Susan's Place Logo

News:

Please be sure to review The Site terms of service, and rules to live by

Main Menu

Transitioning on the NHS is a nightmare

Started by Jayne, March 26, 2014, 05:36:00 AM

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

Jayne

Quote from: NIP on April 28, 2014, 10:57:32 AM
My statement was meant sarcastically, so I'm sorry if you took it seriously and were offended.

As you may have noticed from my comments I am possibly over touchy about the subject of our "free" healthcare so no apology needed.
I often jump up & down when people say I should just be gratefull no matter how bad the service can be for transitioning, this could be because my ex used this argument to play mind games with me whilst I was battling the NHS under the old guidelines.
  •  

big kim

I paid 20 years National Insurance contributions so I think I've paid my bit for GRS on the NHS.Anyone got a problem keep it to yourself especially knowalls who don't even live here!
  •  

NIP

Quote from: Jayne on April 28, 2014, 11:44:06 AM
As you may have noticed from my comments I am possibly over touchy about the subject of our "free" healthcare so no apology needed.
I often jump up & down when people say I should just be gratefull no matter how bad the service can be for transitioning, this could be because my ex used this argument to play mind games with me whilst I was battling the NHS under the old guidelines.

I understand completely, particularly with the changing sentiment in the UK re: "benefits scroungers". My personal philosophy is socalist, so there's no way I'm going to complain about someone relying on a system put there to help them. And the sad reality is so many people don't even take advantage of the social benefits availible to them because they are afraid or put off by any social stigma. Our government never talks about the huge amount of un-claimed and under-claimed (£10s of billions - https://www.gov.uk/government/collections/income-related-benefits-estimates-of-take-up--2) because it doesn't fit their rhetoric.
  •  

f_Anna_tastic

My main downside with the NHS is speed.  I felt a real urgency to get on hrt.  I am coming up to 30 and to be told I'd be waiting till I was 32 for hormones felt like a prison sentence.
Self medding and it's associated dangers was better for me then spending 2 years behind proverbial bars.

"What do you fear, lady?" he asked.
"A cage," she said. "To stay behind bars until use and old age accept them, and all chance of doing great deeds is gone beyond recall or desire."
                                                                                     ― The Return of the King
  •  

Jayne

Quote from: f_Anna_tastic on April 28, 2014, 03:44:58 PM
My main downside with the NHS is speed.  I felt a real urgency to get on hrt.  I am coming up to 30 and to be told I'd be waiting till I was 32 for hormones felt like a prison sentence.
Self medding and it's associated dangers was better for me then spending 2 years behind proverbial bars.



I hear your frustration as it took roughly 2 1/2yrs for me to get HRT started, i'm speeding towards 40 & it feels like a big clock is ticking.
I'm not trying to patronise you with this next comment as you're old enough to know the risks but please be carefull with self medding, under the new guidelines if you are self prescribing then they should try to get you onto a proper regime of medication monitored by a Dr ASAP.
This new guideline is there for the safety of patients who are self prescribing which I understand but the guideline runs the risk of giving people a green light to self med to speed up the process, it's a bit of a double edged sword.
  •  

Jayne

Quote from: NIP on April 28, 2014, 02:46:12 PM
I understand completely, particularly with the changing sentiment in the UK re: "benefits scroungers".

For me it isn't so much a changing social sentiment, it's just part of my strict (but loving) upbringing. My parents drilled it into me that you MUST work to be a productive member of society & anything else means you're a failure.
  •  

Kaylee

Quote from: Jayne on April 28, 2014, 04:01:08 PM
I'm not trying to patronise you with this next comment as you're old enough to know the risks but please be carefull with self medding, under the new guidelines if you are self prescribing then they should try to get you onto a proper regime of medication monitored by a Dr ASAP.
This new guideline is there for the safety of patients who are self prescribing which I understand but the guideline runs the risk of giving people a green light to self med to speed up the process, it's a bit of a double edged sword.

I'll attest to this, I recently had my first endo appointment, and was told to let them know if I am going to run out before I go back for a 2nd appointment and they will arrange a prescription.  I didn't have any luck getting a prescription from my GP, but they were ok with referring me straight to an endo.
  •  

f_Anna_tastic



Quote from: Jayne on April 28, 2014, 04:01:08 PM
I'm not trying to patronise you with this next comment as you're old enough to know the risks but please be carefull with self medding, under the new guidelines if you are self prescribing then they should try to get you onto a proper regime of medication monitored by a Dr ASAP.
This new guideline is there for the safety of patients who are self prescribing which I understand but the guideline runs the risk of giving people a green light to self med to speed up the process, it's a bit of a double edged sword.
Thank you,
I will take a look and see.

My GP is aware I'm self medding and is monitoring my blood levels. So I'm trying to be as safe as I can.

I'll keep pushing for a referral to an endocrinologist.
"What do you fear, lady?" he asked.
"A cage," she said. "To stay behind bars until use and old age accept them, and all chance of doing great deeds is gone beyond recall or desire."
                                                                                     ― The Return of the King
  •  

nikkit72

Pah ! Transitioning in the beginning, in it's entirety, is a nightmare. Then it starts to get better. It is not just the NHS it is all aspects of the process. The NHS simply provides the drugs and the other medial guff. There are other things to do while we wait. We all have our systems, and I have been known to complain a lot about ours (NHS) but, really, I bet the girls over in the colonies  ;) get some issues with their health systems too.
  •  

Rainbow Brite

Wow, what a headache. Good thing I left the UK and moved to the US.
  •  

RosieD

Quote from: Rainbow Brite on April 28, 2014, 08:13:29 PM
Wow, what a headache. Good thing I left the UK and moved to the US.

Seconded.

Rosie
Well that was fun! What's next?
  •  

AnneB

Quote from: Jayne on April 28, 2014, 04:09:49 PM
My parents drilled it into me that you MUST work to be a productive member of society & anything else means you're a failure.

Hmmm, suddenly I'm hearing Pink Floyd music in mah hed  ;)

Honestly, I feel for you all, being over there, and the heartache you must go thru to finally fix what is wrong with us.. but take heart, with our new OhBrotherCare, we'll be in the same boat as the UK & Canada.. 
  •  


Jayne

Quote from: Paula Christine on April 29, 2014, 09:02:32 AM
Honestly, I feel for you all, being over there, and the heartache you must go thru to finally fix what is wrong with us.. but take heart, with our new OhBrotherCare, we'll be in the same boat as the UK & Canada..

If your new version of the NHS is set up with the right rules from the beginning then it could make transitioning easier, unfortunately with the amount of news I see from the US with constant & very vocal opposition to any new legislation to make life easier for transpeople from the right wingers it has the very real potential to make transitioning harder.
I assume that you'll still have medical care paid for by insurance when your NHS is up & running but from some of the posts i've read over the years that route to transition seems to bring up plenty of headaches & heartache.
  •  

AnneB

I feel for those here in the US that have been "kicked to the curb" by their insurance plans and companies because of this new socialized medicine plan our "king" wants.  I'm fortunate enough that my company has a good, stable plan that , tho we pay for thru our payroll deductions, hadn't had rates skyrocket(yet).  HRT is covered but surgeries are not, so its... "I can feel better and sort of look better, but not remove and replace that which causes us the most pain".
And the company I work for was named best trans*friendly and supportive in the industry. So unless I really screw up doing something, my job and being out(whenever that is) is safe.  My boss and others in the office are totally supportive also.. and hes a good friend.  I trained him on his current plane ..

If the US continues the way its headed, most of the private sector employees will be left out in the cold because there are no penalties for insurance companies dropping their insured. And -then- the employees will be fined for not having coverage.  But no one will cover them..
  •  

NIP

Quote from: Paula Christine on April 30, 2014, 10:48:50 AM
I feel for those here in the US that have been "kicked to the curb" by their insurance plans and companies because of this new socialized medicine plan our "king" wants.  I'm fortunate enough that my company has a good, stable plan that , tho we pay for thru our payroll deductions, hadn't had rates skyrocket(yet).  HRT is covered but surgeries are not, so its... "I can feel better and sort of look better, but not remove and replace that which causes us the most pain".
And the company I work for was named best trans*friendly and supportive in the industry. So unless I really screw up doing something, my job and being out(whenever that is) is safe.  My boss and others in the office are totally supportive also.. and hes a good friend.  I trained him on his current plane ..

If the US continues the way its headed, most of the private sector employees will be left out in the cold because there are no penalties for insurance companies dropping their insured. And -then- the employees will be fined for not having coverage.  But no one will cover them..

Wow, sounds like a great system you have over here. I mean, all you have to be here to be guaranteed medical care (whether you paid any tax towards it or not, and you'll never see a bill for medical care that isn't a prescription, and only if you can afford to pay it) - that's significantly better than yours in the US mind you, check the life expectancy figures, the EU is well ahead with about a third of the spending per capita - is to be an EU citizen. What Obama wants to do has absolutely nothing in common with the NHS. Every single person living and working in the UK that pays tax collectively contributes to the collective health costs of all. When we need help, we turn up and ask for it - without paying anything out of pocket. Here, someone earning, say, the equivalent of $30,000 might be spending the equivalent of $300 in tax towards the NHS that year (how much do you spend on your insurance premiums - as a health person that's never needed medcial help, that is?) - whether they don't need the help - or whether they need help costing the NHS $100,000. Sometimes, because we have a right wing political sphere at the moment, we have to wait for that help because everyone wants the NHS's services, they just don't want to pay the tax to pay for it. I have a knee reconstruction once that cost the NHS about $50,000 - $60,000. You know what I had to do to get it? Need it, and wait six months. And you know what, the doctors wanted me to have it. And not because they got paid more for doing it. Nope, they were salaried and they would have got the same had they done nothing at all. They wanted me to have it because it improved my quality of life. That's what motivates the NHS. Empathy, not "rational self-interest". Even if your system produced results (it obviously doesn't, see my last post), I'd rather have the "socalized medicine" because I wouldn't feel like a stack of cash to the doctor eyeing me gleefully for the fat paycheck I represented.
  •  

RosieD

NIP, lovely, it is really not fair to go in to any depth on the differences in medical coverage between the US and the EU. Both are the results of the dominant cultural values in place in their respective areas and reflect those values. I prefer European values but then again I am European. Someone from the US may prefer US values and that's all tidy.  There are some horrible effects inherent in both systems (I know people on both sides of the pond who feel frustrated,  ignored and belittled by their respective systems) so I do feel that on Susan's we are better off helping people running up against the rough edges of whatever system they have to deal with rather than getting involved in arguments about whose system is least bad. The Net has plenty of other places to go if you want to argue politics.

Rosie
Well that was fun! What's next?
  •  

AnneB

I agree, not really the topic folder for this, guess it comes down to pay more into the system (US), get fixed sooner, or pay a little into the system(NHS), and wait longer, both have pluses and minuses.. I hope the caring from providers is equal.
  •  

Seras



Quote from: Paula Christine on April 30, 2014, 02:10:48 PM
I agree, not really the topic folder for this, guess it comes down to pay more into the system (US), get fixed sooner, or pay a little into the system(NHS), and wait longer, both have pluses and minuses.. I hope the caring from providers is equal.

*Points at the 'muricans who started this discussion.*

Also, we have our cake and we eat it too. We have private and public sector.
Makes a change to agree with you NIP though of course your implication that we only have waiting times because of a "right wing political sphere" is hilarious. As if there were not waiting times when labour was in charge. Other than that though , good posts and interesting graph.
  •  

NIP

Quote from: Seras on April 30, 2014, 07:55:04 PM

*Points at the 'muricans who started this discussion.*

Also, we have our cake and we eat it too. We have private and public sector.
Makes a change to agree with you NIP though of course your implication that we only have waiting times because of a "right wing political sphere" is hilarious. As if there were not waiting times when labour was in charge. Other than that though , good posts and interesting graph.

Oh, left-wing labour in power died 1979. ;) Then we got Tony! But I'm not against "waiting times" in principle. They can be a matter of coordination, and not money. Just when they become quite clearly excessive, especially in the areas apparently less important to the healthcare provider. And they become excessive when people don't want to pay enough for the staff, equipment, and premises to be at sufficient levels that they aren't a major bottleneck. People aren't becoming more ill over time - it's actually the opposite - we're just willling to spend less and less over time to treat the same illnesses, and even while vastly overestimating the true cost while holding this view (the UK state spends more on pensions that healthcare). And when it comes to investing in the healthcare breakthroughs of the future, we're very reluctant. We still have cancers that are are a 97% chance death sentence, for instance.
  •