possible major problem? Off to the hospitol :(

[PrincessDayna]

Dont think so on pregnancy, no ovaries.  no way to produce an egg, and the ultra sound techs only words were "the doctor will talk with you"

I was so doped up and out of it with everything.  I remember my sister holding my hand after exams began, but I was so doped up and out of it, I remember the bigger questions, and I remember her rubbing my stomach as I fell asleep..and the above stuff.

and yes, somehow it routed out via the only method it could, but the bleeding from there was very "minor" and "nothing to be concerned about"....apparently the body will reabsorb whatever minute amounts there were from the uterus.  it isn't a full on period, so to speak. they gave me a small script of some Norco things and some Xanax for nerves and some other med, the one that made me floaty and drowsy, and sent me home when the tests showed no clotting of the traditional worrisome nature. 

and how this was without a dose of progesterone is beyond me.  maybe the body just makes its own levels of that? idk,,,,

it was just scary, and doesn't feel good in the bigger picture of cramping. 

and in the end doesn't change my view of myself.  im still me, 47xxy, mtf, dysphoric and transitioning on along.  I wont really have much more to go on until I talk with my endo this next month and see what he says. 

[Jamie D]

Dayna, there is nothing to be ashamed about.  You were born intersexed.  Starting on HRT might have activated things that laid dormant for most of your life.

I suggest you continue to work closely with your endocrinologist, and perhaps a geneticist, until you get these things worked out.  You seem to be more of a woman than you ever thought - literally.

[Rosa]

Dayna, didyou know that you had a uterus prior to this experience?  BTW, I'm XXY too.

[PrincessDayna]

ya that's wy when the bleeding started I called the wife in the bathroom freaking, and then my sister, and we talked of the day and earlier how I rubbed my sore calf when I woke up and we went right on off to the er.  just in case and all.

and nope, didn't know prior I had a uterus.  ive known I was IS and diagnosed xxy, but ya, that's about it.  last night was a shocker its why when the doctor was like, did you know....? I just stared at him and hes like do you understand what im saying? lol!

and no, im far from ashamed of who I am!  im proud.  I just don't think it makes me any more or less of a woman.

[PrincessDayna]

How did you find out you were IS? Did you have any external signs? I'm just curious! Someone asked me once if I was IS and that got me thinking... Would you know if you were IS/had an extra chromosome? Or would you only find out if you specifically tested for it?

min you, this is different from dysphoria as ive always id'ed personally female, since earliest memories.  but when I was 11 I had cramping till 17 ish, I didn't get body hair then till around 18- and always had what could be defined as a female shape to my bones, I.e very very high prominent hips.  I was improperly diagnosed as add due to learning difficulties, etc....other warning signs of klinefelters can be like breast growth, lack of facial hair, being really tall/skinny, etc etc, but they vary per individual I believe.  what matters is the genetic testing that shows the 47th chromosome being xxy.  a lot of people with it don't even know they have it, or it can get incorrectly diagnosed under other things, like gynomastakia or whatev.

keep in mind not all is people are dysphoric, some lead happy norma male lives.  one thing that stands out and hard, is that no IS person can birth children, in either direction, most of the time, atleast not 47xxy.  sterility is usually what leads into the testing. 

but ya, I was tested for it when I explained my condition of gender dysphoria, and when my body was examined, all sorts of other questions arose, like the above.  genetic testing ultimately is the factor that says if you for sure IS or not, unless of course you have a true genetal variation of both sexes, which is extremely extremely rare.

[Rosa]

Really interesting.  I have Kleinfelters too.  I used to fantasize that maybe I had a vagina burried somewhere.  Lol.

Did you have cramping regularly one a month or random? I used to have a lot of cramping when I was young. For some reason always borderline anemic too.

Glad all is working out. Do the docs advise the uterus is ok? Any chance you have ovaries somewhere?

[PrincessDayna]

Can I ask what sort of cramping? Was it like spasms down in the stomach - guts almost turning inside out and feeling like You are going to throw up but never being able to? Mostly in the mornings?

P.S. Is being sterile a mandatory requirement for an IS condition?

Um sort of, take constipation cramps, multiply em by 100' and curled up crying, and everything below the ribs hurt n u got it. 


And ya it's very rare somone is IS and not sterile....I don't think u can be fertile or whatever when ur IS, it's an effected major sex chromosome...

And to the previous question cramps started around age 11-lasted till male puberty but never any bleeding.  But then I never had this amount of E running through me either....

[PrincessDayna]

Really interesting.  I have Kleinfelters too.  I used to fantasize that maybe I had a vagina burried somewhere.  Lol.

Did you have cramping regularly one a month or random? I used to have a lot of cramping when I was young. For some reason always borderline anemic too.

Glad all is working out. Do the docs advise the uterus is ok? Any chance you have ovaries somewhere?

Ya klinefelters is def something to have...heh. It was once a month in my youth, but sometimes I'd skip a month or two, and it was regular, I.e some times it was a day sometimes 3-4 days, doubt it on ovaries but ima ask for testing to see about ova-testes now.....and ya just said it was as normal as it could be, given the circumstances, they didn't want to test further, just gave me meds for pain, and nerves, and off I went with a new gender marker heh.  Wonder if I can use that at sec of state for my liscence birth cert and all?

[Danielle Emmalee]

Ok, so you don't have ovaries but could you be a surrogate?  Not saying you want to, and you probably don't know the answer for sure.  Feel free to tell me to mind my own business I'm just curious.

[PrincessDayna]

Ok, so you don't have ovaries but could you be a surrogate?  Not saying you want to, and you probably don't know the answer for sure.  Feel free to tell me to mind my own business I'm just curious.

Not 100% sure on this one, since I'm on hrt I'd still need estrogen and there's no telling the effects on a fetus if I had too much or two little?  Considering I'm on huge amounts, an admin knows n thinks my rx'd level is insane-it would prolly put a baby in huge risk if a fetus would even grow...not sure I'd be willing to risk a life like that....in fact I wouldn't...though I'd love to b a mother!!

As for the other parts, not sure how a surgical srs below would handle to the pressures of childbirth.  I'm sure there are c sections, but to me it just all seems to much risk on another life for me to experience that.  Prolly would require one hell of a specialized team of doctors!

[Danielle Emmalee]

Not 100% sure on this one, since I'm on hrt I'd still need estrogen and there's no telling the effects on a fetus if I had too much or two little?  Considering I'm on huge amounts, an admin knows n thinks my rx'd level is insane-it would prolly put a baby in huge risk if a fetus would even grow...not sure I'd be willing to risk a life like that....in fact I wouldn't...though I'd love to b a mother!!

As for the other parts, not sure how a surgical srs below would handle to the pressures of childbirth.  I'm sure there are c sections, but to me it just all seems to much risk on another life for me to experience that.  Prolly would require one hell of a specialized team of doctors!

Definitely a lot of risk, but who knows where science will lead!

[PrincessDayna]

Well, that is what the Cesarean surgery is for...

I still don't think the risks are worth it on a fetus though....my body cannot produce the right hormones for a pregnancy without hrt.  While I admit there is a tiny possibility of even getting or being a surrogate, and don't get me wrong-I'd love to, there is a certain responsibility with it all, and it wouldn't seem in the best interests of a child to risk it's life, just for the name of science.  Maybe if time goes on and more scientific developments happen I'd inquire about it, but this is seeming that I may need a Gyno as well as an endo now, not 100% sure, I'll have to talk to my endo.  But as for pregnancy, I think it's too much to risk
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