Poll

How satisfied are you with the health care you've received?

Very unsatisfied
3 (25%)
Slightly unsatisfied
0 (0%)
Neutral
1 (8.3%)
Slightly satisfied
1 (8.3%)
Very satisfied
7 (58.3%)

Total Members Voted: 12

Author Topic: Are you happy with your health care?  (Read 631 times)

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Offline Devlyn

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Are you happy with your health care?
« on: May 06, 2022, 09:12:56 am »
How do you feel about the health care that you have or have not received? I just left the poll as a simple 1 through 5 choice, but feel free to expand on what you liked/didn't like about your experiences.

I voted 5, I think the care that I received was top notch. I went through Fenway Health, an LGBTQIA+ clinic in Boston. They use a WPATH approved informed consent protocol. I received an appointment one week after contacting them and had HRT prescriptions one week after that. I had surgery with Dr Oates in Boston seven months later.

Dr Oates is a world class urologist, and his waiting room was a highly amusing experience for me. The several times I was in his office there was a mixed crowd of transgender women and confused looking old men, seemingly unsure if they were in the right place.  :laugh:

Please share your experiences, too.
Veteran, US Army

Offline Allie Jayne

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Re: Are you happy with your health care?
« Reply #1 on: May 06, 2022, 08:18:46 pm »
Let me see, my psychologist had to write a letter to my endocrinologist telling him his hormone regime was putting me at risk. My endocrinologist kept citing WPATH recommendations that older trans women be kept on post menopausal (very small) doses, and this is based on a 20th century study called the Women's Health Initiative which is widely discredited as it was based on synthetic hormones with higher risks, which are rarely used any more. When it came time for my surgery letter, my WPATH registered psychologist, who claimed to have treated many trans people, had no idea how to write the letter, so I wrote it for them. Then we discovered she didn't have the required level of qualification, and had to find a non WPATH clinical psychologist to write my letter again and sign off on it having never seen me.

My WPATH registered surgeon demanded I stop hormones in the perioperative period, and wouldn't read the latest research papers I gave him, and as I predicted, I became very sick in my recovery days with menopausal symptoms causing me to have severe headaches, light intolerance, and sweats so bad my heat rash was bleeding into my sheets! His trans specialist head nurse apologised for the treatment I was given, and quit after I recovered from this unnecessary ordeal.

As I made further enquiries of health professionals i discovered a complete lack of training in Trans care, some saying to me it was mentioned in a lecture about LBGTQIA people which focused on AIDS. Most doctors are working from old texts about cis people. The American Psychiatric Association last year admitted that trans was a medical condition, and that for years they maintained they could diagnose it as psychological so we would have access to funding! And this does raise the huge problem that now, there is no accepted diagnosis for being trans, and so our very existence is constantly debated.

I was recently involve in a survey study by Melbourne University which showed that over 75% of more than 1000 respondents were unhappy with their treatment due to lack of training and knowledge, and lack of available health professionals to treat trans people, leading to months, if not years of delay. Technically, we can get GAS on our national health scheme, but practically, there are no surgeons who will work for the government rate, meaning if you can't afford private health cover, and co payments of $30,000, you simply can't have these life saving surgeries, and yes, people die every year because they aren't rich enough.

I was lucky enough to be able to pay my way, and access a gynecologist who focuses on trans care, and does read the latest research papers, and now I am getting the care I need, but I have had to talk people down from doing tragic things because they can't. So I think it's safe to say I am very dissatisfied with the Health Care of trans people, and I know in many countries it's worse than here in Australia.

Hugs,

Allie



 
1958 Knew I should be a girl
1961 Told my mother I was a girl
1976 told my fiance I was trans
1999 told my 2nd wife to be I was trans
2000 began being me at home
2018 Dysphoria made me seriously sick
2019 started HRT, not sick any more!
        Started electrolysis
2020 Full time, legally Me!
2021 Labiaplasty
        Divorced again and on my own

Offline Jessica_K

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Re: Are you happy with your health care?
« Reply #2 on: May 06, 2022, 08:25:39 pm »
I have voted 1.
The NHS is going from bad to worse. There is NO NHS transgender support in the UK, GP’s wash their hands of gender issues by spouting they can do nothing but refer you to a GIC, and they are gate keeper ensuring you are kicked into the long grass. I despair

Jessica xx

Offline Allie Jayne

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Re: Are you happy with your health care?
« Reply #3 on: May 06, 2022, 10:53:01 pm »
I have voted 1.
The NHS is going from bad to worse. There is NO NHS transgender support in the UK, GP’s wash their hands of gender issues by spouting they can do nothing but refer you to a GIC, and they are gate keeper ensuring you are kicked into the long grass. I despair

Jessica xx

Jessica,   I so feel for you and all those on inadequate public health systems around the world! Canada is also really slow to get anything done, and in Germany, you need to pass the real life test before you qualify for treatment, this means living a year in your true gender before you can have the benefit of hormonal changes! I have friends in the US who are not covered for trans treatments under their company's insurance, so they either pay their own way or have to find other employment, often in another state. I know people who are getting basic treatment from the VA, but are in despair waiting for surgery to be covered.

If this were just an inconvenience, it wouldn't be so bad, but a good percentage of the more than 40% of suicide attempts in our communities can be attributed to poor or non existent health care. People are dying from this, but it is not a statistic our governments or health services would ever allow publicised as they are responsible. I hope things might improve as humanity becomes more enlightened, but I'm not confident it will.

Hugs

Allie

 

1958 Knew I should be a girl
1961 Told my mother I was a girl
1976 told my fiance I was trans
1999 told my 2nd wife to be I was trans
2000 began being me at home
2018 Dysphoria made me seriously sick
2019 started HRT, not sick any more!
        Started electrolysis
2020 Full time, legally Me!
2021 Labiaplasty
        Divorced again and on my own

Offline Rakel

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Re: Are you happy with your health care?
« Reply #4 on: May 07, 2022, 07:14:53 am »
I voted very satisfied.

I have a very comprehensive health insurance policy, but even with this, I had to pay for most of my own gender related medical care. Fortunately, for me those costs were acceptable. In the US, we have many providers and if one provider is not able to provide a service, there is always another who will.

The only real question is, "Who pays?". Money talks and without money, we have sparse resources and finding them where a person needs those resources is often a challange, even in the larger cities.

The fundamental problem is this, when we buy health insurance, we are sharing the risk of needing those services with all the other people who have purchased health insurance. These are limited funds. Only a certain amount of money is available to provide all the services covered in that policy. When the number of services is increased, the costs for that insuranse company increase as well and the premium (the monthly cost for any insurance policy) increases as well. Affordable health insurance has limited covered services. This is called rationed care and transgender related services are very low on the priority list for many of the lower cost health insurance policies.





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Retired Pharmacist with over 40 years experience in Hospital and Retail Pharmacies.
I still keep my professional licence active and in good standing.


Offline pamelatransuk

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Re: Are you happy with your health care?
« Reply #5 on: May 07, 2022, 08:17:54 am »
It's a quite simple dividing line here in the UK.

You get a very good service if you are fortunate enough like me to have the assets and go private and carefully choose your providers.

If you select NHS for Transgender Care, you wait and wait and wait and wait before you have any chance of receiving it and this has been the lamentable position for the last 5 years meaning well before Covid-19. Pathetically funded and given low or zero priority.

Hugs

Pamela xx


Offline SarahEL

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Re: Are you happy with your health care?
« Reply #6 on: May 07, 2022, 07:41:14 pm »
I voted very dissatisfied.. because I was relating to the state of the NHS in the UK..   my care with private doctors and surgeons here in the UK has been excellent.. but with a national health service, that we all pay for, it should not come down to being a case of who can afford care..

I have severe endocrine issues and had to take estrogen before I declared I was female. Testosterone was just causing major health issues and I had to have something.. That was a stretch, but the NHS eventually agreed to this course of medically necessary treatment.. but when I declared I was transsexual, they declined to offer me any more treatment or service.  Stating they were not sufficiently trained to treat trans people and so directing me to either a 3 year wait on the NHS to see a gender therapist or go private.. I need to state that I needed HRT for medical, not transition, reasons.. and they denied me treatment.. I really should take the NHS, and especially the endocrine dept that decided this, to task legally.. but I have neither the time, money or inclination.

Don't get me wrong, I love the NHS.. I think it is a great system and works when it has proper funding.  I would much prefer it over the system I am emigrating into within the USA.. with insurance and money being the primary care factors.. But for trans care, the NHS in the UK falls way short of even acceptable.
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Offline EllenW

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Re: Are you happy with your health care?
« Reply #7 on: May 08, 2022, 11:06:42 am »
I voted very satisfied. I have a very good primary care doctor who took over the practice of the doctor I had for over 30 years. All the specialists I have worked with are very experienced dealing with transgender patients and come recommended by the OC LGBTQ Support group. On top of that I have an excellent therapist that is a member of the LBGTQ community. I could not ask for better care.

Ellen
Known all my life I was different
Started to live part time as my true self in 2010
HRT January 2018
Full time at work February 2018
Legal name and gender change January 2019
GCS - January 2021
BA - November 2021
Blog - https://www.susans.org/forums/index.php/topic,255685.msg2442139.html#msg2442139

Offline Jessica_K

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Re: Are you happy with your health care?
« Reply #8 on: May 08, 2022, 02:06:47 pm »

but when I declared I was transsexual, they declined to offer me any more treatment or service.  Stating they were not sufficiently trained to treat trans people and so directing me to either a 3 year wait on the NHS to see a gender therapist or go private.

This seems like a stock answer, Almost seems like they are instructed not to help but force you to go private

Jessica xx

Offline SarahEL

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Re: Are you happy with your health care?
« Reply #9 on: May 08, 2022, 02:18:58 pm »
This seems like a stock answer, Almost seems like they are instructed not to help but force you to go private

Jessica xx

Jessica, you are not wrong.  There was no reason m=for my endocrine to turn me away due to change in my gender status.. nothing else had changed..  But their instructions from whoever is in control is.. any trans patients must be seen through GIC's...

and then we get onto the GP situation..  Some GPs will honour HRT suggestions from private endocrines and prescribe what is asked of them.. some GP's can decide that they 'do not want to treat trans patients' and so not produce prescriptions..
I was asked by my endocrine (the private one) to ask first.. go to my GP and see what his views were.. when I did call my GP.. he gave me a long lecture about how he 'would not prescribe to under 16 year olds'.. I mean.. I was 50 at the time.. and I informed him that he would never in the UK be asked to prescribe HRT to under 16s only hormonal blocking drugs.. and then they would be prescribed elsewhere....

Whilst I would not go so far as to say it was a phobic culture (transphobic).. I would say that all the NHS doctors are scared.. maybe of litigation.. of trans patients.. and there is a clear effort to not let anyone who may be transsexual obtain treatment without going through a GIC.. which would be okay if there was not a 4 year wait list ...

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Offline Margrit

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Re: Are you happy with your health care?
« Reply #10 on: May 08, 2022, 02:40:43 pm »
Hi everyone

I voted: Very satisfied

Best wishes
Margrit
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even if you don't want to,
then you love him.

Offline Jessica_K

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Re: Are you happy with your health care?
« Reply #11 on: May 08, 2022, 02:52:51 pm »
@ sarahEL
And transgender patients are loosing there lives because of it. With women heath issues being very much in the fore, we are being pushed further back in funding. And there is no doubt that the current government is transphobic.

Jessica xx

Offline SarahEL

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Re: Are you happy with your health care?
« Reply #12 on: May 08, 2022, 03:04:48 pm »
Posted from gic.nhs.uk

Recent waiting list figures:

Number of people on our waiting list: 10,981

Number of referrals received in the month: 293

Number of first appointments offered in the month: 38

Total appointments offered in the month: 962

We are currently offering first appointment to people who were referred in: December 2017

The data above is for January 2022.




That's a waiting time of 4 and a half years to your first appointment...  It is criminal.

Sent from my Intellec8

Oh, life is bigger,  It's bigger Than you and you are not me
The lengths that I will go to.  The distance in your eyes

R.E.M. - Losing My Religion

Offline JanePlain

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Re: Are you happy with your health care?
« Reply #13 on: May 08, 2022, 03:46:56 pm »
I was a bit torn because I have had some superb doctors.  My GP, urologists, Cardiac surgeon and Endo that I think are the best of the best.  Between them I've lost count of how many times they have pulled my fat out of the fire. On the flip side I've had a few bad eggs that had I gone along with what they were telling me? I know for a fact I would be dead years ago.  Oh and one surgeon who was quite good at surgery but sort of lacked people skills but I'm told thats why medical students opt to become surgeons.  They don't want to talk to the patients Ha Ha.

In addition I currently have insurance that I'm quite pleased with and I've very little to complain about yet... I used to have insurance that was beyond horrible and I think evil based on the people I dealt with and their system... Ugh The computer software that determines who is in network and so on written by idiots and nothing I could do (working in the system talking to them) had any effect so I had to humiliate them in public to get them to "Un bill" me. 

I've don't have any personal experience with the national health care in Canada and the UK so its just an observation based on what I read and hear, but I'm pretty sure that with my medical issues in either system I would be long dead. I understand how people want it to be "fair" and have a right to healthcare and feel a national pride for it or just feel superiour to systems like the US that has this weird "Casino / Gambling insurance company approach" but if health care is provided in a way that is screwed up and makes people pay both for it and private care when they actually need it? Seems like a raw deal...  And "Free" heathcare for all doesn't seem (to me) free if your being taxed up the wazoo for it. 

Its easy of course to find fault so I admit I'm probably all wrong about this.  In general I think the real problem with all this is the vast amount of money changing hands by people that are not patients or doctors.  Just people creating laws and running pretty crooked organizations that make everything so expensive and create so many drugs that don't cure anything but need to be taken twice a day at a cost thats right up there with the price of gold.  And with SO much money involved you know its going to be near impossible to get it changed.
"This world is but canvas to our imaginations.
Henry David Thoreau - (1817-1862)

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