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Doctor Problems

Started by Rena-san, April 25, 2013, 06:57:45 PM

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Rena-san

I seem to have bad luck with doctors. I won't get into the specifics, but I wanted my endocrinologist to try to figure out why I only seemed to make it halfway through puberty. I told him all about what I believed to be missing when I met with him. A few days after that, his nurse called me and read this long cold statement that basically said there is nothing remarkable about my situtation and he wasn't going to do any further testing. This is the list I presented to him, do any of you think that there is nothing remarkable here:

-no sexual desire and no physical manifestation of it
-limited body hair: no armpit hair, chest hair, thin arm and leg hair, sparse genital hair
-limited facial hair
-hydrocele in testicle that appeared at age 10
-extreme difficulty operating external spinchter of urethra
-stunted growth (5'1" in a family of 5'7"s or higher)
-crooked ralphe line (I doubt this means anything)
-developed horrible headaches at the onset of puberty that subsided around 15 years of age. I do believe I started puberty at 11-12.
-(I doubt this really means anything) but my mom told me that when I was born doctors had to wait three months to circumcise me because the penis was too small. My urologist recently told me that I'm just on the small side of normal, so it grew.

Things that did happen to me at puberty:
-some brow ridge development and other facial changes
-developed an adams apple
-horrible acne that is just finally beginning to reside on HRT
-some upper body masculinazation
-my voice NEVER dropped. This haunted and bugged me the most when I was trying to be a man. No body believed I was one, or that I was me cause I sounded like a girl.
-and of course, gender confusion and dysphoria

I knew at 19 that I hadn't turned into a man like I was supposed to. I sought an endo then, but she said nothing was wrong. Then in 2012, when I decided to transition, my endo told me I had 5ARD and wanted me to take DHT. I was hoping my new endo would confirm this diagnosis or suggest another one, but he was unwilling to even try.

Am I imagining things?
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Shantel

Sounds like some intersex condition, maybe AIS.
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eli77

Is there some part of that that you want fixed? I think if you want to make a case to investigate, there needs to be more than just curiosity. There are intersex conditions that just never get diagnosed because they don't really matter too much to the person's quality of life. Some doctors don't really want to go looking if nothing is broken.

I know there are weird things about my body. Such as my voice never dropping, like you. But I guess I don't really care? I have enough medical crap to deal with as it is. I don't need to go looking for more.

I mean a lot of that stuff is terrible pre-transition. ("No body believed I was one, or that I was me cause I sounded like a girl." - I feel you, dude.) But now it's mostly a bonus so...

"-extreme difficulty operating external spinchter of urethra" is the one on that list that seems like it would be rather unpleasant. I'm guessing you've already spoken to an appropriate specialist?
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JLT1

I don't think it is you.  I do beleive an endo may not have the correct training to diagnose.  Try a urologist or a geneticist. 
To move forward is to leave behind that which has become dear. It is a call into the wild, into becoming someone currently unknown to us. For most, it is a call too frightening and too challenging to heed. For some, it is a call to be more than we were capable of being, both now and in the future.
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Jamie D

^ This ^

Consider another endocrinologist.

Rather than present a "laundry list" of odd stuff, just say, "I never matured properly and I believe I may have an intersex condition."
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