Author Topic: Intersex in the VA  (Read 560 times)

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Offline Bobbijean

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Intersex in the VA
« on: June 30, 2022, 12:33:59 pm »
Hello all!

The good news is that yesterday I was officially diagnosed with gender identity dysphoria.  I will be referred to an endocrinologist for feminizing hormone therapy, a voice coach, and prosthetics for a wig.

However, I believe I was born with intersex conditions, which caused surgery on my genitals at age two.  I'd really like to know if I'm intersex before starting hormone therapy.  Who should I talk to about this?  My primary care provider?  The endocrinologist I am being referred to?

Lastly, I really believe I should have a therapist.  How do I get an appointment with a therapist?  Again, primary care provider? Or, directly contact mental health?

Thanks!

Hugs...

Bobbi

Offline Rakel

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Re: Intersex in the VA
« Reply #1 on: June 30, 2022, 08:21:21 pm »
In the VA health system, all referals go through your primary care team. Since you were diagnosed with gender issues, you should have already been seeing a therapist, as those are the people who make that kind of diagnosis.

An intersex condition just means that you have the chromosomes typical of one gender, but did not physically develop in a typical manner. You may also have a chromosome abnormality which can be easily diagnosed by a simple blood test. Your primary care can order this test, as well as just about any other specialist who's care you are under.





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Offline SarahEL

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Re: Intersex in the VA
« Reply #2 on: June 30, 2022, 09:37:37 pm »
Intersex surgeries leave scars.. quite noticeable ones and sometimes areas of insensitivity .... These surgeries are preformed on very small children so a stich is huge in comparison to an adult. I would suggest if you have had surgery you would know about it.

@Rakel... As someone with a non-normal chromosomal makeup.. I do rather find offence in being called an abnormality...
Imagine if those words were used on here for gender issues??
Oh, life is bigger,  It's bigger Than you and you are not me
The lengths that I will go to.  The distance in your eyes

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Offline Bobbijean

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Re: Intersex in the VA
« Reply #3 on: June 30, 2022, 09:39:30 pm »
I have those scars.

Offline Allie Jayne

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Re: Intersex in the VA
« Reply #4 on: July 01, 2022, 05:07:16 am »
I believe it's really hard to get a positive diagnosis for intersex. Few providers will pay for the tests required, and the knowledge of genetic variation has increased recently, so the definitions keep coming under challenge. To get an idea of the complexity google Sex and Sensibility a YouTube video which explains this so well!

Hugs,

Allie
1958 Knew I should be a girl
1961 Told my mother I was a girl
1976 told my fiance I was trans
1999 told my 2nd wife to be I was trans
2000 began being me at home
2018 Dysphoria made me seriously sick
2019 started HRT, not sick any more!
        Started electrolysis
2020 Full time, legally Me!
2021 Labiaplasty
        Divorced again and on my own

Offline Rakel

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Re: Intersex in the VA
« Reply #5 on: July 01, 2022, 05:45:02 am »
@Rakel... As someone with a non-normal chromosomal makeup.. I do rather find offence in being called an abnormality...
Imagine if those words were used on here for gender issues??

Sarah, I appologize if I offended you. In my defense, I did not call you abnormal. I was refering to the chromosomal condition as abnormal.

In the medical community, abnormal is the same as not being normal or non-normal.




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Offline SarahEL

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Re: Intersex in the VA
« Reply #6 on: July 02, 2022, 04:02:06 pm »
I have those scars.
.

Much like the term 'transgender' .. the term intersex covers a lot of ground. Basically any small variation from a binary norm in either biochemistry or physiology would determine someone intersex.
Understanding your own issues and more importantly what has been done to you is important.
I tried chasing the hospital I underwent surgeries at and drew a blank despite there being obvious issues. 48 years is a long time in hospital record keeping, especially when it was all digitised from the 90's onwards.
The 'good' news is that intersex conditions do not preclude or vary much any sort of transition. regardless of what those intersex conditions may be. Endocrinologically speaking there is only one goal, to override your bodies natural production (whatever that may be) and replace it with the desired hormonal levels of the gender you wish to live as.. your genetics barely makes a different to the method (though it may affect the end result)
good luck with your journey.
Oh, life is bigger,  It's bigger Than you and you are not me
The lengths that I will go to.  The distance in your eyes

R.E.M. - Losing My Religion

Offline SarahEL

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Re: Intersex in the VA
« Reply #7 on: July 02, 2022, 04:05:22 pm »
Sarah, I appologize if I offended you. In my defense, I did not call you abnormal. I was refering to the chromosomal condition as abnormal.

In the medical community, abnormal is the same as not being normal or non-normal.
.
Much the same as my 'medically correct' abnormal gender issues?
As I said, in a public forum we have to be very careful about labels we assign to groups of individuals.. thank you for your apology.. I know you meant no offence, but thought it important enough to highlight.. as I have been repeatedly referred to as  abnormal, different, weird, strange and worse.. all words that alienate me from the human being that I so obviously am.
Oh, life is bigger,  It's bigger Than you and you are not me
The lengths that I will go to.  The distance in your eyes

R.E.M. - Losing My Religion

Offline damalie

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Re: Intersex in the VA
« Reply #8 on: July 29, 2022, 03:50:43 pm »
In my experience with VA transgender services, Klinefelters testing is uncommon.
My story is differently the same as yours.  Histories and tales posted here are not fiction, nobody could dream this *stuff* up.  What a book this would make!  Do you really wonder at why any of us did or did not "express" as a child...perhaps the tears streaking my cheeks at the moment tell all.

-Richelle
Sprio/HRT 2017-Present

Offline Bobbijean

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Re: Intersex in the VA
« Reply #9 on: September 22, 2022, 12:53:39 pm »
Hi all!

I believe that I may have been born intersex with Partial Androgen Insensitivity Syndrome (PAIS). I documented the forensic evidence of possible PAIS here:

https://www.susans.org/forums/index.php/topic,259742.msg2463761.html#msg2463761

The health care providers at the VA seem completely disinterested.  They're more than happy to prescribe estrogen therapy, but no interest at all in my potential intersex condition.  My LGBT+ Care Coordinator is a psychiatrist that appears to be lazy and disinterested.  Are there testing regimes that can test so that I may find out for sure?  I have been diagnosed with Gender Dysphoria, but I would like to get to the bottom of the intersex issue before medical transition.  Any suggestions you can provide are most helpful.  Any suggestions to navigating the VA?

Hugs...

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