Susan's Place Logo

News:

Based on internal web log processing I show 3,417,511 Users made 5,324,115 Visits Accounting for 199,729,420 pageviews and 8.954.49 TB of data transfer for 2017, all on a little over $2,000 per month.

Help support this website by Donating or Subscribing! (Updated)

Main Menu

My gp has given up on me.

Started by F_P_M, May 10, 2019, 05:48:06 AM

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

F_P_M

I'm feeling really down. I just feel like i'm destined to be trapped in this broken failing body forever, least till it completely fails and succeeds in actually killing me.

I'm feeling really quite hopeless and totally helpless. I'm at the mercy of a system that couldn't care less and hasn't cared for over 20 years. I've been fighting for help since I was ten years old and i'm STILL sick, im STILL suffering and nobody gives a damn.
The NHS just does this stupid dance every so often, makes me go through a bunch of pointless tests and then comes back "we dunno, it's idiopathic" and discharge me. Only for it to repeat again.. and again.. and again.
"we dunno, it's idiopathic" "it's idiopathic" "idiopathic"

It's NOT, it's PCOS and it's destroying my life!

Why can't they see that? Or is that just it? they know, they just don't care.

My gp wouldn't even agree to an ultrasound to check my uterus which is not in a good way. I get these stabbing twinging pains on my left side near my ovary every time I get a cramp and have done for months. I got told by one doctor who just prodded me "oh it's ibs" and gave me some pain meds. It's NOT Ibs, it ONLY happens when I have a uterine cramp suggesting it's related to the uterus. But you can't argue with a gp, they just repeat themselves and usher you out.

I am concerned it's endometriosis and worse, that it's actually caused an adhesion. They SHOULD have done an ultrasound when I went in complaining of reccurant unexplained pain but because they can blame it on something easy like "IBS" that's their solution.
Fob you off with the easiest solution, don't bother confirming it, just fob you off.

I don't know what to do. I'm genuinely too mentally and physically exhausted to continue fighting a system that's SO against me.
I kinda just want to curl up and die instead.

I can't afford to get this done privately but the NHS are not cooperating and they sure as heck seem to have no vested interest in helping me.

I feel trapped. Hopelessly and miserably trapped.
  •  

Ryuichi13

Man, that sucks majorly.  It sounds like the doctors really are "see patient, okay NEXT!" over there.  Pathetic.  Doctors are supposed to listen, treat and heal, not just pass up what you're telling them!  >:(  At least the doctors here in the US actually listen to you when you describe your symptoms!  Considering what our insurance pays them, they damned well better listen!  ugh!  Right now, I'm so angry for you!

bleah, shark week for you on top of everything.  wow.  Your hubby sounds wonderful.  Keep him if you can! 

Maybe it would be for the best if you go ahead and get the hysto you wanted.  It might make Life easier for you.  Maybe you should get on the list and start the process.  You have three kids, unless you are planning more, it might be the thing to do to save you from estrogen poisoning.   

I hope your headache gets better, and your pain eases up.  Go take it easy, okay?  I wish you the best, and hope you feel better quickly. 

Ryuichi


  •  

F_P_M

getting a hysto isn't that easy unfortunately. My age is against me unless it's got a problem.
now of course IF they'll do this damn scan and find out yep, it IS screwed and removing it is the best course (it's the only cure for the condition my specialist thinks I have) then i'll get put on a wait list but going in and asking for one? they won't give it to you just because you ask. Problem is, they can also buy you time with hormones and i'm worried they'll try to pull that ol' nonsense because "oh you're young" and ignore the fact I already HAVE children, i'm DONE having children, I cannot have more children anyway (husband has had the snip and i'm infertile because my ovaries don't work ffs).

seriously, it's a really common problem with people trying to get hysterectomies over here. Doctors all "but you'll regret it!" as if we're supposed to just keep pumping out babies till we hit menopause or something.
Eugh.
So gross.

and sure it IS risky surgery, but if there's something wrong leaving it will just mean it gets worse. Endometriosis doesn't magically go away, it spreads. it spreads and it causes organ adhesion and it can do a lot of damage.
It's BAD.

but they won't take my ovaries because "you need those for hormones" or some crap. I won't be able to get those removed till i'm on hrt and that's a very... very... very long wait (it's 2 years to even speak to the GIC and then at least another year before they'll give you hormones)
Just getting the uterus out will stop periods sure, but it won't stop the pms. That's all on my ovaries.

however, metformin might solve that issue at least partially by reigning in the estrogen and stopping it from flooding my system. Because right now it literally IS poisioning me by overwhelming everything.

Everything is just so painfully SLOW and I just feel so powerless. I can't stand it.
Like, why can't they just give me medication NOW? Why continue to do more pointless tests that just waste time and tell them stuff we already know?

THIS right here is why people self medicate. Because our doctors won't listen and won't help.
My nurse appointment isn't till the 3rd for the glucose and lipid and testosterone tests and private doc won't give me meds till that's sorted (and it'll take like 2 weeks to get those results back because the nhs moves at a glacial pace)

So i'm looking at at LEAST another month of this nonsense and im honestly at breaking point.

Nothing changes, nothing ever happens. I just get more hurdles, more road blocks thrown up in front of me and I just haven't got the strength left to keep doing it.

It shouldnt' be such a fight to be well but it is. It always is.

And i'm just feeling really overwhelmed and horribly depressed.

My mental health had been doing so well lately too, but this is too much for even my antidepressants to counteract. It's just to many years of the same old nonsense over and over and over again. The same fight and the same result. There's only so many times you can fail before you just give up you know?

I'm SO tired.

I don't want to live in this body any more.
  •  

F_P_M

I got a letter from my specialist, or rather, it was returned to me because he sent it to the wrong address/doctor surgery.
I've emailed to give the correct address.

But I totally read the letter anyway lol.

What's interesting is the examination stuff.
it says:

Examination showed severe hirsutism (really? I didn't think it was THAT severe) and significant abdominal obesity (rude) with male hair distribution. (SCORE! Male hair distribution guys!)
Pelvic floor tone reasonable, right gartner's duct cyst, retroverted, bulky, globular and very tender uterus suggestive of adenomyosis. (mmm globular, sounds delicious huh? *gag*)

e says he wants bloods draw on day 2-5 of my cycle which is like.. NOW.. and not gonna happen because getting a nurse appointment at short notice is near impossible.
Eugh.

Hopefully he'll send a copy of this to the correct address on monday. -_- i'm somewhat irritated by this screwup. I don't even know WHO this doctor or surgery IS, it's not one i've ever been registered with!
  •  

F_P_M

So... i got a letter from the hospital.

my smear failed. They "couldn't find enough cells on the sample"
Wth?

I didn't even know that was a thing that could happen!

so this means I have to get it done AGAIN.

ARGH NOOOOO. I mean it wasn't thaaat bad last time except for the cramping afterwards. And that was more because when i get cramps I get this sharp tugging on my left side as well and it's really painful. (I'm concerned it's endometriosis adhesions to some other organ, either the ovary or the bowel. Either way, it's not a good thing)

but damnit!

Apparently this is really rare these days. I wonder if the nurse was just too hasty to get it finished, or it's because my cervix was apparently pointing upwards and being uncooperative anyway. (it's a jerk)

*sigh*

So I gotta wait till july to let things regenerate (uh.. okay?) and get it redone.

So unfair.

My body is such a jackass sometimes I mean seriously.
  •  

Linde

Quote from: F_P_M on May 24, 2019, 11:52:25 AM
, or it's because my cervix was apparently pointing upwards and being uncooperative anyway. (it's a jerk)


My body is such a jackass sometimes I mean seriously.
Can't you do a training program with your cervix to make it jump to attention when you command it?  After all, it is your cervix and you could tell it to do what you want!  >:-)
02/22/2019 bi-lateral orchiectomy






  •  

F_P_M

Ahahahah! oh my goodness I wish! this little jerk totally needs to be taught to cooperate. She's an ornery little cow for sure.

On a positive note, I caught the stomach flu my kids had but have not thrown up because I have a stomach of steel apparently. I mean i've felt nauseated and disgusting for a few days to the point it's been keeping me awake, but I have no thrown up. So go stomach!
I suspect that surviving HG with my second kiddo made me pretty dang good at not throwing up.
Eugh.

I still have a headache though. Not sure if it's the flu or it's hormonal. It's annoying me. It's like.. this medium level headache I seem to always have these days and i'm so done with it.

I need to call my gp again and see if I can convince them to give me an ultrasound. That's "fun" for Monday I think. Wish me luck!
  •  

Linde

Quote from: F_P_M on May 25, 2019, 06:10:41 AM

I need to call my gp again and see if I can convince them to give me an ultrasound. That's "fun" for Monday I think. Wish me luck!
See, there you have another disadvantage living in the UK!  We have off on Monday, because it is Memorial Day.  I think that was created to memorize the People who died fighting the British way back when.  They could have had it way easier, if they would have been as clever as those guys sung about in the song "the Battle of New Orleans"! ().  I live at the Gulf of Mexico, and I still can see some of them running (trying to find shade at the beach)!
02/22/2019 bi-lateral orchiectomy






  •  

Haley Conner

I have adhesions.  They can be really horrible.  Sorry you have to deal with all this crap. 
  •  

F_P_M

Damnit you're right, it's a bank holiday monday.

tuesday then.

Eugh.

@haley conner what do they feel like? And have they tried to do anything to help?

I'm kinda annoyed my gp is just sitting on her damn hands knowing I have a fairly serious biochemical disorder that's making me extremely sick and another condition that's causing me pain.
I mean COME ON doctor, aren't you supposed to help?

I came away from my last appointment with zero treatment or plans beyond "go get an ecg for your hypertension" and she HAD my blood results and KNEW I had estrogen dominance and needed at the very least progesterone to balance that out.

I mean honestly, living with daily headaches is getting old fast. I just slept for 4 hours in the middle of the day because my head was throbbing too much for me to function and I sort of passed out.
  •