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Reflections on one year of HRT

Started by Violet Bloom, September 19, 2014, 08:10:21 PM

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Violet Bloom

  September 18th, 2014 marked my 1st-year anniversary of starting HRT (celebrated with my mom with cake and a candle!).  As with everything else gained or discovered along the way it was a long time coming.  It is a place I've never even been able to imagine because you can't know what it's like until you get there.  Some changes were subtle of course, but when added up into the bigger picture represent a polar-opposite turnaround from where I stood back when I made the decision to transition.  All the sadness and discomfort I shed are now a vague and distant memory thankfully, but I certainly haven't forgotten where I started.  I continue to relay my experiences to early-stage transitioners and the questioning on Susan's so they can have hope in the scary early days just as others did for me back in 2012 and forward to today.  For those interested in some of the back story for context, continue reading the paragraphs in the alternate font - otherwise you can skip past that to the bottom for the rest of my update.

  Discovering my identity and making the decision to transition certainly helped lift me from a pit of despair and depression in Spring 2012, but there were other physical manifestations of my ills that would have to wait for HRT to address.  Depression played some role in how I was feeling but the baseline ills had existed before that and had progressively worsened since puberty.  From as long ago as I can remember I had chronic sensations of anxiousness - constant high nerves.  When I was a child I described it as never being able to feel calm at any time.  No one took it seriously or knew what to do about it.  Over the years I had many different medical tests done but everything seemed pretty much normal except that I always had an extremely high metabolism and was physically smaller proportionally to most children my age.

  Once I hit puberty my growth in height took off like a rocket and I was finally not being teased about my height but remained very thin despite a monstrous appetite.  Basically I just got really stretched out.  My symptoms of anxiety worsened and I began to struggle with morning nausea, a condition that would stick with me almost every day for the next 20 or so years.  The nausea would often prevent me from eating breakfast which is a bad way to start a day.  I also started to feel more tired when waking than when I went to bed.  A sleep test was eventually performed but came up with nothing including no evidence of the night-time tooth grinding my dentist swore I was doing.  I did, however, end up developing excessive tension in my jaw muscles and would spend whole months at a time with soreness, especially when chewing food.  My doctor mentioned a not-so-clinical term he had heard which described my situation well - "wired and tired".  Unfortunately he was of no other use in sorting it out.  In the last couple years of my suffering I would often feel like my brain was in the grip of some barely describable tension.  Try to imagine a ringing in your ears as a ringing in the brain.  There were times when I felt like smashing my head against a wall as if dazing myself might help.  (Thankfully I didn't actually try.)

  Eventually I became abysmally depressed and felt completely hopeless about my situation.  Other things going on in my life combined with this to take me down to a rock-bottom of depression and fatigue.  Basically I had totally given up and didn't care if I woke up dead.  My nerves felt like they were constantly buzzing and pulsing like an idling bus engine and I was dragging myself around in a state of chronic fatigue.  It was at this point that a pure fluke of events got me started in diagnosing my transgender identity.

  I went into my personal discovery purely from a gender identity standpoint without any idea that my other problems could be related.  I started doing a lot of research and reading old posts on Susan's and was shocked to be finding hints that my system being so horribly out of whack could be related to hormonal effects, effects that might be countered by hormone replacement therapy.  Most of the talk on Susan's centers around gender identity, sexuality and body dysphoria, all issues I needed to tackle anyway.  The conditions caused by incompatibility with the body's own hormone production are not often detailed.  I have no idea how common my past physical problems are and the specialists I'm now dealing with had very little background to go on despite having extensive experience with LGBT healthcare.  I went deep into the process of approvals for transition and coming out to people about my identity while having to go on hope and faith that trying HRT could correct my other ills.  This was really scary and added another layer of stress upon how bad I was already feeling.  Was I going to make a fool out of myself by coming out to everyone only to still be sick in the end?


  When I eventually got my first prescription for Spiro on September 18th, 2013, I finally had my proof that everything I was doing was right.  For the first day in my entire life I felt washed over by calmness.  It was the most glorious sensation I have ever experienced.  Until my dose increased and Estrace was added the daily pills created a bit of an up and down.  Now the effect is pretty much blended out and constant.  The medication has had a strong anti-depressant effect and has tamed my nerves to a point that feels almost numb by comparison.  I'm alert and energetic, cheerful and calm.  My racing metabolism has finally slowed enough that I've gained some weight I desperately needed.  I'm full of hope for the future but savor every day on its own.

  On the physical changes side, my face has softened and thinned.  My body hair is very slowly changing and slowing.  My skin is less oily, particularly my face and scalp.  Most notably I've developed what I'd estimate to be 34A breasts and I'm ecstatic about them with no need for more, although they continue to hurt every day so I don't think they are stopping yet.  Spontaneous erections are down drastically although the ability has not been lost.  It's enough that I can finally ignore 'down there' most of the time.  My testicles have also shrunk somewhat.  I have learned or gained, not sure which, the ability to have all-out female orgasms.  In a shocking discovery this year they have now occurred spontaneously sometimes without physical stimulation or focused intention.

  I am just starting to get "ma'amed" occasionally while in guy-mode and strangers seem to be more and more uncertain of my gender when I'm not clearly presenting female.  I've also been taking voice lessons and have been ma'amed on the phone simply because my baseline voice character has shifted.  Once I get further with electrolysis I think I'll seriously consider going full-time prior to surgery even though I'll still be a work in progress.

  What I've gone through in my life has been a terrible, torturous marathon that I would never wish on anybody.  When I tell my story it is with the sole intention of helping others learn they can get better before wasting so much of their life in anguish and distraction as I did.  Maybe the physical manifestations of my condition were rare, I can't be sure, but if I could even reach just one young person and turn their life around early I would be ecstatic.  No one should ever have had to live this way and the medical community needs to very seriously inform themselves.  I never really received any direct or proper guidance on this.  My body was crying out for decades that something was terribly wrong and the information should have been available even to just test a hypothesis.  Thankfully my suspicions were proven correct as I am now in near-perfect health.

  Obviously everyone is different and HRT should not be considered a magical solution to all ills, so please be careful and find the right doctor to assess your unique situation.  In my case HRT brought me far more invisible changes than the visible ones most desire, but these were the most critical to me.  If you share any of the ills I had then I can say at least from my personal experience that there could be hope for you.  Be prepared for nothing but cherish any successes.  As I told my mother, HRT has turned out to be the single most important thing that has ever happened for me.  There was no other possible path for me and I am at peace now.

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Monica Jean

Thank you for your post, there's so much here you could easily write a novel, and I'd read it all.  Much the same emotional stresses as you have experienced. 

I am looking forward to that calmness you describe as I have not known it in my lifetime.  Your words provide encouragement that life surely will get better.
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JulieWeeks

Happy anniversary!  Thank you for a very insightful post.  Posts like this are exactly why I came here to these forums.  To see others that were in the position I find myself in now and to see that things can get better through HRT and therapy provides hope that better days do lay ahead.
BElieve in YOUrself
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Violet Bloom

  Thank-you ladies for your replies.  I think I'm reaching the right people.  And yes, michelle1, I probably could write a novel out of this and every which way it entwined itself into my life's history.  There is much more of it in my past posts if anyone wants to go digging.

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ImagineKate

Happy anniversary! Thanks for the inspiration for my own journey. Feeling at peace is the biggest thing I'm looking forward to.
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Monica Jean

Violet I just re-read this post from a now-on-HRT point of view, just started today.  My jaw has dropped on the floor.

A question you asked I missed in my first run through yesterday: "Was I going to make a fool out of myself by coming out to everyone only to still be sick in the end?"

That was my question for months.  I dreaded debating it in my own head.

My therapist approved my HRT.  I thought it would ease the edge or reduce a bit of the anxiety because any relief there is welcome.  Maybe even lessen fatigue. 

Within 90 minutes, 43 years of depression was wiped away. I was no fool anymore.   

Your story echoes my experiences of this past afternoon.  Except for the gaining weight part ;)  I'm trying to lose some :)

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Violet Bloom

  My whole life I knew I was a little different, but after people consistently and instinctively treated me differently I began to feel 'alien' and perhaps even unique.  Being the logical sort I knew I couldn't possibly be completely unique in the human race - it was a statistical impossibility.  It wasn't until I found Susan's Place that I began to learn that there were many people like me or with common experiences.  Without this site I think I would still be feeling alone and alien.

  It took almost 1-1/2 years of waiting feeling like I was in some awful limbo until I was able to get the access and approval for HRT.  I knew where I was headed but couldn't help but question myself all the way along until then.  I surely did feel quite like a fool, like as if I was trying to over-sell my story.  It's weird trying to be convincing-enough to the people that matter or make the decisions without starting to believe things that aren't true or haven't happened yet.  I kept having to stop for a reality check to make sure I wasn't deluding myself or reading into it falsehoods.  I refused to believe all the glowing endorsements from experienced transitioners on the internet until I could experience the truth myself.

  Ever the skeptic I never took for granted that anything would improve my situation or to what degree.  There is, however, not one thing that's happened to me throughout this process that didn't feel right and better than I could have foreseen.  Some things were fast and others slow, but I really couldn't be much happier at this point.  I think one of the least expected changes is that I went from strongly desiring material possessions and life experiences to being satisfied without anything more and being happy in the moment.  There is much more to come in my transition but those future changes became less of an anxious necessity and more of a simple matter of fact that will come in due time.

  When my transition is complete I may very well try to publish my story for the benefit of everyone trans or cis, but despite my lengthy and in-depth rambles on the subject, I'm no book writer, so hopefully someone will help me when the time comes.

Quote from: michelle1 on September 23, 2014, 06:15:58 PM
Violet I just re-read this post from a now-on-HRT point of view, just started today.  My jaw has dropped on the floor.
A question you asked I missed in my first run through yesterday: "Was I going to make a fool out of myself by coming out to everyone only to still be sick in the end?"  That was my question for months.  I dreaded debating it in my own head.  My therapist approved my HRT.  I thought it would ease the edge or reduce a bit of the anxiety because any relief there is welcome.  Maybe even lessen fatigue.  Within 90 minutes, 43 years of depression was wiped away. I was no fool anymore.   

Your story echoes my experiences of this past afternoon.  Except for the gaining weight part ;)  I'm trying to lose some :)

  I'm glad you caught my carefully-crafted segue between the end of the pre-HRT period and the present-day update.  Certainly my doubts dogged me for the longest time and made the waiting period all-the-more uncomfortable.  Just as you had hoped, I also prayed for even the slightest improvement in my condition via HRT.  I am still shocked by how much of a difference it made right away and over time.  I'm no fool and I'm no clown either - just an everyday, balanced, smart and classy individual who shed all the ills that were dragging her down.  I'm prepared to face the first uneducated jerk who tries to tell me that being transgender/transsexual or transitioning will/has ruined my life because I know from a lifetime of suffering that the truth is the exact opposite.  There are so many layers to it but the physical health reversal on it's own is an undeniable result thanks to HRT.  Science can't explain it yet but I don't need science to feel the difference nor to claim my rightful place in society.

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Monica Jean

I'm sitting at a bar eating a salad and a diet Coke, reading the OP, holding back tears from flowing. 
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AnonyMs

I can relate to this as I recently discovered the very real physical dangers of stress and depression.

I started HRT years ago but for various reasons didn't progress in my transition further, and eventually began a long slide into serious depression. When I realized just how bad it was and couldn't take it any more I decided to do something about it, seeing a psych and increasing the HRT. In the mean time I've long had a medial condition that has the potential to be fatal (and was fully expecting it to be), and I was about to start on medication to treat it. Medication that would have limited effect at the end of the day.

A funny (not really) thing happened though, just as I decided to start the medication, I find I don't need it anymore - the increase in HRT and total lack of depression has probably saved my life. I still have a ways to go, but now I just need to keep it up, somehow.
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Violet Bloom

Quote from: michelle1 on September 24, 2014, 05:52:30 PM
I'm sitting at a bar eating a salad and a diet Coke, reading the OP, holding back tears from flowing.

  I've shed far too many tears at the hands of my condition and frustrations.  It went in a cycle of containing all my emotions like a good boy until every four to six months I'd have a meltdown and let it all out at once.  I don't cry much any longer but generally when I do it is because of something happy and because I want to.  Before, I was conditioned to believe it was the last thing I should ever do.  Now it's just plain right.  I also used to be painfully self-conscious of all my expressions and expressiveness to the point where smiling felt like a grimace and I thought it made me look stupid.  I spent much of my time as reserved as possible.  Now I beam a huge genuine smile like I never could before and I like how it looks on me.

  Michelle, I hope you have found your 'tears of happiness'.  If not yet then they will surely come in due time.  I hope everyone can find their tears of happiness.  (Now where's the emoticon for that?!? :laugh:)

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- Rachel -

Reading your story has certainly brought on my tears of happiness. Thank you for sharing it.

"Never be bullied into silence. Never allow yourself to be made a victim.
Accept no one's definition of your life; define yourself." -- Robert Frost
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Julia-Madrid

Violet

I am in awe of your strength and courage to have battled against your demons and emerged strong, secure, and knowing who you are.  There are times on Susan's where I find a level of frankness and humanity that makes me extremely proud to be part of our little community, and your explanation of your journey so far is one of those stories with which I instantly connect.

Congratulations on your anniversary!  May your journey continue to be positive and affirming.

Julia
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Violet Bloom

  Thank-you, Julia, for the kind words (and the +1)!  This was but one part of my story but the most important part for me to communicate, and I have never spelled it out in this much depth here before.  Readers can take everything I say at face value because I am frank, honest and speak without unnecessary drama or anger.  I have put myself through the wringer and analyzed my situation to death.  It is still extraordinary to think back to my earliest memories and see how my born identity and physical traits have affected every element of my life.  It was terribly unfortunate, but in the end necessary, that I reached an emotional bottom I never imagined could happen to someone as optimistic as me before discovering a life-change I could never have imagined either.  I wish I hadn't wasted so much of my life in confusion and sadness but it's unlikely it would have turned out any other way.  I had to go through all of it to grow as a person and to develop the right state of mind before I could begin transition and the road to recovery.  Despite having had a high level of maturity from a very early age, I actually find that my transition truly marks my transition into adulthood, even as it comes at the age of 37.  I am ready for it now because I've fought all my battles and gotten through alive.

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stephaniec

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Monica Jean

Violet,

This is still one of my favorite topics at Susans.  I remember reading this a year ago saying to myself "will I ever get to this point?"  And the night I was sitting at that bar...it was a concert at a small venue in Nashville.  I had a salad and a diet Coke and your article. I remember it vividly.  This post of yours means a lot to me as I gained strength through hope reading it. 


Now, a year later, I can write my own.   

Thank you so very much for your inspiration to help me carry on. 

Happy 2nd anniversary!!
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byanyothername

This is a fantastic thread. I've suffered with anxiety for my whole life and am just starting to realise why. You couldn't have put it any better and this just solidifies my thinking that I really need to go and see my GP.
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Anna R

Quote from: Violet Bloom on September 23, 2014, 01:08:58 PM
  Thank-you ladies for your replies.  I think I'm reaching the right people.  And yes, michelle1, I probably could write a novel out of this and every which way it entwined itself into my life's history.  There is much more of it in my past posts if anyone wants to go digging.

Thank you so much Violet, am at an age (67) where I was really going to give up as have spent my whole life agitated and unable to settle.
Coupled with 17 yrs on Valium to control migraines prescribed by a Neurologist with devastating results, took myself off them back in 1986 and now am beginning Estradiol/Spiro next week.
Your article is very similar in a lot of aspects.
Greatly appreciated by me
Anna
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Violet Bloom

Quote from: Monica Jean on September 22, 2015, 07:16:15 AM
Violet,

This is still one of my favorite topics at Susans.  I remember reading this a year ago saying to myself "will I ever get to this point?"  And the night I was sitting at that bar...it was a concert at a small venue in Nashville.  I had a salad and a diet Coke and your article. I remember it vividly.  This post of yours means a lot to me as I gained strength through hope reading it. 

Now, a year later, I can write my own.   

Thank you so very much for your inspiration to help me carry on. 

Happy 2nd anniversary!!

  Such a wonderful sentiment, thanks!  I'm so glad you bumped this thread up now because I'd actually forgotten to look up my HRT anniversary this year before it had already passed.  While I am a very sentimental type who enjoys marking exact dates for occasions, missing the exact day revealed something far more important than the anniversary itself - The fact that life is almost normal again.  So normal that I can now forget about obsessing over all the little details of transition and finally just truly relax.  So much has happened since this time last year that now seems like a perfect time for an update.

  There are still things I need to do weekly that take a lot of my time, don't get me wrong, electrolysis (6 hours per week) and the occasional speech therapy session, but the rest is completely normal life.  Last year at this time I hadn't come out yet to the remainder of my family nor my workplace (and its thousands of retail customers too!).  I was also pre-FFS which had a major grip on my mind that wouldn't let me completely move forward without it.  In the Spring of this year I finally took the last major leaps that everything had been working up to for three years - coming out to everyone remaining all at once and braving FFS, the only surgery I've ever had in my life.  Just before going into the surgery I symbolically laid my old self to rest and passed the torch.  "He" said good-bye and in the process freed me to go on with my life without all the pain, stress or baggage of the past.  In fact, I was so determined to put that event out of my mind that I never got around to posting here about the whole story but I will soon because I think I can do it now with sufficient emotional detachment.

  These days I think I pass to most people but more importantly I don't even think about that any longer.  It's impossible to know how it feels to completely let go of all that at the subconscious level until it finally happens.  I didn't even realize right away that I'd reached that point.  Cis people who know me don't seem to understand how I can feel normal.  For everyone around me it is now their time to learn that for themselves.  Just as it took over three years for my mind to make that switch fully, time is the only thing everyone else needs.  I have to remember that most people who know me have only known about my transition since May of this year.  They can see the huge difference in my confidence and comfort level but now they have to integrate that into their own minds.

Quote from: durbans on September 23, 2015, 02:20:14 AM
This is a fantastic thread. I've suffered with anxiety for my whole life and am just starting to realise why. You couldn't have put it any better and this just solidifies my thinking that I really need to go and see my GP.
Quote from: Anna R on September 23, 2015, 04:11:32 AM
Thank you so much Violet, am at an age (67) where I was really going to give up as have spent my whole life agitated and unable to settle.
Coupled with 17 yrs on Valium to control migraines prescribed by a Neurologist with devastating results, took myself off them back in 1986 and now am beginning Estradiol/Spiro next week.
Your article is very similar in a lot of aspects.
Greatly appreciated by me
Anna

  Thanks so much to the other commenters.  By far the most important thing I wish to accomplish and communicate through talking about my transition is the element of medical healing through HRT for those that have suffered the physical and mental deterioration that I had.  Anyone else who has approached transition purely from an identity standpoint should count themselves lucky that it wasn't compounded with all the other 'body-sickness' and associated depression and feeling of helplessness that I went through and for the fact many of you knew what you had to do to fix your life.  I suffered a progressive illness with no sense of a way out until I picked up hints that HRT could help me.  If I hadn't stumbled upon the revelation that I needed to transition for identity reasons I might have spent the rest of my life in a misery of ills.  There is virtually nothing out there properly documenting this sort of thing in medical terms.  Whether or not it works for everyone like me, and there must be many more like me, I've learned the value of it by taking a calculated and researched leap of faith and anyone suspecting their situation is similar should be given the chance to test HRT for themselves.  I went in as a skeptic and came out floored by the successful result - I feel like 110% healthy now.  Maybe one day in my lifetime this will become established medical wisdom.

  Whether it be in response to this thread or a new one of your own, please everyone who finds medical 'peace' through HRT speak up and be heard for the benefit of others.  No one single person on this planet should have to suffer the way I did.  Many doctors (and the general public) seem to think transition is only about identity and that HRT is only about growing breasts or similar.  For some of us though, and perhaps a lot of us, there is significantly more at stake through the use of this treatment.  Telling your own story of success could literally save a life!

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awilliams1701

Happy anniversary. I only got a couple of months to go myself. HRT has been great overall.
Ashley
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