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Metoidioplasty Journal: 6 Months Post-Op

Started by Ender, July 31, 2011, 06:20:03 PM

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myles

"A life lived in fear is a life half lived"
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Ender

#21
You're welcome, guys.

I'm just happy somebody's finding my ramblings useful, lol.  Actually, here are a couple more accounts of bottom surgery that I am finding very helpful:


This blog covers pretty much all aspects of transition; this link is to all the posts on bottom surgery (currently updated to 5 months post-op): http://toyneboi.wordpress.com/category/bottom-surgery/

Very detailed, well-organized account of the first 2 months post-op: http://quirkycalm.wordpress.com/

Highly detailed account of all aspects of bottom surgery, including revision experiences: http://www.ftmtransition.com/transition/bottomsurgery/bottomsurgery.html

Cost breakdown and journal of surgery/recovery: http://www.ryansallans.com/metoidoplasty.html


All of these guys are metoidioplasty patients who went to Dr. Miro and his team.

"Be it life or death, we crave only reality"  -Thoreau
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wheat thins are delicious

Thanks for keeping this journal.   It's great for you to make this resource available to others. 


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Ender

"Be it life or death, we crave only reality"  -Thoreau
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Ender

About the Vaginectomy

The type of vaginectomy that I had is technically termed 'colpocleisis.'  From what I understand, it involves laser ablation to remove the vaginal mucosa.  As this heals, the vaginal cavity seals shut.  The muscles surrounding the former vaginal cavity are left in place.  After the initial post-surgical bleeding (for which a drain is placed), there will be no more fluid discharge, so the former vaginal site can be stitched closed to create a male-typical perineum.

Apparently, the team has had a high rate of success using this technique: blood loss is minimized and the need for a transfusion is rare.  Colpocleisis is also used to treat vaginal prolapse in elderly patients who have no plans for future sexual activity.

I experienced some discomfort from this area during the first week or two post-op.  The biggest problem seemed to come from sitting in such a way that pressure was put on the closure.  Laying down, slouching, sitting on a donut, or standing up for a while alleviated the discomfort.

Post-Op: Day 25/26/27/28/29 (August 26/27/28/29/30)

I am eagerly awaiting next week (week 4), when I expect to be able to start using my urethra.  Last week (week 3), I really was not feeling like I was ready, given the urethral bleeding that I was still experiencing.  The urethral bleeding appears to have stopped, giving way to an occasional transparent yellow liquid discharge (that I hope is not indicative of an infection).  This fluid reminds me of the discharge one might get from a healing wound (like a scrape on the arm) after bleeding has stopped and healing is underway.  It is slightly sticky and may be lymphatic fluid.

Despite trying to go without the catheter bag during the day since I got home from Belgrade, I know my bladder capacity has greatly decreased over the past month.  Happily, everything appears to still be in working order, as I was woken up in the middle of the night by a strong urge to urinate.  I checked for bends in the suprapubic catheter; because of its small diameter and flexibility, it tends to bend and prevent drainage.  I tape it flush against my abdomen for nearly its entire length to prevent that from happening, so that wasn't the problem.  Apparently the catheter bag was folded over onto itself, blocking the entry point.  Repositioning it flat fixed the problem.

I'll be glad when this catheter is out of me.  Before I started taping the entire tube down, I got it caught a couple times--let me just say, yanking on a tube that enters one's abdomen and is stitched in place does not feel good.  I was worried that I had pulled the tube out of place prematurely, but the stitches are very strong and held it in place.

The catheter bag also developed a leak, but thankfully I had already picked up a couple of spares at a medical supply store.

Post-Op: Day 30 (August 31) - Trying Out the New Urethra

A few days ago, I sent Dr. Miro an e-mail updating him on my healing progress.  He said that I could begin urinating today.  He said that, at this point, spraying and burning would be normal.  If there are any leaks, however, I am to stop using the urethra and resume using the catheter.  If there don't appear to be any leaks, I am to use the urethra for 3 days and if all is still good, I can remove the suprapubic catheter.  Once the catheter is removed, I can start taking the Cialis and start pumping.

So today, I hopped into the shower with a hand mirror and proceeded to try things out.  The stream went sharply to the right and there was indeed spraying, since my penis is still very swollen and has a stitch right at the urethral exit; I'm sure the fact that my penis is still very much retracted into the mons pubis wasn't helping matters, either.  There was dripping/runoff which made it a little difficult to determine leakage.  As far as I could tell, though, the perineal area had no fistulas.  I voided through the urethra an additional two times today and still could not detect any unusual leaks.  Urine comes out with a strong stream, so I don't think I have any strictures.  Burning was minimal as I was well-hydrated.

The biggest annoyance is that the swelling on the underside of my penis forms a sort of ramp from my urethra to my scrotum and I get urine dripping off of my right nut and onto my leg.  I pretty much need to take a shower after peeing; how convenient, since I am already in the shower.  The spraying and dripping are going to have to resolve before I even think about standing at a toilet or urinal.  I haven't tried sitting yet.

In other news, I am able to walk for longer distances with my legs slightly closer together (I still walk like a cowboy, though).  My scrotum no longer aches due to walking.  I am able to sit up straighter without feeling pain, though I still prefer soft surfaces.
"Be it life or death, we crave only reality"  -Thoreau
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sneakersjay

Congrats!

It took me a long, long time before I could even think about standing to pee.  Like >9 months.  So be patient!  Your stream will change a lot as things heal up.

Also, I found pumping way too painful.  Even several months out.  I admit I have only pumped a handful of times since surgery.  My main problem is getting a good seal with the cylinder; it doesn't seem to fit well with my configuration but it might work well with yours.

If it is too painful I'd say wait.

Somewhere on here I posted my healing ordeal.  My perineum took forever to heal; Dr. Miro thought maybe because of sweating (I had surgery in the summer, too).  I had to keep gauze on that until it finally healed 4 months later.  It was an annoyance for sure.

Glad things are going well for you.


Jay


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Ender

Thanks, Jay!

I just hope I'm at least able to sit on a toilet to pee.  Seriously, my stream shoots straight forward about 12"--I think I might miss.  This should be interesting; today's little challenge.

I've tried just putting my cylinder over my penis (no actual pumping out), and I think I might be able to get a seal.  It's 1" ID, 1.25" flared base.  I think I'll need to push the skin burying my penis out of the way, but I had to do that before surgery, too.

I'm mostly worried about pulling on the remaining stitches because I'm not 100% sure all the incisions have healed over yet.  I'll be careful, but I think I'm pretty much going to have to get pumping as early as possible.  The retraction I have is just ridiculous and it's getting worse, not better.  My penis pulls out, but it's now wanting to invert itself into my body--I can literally pull it out a bit and watch it slowly retract back in.  I don't want it to scar over and heal in place like that.

Yep, I've read your post several times (thanks).  The sweat definitely has something to do with it.  My perineum seems to be healing over OK since the rash, but I've been spending my days in boxers with a fan blowing on the area to keep it dry.  However, the bottom of the incisions where the balls were inserted rub against the inside of my thighs--those are still pretty raw looking, whereas the upper part of the incision that is not in a sweaty crease is healing over nicely.  Ah, healing.
"Be it life or death, we crave only reality"  -Thoreau
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sneakersjay

Now you have to learn to sit to pee like a guy.  Pants all the way to your ankles, knees wide apart, and because our dicks are small, you need to lean forward a bit so the stream goes down and not out, or not under the seat and onto floor.  BTDT. 

If you've got no leaks, that's the main thing!  The rest is healing and learning curve.


Jay


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Ender

Quote from: sneakersjay on September 01, 2011, 05:16:41 PM
Now you have to learn to sit to pee like a guy.  Pants all the way to your ankles, knees wide apart, and because our dicks are small, you need to lean forward a bit so the stream goes down and not out, or not under the seat and onto floor.  BTDT.

You are correct, sir!  LOL, yeah, that method works.  I had to do some of that pre-surgery due to a stream that shot forwards (tended to go under the seat and onto the floor or my pants).  The new change is that I now need to lean even further forward.  It's not as messy as I was expecting, thankfully.

I'm still not seeing any leaks, though it's kind of hard to be sure with the runoff.  I need to work on a new STP to isolate the stream.
"Be it life or death, we crave only reality"  -Thoreau
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Ender

Post-Op: Day 31/32 (September 1/2)

I never thought I would be this happy to be able to sit to pee.  A few days ago, I was worried that the 'stand and make a mess in the shower' method would be my only method of voiding until the swelling goes down.  Happily, with some adjustments of technique, I'm able to sit without making a mess.  If I sit with my pants around my ankles, knees spread far apart, and leaning forward, all is well.  There is a little runoff requiring wiping but nothing like if I am standing.  Occasionally, however, the stream will veer sharply to the right and hit the inside of my thigh, which is annoying to clean.

Voiding in the sitting position felt strange at first and I was very aware of the urethral extension.  It almost felt a little 'tight,' but it's hard to describe and the flow of urine did not appear to be impeded.  The burning is very slight and the most uncomfortable part is at the tip of my penis, right at the urethral exit.  It's not painful, just different; sensitive, pretty much how it should feel to have a strong stream of fluid exiting the sensitive glans, I guess.

After voiding, there is a little bit of fluid left in the urethra which is easily drained by pushing the balls forward and up.

TMI ALERT: The urine is now clear but the first time I urinated, it was a little cloudy and mixed with small white chunks.  Nasty--but apparently harmless and probably a result of healing and disuse.

Post-Op: One Month Summary

Pain:
-I have not taken pain pills since the start of Week 3
-My scrotum has only minor, occasional aches
-I occasionally get sharp twinges of pain in my penis; the stitches may be poking sensitive flesh

Mobility:
-My days are still spent mostly sitting/reclining on a soft surface; I can do light chores around the house (food prep, laundry) and go on short walks outside
-I can take short walks (<1 mile) with no soreness
-During longer walks (>1 mile) my scrotum becomes sore
-I am walking with my legs slightly closer together than two weeks ago, but still walk like a cowboy
-My movements (when getting up, bending down, getting into a car, etc) are still guarded, but more normal and easier than a few weeks ago
-I have not tried driving yet
-I can ride in the passenger seat with little issue; I still prefer a slightly reclined seat but do not need the donut
-I am still sleeping on my back

Voiding:
-I began voiding on post-op day 30 and appear to have no fistulas or strictures
-I still have the suprapubic catheter but do not use it during the day; I still connect the bag at night
-I am maintaining a high level of hydration to prevent burning during urination
-I need to urinate about every hour
-The more I use the urethra, the less it feels strange; burning is slight and is decreasing with use
-I can urinate sitting without making a big mess; toilet paper is sufficient for cleanup
-I need to push the testicles up and forward to coax the last few drops from the urethra; if I do this, there is no dribbling in my underwear
-I can only urinate standing in the shower due to runoff and need to clean up

Healing:
-Since I started using the urethra, I am no longer noticing yellow discharge or blood
-There is little to no yellow discharge from the perineal incision and no blood
-I still have visible stitches along the perineal incision, implant insertion sites, and penis
-The prickly tied-off stitches on the penis and perineum are annoying but I am no longer having itch-attacks
-I am not pumping yet
-My penis and scrotum are still swollen but not as much as a few weeks ago
-The buccal mucosa graft site continues to heal; I no longer feel stitches, but the area is still lumpy; it is not painful and I can brush my teeth normally

Other:
-About a week ago I noticed that my teeth had a brown film on them, despite brushing daily.  I thought this was odd, because my teeth have always been in great shape.  Some searching revealed that brown spots on teeth can be a result of the antibiotic Augmentin (generic Amoxicillin Clavulanate), which I am currently taking.  It didn't sound like it was harmful to adult teeth, just difficult to remove.  I switched from a soft-bristle to a hard-bristle toothbrush and used my fingernails on some of the stubborn spots.  This mostly took care of the problem; I still have some spots between my teeth (flossing didn't help much) and on the back molars that might require professional cleaning.
"Be it life or death, we crave only reality"  -Thoreau
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wheat thins are delicious

i love that you updated with a one month summary.  Will you continue to update throughout your healing process? 


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Ender

Quote from: Andy8715 on September 02, 2011, 11:55:51 PM
i love that you updated with a one month summary.  Will you continue to update throughout your healing process?

Yep, I'm planning on it.  I'm not sure how long I'll continue updates since I'm not sure myself how long it will take until I consider things 'done' (swelling finally goes down, stream evens out, and I figure out how to STP).  Updates will probably become fewer and farther between as I run out of things to report, but there's still plenty happening healing-wise these first few months.
"Be it life or death, we crave only reality"  -Thoreau
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Ender

#32
Post-Op: Day 33/34 (September 3/4)

This whole post concerns orgasms and pumping, so if this is TMI, read no further.

Post-op orgasm #1 was on day 33.  Since I had no evidence of urethral fistula for three days and was technically cleared for pumping, I figured it would be safe.  I kept stimulation to the head only because I wanted to avoid disturbing any lingering stitches on the shaft.  Compared to pre-op, everything felt a lot more localized to the penis.  Before and despite not touching those areas, I would get a lot of peripheral stimulation to areas I didn't like feeling.  So this was an improvement.  Oddly, I felt burning in the former vaginal area, so perhaps trying things this early was a bit premature.  I felt no pain, however.

I pumped for the first time on day 34 post-op.  I can get a seal with the cylinder I used pre-op (1"ID, 1.5"D flared base, 3.875" long) but can't pump out nearly as far.  Pre-op, I measured 2" when pumped in the cylinder.  I didn't measure this time, but I would be surprised if I even reached 1".  I couldn't apply much pressure because I felt pulling at the stitches that are still at the base of my penis.  On the up side, no stitches ripped and there was no bleeding or pain.

My penis doesn't fill the diameter of the cylinder like it used to, leaving room for the swollen underside to expand.  I think this cylinder may be good once the swelling goes away and my penis heals into a normal shape, but for now I think I would benefit from a smaller cylinder.  I'm getting one that is 0.75"ID, 0.875"D flared base, 3.125" long; hopefully that will keep the swollen tissue from enlarging further.  The next size down is 0.5"ID, 0.625"D flared base, 3" long; I think that would be too constricting, since the head of my penis measures slightly larger than 0.5" in diameter.

BELOW LINKS ARE NSFW:
I purchased the cylinders here: http://www.extremerestraints.com/nipple-and-pussy-pumps_221/clitoral-enlargement-cylinder_1247.html

And I purchased my pump here: http://www.extremerestraints.com/penis-pump-accessories_220/deluxe-metal-penis-pump_407.html

There's also a kit with all three cylinder sizes plus a pump but I wanted an all-metal, not plastic, pump: http://www.extremerestraints.com/nipple-and-pussy-pumps_221/clitoris-enhancer-clit-pump-kit_1248.html

I've had both the metal pump and large cylinder for 2 years and can attest to the build quality of both.  The cylinders are Vac-u-Loc, so the pump can be detached and the cylinder will still keep pressure (useful for extended pumping sessions).  I use a water-based lubricant inside the cylinder to reduce friction while pumping out.

Despite the penile 'workout' of the past two days, I still have no evidence of urethral fistulas.

Post-Op: Day 35/36 (September 5/6)

It is evident that I no longer need the suprapubic catheter and I have an appointment on September 7th to have it removed by a local urologist.

For now, I have been pumping with the simple syringe pump that Marta gave me.  I am able to pump a little more out compared to the first time and it is also easier to pump.  The penis seems less tight/shriveled and more willing to stretch; I suppose that would be the scar tissue softening.  However, it's still nowhere near as much as I used to be able to pump out and it doesn't pump out as easily, either.  Hopefully with time comes improvement.

Miro sent an e-mail inquiring about how voiding went.  I said it was very good, all things considered, and I told him about the appointment for the suprapubic catheter removal and asked how long I was to take the antibiotics (Augmentin) after catheter removal.  He replied with 3 days and again reminded me to pump regularly (oh I am, believe me... obsessively, almost). 

Post-Op: Day 37 (September 7): No More Catheter

Today I got the suprapubic catheter taken out (yes!).  So overall it was a very good day but also kind of upsetting.  Nothing bad actually happened, but it was a day of 'outing,' getting half-naked, and general awkwardness for me.  Throw in my anxiety about my penis appearance--not due to its actual size so much as the fact that, right now, it looks like I have no shaft--and it made for an unsettling day.

My P.A. called the urologist before surgery to make sure that he would not have an ideological problem with treating me after metoidioplasty.  I found out that while he is directly across from the local Catholic hospital, he is not affiliated with them and would have no problem seeing me.

I went to the urologist's office and everybody was really very nice and respectful.  The doctor (who is both a urologist and a urological surgeon) and his P.A. did seem somewhat curious about my case, but were professional.  I had the papers from Dr. Miro describing what was done during surgery as well as the photo CD of surgery, which helped.  Here's why: when the doctor came in, one of his first questions was if I had the erectile device implanted yet.  Clearly, he was expecting a phalloplasty.  He looked at the photos on the CD first and commented that the final post-op photo looked like very neat work (maybe in regards to placement and how cleanly the incisions were stitched--how do surgeons judge these things?).  He also commented on the surgical 'drape,' saying that it looked like cloth and that disposable paper is used in the U.S.  He inquired about the hospital quality in Serbia and seemed surprised to hear that the facility I went to was recently built, very clean and modern-looking.  He recognized Dr. Djordjevic's name and said that he knew about Miro's contribution to hypospadias repair--something about a conference in Philadelphia.  So that was cool that he had heard of my surgeon, but I don't think he was familiar with metoidioplasty.  One of his questions, in looking at the photos, was 'why did they leave just the glans?  Didn't they lengthen it?'  Ouch.  Honest question, but I winced at it.  I said that the length was entirely dependent on one's own anatomy.  He asked why phalloplasty was not performed to which I said that, while the surgeon performs both, it was my preference to have metoidioplasty.  He seemed curious as to why, so I explained that I needed to get a job and get on with my life--a shortened version of my reasons, but he understood it and acknowledged that phalloplasty can be a difficult surgery with lengthy recovery times.

He and the P.A. first took a look at the suprapubic catheter site and then looked at my genitals.  I awkwardly pointed out that my shaft was still very swollen and retracted.  He put a gloved hand under the testicle implants and commented that they were in good position.  Then I zipped up and we talked about what would be done.  He said he wanted to do a VCUG before removing the suprapubic catheter--standard procedure in the U.S., I gather--and seemed shocked when I said that I had already been urinating out of my urethra for several days with no issues.  Personally, I liked the 'try the urethra yourself before removing the catheter' method; it let me know that everything was indeed working while still having a 'backup system' installed.  It also let me get used to the new urethra before trying to urinate contrast dye into a portable urinal in front of an X-ray technician.  Anyways, despite it working fine as far as I could tell, I agreed that it would be good to get an inside view of the constructed urethra.

I was sent over to the aforementioned Catholic hospital to have the test done.  There was significant awkwardness over the fact that I was still 'F' in their system (I was born there and basically my entire history was on file, minus transition-related stuff), but the nurse who was getting me ready for the test was really very nice about it.  l ended up needing to tell her what surgery I had done and why, to which she said 'oh, thank God!' as though I had cleared up a great confusion.  My appearance is clearly male at this point, and I guess she was having a quandary over the 'F' on my lab order sheet (I didn't even know that was on there, but I should have guessed).  It's her job to get the portable urinal (male or female style) and notify the appropriate X-ray tech (male or female), so I can understand the problem.  She was awesome about it, though, and brought in the male technician who was also nice about everything. 

I was led to a huge machine and laid on a horizontal table.   At this point, I was in a hospital gown that opened in the front.  A drip of the contrast dye was set up and connected to my suprapubic catheter.  As soon as the second tech who would be running the machine came in, the drip was started.  The second tech seemed a bit curious about the surgery and asked where it was done.  He seemed slightly off-put, but remained professional.  Anyways, he was operating the computer behind glass.  The first tech that was actually touching me was better about things.

When my bladder felt full (the drip took an especially long time, perhaps due to the small diameter suprapubic catheter), the table I was lying on rotated into the vertical position.  Standing, I was given the portable urinal, which I put very close to my genitals so it was touching the underside of my penis to catch any runoff.  The imaging device was attached to a movable arm and the tech with the computer adjusted its position and gave me the go-ahead.  Peeing in front of people is not my forte, but I concentrated on a fire sprinkler in the ceiling and got the stream started.  After several stops and starts, I finally emptied my bladder.  The test was done; the tech said he had a good image, which he sent to the urologist (presumably electronically because by the time I went back, it was already on the computer).  I re-dressed and headed to the urologist's office.

The P.A. met me and relayed that the doctor said it looked good and that she would be taking the suprapubic catheter out.  She found the stitch and clipped it (small sting), then started to pull the catheter.  It was slightly adhered at the entry point, but it came undone easily.  It felt weird and burned a bit as it was pulled, but it was out quickly.  She asked what I had been doing to clean the site (sterile saline solution, Bacitracin, change dressing 1-2x/day) and she said that it looked like I was having a reaction to the Bacitracin.  Oops.  Apparently it can actually promote the growth of yeast--really should have taken Miro's advice of 'you don't really need this' more to heart.  It had worked really well on my drain sites after top surgery, but then I wasn't also on a broad-spectrum antibiotic.  Anyways, she said it didn't look serious.  I kept pressure on the site for a while with a gauze pad, then she taped it up.  She said the wound might drain and there could possibly be a little urine (?!), but not to worry--it would heal over within a few days.

The doctor came in and basically went over the findings.  No fistulas, apparently, but he actually seemed more hung-up on other visual findings--as he put it, "this is still a very female structure."  I really didn't know what to say to that (was thinking: well, yes... the surgeon isn't going to start messing with internals for a urethral lengthening), so I kind of just gave a blank stare.  He then said something about tubularization and that my urine was coming down into 'the V between the legs', as in the female manner.  I wish I would have asked for more clarification.  I was just a bit taken aback.  Another thing I wish I would have asked for clarification on is that the X-ray was taken from the front only; it showed the original urethra very clearly, but the neo-urethra was obscured and a side view probably would have shown it more clearly.  He gave some advice on the implants (if the skin feels especially warm to the touch, it's probably infected) and I was led back to the waiting room.

I am no doctor--maybe he could tell that all was well with the neo-urethra by just the front view--but after I left his office, I got the feeling that maybe we weren't entirely on the same page after all.  I gave him Dr. Miro's surgical report and the photos from surgery, but I could have perhaps spent more time talking about what was done.  Thing is, he didn't ask or give the immediate impression of being confused and I have reservations about telling doctors (especially the only urologist within a couple hundred miles) 'how to do their jobs.'  In retrospect, though, I think I would have felt better about this doctor visit had I spoken up more.  But after the length and 'female structure' comments, along with questions (which seemed more like doubts) about the quality of care in Serbia, all I really felt like doing was bolting out of there.

Post-Op: Day 38 (September 8 ): Improvement

Today I am feeling much better.  I still have some lingering concerns about the VCUG: was the image sufficient to really check out the neo-urethra?  My bladder looked like it was obscuring the former vaginal cavity--what if that didn't seal correctly and I am now urinating into the cavity, impeding healing?  Maybe I'll ask the urologist for a copy of the X-ray so I can send it to Dr. Miro and ask his opinion on the matter.

But functionally, urinating seems fine, and I'm thankful for that.  Emptying my bladder is much, much more comfortable without the suprapubic catheter (I was surprised by how quickly things started feeling 'normal' in that regard).  I am still peeing frequently (and drinking plenty of water), but it is approaching the normal-for-me rate that I had pre-op.  The urgency that I had with the catheter isn't there so much and holding it seems easier.

Yesterday, I noticed some pus-like fluid coming from the catheter site, so I changed the dressing several times.  Later today, the drainage stopped and the site looked like it was scabbed over, so I switched to a breathable band-aid.  I am noticing that my lower abdominals feel very sore and tight.  It's sort of like going overboard on sit-ups isolating the lower abs and then finding that you can't easily stand up straight the next day.  I notice this upon moving from sitting to standing.  After I've been standing for a while, it stops feeling so tight.

Another thing I am thankful for is pumping and Cialis.  I've already talked about pumping and I am making slow (very, very slow) gains.  It pumps out easier now, but I don't think I'll be able to hit my former length for a long time.  Prior to surgery, it took a year or so to get to that point and only the last 6 months could really be called daily pumping.  Also, as soon as the pressure is released from the pump, most length disappears (same as before surgery), but a small gain remains--for a short while.  I could literally watch as my penis moved and retracted inwards until it was more of an 'innie' than an 'outie.'  So last night, feeling rather bummed about my results and about the whole day, I took my first 10mg of Cialis.  Wow, that works fast.  I took it, continued with pumping, and when I was done, I found that my penis was not returning to the 'innie' position.  Further coaxing resulted in it sticking straight out from my body with more length than I have ever seen and it was honestly the best thing I could have seen at that point.

I woke up today to a penis that was, for the first time since being wrapped at St. Medica, external.  The effects of the Cialis remained throughout today, though not as strong as initially.  Additionally, the swelling on the underside of my penis has been going down (I'm noticing a clear, sticky substance exiting the stitches).  With the penis protruding more as a result of Cialis, the extra skin from the swelling is stretching out and looks better.  I can't wait for the 10th, which is my next Cialis dose. 

Wow--just realized that my mood is now linked to my penis.  Oh, and the Packers just won the first game of the regular season :D
"Be it life or death, we crave only reality"  -Thoreau
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sneakersjay

Wow, some story  about getting the catheter out!  I just snipped the stitch and took it out myself while lying on my bed.  No doctors or x-rays or contrast involved.  :)  Glad it all went well, though.  Glad you are able to pump. I have not even tried in a long long time.  But part of that is also finding time; I have kids who can barge in on me at any time, and they get miffed if the door is locked; I can't relax and pump.


Jay


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Ender

Quote from: sneakersjay on September 11, 2011, 08:18:04 AM
Wow, some story  about getting the catheter out!  I just snipped the stitch and took it out myself while lying on my bed.  No doctors or x-rays or contrast involved.  :)  Glad it all went well, though.  Glad you are able to pump. I have not even tried in a long long time.  But part of that is also finding time; I have kids who can barge in on me at any time, and they get miffed if the door is locked; I can't relax and pump.

LOL, yeah, it is kind of a long story.  I was inclined to just take it out myself because it would be easier and cheaper (in retrospect, waay easier), but my mom was very, very against the idea and just made the appointment for me.  Figured if I already had the appointment, might as well go.

Pumping is priority #1 for me right now.  Finding time isn't hard (laid off), but since I'm back at my parents' place, privacy can be a problem.  Awkward...  Aren't your kids getting to an age where they would want more privacy?  Maybe the 'please knock first' rule could be made a two-way street.

Did you find that retraction resolved naturally over time, despite not pumping, or did you not experience much retraction after surgery?
"Be it life or death, we crave only reality"  -Thoreau
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sneakersjay

I did not experience significant retraction.  Somewhere out there in the universe is a video I made of urinating through my fly.  I can't get a good seal with my pump, though.


Jay


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Ender

Quote from: sneakersjay on September 11, 2011, 12:27:18 PM
I did not experience significant retraction.  Somewhere out there in the universe is a video I made of urinating through my fly.  I can't get a good seal with my pump, though.

Yup, I've seen it.  Thanks for sharing--hopefully I'll be able to do the same some day.  I think it's going to be contingent on the retraction resolving, which has me worried.

At this point, I can get the best seal with the homemade pump (two 60mL syringes, one with the plunger taken out, connected by a tube) from Belgrade.  Something about the shape of the flat, non-flared base makes it better.  The flat area also pushes back on my pubic fat, which helps.  I have a harder time with my metal pump with the flared cylinders.  Definitely worth trying different things, though you've probably already been there/done that.
"Be it life or death, we crave only reality"  -Thoreau
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Ender

#37
Post-Op: Day 42 (September 12): 6 Weeks Post-Op

It's 6 weeks post-op and I'm feeling better and more mobile now that the catheter is out.  Some stitches in my penis still remain, mostly at the base.  I clipped some of the loose stitches on the top of my penis, since it was clear that everything had healed together and the stitches were working on either dissolving or falling out.  I notice I sometimes lose a stitch after pumping, but I have no worries at this point of anything 'coming undone.'  My shaft looks healed over with no raw areas or obvious incisions.  The stitches where my right implant was inserted have fallen out completely, leaving a thin line scar.  The stitches where my left implant was inserted are much tighter an have not fallen out yet.  I still have a few stitches along my perineum (most are at the vaginectomy site), but everything appears to be healing over nicely.  The hole where the suprapubic catheter was has scabbed over completely.  If I pull my abdomen skin upwards, all seems fine, but if I pull it downwards, it becomes clear that there is a small adhesion; no big deal and not surprising. The buccal mucosa graft site continues to smooth over and I can brush my teeth and eat normally.  Overall, no signs of infection or problems anywhere.

My scrotum still feels a little hard in places around the implants but it has softened considerably.  I'm starting to walk a little more normally, but still keep my legs apart out of caution.  I drove for the first time yesterday.  Sitting upright felt fine (no pain in the vaginectomy site), but my scrotum got a little sore from keeping my legs closer together.  There's enough room in the seat to keep my legs apart, but I have to move my right leg inwards when braking.  It's an automatic, so no issues with needing to bring my left leg inwards to use the clutch.  Anyways, I can drive well enough--finally, freedom!

I got my new smaller-diameter cylinder today.  It's a little binding girth-wise, but with enough lube it works.  I'm glad I didn't also get the smallest size; it would have been too small and would not have worked.  I'm finding that I can't pump out as much length with this cylinder; it starts to pinch before I can that far.  However, it does draw out my retracted penis and I can leave it on for extended periods (at this point, maybe 5-10 minutes) without the surrounding tissue getting stretched out.  It doesn't take much pressure just to draw out my penis: maybe 2-3 inHg.  Before surgery, I could pump up to 10 inHg with the larger cylinder to stretch it to maximum length.  The inHg readings mean I am back to using my metal pump with the pressure gage.  Now that more stitches are falling out, my flared-base cylinders are comfortable again.

Right now, I alternate between super-happy with and a bit worried about my results.  My scrotum looks great.  The implant position is forward and both balls are prominent.  The right implant has been dropping a little and it is now more even with the left.  Neither implant is right next to my penis; both are comfortably below.  At this point, it doesn't look like I'll have issues with implant position.  I can sit upright without sitting on my balls.  If I lean forward, the bottom of my sac will touch the seat, but it isn't uncomfortable and from looking at photos this is fairly normal for a scrotum, surgically created or not.  The urethral lengthening seems to be free of complications, though the stream can still be unpredictable (which is apparently normal at this stage). 

My biggest worry is my penis.  When it is protruding, I am very happy with how my package looks; when it starts to retract inwards or is covered by pubic fat--not so much.  For some reason when I'm sitting, my penis likes to retract inwards along its top side (I can actually feel the bone that it draws itself under), resulting in a sharp upward angle.  Pumping and Cialis are helping overall with retraction and it is much better than it was a few weeks ago, but I wonder how much more it can really improve.  I suppose it's still too early in healing to tell. 

As far as the pubic fat is concerned, the best position is laying on my back; my penis always protrudes in that position.  When I'm sitting or standing, however, the fat is free to move downwards and 'settle' right over the top of my shaft.  The bottom side of my penis always protrudes over my scrotum, it's mostly the visibility of the top and sides that is the problem.  If I push that fat back in any position, it looks great.  Miro mentioned liposuction as soon as he saw my pre-op genitals in person and Marta was absolutely right when she said my biggest problem was not length but suprapubic fat.  Prior to this, I didn't think fat was going to be a huge issue for me; 143 lbs on a 5'4" medium frame is considered a healthy weight on male charts, but that's at the upper range.  I could stand to lose more weight and maybe the weight in the mons area will go down in turn--I just hope the extra mons weight isn't going to be one of those ridiculous lingering 'female' traits.  Finally, I think my biggest problem in not foreseeing this was complete ignorance over how much pubic fat is considered 'a lot' for a male, particularly one with a juvenile-size penis.

All this might be TMI, but honestly if I were to read about someone else who had similar issues and it was eventually resolved (by correction of retraction be it by pumping or surgery, weight loss, pubic lipo, mons resection or V-Y-plasty) it would make me feel 100% better to know that there can be a solution and that someone else has gone through the same thing.
"Be it life or death, we crave only reality"  -Thoreau
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sneakersjay

I always hated the mons (vomit-inducing word, LOL) and am seriously considering getting it resected and repositioning one nut.  I'm about the same size as you are and need to lose a bit of weight and get fit before I decide to do something like that.  It does look F to me.

Jay


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Ender

Post-Op: Two Month Summary

Pain:
-I'm not entirely pain-free, but it feels that way much of the time
-Pain pills are not necessary
-My scrotum has largely stopped aching.  If there is prolonged pressure, it will begin to feel sore but will feel better once the pressure is removed
-I occasionally get quick twinges of pain in my scrotum and penis.  These twinges feel similar to what happened after my top surgery--nerves 'waking up,' maybe?

Mobility:
-I can walk without soreness
-I can walk pretty much normally.  I have a normal stride (no waddle), but make a point to keep my legs apart a little further than I used to (out of caution, probably not necessity)
-I can put my legs closer together than I could a month ago
-I can sit upright without pain on any surface but like to keep my legs apart
-I can drive my automatic car
-I am still sleeping on my back (have gotten used to it) but can also sleep on my side.  Haven't tried belly sleeping yet, but have laid on my belly for short periods of time while propped up by a pillow

Voiding:
-Voiding patterns are back to normal pre-op state
-No burning of the urethra
-I still prefer sitting to urinate, due to some spraying and stream unpredictability, though this has improved over the last month
-I still push the testicles up and forward to coax the last few drops from the urethra
-No fistulas at all, no evidence of stricture yet

Healing:
-No bleeding or discharge from incisions; all incisions are scarred over
-Stitches have almost entirely fallen from the perineal incision, implant insertion incisions, and penis
-Only some small stitches on my penis remain; I clip the ends off when they protrude beyond the skin
-I am pumping 3x/day for 10-15 minutes and using Cialis; retraction seem to be slowly resolving
-Scrotal swelling seems to be pretty much gone
-There is firm, fibrous tissue leading from each testicle incision to each implant; the tissue on the left side seems to be softening faster than on the right
-The swelling on the underside of my penis seems to be gone, but some excess loose skin remains
-My left testicle has mostly softened (there is a hard spot on the back end) while my right testicle is not as soft as the left; capsule formation is still on-going
-The initial numbness of the scrotal skin and skin directly above my penis (where the ligaments were cut) is slowly improving; I expect it to take months or years to approach normalcy, similar to what happened with top surgery
-The buccal mucosa graft site is still lumpy but it continues to smooth out; it is not otherwise bothersome

Other:
-I still make a point of it to wear loose jeans: tighter jeans put pressure on my package when sitting, which can get uncomfortable
"Be it life or death, we crave only reality"  -Thoreau
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