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CarrieLiz's GRS With Dr. Chettawut, 8/9/16

Started by Carrie Liz, August 03, 2016, 04:02:10 PM

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Carrie Liz

Quote from: Dena on September 06, 2016, 12:08:00 AM
You haven't mentioned it so I figured I should suggest it. When you dilate do you use a mirror to make sure you are properly placing the dilator in the entrance of the vagina? When starting a larger dilator it's easy  to get off center a little bit and it just doesn't want to go in. I am currently using a makeup mirror and that gives me a good view of my underside. Before that I used a hand mirror which works as well.

Yep, Dr. Chett gives you a little Hello Kitty (appropriate :P ) hand mirror to use to make sure you're putting things in at the right angle and everything. I always use it.

So nope, not an issue with angle or location, it's just too tight.
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Jenna Marie

Brassard's instructions and nurses both addressed "what if I can't manage the step up in size when the schedule says I should," because it happens a lot; the answer was "keep dilating at the higher frequency with the smaller sizes, and try again in a few days." Width is something that can be gained/regained at any time, so there's no significant concern with not being able to use the larger one yet, as long as you can still get full depth with the narrower dilators.

Plus, honestly, the swelling from the flights might take longer than 1-2 days to fully subside.
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mm

Liz, so good to see you got back home with minimum problems.  Your recovery seems to be going very well for you.  Great that a your last meeting with Dr. Chettawut went well, he answered all your questions so well.  I know you had a graft; was this material used in making the upper most part of your vagina longer where you had a problem dilating the first few days.  Where was the graft taken from, has that site healed nicely for you?  I hope you continue to get stronger after your big trip back home, traveling takes a lot out of normal person, so I expect you will need extra rest for a few days.
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I Am Jess

Follow my life's adventures on Instagram - @jessieleeannmcgrath
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Carrie Liz

Urgh... not a fun day.

For some reason dilation just got more painful.

I haven't changed a thing in my routine, I'm still making sure that I'm using a lot of lube and making sure I'm inserting it in the right position, but all of a sudden the #0 dilator has started hurting all the way in, (#1 doesn't hurt as much for some odd reason,) and I've had blood all three times I dilated today.

Swelling pressure and soreness in the entire surgical site has also been especially high today, I even had trouble getting out of bed because moving hurt. Clitoris has been super-hyper-sensitive, I can barely move and it twinges with pain. I've also had bloody discharge showing up on my pantyliners all day.

I'm still exhausted, but not as much as yesterday. A single afternoon nap was enough to make me awake enough to talk to people and do a couple of things. (Made my own breakfast and helped with dinner at least.)

I really hope everything's okay, because I haven't felt this much pain, been this wiped out energy-wise, and had this much discharge, since right after the catheter was removed 2 weeks ago.
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Tess2016

I would strongly suggest you make contact with your doctor and apprise them of your procedure and check for infections.. also Thrush..

Tess..
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Carrie Liz

So, the pain and the bleeding are still going on.

However, I'm still kinda in the ballpark of thinking that it's not a deeper problem, it's just overexertion. Now that I'm back home, I'm sort of out of the routine that I had in Thailand where lunch and dinner were always two steps away from my bedroom and a simple matter of heating things up in the microwave or just eating whatever dish Mom had grabbed from Seacon Square for the day, and spending the entire rest of my day in bed. My bedroom is upstairs, which means at bare minimum walking up and down the stairs three times a day for meals, and I've done a lot of preparing my own. Yesterday when the pain and bleeding started getting bad, I cooked breakfast, then spent a couple of hours cooking dinner with Mom, and in general spent a lot of time walking around.

Also, because the dilator wasn't quite going to full depth, and because I'm now a couple of days behind schedule with starting the #2, I'll admit, I started forcing it a little bit. I started pushing a little bit harder than normal with the hope of stretching the skin out. And most of the sharp pain is coming from the vagina area, with the worst of it coming when the dilator hits the very back where I was applying all of that pressure. (There's also a "bruise" kind of ache coming from the stitches and the clitoris, which I believe is very likely just from being sat on for 23 hours on the planes, because that's what it feels like.)

So, I think I overdid it. And I think that's probably where the bleeding and pain are coming from. I've noticed the bleeding is a lot worse when I'm up for long periods of time, while when I stay in bed the pain and bleeding does subside, and this afternoon when I take it easy while dilating and didn't try to force it, there was no blood at all.

I'm not ruling out that there might be a deeper problem, I'm going to stay vigilant and watch out for any abnormal discharge, abnormal coloration, abnormal swelling, or other symptoms of infection like fever. But for now I've had none of those things. All of the discharge has been normal-colored pale pink discharge, bleeding mostly just happens when I've been up and exerting myself, and there's been no abnormal swelling at all. (In fact, I'm finally starting to form a more normal-ish urine stream finally, so that's a sign that swelling has gone down.) Also, my energy level has been recovering each day since we got off the plane. So for now, I'm going to give it another day, take it easy tomorrow, and see if it improves. If not, I'll contact a doctor.

(Also, I don't know how much of the pain might be due to me being back off of pain pills. During our last week in Thailand, I was taking two tramadol pills every single time we left the hotel for any reason to mitigate the pain of being up and about. So this is the first time I've really been up and active and gone outside to run errands without the aid of tramadol, so I'm not sure how much of the pain is just from lack of painkillers.)

Things to think about. This hasn't been a fun couple of days, this is by far the most painful that dilation's ever been, and I'm still at a pain level and energy level that feels like I've lost two weeks of recovery progress, but hopefully it will improve.

I am at least going to send an email to Dr. Chettawut's office and ask them whether pain and bleeding are normal after a 23-hour international flight or if they're something to be concerned about so that I know.
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EmmaD

Please do email Dr Chettawut. Before I left, Sri said they often never hear how patients have managed the trip home.

Dr Chettawut told me not to follow the schedule (they didn't have no. 0 when I was there). I was very tight and stayed on the candle and #1 for longer. He did say I would eventually get to #4 and he was correct.  I would wait each time until I had done about a week or more of trouble free dilations before I attempted the next size up.  The slow approach worked. Remember, it isn't a race and you are unique in every way. Listen to your body, don't let it get its own way all the time and trust your judgement as to when you raise an issue with Chet or your own doctor. Better to mention something than not.

I am almost 9 months post op and things are still settling down. A bit slow perhaps but it is my way, it seems.


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Carrie Liz

Progress! Thank goodness...

This morning I decided to do an investigation to see where the bleeding was coming from. I took a bit of extra time dilating so that I could just hold the mirror there, wipe quickly, and then sit and watch to see where the discharge was coming from.

I wasn't sure where the blood was coming from before, because it showed up on the front of my pantyliners, but I couldn't see any lesions or blood in the clitoral area every time I looked. As I watched, it was very clear that the blood was coming from the vaginal area. So I suspected that it only ever looked like it was coming from the clitoral area because the forward-leaning shape of the inner labia was probably making the blood from the vagina run forward along the inside. So there we go. I knew the culprit was blood from the vaginal area.

Now, I've suspected that somehow the blood was tied to my physical exertion, because I was noticing that it got worse when I'd been standing, walking, climbing stairs, and other things that required me to exert force with my hips and abdominal muscles. So I started paying attention to how I was sitting, how I was getting out of bed, other things like that, and started using my arms and legs more to reduce my exertion.

It's been a slow process today, but I've seen some healing. There was less discharge this morning. I had some blood still during my morning dilation, but once I'd cleaned it up, it didn't keep coming. And then through the course of the day, with me deliberately staying in bed and not doing any physical activities whatsoever to let myself heal, the discharge has completely stopped now. No blood on my pantyliner when I just changed it, and no blood at all during my afternoon dilation.

The "dull swollen bruise" kind of low-level pain is still all over the place, and dilation was still a bit painful due to that swelling/bruising, but the discharge has stopped and the bleeding has stopped. So seems like I'm making some forward progress again, and limiting my physical exertion is seeming like a very good plan.


Hopefully I'll also be getting an email response from Dr. Chettawut via email at some point tonight. (His office usually takes a day or two to respond during the week, so either tonight or tomorrow.)
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Carrie Liz

...And, regrettably, scrap that. The bleeding stopped, but now suddenly there's been increasing swelling, and an entire day of bed rest didn't help it, it's only gotten worse overnight. Dilation has regrettably gotten harder every time I've done it, and even the #0 hurts and feels tight. (Although #1 will still go in just fine, oddly enough.) Also, now I'm having an issue with over-frequent urination, that's another sign of possible infection, so yeah...

It's been four days. There's no way that this is just a simple matter of exertion or too much dilation pressure anymore. Something's wrong.

I'm going to go to a doctor or a gynecologist to get it checked out.

There's still been no discoloration or burning pain, and pain levels are still only moderate, so I'm assuming it's not major and can be fixed with simple treatment, but I'm still just REALLY REALLY scared that something is going wrong, and so scared that I'll be in jeopardy if I don't get it corrected, because this seriously means the world to me. I'd completely lose my mind it if the surgery is compromised.
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Dena

I agree with seeing the doctor but if you have trouble getting into the office, you might try an anti-inflammatory like ibuprofen to help control the swelling. If it were external, ice packs would also be a possible solution.
Rebirth Date 1982 - PMs are welcome - Use [email]dena@susans.org[/email] or Discord if your unable to PM - Skype is available - My Transition
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Carrie Liz

Unfortunately, our American health care system at work...

Local diagnostic doctors won't treat me because they have no experience/specialization with SRS or reproductive health. Mom called her gynecologist but she won't see me either because apparently she doesn't have the ability to treat me if there actually is something wrong, her work is purely preventative.

The options I was given were either to go to the emergency room or leave it alone.

And seeing as how this isn't anywhere near major enough to merit a $250 emergency-room visit, I basically have no choice but to wait it out and hope it improves on its own, and count on Dr. Chettawut to let me know if it's something to be concerned about or not. (No reply yet, but it's to be expected, Ms Som is super-fast with answering any question she can answer, but direct replies from the doctor himself usually take 2-3 days.)

(grabs pillow, screams into it. ARRRRGHHHHH!!!!!!! Why, America? Why? You and your lousy healthcare system...) >:(


Please, God, just let this get better... and please don't let it be anything major. That's all I can do right now, is pray.
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Kitty June

I'm not religious, but you have a ton of positive energy directed your way. And those who are religious are surely praying for you as well.
I don't comment on your threads very often , but they have helped me a lot. Especially from when you were in the "everything sucks ,everything is great phase" helps me know I'm not the only one to feel this way.
Now this blog or whatever has been a fabulously detailed account of what myself and I'm sure many others are looking forward to.
Stay strong girl, you've a lot of people rooting for you.
[emoji3][emoji8]
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Jenna Marie

Oh, wow, I'm so sorry. And it's appalling that doctors will refuse to treat you; it's essentially a surgical site and/or a UTI, both of which are super common. (It'd be different if you were asking them to perform complicated plastic surgery fixes, but all you want is a *diagnosis.*) That's in the opinion of my GP, too - he said basically "it's all about healing and scar tissue, and I see that all the time."

I'll be thinking of you.
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Dena

My referral for after surgery care came from my Endo as he had may patients who needed followup.
Rebirth Date 1982 - PMs are welcome - Use [email]dena@susans.org[/email] or Discord if your unable to PM - Skype is available - My Transition
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AnonyMs

I don't know if it would help, but some painkillers, like voltaren, reduce swelling.
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Tess2016

Heya...

As far as I am concerned, Australia's Medicare systems is worlds apart from any other country.. I have already apprised my GP, he is working with my Gender Doctor and will provide scripts for HRT when needed.. My GP already knows what I will be doing and is prepared.. When I check in with him after arriving back in Aus, he will check me out, check my blood pressure etc and monitor me.. All for free.. If I develop an issue, he will refer me to the hospital where I will be seen quite quickly and also for free... We Aussie will fight any government who tries do kill off Medicare.. 

Tess..
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Carrie Liz

All right, so if the doctors won't help me, I'm going to do it myself, damn it...

Fortunately my mom was able to find a self-test for infections at our local pharmacy, so I'm taking matters into my own hands and doing a pee-stick test for elevated levels of white blood cells and nitrites.

So, hopefully I'll know very shortly whether there's genuine reason for concern or not, or whether it really is just swelling from exertion.

(And in addition to that, I did a thorough cleansing of the entire area earlier, and dropped the air conditioning temperature in my room plus left my panties off and am just sitting on top of a bed pad naked for a while in order to let everything air out and keep as much moisture/dampness off of the area as possible to keep as much bacteria growth at bay as possible.)
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lanah101

I hope the best for you. I have really enjoyed your updates. Good luck and hopefully its nothing but healing.
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Dena

Pee sticks are for urinary track infections and most of the time they work but there are some things the don't detect. Most of the time when you have a UTI, it's hard to pee and you feel the need to do it all the time.

Another thought came to me and that is you should be looking for a surgical gynecologist. They should have the skill to look at the surgery and deal with any problems you might have. I suspect it is swelling and the best solution is to elevate it as much as possible or in this case, sit as little as possible and lay horizontal as much as possible. Save the walks for another week or two until you know the swelling is under control.
Rebirth Date 1982 - PMs are welcome - Use [email]dena@susans.org[/email] or Discord if your unable to PM - Skype is available - My Transition
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