I had 4x surgery in my pelvic area over a 14 month period. The first was for urethral blockage, the second was my main Genital Reconfiguration Surgery (GRS) in May 2014, and the third and fourth (July 2014, February 2015) were to attempt to correct a prolapse that happened while I was still in hospital after the first op. Each of the last three were pretty in-depth, though of course the first of those was the must full-on in terms of moving stuff about a lot.
Now, just over a year after that last op (which successfully corrected that prolapse, though with a loss of depth), I'm still in pain sitting down or standing still for long periods, and the doc at my GIC has just checked me out and diagnosed it as neuropathy.
We're going to try various medical approaches to "resetting" my nerve responses, and also to try to "reset" my brain's response to those responses, but I don't know whether I'm going to end up having to put up with this forever or not.
I'm relieved to have it diagnosed, partly because up until now it was hard to get medical folk to take it seriously (as usual, no diagnosis = "it's just in your mind"), and partly because this might mean moving forward in finding a treatment for it.
I wondered whether anyone else has experienced this kind of chronic false-positive pain after GRS?
ETA: The doc first mentioned two drugs that I won't be trying out, because I've already taken them (coincidentally, to treat other issues to do with CPTSD), and they made no difference to the pain levels, but made my life more difficult instead. They were Amitriptyline and Pregabalin. So I don't know what's next in line to try out.
