@Northern Star Girl @LoriDee thank you for your well wishes and prayers. Danielle, I read every line of your story's, very captivating.
I have T-LGL Leukemia. I have a diagnosis for that.
I have the Philadelphia Chromosome and the T315I mutation. I have blast cells in my blood. I had a series of three blood tests June, July and Aug 2023 and pet scan and MRI in. Jan 2023 my white blood cells were 9000 in June-August my white blood cells were 11,000. Above 11,000 is the alarm number. February my white blood cells were 14000. I had 2 bone marrow aspirations. 9 reports later I have clones of the BCR-ALB-1 but not to the diagnosis level yet. So I see the doctor in August for blood tests and if I needed a treatment plan.
T-LGL first line is methotrexate chemo in pill form low dose. If I get diagnosed with MCL the T315I mutation makes the 1st and 2nd line TKI's ineffective. There are 2 third line chemo therapies. If I am put on that it may just be a matter of time the body becomes immune to them one at a time. The cart t cell is the last line of treatment.
I hack squat 350 pounds and do 100 pound landmines, et. al. ( I will go up tomorrow) and my low red blood cells really have a bad effect on breathing. Eating is a real issue and I have lost some weight. I eat very high calorie very low volume foods and liquids.
I am keeping away from parties and hookups as my immune system is not working correctly. I do not want an infections.
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Now for something completely different
Pam (not her real first name but she goes by Pam). Her real first name is a very pretty name. She wants a long term relationship that leads to marriage. I swore when I was divorced I would never remarry but now I am open to it. I am lonely at nights and weekends. I keep busy but I want someone to share my life with. She is totally fine with me being trans post op. She is a good bit younger than me but she is fine with that. Anyhow in May she comes back to the USA. She will visit and stay for a while maybe longer.
She does not smoke, do dope, drugs or drink. She has an occasional beer. I am straight edge and need to maintain my sobriety. My addictive personality transfers to drugs or anything else that is an escape. I need to remain present. She is a good influence.
I hope things work out. I am a bit nervous as she is young and very beautiful and I feel awkward in comparison. She is very religious in the religion I was raised. I walked away from my religion at age 18. It did not accept someone like me. I do not know how to accept the path I was given. I am willing to accompany her to church, something I swore I would never step into. I do not know how they will react to seeing me; in reality there is nothing they can say or do to hurt me.
Long, sorry,
Rachel Lynn