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Hormones and Me / Rant

Started by Squirrel698, February 05, 2013, 04:18:58 PM

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Squirrel698

Come this May, I will have been taking testosterone for three years.  My period stopped about 2 months into hormone treatment I believe.  Yesterday it started again and it was such a shock that I didn't even know what it was.  I don't even think of myself as anything but male and seeing the toilet paper come back bloody was awful.   

So naturally I freaked out and made an emergency visit to see my endocrinologist.  We had been trying Axiron which is a topical gel you apply everyday.  We did this because with the shot both my testosterone and estrogen were off the charts.

In December - T = 1500, E = 110.  Both number crazy high for a male.  In January, after stopping the shots, it was T = 225, E = 50.  Now the T was low for a male and the E was high.  Well at least the E had dropped.  Although the T level was below where I liked it, I actually prefer the gel to the shot.  Having a regular dose of testosterone makes me feel more steady.  That is until I started bleeding. 

So the doctor and I decided to continue using the topical but switch off with the injection.  One week would be the injection and the next week I would apply the topical everyday that week.  That sounded good for me, a bit more complicated sure, but doable.  Unfortunately that's when things got hairy.

My partner and I recently moved across country for a new job.  Every since then our insurance has been a nightmare.  Supposedly he still had benefits from his last job but they were hard press to give anything out.  In his recent job he does get insurance but it took a month to activate once he started working.  So we go Cobra for the meantime.  Cobra had no problem covering the Axiron and good thing too, as a month supply of that stuff costs - $425 according to CVS pharmacy.         

Finally we got the new insurance under my partner's new job up and running.  Or so we thought because immediately they started giving up problems with prescriptions.  So that lead to some fun hours on the phone and the pharmacy finding out I was still listed under my insurance as female.  Which really sucks for someone who is stealth.  It's a small town and people talk.  I'm listed as female under my insurance because if I ever need a hysterectomy insurance would cover it.  Hopefully I will eventually need one.  I recently got an ultrasound with one of those rape sticks.  That's another horrible story that was hell to go through.  Shudder. 

Any rate, now this new insurance suddenly refuses to cover any sort of topical testosterone.  They demanded per-authorization from the doctor.  My doctor absolutely refused to do so because, according to him, it would give the game away.  As there as no transgender benefits around my insurance technically, they could start refusing to pay for anything having to do with any sort of hormonal anything.  This would include my visits to the endocrinologist, the inject-able T, the needles, everything.  What an absolute mess.

So my doctor recommended a compound pharmacy in the area that would be willing to whip up a topical cream for much cheaper than anything with a brand name attached to it.  I contacted them and hopefully my doctor is faxing over the recommended dose that I need.  This would be paid out of pocket but the pharmacy assured me the price would be 'reasonable', about $100 a month.  Reasonable is relative I suppose. 

I'm just so sick of jumping through all these hoops.  I need what I need and I shouldn't have to be sneaky in order to get it.  I'm angry at my body for not cooperating and for this new insurance for being suspicious. 

I'm worried that all this activity will somehow end with me being outed to entirely to many people.  My partner does his best to keep me stealth at his work.  He always refers to me the correct way and learned a bit on how to shut down unwanted questions from co-workers.  So that really helps.  However if my insurance, which is through the HR department starts complaining and finding out what they shouldn't it might get out.  Even if they don't exactly intended that to happen. 

Just .... argggggg.  Why can't everything just work out?  Why can't I just be right?
"It matters not how strait the gate, How charged with punishments the scroll, I am the master of my fate: I am the captain of my soul"
Invictus - William Ernest Henley
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Simon

Quote from: Squirrel698 on February 05, 2013, 04:18:58 PM
I recently got an ultrasound with one of those rape sticks.  That's another horrible story that was hell to go through.  Shudder.

I've had two of those before I got approved for my complete hysto. That has to be the most degrading thing for a transman...ever. Funny thing is they're actually called "Transvaginal Ultrasounds". Even though I was thoroughly horrified, the name gave me a good laugh when my doctor sent me the letter requesting I have one.

Good luck with insurance and the compounding pharmacy. Hope they'll get everything sorted out for you soon.
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Squirrel698

#2
Thanks Simon, I hope so as well. 

It was extremely degrading, especially when the ultrasound technician persisted in talking happily about usually seeing babies in the monitor.   
"It matters not how strait the gate, How charged with punishments the scroll, I am the master of my fate: I am the captain of my soul"
Invictus - William Ernest Henley
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Robert Scott

Man I feel your pain ...sorry dude.. I am only on T for little over a year but when I get my shark week every three months it freaks me out.  Fortunately for me -- it has now lead to me being approved for a hysto.

I just switched insurances as well -- my old insurance covered everything -- the new one prohibits everything -- it's a pain
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Nero

Sorry to be obtuse, but what's a 'rape stick'? Is that anything like a pelvic exam?
Nero was the Forum Admin here at Susan's Place for several years up to the time of his death.
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Squirrel698

Quote from: Robert Scott on February 06, 2013, 01:12:45 PM
Man I feel your pain ...sorry dude.. I am only on T for little over a year but when I get my shark week every three months it freaks me out.  Fortunately for me -- it has now lead to me being approved for a hysto.

I just switched insurances as well -- my old insurance covered everything -- the new one prohibits everything -- it's a pain

Thanks Robert.  It's just so aggravating and it's good to get all my frustrations out. 

Quote from: Fat Admin on February 06, 2013, 01:26:50 PM
Sorry to be obtuse, but what's a 'rape stick'? Is that anything like a pelvic exam?

In retrospect I think I used that word a bit too casually.  However while in the middle of trans-vaginal ultrasound that's almost what it feels like.

Basically they use a stick to push up into your body, where we least want it, to get to know your cervix up close and personal.  To call it invasive would be an understatement.  My name on the schedule said Male and this is what they did to me.  It was just a bad dysphoric day really.     

In med speak: http://www.nlm.nih.gov/medlineplus/ency/article/003779.htm

In Jon Stewart speak:  http://www.thedailyshow.com/watch/tue-february-21-2012/punanny-state---virginia-s-transvaginal-ultrasound-bill
"It matters not how strait the gate, How charged with punishments the scroll, I am the master of my fate: I am the captain of my soul"
Invictus - William Ernest Henley
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Robert Scott

Definitely feel your pain there .... I have had four of those ultra sounds in the last year and half.  It was a horrible experience ... the only positive thing was my doc works with the lab in her office so that the person is well versed in trans folks --- so she is very sympathetic and said I was the only guy who has had to have the procedure done so many times.
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