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Bad news at the doctors

Started by Releca, January 01, 2015, 02:44:05 AM

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Releca

I went to visit the doctor today for other reasons but decided to ask about how she was for hrt just to see of she would work with me or not and due to ha Ingram a high chance of having Ehlers-Danlos Syndrome or a similar condition hrt may also carry high risk for me due to it also carrying a possibility of a weaker heart from to much elasticity. This saddens me greatly but I have a followup with a specialist to verify.

Good news is of I go foward she is in support but I'm still worried about what if a major crossroads decision becomes completely impossible without majority risking my life. I mean I could possibility do the surgery option but that has strong risk as well plus getting a recommendation to do so as well. I've been ondering about if I really should or stay with my family but I want to keep my option at least.
I am a caterpillar creeping along a leaf.
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Ms Grace

I hope things work out for you. It's never helpful to have a complicating issue when you want to pursue transition, fingers crossed it doesn't cause you problems. :)
Grace
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Transition 1.0 (Julie): HRT 1989-91
Self-denial: 1991-2013
Transition 2.0 (Grace): HRT June 24 2013
Full-time: March 24, 2014 :D
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Rachel

I am keeping my fingers crossed you receive good news, hugs.
HRT  5-28-2013
FT   11-13-2015
FFS   9-16-2016 -Spiegel
GCS 11-15-2016 - McGinn
Hair Grafts 3-20-2017 - Cooley
Voice therapy start 3-2017 - Reene Blaker
Labiaplasty 5-15-2017 - McGinn
BA 7-12-2017 - McGinn
Hair grafts 9-25-2017 Dr.Cooley
Sataloff Cricothyroid subluxation and trachea shave12-11-2017
Dr. McGinn labiaplasty, hood repair, scar removal, graph repair and bottom of  vagina finished. urethra repositioned. 4-4-2018
Dr. Sataloff Glottoplasty 5-14-2018
Dr. McGinn vaginal in office procedure 10-22-2018
Dr. McGinn vaginal revision 2 4-3-2019 Bottom of vagina closed off, fat injected into the labia and urethra repositioned.
Dr. Thomas in 2020 FEMLAR
  • skype:Rachel?call
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Releca

I am a caterpillar creeping along a leaf.
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EmmaMcAllister

I know how you feel. I stopped transitioning twice because I was afraid that my disability made the whole thing foolish. Now, I just don't care.
Started HRT in October, 2014. Orchiectomy in August, 2015. Full-time in July, 2016!

If you need an understanding ear, feel free to PM me.
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FrostPixie

@Releca
I'm sorry about having EDS.  Have you genetically screened what type you have yet via bloodwork?

My 20 year old boyfriend (FtM) just finally got diagnosed with EDS (hyper-mobility), but has been on HRT (IM) with no undue side effects.  Besides the body pains from EDS  :(.  At least we know why none of the fibromyalgia medicines weren't working.  Now i just need to get Him to see a specialist and start some physical therapy.  Though the closest specialist is about 2.5-3hrs away from us in Chicago and he already sporadically needs a leg brace and/or cane to get around some days.  It breaks my heart to see Him in that kind of pain to where I can't even touch Him lightly sometimes to show affection. 

But as far as I know, there has been no additional risk to life from the HRT being conjoined with the EDS.  Not too many cases to go by for this though since both EDS and TG are rare in the population.  And the conjuncture of the two is probably like 1:1,000,000 or higher. Especially depending on the subcategory of EDS. As far as surgical complications, we will have to find out as that comes along.  He plans to get top surgery (double anchor) within the next two years, when He can afford it.  Currently He just binds for most public occasions. After that He plans to get a Phalloplasty when funds become available. (Luckily His insurance covers a good chunck of both procedures, unlike mine where i need to pay 100%).

Good luck with your progress ^-^
~Pixie


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