Questions for intersex peeps :)

[Linde]

I also had hernia repair, and people looking at the laparoscope images.. more than one doc has suggested it wasn't just the hernia they 'fixed' when they were there.  I've seen them too.  There is a lot of staples & mesh in that region.  Something significant was done, but I have no records nor was informed of what they did.

They did things like that back then.  Then again that was back in the early 1990's.

Are you sure they left staples inside your body? 
This was not standard procedure even in the early 90's not.  Staples were used for closing the skin, but inside they used sutures (the polyvinyl alcohol ones that did dissolve in the body).  Staples are to critical inside, because they could migrate away from the closure and poke into other organs.

[josie76]

Are you sure they left staples inside your body? 
This was not standard procedure even in the early 90's not.  Staples were used for closing the skin, but inside they used sutures (the polyvinyl alcohol ones that did dissolve in the body).  Staples are to critical inside, because they could migrate away from the closure and poke into other organs.

I had an inguinal hernia repair around 2009 and they used staples. Must be common in the US still.

https://photos.app.goo.gl/nJknvThd3X9ncdJo7

[Linde]

I had an inguinal hernia repair around 2009 and they used staples. Must be common in the US still.

https://photos.app.goo.gl/nJknvThd3X9ncdJo7

Sometimes staples are the only way to close a surgical wound, because there is no suitable tissue around for securely holding the stitches.
I don't know why staples were used in your case, but it should not be the common way to close an internal wound.

[Doreen]

Are you sure they left staples inside your body? 
This was not standard procedure even in the early 90's not.  Staples were used for closing the skin, but inside they used sutures (the polyvinyl alcohol ones that did dissolve in the body).  Staples are to critical inside, because they could migrate away from the closure and poke into other organs.

I asked the ob/gyn (2nd lap), stated & took pictures of my uterosacral ligaments.  Stated they're in the right location .. er.. correct me if I'm wrong?  Uterosacral ligaments I know from anatomy holds up the uterus & is attached to it & the sacrum.  Without the uterus you probably wouldn't have it???  She still couldn't find the 'mullerian remnant' however.  Frustrating to say the least. Pain reminds me its still there.  I also have 'omentum adhesions' which were pictured too but they're higher up in the abdomen than the actual pain location.  Pain can defer, but I find it unlikely in this case.

https://www.fertstert.org/article/S0015-0282(07)02415-6/fulltext

Anyways ya I have staples inside along with mesh on the left side and palpable internal scar tissue.  She also stated I had repair done on the right and noone ever told me.  I feel twinges there too sometimes.

[Linde]

I asked the ob/gyn (2nd lap), stated & took pictures of my uterosacral ligaments.  Stated they're in the right location .. er.. correct me if I'm wrong?  Uterosacral ligaments I know from anatomy holds up the uterus & is attached to it & the sacrum.  Without the uterus you probably wouldn't have it???  She still couldn't find the 'mullerian remnant' however.  Frustrating to say the least. Pain reminds me its still there.  I also have 'omentum adhesions' which were pictured too but they're higher up in the abdomen than the actual pain location.  Pain can defer, but I find it unlikely in this case.

https://www.fertstert.org/article/S0015-0282(07)02415-6/fulltext

Anyways ya I have staples inside along with mesh on the left side and palpable internal scar tissue.  She also stated I had repair done on the right and noone ever told me.  I feel twinges there too sometimes.

Stapling ligaments could be OK, because ligaments don't really grow solidly back together, and a matrix has t be introduced that makes them interweaving into it and thus grow back together.  I  still have never seen this done with internal staples, non dissolving suture were mostly the attachment system of choice.  But I was not present at the surgery an don't know the reasons why they did it.

One probably will never find out who played around inside you for what reason.  But it should be possible to find the source of the pain.  Have you ever thought about to go to the Mayo Clinic in Rochester, MN, and have them turn you inside out?
It mega sucks if you have to live with constant pain, if it seems to have a real source!

[Doreen]

Stapling ligaments could be OK, because ligaments don't really grow solidly back together, and a matrix has t be introduced that makes them interweaving into it and thus grow back together.  I  still have never seen this done with internal staples, non dissolving suture were mostly the attachment system of choice.  But I was not present at the surgery an don't know the reasons why they did it.

One probably will never find out who played around inside you for what reason.  But it should be possible to find the source of the pain.  Have you ever thought about to go to the Mayo Clinic in Rochester, MN, and have them turn you inside out?
It mega sucks if you have to live with constant pain, if it seems to have a real source!

That radiologist that read my initial MRI suggested Mayo or Duke.  I went to Duke, and the radiologists there sucked that read my CT scan.  Refused to comment on the reproductive system whatsoever.  Took months of badgering the reproductive endo for the radiologist to give me a very poorly written reply... through the same endo.  A huge waste of time.   I'll probably try Mayo next, but its so far away     The reproductive endo there also gave me 3 diagnosis (17 alpha hydroxylase, 5 alpha reductate, PAIS), but said 'none of it matters as it has no impact on your long term health'.  Utter bs.  Its obviously having an impact... chronic pelvic pain, abdominal guarding, osteoporosis, etc.

[Linde]

That radiologist that read my initial MRI suggested Mayo or Duke.  I went to Duke, and the radiologists there sucked that read my CT scan.  Refused to comment on the reproductive system whatsoever.  Took months of badgering the reproductive endo for the radiologist to give me a very poorly written reply... through the same endo.  A huge waste of time.   I'll probably try Mayo next, but its so far away     The reproductive endo there also gave me 3 diagnosis (17 alpha hydroxylase, 5 alpha reductate, PAIS), but said 'none of it matters as it has no impact on your long term health'.  Utter bs.  Its obviously having an impact... chronic pelvic pain, abdominal guarding, osteoporosis, etc.

There are Mayo Clinic subsidiaries in Florida and arizona. 
would that be better for you? 
I prefer the Minnesota one, because that is where most of the specialists located. I am a patient there for over 30 years, and I worked there quite a bit to run experiments (we have a cooperation for that stuff). 
rochester has a pretty large airport, and there are megga many hotels round the Mayo campus, with shuttle services to the different buildings.
If it would not have been for the Mao, i would be sitting in a wheelchair with bags for bladder and bowel exits at my side.