So I was born with odd shaped (it was bent & not 'normal' looking) amab stuff, a 'something' that resembled a labia, and only one hard 'thing' I assumed was a testes. AMAB. In my early teens I started growing small breasts, never went through typical puberty (no body hair, very little facial hair...very little pubic hair till hrt started) though I did grow tall.. taller than anyone in my known family in fact. There were some suspicious circumstances pre-puberty involving allergy shots, though my mother will never tell me who did it that occurred right before my growth spurt.
Fast forward a couple years to when I was 21. My first hormone test said >3 testosterone (nearly unmeasurable), and peri-menopausal estrogen levels. I started 'transition' and got GCS in 2001 (when I was 26).
Fast forward to now... I'm 43. I've been having lower abdominal cramps for a LONG time but didn't tell anyone cuz first I thought it was wishful / delusiona thinking, but my endo ordered an pelvic and intravaginal ultrasound (full bladder then voided bladder). What they found was... a full blown regular size uterus below the bladder, a cervix (or so it stated) and even a small uterine fibroid... some fluid in the cul de sac (area between uterus).. regular sized endometrium with no anomalies... the only thing of question were the ovaries. I've also had osteopenia last 15 years bordering on osteoporosis... Finally started HRT again 2 years ago after a long hiatus, but I've always had progesterone levels (albeit on the lower side) within normal limits and a higher than menopausal estrogen levels... though not high enough to stave off bone health problems.. Ultimately their diagnosis was 'primary ovarian failure' for now.
I saw on their scan what appeared to be an infantile looking ovary on the left side. (I'm a RN but by no means an expert on ultrasounds). My mother, a religious nut, stated none of it was true, all misdiagnosable and didn't trust a single bit of the ultrasound. Mind you she's also a midwife, but doesn't make use of actual ultrasounds (she's one of those crazy home midwifes for other religious nuts). To me, however, the uterus itself was fairly obvious and very hard to dispute.
My question: Anyone else have experiences with ultrasounds in general diagnosis of intersexed internal organs? I will be getting a MRI for more definitive diagnosis as well, especially in regards to the alleged placement of the ovaries. From what I understand, however, gross organs (like a big whomping uterus) are generally not misdiagnosed. Tiny thinks like endometrial disorders or uterine fibroids might though.
