Quote from: Ms Grace on April 10, 2016, 03:36:22 PM
Well I'm very sorry to hear that but in my defence your original post made no mention that your hep C had advanced to the final stages of liver cancer. Also, I'm 50, so not that young!! 
Like I said, I'm not a medical person and I don't wish to give you false hope where there may be none, but the new meds can clear up the infection even in its most advanced stages and liver transplants, providing a suitable donor can be found, can literally be life saving. I know someone who had Stage 4 cirrhosis who cleared the virus after 24 weeks on harvoni and then went on to have a successful liver transplant in his late 50s and is now, only three months later doing well. But that was under the Australian medical system where a lot of costs are paid by the government. Anyway those issues are up to your health care team and, unfortunately, your financial situation.
To answer your question, how to live the last few years of your life, I suggest go for it. If you have liver cancer or even advanced cirrhosis you are unlikely to be prescribed oral or injected estrogen (regardless of it being bio identical or not) as it will stress your damaged liver too much. And while estrogen is great for a number of things and certainly helps the process of transition, it's not essential. There are, I suspect, many trans women who are not on estrogen for health reasons who are still living their life as fully transitioned women.
I did say that it was (not treatable). My bad for not being specific.
For the gory details, I had radioactive stuff injected into a vein they mapped to my Liver, and it was supposed to stay there. It found it's way all up my right side to the top of my head, then drove my bilirubin through the roof. The Liver, when it is damaged to End Stage Liver Disease, puts it's output wherever it can find a path. Unfortunately, it made me so ill that it was 2 whole months before the levels went down. And it didn't do anything to the cancer (carcinomas). Then they tried Chemo drug, and it did the same thing to me, sick for months and nothing for the cancer.
The Spironolactone keeps the pitting edema and abdominal swelling down, the Furosemide keeps me urinating properly to expel the toxins. Potassium to keep my levels from falling into danger zone. Lactulose to keep the Ammonia from building up and putting me into a coma, of which I had to be hospitalized (comatose for 3 days). Oxycodone for nausea breakthrough pain and Morphine Sulfate for background pain. The Estradiol I take sublingually to keep it from passing through the Liver. Yes, that's a lot of medications, but the alternative is to swell up until I croak, and that wouldn't take very long.
Eventually, the compensating drugs will lose their effectiveness, and that will be the end.
Harvoni won't work for me, having Genotype 3A HCV.
Sovaldi plus Ribavarin will work, but neither Medicare or Medi-Cal will cover it because of my carcinomas (cancer). 24 weeks x 7 days/week equals 168 pills. At $1,000 per pill , that's $168,000 for the treatment. Being on Social Security Disability and my wife's Social Security won't even start to cover that cost.
That's my life, what is left of it. I just don't know how many days I have left, but they are numbered.
I'm ok with that.
What I'm not ok with is getting rejected by a Transgender clinic. I didn't see it coming, and it hurts.
