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How often do you have to have your T levels checked?

Started by Dominick_81, June 29, 2011, 03:18:05 PM

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Dominick_81

I just got my second T level checked May 3rd. My next T level check is in November. Should I have my T levels checked sooner than that or is that right? I thought for the first year it's every 3 months and after a year it's every 6 months?
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Nygeel

That's alright. My first clinic wanted me to get tested at 2 months then again at 8 or 9 months. They also wanted my T levels tested before starting. What ended up happening was I never got any tests ('cept at 2 months but it was the wrong test) and switched clinics. This new clinic I'm going to doesn't test T levels because it costs so much without insurance.
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Dominick_81

Thanks.  So your not getting you T levels checked anymore? Are you worried about that?
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Nygeel

Quote from: Dominick_81 on June 29, 2011, 03:32:55 PM
Thanks.  So your not getting you T levels checked anymore? Are you worried about that?
I really never had them checked in the first place. The one test that was supposed to be my T test ended up being the wrong test. So long as my health is fine and I'm noticing changes then I don't mind so much what my T levels are.
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Sean

Checking levels beforehand, at 3 months, 6 months and then 1 year (and once a year there-after) is pretty standard stuff. It doesn't have to be kept in a rigid way, so you can trust your healthcare professional if they think it's fine to check again in November after doing a test in May.

While it is a sad reality that lab tests are expensive and many people don't have insurance to cover it, that doesn't make Nygeel's advice right. It is dangerous to go without follow-up care when you do cross-hormone therapy, and you can't rely on looking and feeling "fine" to tell you if you have a problem with your dose. You could cause significant damage to your liver or kidneys, for example, without knowing about it, or have other adverse effects (dangerously high cholesterol levels) as a result to how your body processes the testosterone. [And the reason for pre-T blood work is to check for contra-indications.]

I cannot tell anyone else what the right choice is to make if they have no way of paying for adequate pre-screening or follow-up care, and I can't presume to know. There are trade-offs in everything. But I think it's incredibly irresponsible to give the impression that not testing is ok, so long as your health seems fine. That's not medically sound advice, and it's the not the recommendations of any of a number of medical/health organizations that have developed guidelines or statements regarding care. The follow-up care you're reporting, Dominick, seems more consistent with better practices, so you should be fine.
In Soviet Russa, Zero Divides by You!
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Nygeel

Sean, they check my cholesterol, liver, kidneys, etc every 3 months. They check my thyroid, too. The clinic just doesn't check T levels.
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Sean

Quote from: Nygeel on June 29, 2011, 04:37:39 PM
Sean, they check my cholesterol, liver, kidneys, etc every 3 months. They check my thyroid, too. The clinic just doesn't check T levels.

Glad to hear that. Sorry, I misunderstood.

I assumed the OP was speaking of having blood work done generally when he mentioned having his T levels checked.

You are correct that there is nothing wrong with leaving out the T level test can make sense for someone who has "normal" masculinizing effects, as the correct dosage is better measured by the body's clinical response than what any blood test shows, and that part of the test can be very pricey.
In Soviet Russa, Zero Divides by You!
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Dominick_81

I haven't had my cholesterol, liver or kidneys checked and my next blood test is just getting T levels checked.  Is it okay if my endo doctor is not having me get any of  these checked? She said the type of T I'm taking doesn't effect the liver, but I'm not sure about the kidneys.
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Nygeel

Quote from: Dominick_81 on June 29, 2011, 09:48:08 PM
I haven't had my cholesterol, liver or kidneys checked and my next blood test is just getting T levels checked.  Is it okay if my endo doctor is not having me get any of  these checked? She said the type of T I'm taking doesn't effect the liver, but I'm not sure about the kidneys.
Cholesterol is often changed from T and usually there's a sort of...like a bundle blood test that they check a bunch of stuff in one test (less expensive).
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Jigsaw

I have to get lab work done 2 weeks prior to all my appointments with the doc.  She wants to make sure all my levels including both T counts are where they should be. So right now, it has been every 2 months.  I expect it to spread out some after the next appointment.  Can't speak for others, but my doc is just very much into checking every possible angle of what could go wrong.
"I've just lived my life. I always feel that if you live your life and you live it honestly and are good to people around you that everything will be OK." ~John Barrowman
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Dominick_81

Quote from: Nygeel on June 29, 2011, 09:58:16 PM
Cholesterol is often changed from T and usually there's a sort of...like a bundle blood test that they check a bunch of stuff in one test (less expensive).

On the sheet to get my blood work done, only the Testosterone is checked to get tested, nothing else. Should I be worried my doctor is not having me tested for
anything but T levels?

@Jigsaw: That is good idea what your doctor is doing to be on the safe side.
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coyote

My endocrinologist orders blood tests two weeks (minimum) before appointments which occur every 4-6 months. Tests are best done directly between biweekly injections (at the one week mark) to avoid the spike just after a shot and the drop-off just before a shot. My GP is administering the injections and monitoring my progress as well, and he prefers to check my T levels once a month.
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EthanD

Quote from: Nygeel on June 29, 2011, 04:37:39 PM
They check my cholesterol, liver, kidneys, etc every 3 months. They check my thyroid, too. The clinic just doesn't check T levels.

Same here. I spoke to my doc and she said that it doesn't change the way they treat their patients so as long as you are healthy checking T levels isn't really needed. The only reason my doctor said she would check my hormone levels is if there was any bleeding that shouldn't be happening or other issues that point to my levels being too low/high. You need to have your other levels checked especially the cholesterol and RBC/PCV tests. I wouldn't think that your doctor isn't monitoring you properly. Sometimes they will just order a standard CBC and the box checked can mean that the lab needs to run an extra test on the sample. I would ask your doctor about it to be on the safe side. 
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Nygeel

The tests I had which were bundled together were...
CH24/HDL, CBC/D/P, TIBC then there's another one that says Thyroxine, free (T4) and TSH (Thyroid stim hormone). Just read my bill.
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LordKAT

Never had T levels checked, all the other stuff is tho.
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bojangles

Endo checked T level & adjusted dosage at 2 months.
He does regular checkups but says there's no need to check T again at this time.

Primary doctor tests CBC, cholesterol, & thyroid every 6 months.
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Adio

My first year was every 3 months with appointments at first visit, 6 months, and 1 year.  Every year after that is likely labs every 6 months and visit once a year.

The initial visit and every 6 months labs were CBC (complete blood count--mostly looking at Hemoglobin/Hematocrit), CMP (comprehensive metabolic panel--electrolytes, kidney and liver function), lipid panel with LDL/HDL ratio (cholesterol), and total testosterone (my endo does total, not free--not sure why).  The "in between" labs (3 and 9 months) were just CBC, CMP, and total T.

She's also checked my vitamin D, but that's because I have a deficiency.  It isn't related to my T levels.

Quote from: Nygeel on June 30, 2011, 12:00:07 AM
The tests I had which were bundled together were...
CH24/HDL, CBC/D/P, TIBC then there's another one that says Thyroxine, free (T4) and TSH (Thyroid stim hormone). Just read my bill.

An explanation of what those mean:

CH24/HDL is cholesterol with HDL.
CBC/D/P is complete blood count with differential and platelets.
TIBC is total iron binding capacity.  This can be used for anemia or to look for polycythemia vera (increased production of red blood cells) which can occur in excessive steroid/testosterone usage.
Thyroxine, T4 and TSH are looking at thyroid function.  Your physician could either be testing you for hypothyroidism/hyperthyroidism without factoring in testosterone OR testing for either based on low-T (causing hypothyroidism) or high-T (causing hyperthyroidism).
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dmx

Weird. I've been on T for nearly 10 months and never had it checked once. :/ Well except before starting.
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