I'm MtF, F64.0 and all that, Anyone any ideas about my intersex condition.

[Heather Exley]

Hi Everyone,

I had often wondered if I was intersexed. I have never had any investigations to come to a diagnosis, since I'm doing GRS in May15/June15 I suppose I want to know just out of interest. I did find out that I had male and female genitals at birth but only in the last few months. My interests is every thing else.

My left testes is made up of only the spermatogonium ( about Sultana size). My right is an amorphus mass that seems to produce T & E, on testing before HRT my levels were (UK measures) T-105 & E-80.
According to the idea that you are as wide as you're tall then my arms are 3 inches too long, they have kept growing slowly since puberty.
I have no adams apple, a female jaw line and no build up of bone on my brow.
I do not have an extra pair of ribs.
My pelvis is wide and has a channel in it big enough to give birth, quote from doctor.
I have been profoundly dysphoric since I was 6-7 years old, not sure if this is relevant.

It seems to be a mine field finding out about this subject and I wondered if anyone had any ideas.

Heather.

Luv & Hugs for everyone.

[Ms Grace]

Hi! I don't have any specific advice or info, but I can imagine finding that out would have been quite the bombshell.

[Devlyn]

This should keep you busy! https://www.susans.org/wiki/Intersex Thank the Wiki Staff who put this together!

Hugs, Devlyn

[Rachel]

Hi Heather,

There is an intersexes section just two sections below Transgender talk.

I had low T. At 7 I had an operation because I had an infection, UTI. My urethra closed up. It was very small (took forever to pee) and positioned in wrong position. My testies dropped at puberty or just a little before. I has a very small amount of breast growth when young. When I had a recent consultation the doctor said that is very very small; it is a micro penis. She then said I am lucky because male penis's have to have 3/4 of the head removed for GCS and you will b able to keep almost all. My arms are 77 1/2 inches wide and I am (just under) 75 inches tall.

I had a difficult time in school, was left back in 2nd grade and took 5 years to get through a 4 year college program. I am very clumsy, walk into wall corners and misjudge distances when turning in a car. I am very clumsy.  I had a very difficult time talking when young and even today my thoughts get jumbled. I am exceptional in science and sometimes dream and visualize solutions to complex problems. When I took my PE test the first time I filled in the scoring sheet one off and had 41 answers for a 40 question AM test.

I thought I had a lot of ASP characteristics until I read the kleinfelders syndrome description. When I had my wife read it she said I fit exactly except for the MPB. MPB runs in both sides of my family and even low T over time has an effect. My Mom had an issue with thin hair too.

I thought of getting tested once because I wanted a reason why I am trans now I just want to know to know. Then I think what will I gain from knowing and it costs a bit of money.

[Heather Exley]

Hi Devlyn,

I guess my fear is Dr Chettawut finding some suprises inside me. At birth by scrotum was split into labia with the vaginal opening between. The penis was below the clitoris and urethra, A veritable surrealists dream. I think my best bet is to get a very high resolution CT scan to take with me in May to show Dr Chettawut what he may find inside before making any incisions.
I got to look at the remaining records from my birth and follow up surgery three weeks ago. The surgeon states that all material removed when I was four was correctly formed, had full blood supply and seemed viable in his opinion. Really hurts when I realised he was talking about my Vagina, cervix, uterus, womb, fallopian tubes and ovaries.
I try not to get angry, it was standard back then tell parents to give your "Son" a boys name, toys, clothes and "he" would become a boy. Especially after they ripped out my only functioning reproductive system.

Rant over. Sorry.

LUV & HUGS for the lot of you. 

[Jaz650]

Hi Devlyn,

I guess my fear is Dr Chettawut finding some suprises inside me. At birth by scrotum was split into labia with the vaginal opening between. The penis was below the clitoris and urethra, A veritable surrealists dream. I think my best bet is to get a very high resolution CT scan to take with me in May to show Dr Chettawut what he may find inside before making any incisions.
I got to look at the remaining records from my birth and follow up surgery three weeks ago. The surgeon states that all material removed when I was four was correctly formed, had full blood supply and seemed viable in his opinion. Really hurts when I realised he was talking about my Vagina, cervix, uterus, womb, fallopian tubes and ovaries.
I try not to get angry, it was standard back then tell parents to give your "Son" a boys name, toys, clothes and "he" would become a boy. Especially after they ripped out my only functioning reproductive system.

Rant over. Sorry.

LUV & HUGS for the lot of you. 

*HUGS*

[JLT1]

Hi,

They removed tissue. ..what type?  Did you have one or more ovaries?

Individuals with 46 XXY can have two gonads with some portion of ovarian and testicular tissue in each gonad.  If you had more than two gonads you are a 46 XX, XY chimera.

That's the only two possibilities.

Hugs,

Jen

[LordKAT]

Both sexes have the exact same amount of ribs.

[Rudy King]

While I wush I could give you some insight, I only really know about Androgen Insensitivity Syndrome.

I to, know how it feels to find out later in life of an Intersex condition.  And while I've gotten over the initial shock, i still have bad days.  And I still have no idea if i had any surgeries.

The best advice I can give you, is just keep your chin up, and smile on your bad days.

I think it would be in your best intrest, to have it checked out, just in case.

Best of luck!

[Heather Exley]

Cheers Rudy,

It is an odd thing to find out. When I had my base line blood test before HRT the numbers were way out of range, the T & E were nearly the same, really suprised my endocrinologist.
When I was six my Mum & Dad were so concerned by my feminine behavior that they went to the doctor. He told them to treat it as a matter of discipline, so I got a belt when I behaved like a girl. Gave my Mum 37 years of guilt.
I'm hoping that after GRS I shouldn't have any physical problems from how I was born, fingers crossed.

You take care Flower.

Luv & Hugs for everyone. 

[Rudy King]

I'm really sorry to hear that.  That's abuse, plain and simple and only teaches you to hide it.  Thankfully, I was raised Gender non-conforming, even in a cult like church.  What blows my mind, is that no one at all, noticed that I had a girls body.  Like I never had a male puberty, and have always had a higher pitched voice.  I even had small breasts at the early age of ten.

I was unfortunately, a victim of secrecy at the early age of eleven.  This nurse asked if my testicles had always been the same size.  I told her yes, and she told me to let them know if I gets bigger than the other.  I never asked why, because, I just assumed it was normal at that time, but she never told my Mom ether.  I mean, that's something you would say to like a 40 year old male.

I'm not really sure when I started to have gender issues per say, but I do know that by ten, I felt I should be wearing girls' clothes.  Then I learned about Transsexuals at fourteen, and kinda figured maybe that's what I was.  But looking back, I had a really big doubt in the back of my mind about that.  I think it had to do with the fact, I was never like the other boys as I grew up.  I was always the runt of my classmates, and never quite acted like them ether.       

I wish you the best of luck in your transition, and that you've found happiness.