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Frustration with lower surgery (Vent!!)

Started by Make_It_Good, July 16, 2012, 05:56:40 AM

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Make_It_Good

It  seems to be a recurring theme recently of people being frustrated and bummed out by delays in their transition, so I feel your pain!

I think Ive mentioned elsewhere somewhere, but Ive been feeling kind of stressed recently. Id been put forward for the Phalloplasty surgery, which Im ridiculously looking forward to. I had my consultation in March, and another in May. In the May one, what normally wouldve been done is the surgeon would book a date then, to schedule it around work and holidays etc. So, when he asked me when am I free, I let him know that May - when I start my final year of uni at the end of Sept, Im completely free.
  He said that was great, that its perfect to have free patients as they can be put in whenever and theyd been hoping for someone to be completely free. Ofcourse, this made me very happy to hear :)
So, instead he said he would be contacting the manager guy that day, and they would get me in at the earliest slot and I should hear back in the next week or two.

I left the office with a big stupid grin on my face. I was so happy.
This was in May.

My uni exams finished early May, and Id not planned anything in the Summer, as I didnt want anything to get in the way of whenever surgery could be. I even had to turn down another amazing opportunity to volunteer abroad like Ive done before. And Ive been yearning to do it again :p but I didnt want to book something in say, June, and the surgery be then, or book in August, and Im still healing etc.

So, I dont hear anything back, so about 3 weeks ago, I email the surgeon and the manager. No reply. So just over a week ago, I called up. The secretary told me that nothing was written down.
....what?!
So it appears the surgeon just forgot to book me in!
And I was told that now, they had no space left so unless they get a cancellation, they cant get me in untill after September, which for me would be too late! I was in such a bad mood. She asked which hospital I preferred to have my op at, I said how I didnt even know the difference, so any. So, hopefully that increases my chance of being called in to cover a cancellation. She told me shed contact the surgeon herself.
I got an email that night from the surgeon just simply saying he was forwarding my email to the manager. Well, he was supposed to have contacted him months ago!

The secretary called me last week saying they are trying to find me a date in August. So again, Ive got to sit around and wait as theyll call me if they find a date.

I feel like Ive wasted my Summer, sat around waiting, not knowing if I could get a call the next day, when actually, nothing was going on.
I got pretty stressed and down about it, Im so close to getting the first stage of surgery, I dont want to then have to wait another year, for uni to end till I can have the surgery.
But hey, Im just glad I called and they realized the mistake and hopefully its enough time for them to sort something out.
In the meantime, I shall keep myself occupied. Atleast this delay gives me more time to continue being active, going to the gym, kickboxing classes, skateboarding and mtb, as I wont be able to do any of that for a while after surgery!
And, thankfully I didnt quit my job in May (I thought Id wait till I actually have a date) so I can continue to earn money. So yeah, Ive just got to focus on the positives and let things be.

Ok, moan over!
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King Malachite

It sucks that they gave you the run around like that but it's good that you are finding ways to occupy your time beforehand with some extra cash in your pocket.  I love that you're being positive about it.  This delay too shall pass. :)
Feel the need to ask me something or just want to check out my blog?  Then click below:

http://www.susans.org/forums/index.php/topic,135882.0.html


"Sometimes you have to go through outer hell to get to inner heaven."

"Anomalies can make the best revolutionaries."
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Make_It_Good

Quote from: Malachite on July 16, 2012, 06:16:28 AM
  This delay too shall pass. :)

That made me laugh :p
Thanks Malachite.

Yeah, their lack of communcation seems to be a problem. But I think the best thing I can do is try not to worry, and to focus on other things or Ill just drive myself crazy! Nothing good will come from my worrying :p
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Zerro

Smack the person responsible upside the head, for serious. That's rude on their part to not even process you or write anything down.

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RagingShadow

i'd hit something. or someone. i rarely get mad but when i do...don't be the one standing next to me lol
but seriously, that sucks. really horribly. agh, i feel your pain!
let us know when you get your date!
i'm grabbing some cookies from the Laura's playground forum and giving you some as a consolation prize :)
--Kayden



Youtube:TeenFTM (formerly KaydenTransGuy)
my Gender Therapist was Dr. Laura Caghan in Los Alamitos, CA. She is AMAZING.
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Susan

Always ask for commitments like these in writing, less change of them forgetting.
Susan Larson
Founder
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Make_It_Good

RagingShadow - Thanks for that. And I really like cookies, so even better!! :p

Zerro - It does seem rude of them, but Ive gotten in contact with a few other guys who have had surgery with them, and while they are amazing surgeons, we cant fault their work, it seems their communication is quite terrible regardless of who you are, or what stage youre at in the process! :/

Susan - Yes,  thats good advice. Ive actually got all our email communication saved in a file, and all of the letters theyve sent to me and my GP. One of which was sent in May and said they were finding me a date "as soon as practical". But there doesnt seem much I can do now that time has passed, when they dont seem to respond well to emails. The secretary on the phone thankfully I can reach and communicate via her. Like I said, Im just glad I did call up  instead of continue to wait.
  I have also sent them a lengthyish email, not so much a complaint, but just making them aware of the impacts of their lack of communication, how left out of the loop Ive felt etc.
Having spoken to other patients, the best conclusion in my wait seems to be to let them know that, while Im very grateful for the service they will provide, theres no excuse for being treated like this (they are paid professionals after all...)

Ill probably call up again next week. Theyve said theyll call me, but, while they will  get sick of hearing my voice, Ive learnt through transition that if you want to stay on top of things and make sure things go well, you actually have to stay on top of it and not just sit and wait. :p

But yes, I shall keep you all updated on when/if I get a date soon. My Mum was hoping I wouldve gotten a date before the Olympics, as its gonna be hectic getting down to London during it! We shall see. At this rate, Ill just be happy to get one! :p
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Make_It_Good

Ahhh, Im so stressed with them. Sorry, I just had to vent again. Ive just called them again, and still, nothing. They just tell me to wait as they are aiming to try to fit me in my "preferred month of August" (which is not my preferred time, just the last time I could get it done!).
  A guy whos been through this team recommended getting the number of the manager to hassle him, as thats what the guy did, but when I called the secretary, they wont give me the number! And none of them reply to emails!
Im so stressed as if I dont get it within the next 4 weeks, its too late. Id be deluding myself thinking that I can get it September onward, as I cant miss any of my final year of uni, theres no way of getting the lecture notes, and I cant rush my healing.
  Why cant they just say yes, we can get you in, or the dreaded no. I cant plan anything in this state of limbo Ive been in for months now. Ahhhh. >:(

Now, to go ride my bike to relieve stress!!
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