment to that organ. I've got to go chat with a doctor on saturday about removing mine and it's actually got a major problem, yet I KNOW it's still gonna be a fight to get it just removed even though it's literally the ONLY cure for the problem. It's like yeah sure, it's major surgery and all that, but ultimately it's to avoid ongoing recurrant pain which impacts quality of life and will just get worse so ... surely it's the best option?

Sounds like your situation is similar.

It's frustrating. I mean, they whip out tonsils all willy nilly because they keep flaring up yet they won't take a reproductive bit if you ask and it's causing you ongoing pain and issues? There's this bizarre attitute toward fertility and the preservation of fertility that I find kinda creepy really. Like people only exist to make more people.
Which is really reductive.

I'd get it more if doctors refused or were reluctant because of the risks but that's never the reason they cite. it's always "but what if you want to reproduce later??" and it's like... seriously? That's your priority?

I'm fortunate I suppose to have the ammo of "I have three kids and i'm functionally infertile anyway so just DO IT!" but despite the fact I don't seem to ovulate, am not producing viable lining due to insufficient progesterone and my uterus is pretty severely unwell, plus the fact my husband has had a vasectomy (which they did without ANY question so wth?) I know i'm gonna have to really push for a hysterectomy.
I see no point in trying stop gap measures for pain management when the only solution is removing the bit causing the pain. Like seriously, it's the ONLY cure. But the NHS is gonna be wierd about it because of my age and blah blah blah *eyeroll*

I hope you can find a sympathetic doctor because ongoing pain sucks and ongoing pain in a body part that gives you dysphoria anyway is especially horrible.

Linde> Ahh gotta love those risks. I'm at an increased risk for ALL the "fun stuff" because of my genetic/hormonal disorder. Ovarian cancer, uterine cancer, hypertension, diabetes, heart disease.
Oo yes, goodie.
Metformin and removing the uterus and tubes should help reduce a fair few of those risks though. Apparently a lot of ovarian cancers start in the tubes not the ovary, which is kinda wierd.

Amoré

Re: I need to talk to someone
« Reply #83 on: June 20, 2019, 08:33:12 am »
I know right isn't it actually our own choice if we want the reproduction bits anymore or not I am not interested in having more children as far as I know they are chemically castrated now. I am not interested in their testo production also as I am using biological estro.

So I really have no use for them. They are making my life hell at the moment as the one is so tender I can't even touch it. When they exam it I want to jump through the roof of how it hurts but they are the experts.

I have been on two sets of antibiotics already in the last 3 months it didn't make a difference. Walking far distances even causes pain these days.

At this stage I am just angry going into a new job in discomfort and they have no solutions because 3 weeks of being untucked 90% of the time didn't make a difference.

Offline Linde

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Re: I need to talk to someone
« Reply #84 on: June 20, 2019, 08:42:13 am »

I have been on two sets of antibiotics already in the last 3 months it didn't make a difference. Walking far distances even causes pain these days.

At this stage I am just angry going into a new job in discomfort and they have no solutions because 3 weeks of being untucked 90% of the time didn't make a difference.
You got to find a different urologist, who has no history about your tucking, and ride the pain train.  This is the only way you can convince them that they need to go.
The quality of my live improved dramatically after my orchi.  No pain anymore, no need for testosterone blockers anymore, which alone drove me nuts.  Just a normal, pain free life fueled by estrogen!

Pester them with your pain until they can't do anything anymore but cut!

Good luck with this!
Linde


Amoré

Re: I need to talk to someone
« Reply #85 on: August 30, 2019, 10:28:24 am »
I am back after a crazy 2 months.

update time

I went for my routine implant and we decided to do an ultrasound it showed a tube like structure behind my bladder. I am now referred for an MRI suspecting I am intersex and only sewn up at the bottom or something. I get period pains and the menstrual fluid is just absorbed back into my body again because it can't come out.

Ricki

Re: I need to talk to someone
« Reply #86 on: August 30, 2019, 11:41:43 am »
Hey! Glad you are back and continuing the quest to find things out. One thing that caught my attention you mentioned in passing is the patch of white hair. While not the only reason that could cause this, this is one of the known affectations of Waardenburg Syndrome. Up to your Doc to tell you if that has any relevance on you though.

I hope you are warm, safe, and happy,

Ricki

Amoré

Re: I need to talk to someone
« Reply #87 on: August 30, 2019, 02:07:43 pm »
Apparently it can also be a sign of a person that fused with their twin so don't know really will ask her maybe I have xx and xy

Offline natalie.ashlyne

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Re: I need to talk to someone
« Reply #88 on: August 30, 2019, 02:30:01 pm »
Hi Amore, I can tell you I am intersex I was born male outside,  with ovaries and a uterus, it is a long story of how I found out that I was born like this.
At age 17 I started to bleed and have this weird discharge I went to the Hospital and the did some blood work and it came back that my estrogen levels were him so the doctor said the lab or the tech messed up so he said it was just a fissure not to worry about it and sent me home.

I would bleed every 3-6 months just for 2-3 days till I was 32 When I hit 31 I decided to give up pop I used to drink 16 to 24 cans of pepsi per day. 6 months after giving up pepsi I was starting to bleed more and more it was like every 6-8 weeks for 3-4 days, My coworker/ BFF she told me to get checked as this was not normal and that My breasts were always itchy and hard they were really small but round which are not normal for males. So I finally went to the Doctors office and they did some tests on me a lot of blood work, ct scan, mri, xray, and than sent me to a specialist as my Doctor told me that he does not have enough knowledge to deal with intersex people and that he was always curious I was his first intersex patient. When I found out I was intersex I finally felt whole it was such a weird feeling as know I knew what was wrong/right with me. I have always felt female my self but this was a bonus for me



Offline Linde

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Re: I need to talk to someone
« Reply #89 on: August 30, 2019, 07:13:44 pm »
Hi Amore, I can tell you I am intersex I was born male outside,  with ovaries and a uterus, it is a long story of how I found out that I was born like this.

Did they do Karyotyping with you?  Do you know what chromosomes you have?
I am XX male, and have one ovary, and had one functioning testicle.  I just found out that I have a  hypogonadism condition, and that my body never produced enough Testosterone to make me fully into a male, and I developed mostly female, missing any secondary male sex characteristics.  But I also have a very high Prolaktin level, and could start lactating at any time (I hope not)!


Amoré

Re: I need to talk to someone
« Reply #90 on: August 31, 2019, 01:49:35 am »
taking it step by step at this stage if the structure is something significant then we will pursue other tests. There is no use running away with things at this stage. We don't know exactly what it is as ultrasound images  isn't the clearest and in intersex people it might not be fully developed.So at this stage all of it is still a mystery and we are just taking it step by step. I guess the MRI will reveal all and maybe it was just a big poo stuck there. this is what I think LOL

Offline natalie.ashlyne

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Re: I need to talk to someone
« Reply #91 on: August 31, 2019, 03:13:25 pm »
Did they do Karyotyping with you?  Do you know what chromosomes you have?
I am XX male, and have one ovary, and had one functioning testicle.  I just found out that I have a  hypogonadism condition, and that my body never produced enough Testosterone to make me fully into a male, and I developed mostly female, missing any secondary male sex characteristics.  But I also have a very high Prolaktin level, and could start lactating at any time (I hope not)!

Yes they did and i am xxy 



Offline Linde

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Re: I need to talk to someone
« Reply #92 on: August 31, 2019, 10:04:59 pm »
Yes they did and i am xxy
Hello Miss Klinefelter!  Do you know to which extend you are Klinefelter?  Do you know if you have some other intersex syndrome in addition to Klinefelter? 
For me they came up with four now, it seems that I have a trace of Klinefelter, but they can't find the Y chromosome.  The newest thing they found with me is fetal onset of  hypogonadism.  Which means, the poor excuse of testes I had, could not even produce any decent amount testosterone!
So, if they keep testing you, they may find more surprises.  At the end you have to be glad that they don't declare you to be an alien life forme!


Amoré

Re: I need to talk to someone
« Reply #93 on: September 02, 2019, 09:15:07 am »
So Linde do you get menstrual pains and cycles?

Amoré

Re: I need to talk to someone
« Reply #94 on: September 02, 2019, 09:22:57 am »
Hi Amore, I can tell you I am intersex I was born male outside,  with ovaries and a uterus, it is a long story of how I found out that I was born like this.
At age 17 I started to bleed and have this weird discharge I went to the Hospital and the did some blood work and it came back that my estrogen levels were him so the doctor said the lab or the tech messed up so he said it was just a fissure not to worry about it and sent me home.

I would bleed every 3-6 months just for 2-3 days till I was 32 When I hit 31 I decided to give up pop I used to drink 16 to 24 cans of pepsi per day. 6 months after giving up pepsi I was starting to bleed more and more it was like every 6-8 weeks for 3-4 days, My coworker/ BFF she told me to get checked as this was not normal and that My breasts were always itchy and hard they were really small but round which are not normal for males. So I finally went to the Doctors office and they did some tests on me a lot of blood work, ct scan, mri, xray, and than sent me to a specialist as my Doctor told me that he does not have enough knowledge to deal with intersex people and that he was always curious I was his first intersex patient. When I found out I was intersex I finally felt whole it was such a weird feeling as know I knew what was wrong/right with me. I have always felt female my self but this was a bonus for me

Hi this might sound a bit invasive and out of your comfort zone.The discharge and blood was it in your urine?

Offline Linde

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Re: I need to talk to someone
« Reply #95 on: September 02, 2019, 11:41:20 pm »
So Linde do you get menstrual pains and cycles?
I am way past menopause.  But I do not have an uterus, just one lonely ovary.  I used to have some kind of  a cycle for a few days every month, when i did not feel that great.  But without uterus, I did not have menstrual problems.


Amoré

Re: I need to talk to someone
« Reply #96 on: October 02, 2019, 11:32:09 pm »
I decided to pop in here and tell all what the rat race of my pain lead to. The answer is nothing   ???

I finally had the MRI done the radiologist was a doosh and the ref letter was basically prove I am male so he jotted down all the male bits.

Well I am male and have male bits that I get and know I have a child. I am a software dev and not a doctor so I can't read the images and know everything that is going on there to me it looks like an angry alien.

Well moral of the story I am just a guy down there.  :D

The doc doesn't even look at the pics really the look at what the radiologist wrote and that is it you are labeled. Male pelvis.

This wonderful radiologist didn't even note that I have a cyst the size of a jelly bean. Good man.

I just hate this medical industry because docs don't communicate properly and also bring there personal problems with anyone that doesn't fit the norm in.If I was a normal CIS guy I would have had my cyst taken care off already. But I am transgender and because I have dysphoria I get sub par treatment.

Amoré

Re: I need to talk to someone
« Reply #97 on: October 02, 2019, 11:55:47 pm »
To add a bit more to the story I have been struggling 3 years with migraines upper back pain shoulder blade pain actually lets just put it my whole upper right side arm and everything neck pains and is always in spasm and the joints keeps on popping.

I went to chyros doctors and and and. At times I could not even pick up a kettle they blamed it on anxiety. Told me even the pain is in my head and anxiety is creating pain where it doesn't exist.

Forward 3 years later a month back went to a new physio. Turned out my C5 disc has been slipped for the last 5 years due to a car accident and whiplash and got worse with time. Now I have to get a fusion or they have to burn the nerve or something because of the damage it caused being left so long. This is because I am transgender doctors assumed I have mental illness and my pain is not real. They even blamed it on looking for attention. 

When it comes to genital pain and cyclic pain it gets even worse and I was told to take some pain killers and just accept it because it is anxiety.

We did xrays of my neck the docs look at it and was like no there is nothing wrong see I think it is time you go back to your psychologist.I took this xray to then physio he wanted to do back flips when he saw it and that they just ignored it. Also are you on anxiety medication if you are not I will suggest you get some is a common answer from them.

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