Everyone seems to have their own definition of what half the labels you see floating around actually mean. I'm not surprised that there is so much confusion and misrepresentation. If those that go through it cant even agree then how can you convince or explain it to the general public ...... who most struggle to even open a bag of crisps let alone learn new words that are over ten characters.
Nikki it's great that you are stepping up and defining and educating to help the country understand your case better so they can help and understand your situation well enough to see the truth.