as for my self, I know I have "extra material" there that shouldn't be in a male-bodied person, same with some really badly formed ovaries. I know that through a scan 'cause I was having a lot of inflammation of the parts (they said it was probably endometritis). The docs didn't know what to do, 'cause they've never dealt with anyone like me before. I just went on pain killers. I had it happen for almost 2 months straight. I've had problems before I transitioned, too, and did a scan and they just said that there was partly formed extra material that's not supposed to be there in a male-bodied person.
I've never done a genetic test, although I've thought about it... I just haven't had any real reason to. I will say, that my condition causes me problems and has caused them since I was young. It's not fun, and I usually don't talk about it much. Doctors just don't know what to do and my current family doc just says my biology is how it is and we'd just have to deal with things as they come, since he can't predict what could happen next.
It almost stopped me from getting SRS 'cause I was experiencing the problems with inflammation and pain inside. Luckily, it stopped a month before SRS and I was able to have it. I know that the SRS doc took some of it out to make room. I only sometimes get the pain now.
After my SRS I had major bladder problems. It was found that I had nothing to do with the surgery, but my own biology with the stuff down there (probably from the trama from it). I then started expericing nerve problems similar to MS. I don't have any leasions on my brain, and they still consider I could develop ms in the future (like my mom). So, I'm kinda stuck in limbo. After a while, and some bladder meds, I got better. I don't need the bladder meds now.
It was very annoying, 'cause doctors didn't know what to do or explain things. My doc tried to get me to see a urologist for possible surgery down there, but they all refused here 'cause they said they didn't know how to handle someone like me. It's hard to be left in limbo.
Being intersex isn't fun (for me at least). Sometimes it really bothers me, especially when it comes to health and doctors having no clue what to do with me and in some cases, won't even really help me 'cause they don't know what to do. I wouldn't wish someone else to be intersex - it's a ball of trouble.

That's why I don't mention it very often, 'cause it full of painful memories and there have been many times I wish I wasn't intersex or had these health problems.
At the moment I'm doing fine. No problems at all. I'm glad for that. Very glad. I just hope it keeps up.