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Complications

Started by Isabelle, April 19, 2016, 04:58:26 PM

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Isabelle

I'm not sure if this is the right area to be posting, is there/should there be an area to discuss post-op complications specifically?
Anyway, I'm wondering if anyone else here has had issues post-op and how they went about having them fixed?
Currently, I'm being treated by the public health system in my country to try to repair my surgical outcome. Essentially my surgery failed and my bladder is exposed. (I've contacted my surgeon, he says it's my fault so that's a non-starter) has anyone had a similar complication?
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Bird

This is such a important topic, I wish people spoke more about it. Sometimes a surgeon is really hyped, but no one talks about how the post opcare was not that good, or certain complications. When I went to Kamol everyone I spoke with hyped him so much, and it was a great disapointment due to how lacking he was during consultation and other, more strutural related things.

I have heard of a few others who had complications and needed someone else to fix it. In ->-bleeped-<- I read just yesterday about a girl who had a uretro-vaginal fistula. Although she could still hold it,she urinated from the wrong place. She had to find a new surgeon in her country as the SRS surgeon refused to fix it. Sadly she didnt reveal who was it, but she did mention it was one of the top surgeons.
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Ms Grace

I'm very sorry to hear you are in this situation. Which country did you have the operation in? Maybe you can report them to medical authorities. Not that it solves your problem - but I fail to see how having an exposed bladder could be your fault.
Grace
----------------------------------------------
Transition 1.0 (Julie): HRT 1989-91
Self-denial: 1991-2013
Transition 2.0 (Grace): HRT June 24 2013
Full-time: March 24, 2014 :D
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AnonyMs

Quote from: Bird on April 20, 2016, 06:36:59 AM
I have heard of a few others who had complications and needed someone else to fix it. In ->-bleeped-<- I read just yesterday about a girl who had a uretro-vaginal fistula. Although she could still hold it,she urinated from the wrong place. She had to find a new surgeon in her country as the SRS surgeon refused to fix it. Sadly she didnt reveal who was it, but she did mention it was one of the top surgeons.

Would you be able to pm me a link? I didn't see that, and couldn't find it.
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Isabelle

I had my surgery in Thailand. My issues began immediately but, when I raised questions I was told "don't worry, it's nothing, everything is fine".... After a few weeks when I was home, I went to get checked by my GP because I was worried, she said she wasn't sure and didn't really want to look inside for fear of damaging healing external tissues (I agreed). She suggested I try pelvic floor exercises to strengthen muscles etc.. A couple of Months later, I had a proper check and they discovered the problem (the aforementioned hole/exposed bladder) so, I've been on a preventative dose of antibiotics since mid December to ward off infection. Unfortunately, while public health is free, it's also slow, so I'm on waiting list after waiting list to try to be seen, in the hopes they'll know what to do. I contacted my surgeon the second the problem was discovered. His response was "you did this to yourself by having sex and/or dialating incorrectly" I've not had sex, and so far as dialating, I followed the instructions. The surgeon then offered to perform sigmoid colon surgery to repair it (at the full price, naturally)
Basically, my options now seem to be a buccal graft (skin from inside my mouth) to try to patch me up, or having the majority of my vagina closed.... With any luck, my bladder will survive without too much more damage for the time I'm on waiting lists.
For anyone considering going to Thailand, be prepared that things can and do go wrong, and when they do, you're on your own. I'm not saying don't go. Even with my failed surgery, I prefer it, to what I had before but, be prepared. 
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AnonyMs

You might be able to get some help in Thailand. I think I've heard of problems with SRS there before and pressure being applied to surgeons to get things sorted out. There's a lot of money in medical tourism, and negative publicity hits them where it hurts.
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Isabelle

Yeah.....nah. I wouldn't go back under the knife of a Thai surgeon, even IF he offered to help me for free. I'd rather have my money back, and go somewhere with real accountability. There's none in Thailand, I've looked into it.
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AnonyMs

It would appear not, but I think someone managed it some years ago. I don't know the details though.
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Starfire

Are we not allowed to share surgeon names?

I think this is important information for people considering GCS surgeons.  Not necessarily because of the actual complications since those can happen regardless of the surgeon but it would be helpful to hear how certain surgeons handle and respond to a particular complication or if they just blame the patient.
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Isabelle

Just to be crystal clear,
I don't blame my surgeon. No one is at fault. I didn't name him cause I didn't want people needlessly stressing over it. With a little forum digging, it's easy enough to find out who I saw, if it really matters that much to someone

He could only work with the anatomy I have. He's done this surgery countless times without the complications I've had, so, the logical thing to assume is, my complications are unique to me.
As for accountability, no Thai surgeon is accountable. They may or may not offer to fix complications, that would be up to the surgeon and patient.

If I knew I'd have these complications at the start, would I still go to him? Yes. Am I happy with my outcome? No. Is it fixable? Hopefully. Is it better than how I started? Absolutely.
The point of the thread was to ask around if anyone had experienced a similar complication. Not to bash a surgeon.
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Ms Grace

If you like we could change the name of your post to Complications - Exposed bladder
Might give you a better chance of finding someone else with the same problem?
Grace
----------------------------------------------
Transition 1.0 (Julie): HRT 1989-91
Self-denial: 1991-2013
Transition 2.0 (Grace): HRT June 24 2013
Full-time: March 24, 2014 :D
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Isabelle

That might be helpful but, to be totally honest, I'm thinking of leaving this forum permanently. It's not that the place hasn't been helpful occasionally, it's the constant and recently changing nature of emails asking me for money... thanks everyone, and byebye, it's been real x
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Dena

Rebirth Date 1982 - PMs are welcome - Use [email]dena@susans.org[/email] or Discord if your unable to PM - Skype is available - My Transition
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Devlyn

Big hug! Sorry you're having a rough patch. You have your head screwed on right, and have a good attitude about your outcome and choices. Best wishes and if I find anything I'll add it here.

Hugs, Devlyn
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Richenda

Quote from: Isabelle on April 21, 2016, 06:58:32 PM
That might be helpful but, to be totally honest, I'm thinking of leaving this forum permanently. It's not that the place hasn't been helpful occasionally, it's the constant and recently changing nature of emails asking me for money... thanks everyone, and byebye, it's been real x

Wow, I've just seen this. I'm so sorry Isabelle for what has happened. I think you are still around on this forum.

I know you don't blame Dr Chet and team but it does seem very important for everyone to be aware of potential complications with any surgery and medical team. Things can go wrong. Your point about lack of accountability here in Thailand (where I live) is both true and worth emphasising, especially when it it a ferang (foreigner) involved. That's not taking a pop at the place: I love the country to bits but I just don't want people to be starry-eyed.

I've several times thought of quitting this forum for a few reasons but am glad I haven't. Stay with us and update us if you feel like it?

much love,

Chen
x
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AnonyMs

Quote from: Richenda on June 06, 2016, 06:26:02 PM
I know you don't blame Dr Chet and team but it does seem very important for everyone to be aware of potential complications with any surgery and medical team. Things can go wrong. Your point about lack of accountability here in Thailand (where I live) is both true and worth emphasising, especially when it it a ferang (foreigner) involved. That's not taking a pop at the place: I love the country to bits but I just don't want people to be starry-eyed.

While I'm sure that's true, over the years I've heard enough bad stories to believe its very difficult to hold a surgeon to account in western countries. So difficult that it essentially doesn't happen. At least with the Thai surgeons who make so much of their income from westerners they have a strong financial incentive to do their best. Internet is a wonderful thing, and I trust money a lot more than I trust any notions of legal accountability anywhere.
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