Quote from: Oldandcreaky on April 29, 2024, 09:48:30 AMI hope your approach works for you, Allie. It certainly has so far.
Say, how has the prevalence of pain shaped your world view? I only had one migraine in my life and I've never forgotten it and I also don't forget how you basically stated that a cluster headache is to migraines as Godzilla is to Gila monsters. So, your cluster headaches are beyond my ken and I'm wondering how being walloped most days has shaped you.
Well, I'll admit that it took me a bit to get here... there was a lot of why me? And fruitless furrowing down endless rabbit holes of causes, cures, etc... all of which started to lead me into a very dark place. A place where pain is the dominate factor in your life.
Because you're either IN pain, or complaining about/worrying about/thinking about your pain — the why's, the when will it return, etc etc.
And then one day it just clicked.
Yes, this sucks. I am in pain 14+ hours a day. It objectively sucks. It's 11:46 am here, and just about five minutes ago I could feel, in the daily parlance we use here "my fuse light" - which means the migraine for the day has started — and it will last until the cluster at 1:07 am.
It will wax and wane on the pain scale. And because my tolerance is through the roof I can sometimes function with it, but my instinct is always to just hide under a pillow.
But I don't.
What I learned is that I can't do anything about the 14 hours. I have a team of people working on that. They're really good at what they do. What I can do is listen to them. Do what they say. Yes, I question everything. I make sure it's explained to me. I take an active role in my treatment, but I leave it to the experts.
What I control is the rest of the day. When I'm not in migraine. I make sure I suck the marrow out of those hours. And yes, I do push things off that are doable during a migraine to migraine times... but I try my best to always be pushing myself. And sometimes it lays me out for a few days afterwards. Like when we go on a vacation. That drains me. For the week after I'm a puddle of goo. But it's 100% worth it. No regrets.
So the basics answer is, a pain life has taught me to appreciate what I have and not complain about what I don't, especially the things that aren't in my control. Doing that just wastes the precious resources that ARE in my control.
I seriously hope, when these headaches end, I continue to apply these lessons to the way I live a life with more real hours in it.