Susan's Place Transgender Resources

Community Conversation => Intersex talk => Topic started by: Amoré on May 14, 2019, 04:29:33 AM

Title: I need to talk to someone
Post by: Amoré on May 14, 2019, 04:29:33 AM
Hi

I am looking for someone that was born intersex that they chose the penis instead of vagina.

I don't even want to go too a doctor because they will only laugh at me because it is his clients and he discusses thing upfront with them.

If I can prove I am intersex that will be a great relief because my gut is telling me something is off.

If I am not that is also a big relief because then I can prove to myself I am delusional.
Title: Re: I need to talk to someone
Post by: Evienne on May 14, 2019, 10:13:47 PM
Quote from: Amoré on May 14, 2019, 04:29:33 AM
Hi

I am looking for someone that was born intersex that they chose the penis instead of vagina.

I don't even want to go too a doctor because they will only laugh at me because it is his clients and he discusses thing upfront with them.

If I can prove I am intersex that will be a great relief because my gut is telling me something is off.

If I am not that is also a big relief because then I can prove to myself I am delusional.

I'm not, so can't personally help from my own experience, but I don't understand why you say you can't go to a doctor. I doubt they would laugh at you, and they legally aren't allowed to discuss your information with just other random people. That's a total privacy violation.
Title: Re: I need to talk to someone
Post by: Linde on May 15, 2019, 12:07:38 AM
Quote from: Amoré on May 14, 2019, 04:29:33 AM
Hi

I am looking for someone that was born intersex that they chose the penis instead of vagina.

I don't even want to go too a doctor because they will only laugh at me because it is his clients and he discusses thing upfront with them.

If I can prove I am intersex that will be a great relief because my gut is telling me something is off.

If I am not that is also a big relief because then I can prove to myself I am delusional.
I am such a person, I was made into a male (and I am a medical professional), but as I told you at another place here on Susan's, there is not much one can diagnose long distance about your condition.
What do you feel I could tell you that would help you with a doctor?
A doc can look for possible scar tissue, and could try to get records about your birth or any surgery you had shortly thereafter.  You would need to have a Karyotyping test to determine your chromosome condition.

There is really nothing I or anybody else here can help you with.
Title: Re: I need to talk to someone
Post by: Amoré on May 15, 2019, 07:43:36 AM
Quote from: Evienne on May 14, 2019, 10:13:47 PM
I'm not, so can't personally help from my own experience, but I don't understand why you say you can't go to a doctor. I doubt they would laugh at you, and they legally aren't allowed to discuss your information with just other random people. That's a total privacy violation.

I sorry all, I am trying to tell my fiance I am in pain. I told him I want to go too the doctor because I have been in bed for almost 3 days. It feels if I am having a period or a bladder infection or something. He just ignores me and tell me to stop complaining I am just looking for an excuse to go to the doctor.

So if I mentioned I am in pain I am being said I am delusional and imagining stuff. So he will keep on ignoring me till it goes away.

He said we will get the scars checked out one day.

I don't have money if I use his money he is going to go ape. That is why I turned to susans for help because I don't get help at home.

I am not sure why am in pain I really don't care anymore.

Thank you all for the help
Title: Re: I need to talk to someone
Post by: Linde on May 15, 2019, 11:47:09 AM
Quote from: Amoré on May 15, 2019, 07:43:36 AM

I don't have money if I use his money he is going to go ape. That is why I turned to susans for help because I don't get help at home.

I am not sure why am in pain I really don't care anymore.

Thank you all for the help
again, we can't help you any more.  I am a medical professional, and can't help you either online.  You need to see a doctor, and if your fiance is so non chalant about your well being, you should think it over very hard if he is the right person for you!
You need urgent help of a medical professional, going away could mean you will have problems for the rest of your life if not treated today!
I don't know which country you live in, but all countries I have visited have some kind of emergency room at their hospitals who would take care of you.  Go to the emergency room of your next hospital and ask them for help.  Don't be depending on this person you call your fiance, if he is not interested in your health!
Title: Re: I need to talk to someone
Post by: F_P_M on May 16, 2019, 09:57:23 AM
pain so bad you can't get out of bed needs to be checked immediately!

Pain in that region could be a large number of things, you definitely need a doctor to feel your stomach and run a scan.

If your partner doesn't think it's important when you're in pain then he sounds like a douche. Sorry but, what sort of person doesn't get worried about their partner if they've been in bed three days!?? that's insane.

Get to a doctor, please!
Title: Re: I need to talk to someone
Post by: F_P_M on May 16, 2019, 10:29:29 AM
Okay Amore, i've had a think and i'm genuinely concerned about your situation. Your fiance you regularly mention controls the money and denies you medical care, demeans your fears and generally sounds honestly abusive. I'm worried for you.

A long time ago you posted this list:

They regularly demean or disregard your opinions, ideas, suggestions, or needs.

They use sarcasm or "teasing" to put you down or make you feel bad about yourself.

They accuse you of being "too sensitive" in order to deflect their abusive remarks.

They try to control you and treat you like a child.

They correct or chastise you for your behavior.

You feel like you need permission to make decisions or go out somewhere.

They try to control the finances and how you spend money.

They try to make you feel as though they are always right, and you are wrong.

They give you disapproving or contemptuous looks or body language.

They regularly point out your flaws, mistakes, or shortcomings.

They accuse or blame you of things you know aren't true.

They are intolerant of any seeming lack of respect.

They make excuses for their behavior, try to blame others, and have difficulty apologizing.

The repeatedly cross your boundaries and ignore your requests.

They blame you for their problems, life difficulties, or unhappiness.

They are emotionally distant or emotionally unavailable most of the time.

They resort to pouting or withdrawal to get attention or attain what they want.

They don't show you empathy or compassion.

They play the victim and try to deflect blame to you rather than taking personal responsibility.

They disengage or use neglect or abandonment to punish or frighten you.

They don't seem to notice or care about your feelings

They view you as an extension of themselves rather than as an individual.

They share personal information about you with others.

They invalidate or deny their emotionally abusive behavior when confronted.

They make subtle threats or negative remarks with the intent to frighten or control you.


I would like you to revisit it. The things you say they ping warning signs.

Maybe i'm overreacting, maybe it's presumptuous, but please take care of yourself. You've been through hell and back, please, remember that you are worth the money, you're worth it ALL. It's just money but you, you are irreplaceable.

I'm worried about you Amore. And maybe that's wierd for a stranger but I am. Please stay safe.
Title: Re: I need to talk to someone
Post by: Haley Conner on May 16, 2019, 10:37:16 AM
See a doctor right away!  And don't waste your time and energy on someone who doesn't reciprocate.
Title: Re: I need to talk to someone
Post by: Amoré on May 21, 2019, 10:47:58 AM
Saw the doctor

On a set of antibiotics now feel like crap but got laughed at for just asking can I be intersex.

This is after I got bronchitis also and coughed my lungs out.

Doc was very unsympathetic like usual.

He tried to force a glove up there without lube and gave me a hemorrhoid also in the process. I told him to pull it out.

Well maybe I don't see it out of his perspective. I am sort of a wreck these days and I do think to much.
Title: Re: I need to talk to someone
Post by: Haley Conner on May 21, 2019, 03:40:31 PM
Have you compared the length of your index finger to your ring finger?  That can be a trait of intersexuality.  If your index finger is longer than your ring finger, that is a female hand, and could mean there was an androgen imbalance while you were in the womb or otherwise.  If a male fetus doesn't produce testosterone, it develops essentially as female, minus the tissues and organs determined by chromosomes.  If you are genetically intersex, it's more obvious and manifests in other ways. 

Some other tell-tale traits: Born with little or no male development, don't develop muscle mass easily, very flexible, able to cross legs twice, certain face shapes, certain speech affectations, and a bunch of other things.
Title: Re: I need to talk to someone
Post by: Linde on May 21, 2019, 04:41:10 PM
Quote from: Haley Conner on May 21, 2019, 03:40:31 PM
Have you compared the length of your index finger to your ring finger?  That can be a trait of intersexuality.  If your index finger is longer than your ring finger, that is a female hand, and could mean there was an androgen imbalance while you were in the womb or otherwise.  If a male fetus doesn't produce testosterone, it develops essentially as female, minus the tissues and organs determined by chromosomes.  If you are genetically intersex, it's more obvious and manifests in other ways. 

Some other tell-tale traits: Born with little or no male development, don't develop muscle mass easily, very flexible, able to cross legs twice, certain face shapes, certain speech affectations, and a bunch of other things.
The finger thing is an approximation.  I am intersex, I was tested, and I am more female than male.  The index finger of my right hand is about as long as the ring finger, the index finger of my left hand is a little bit longer than the ring finger.
A better test for identifying a more female skeleton is the way the arms are build.
If one holds the arms down to the side of the body, and now turns the lower arms such that the palms of the hands are facing forward, and now measures the distance between the body and the edge of the hand.
If the edge is more than about 6" away from the body, while still pressing the arms down to the side, it can indicate a female build (mine are about 11" away)

(https://i.imgur.com/0I3b0a3.jpg)
Title: Re: I need to talk to someone
Post by: Haley Conner on May 21, 2019, 04:45:03 PM
Interesting!  I didn't know about that one. 
Title: Re: I need to talk to someone
Post by: Linde on May 21, 2019, 05:23:29 PM
Quote from: Haley Conner on May 21, 2019, 04:45:03 PM
Interesting!  I didn't know about that one.
So, are you ready to carry a diaper bag and still can swing your arms?
I don't plan to carry diaper bags, but when I carry other stuff at my side, I can nicely sway my arms by the stuff.
Title: Re: I need to talk to someone
Post by: Amoré on May 22, 2019, 01:27:47 AM
Interesting mine are 8 inches away would explain why I throw like a girl. But I also have wider hips LOL.


I grew a female shape as a child and tried to gym to hide it and some breast tissue because boys liked to grab them.
I also struggled to put on muscle a lot.

I was as small as a girl also. People mistook me for a girl all the time children argued with me in primary school that I am a girl and have to go too the bathroom and pull down my pants to prove I am a boy.

Ring finger is way shorter than index finger on both hands.

But no doctor here that I know have experience with intersex people. I am more curious as why I have a body like I do than proving I am intersex.

Doctors here is also more likely to just look at the symptoms pop you some pain meds and off you go.They never look for the cause.

It sucks sometimes because one time I had really bad uti he told me I can't get uti because I am a male down there. I ended up in hospital a week later and it spreaded to my kidneys. Because we are transgender they think every pain is a fixation of the imagination. I am only trying to pretend to have uti because it is a disease only a woman gets.

Judging by my profile pic I don't have much male features this is only a black and white filter. Plus I always had a cool patch of grey hair.
Title: Re: I need to talk to someone
Post by: Amoré on May 22, 2019, 04:45:21 AM
Quote from: Haley Conner on May 21, 2019, 03:40:31 PM
Have you compared the length of your index finger to your ring finger?  That can be a trait of intersexuality.  If your index finger is longer than your ring finger, that is a female hand, and could mean there was an androgen imbalance while you were in the womb or otherwise.  If a male fetus doesn't produce testosterone, it develops essentially as female, minus the tissues and organs determined by chromosomes.  If you are genetically intersex, it's more obvious and manifests in other ways. 

Some other tell-tale traits: Born with little or no male development, don't develop muscle mass easily, very flexible, able to cross legs twice, certain face shapes, certain speech affectations, and a bunch of other things.
:laugh:
I can't cross my legs twice because I carry too much fat on them. That is where most of my weight have always been in the lower section of my body.
Title: Re: I need to talk to someone
Post by: Amoré on May 22, 2019, 05:37:23 AM
At the end of the day. It doesn't matter if I am intersex or not actually. What does it matter really except if it causes health problems.

I am who I am female regardless. I accept myself that way

Sure it would be cool if they find female reproductive system. But I also don't want to sit with the complications.

I just want everything to be normal and healthy down there that I can have my grs one day and not have problems like now. With no doctor that has answers.

We spend a fortune on just trying to find out what was wrong with my muscles and why I have knots and spasms and no treatment worked. If I went to a chyro I end up not being able to get out of bed for a week same with a physio.
Title: Re: I need to talk to someone
Post by: F_P_M on May 22, 2019, 02:37:30 PM
I admit, I often sort of hope I am intersex because it'd explain so much but the reality is far more likely I just have a borked up biochemistry that's made things.. interesting.

I definitely have child bearing hips.
but I also grow a lot of body hair despite having low t so... yeah.

I'm gonna have to look into that carrying angle thing now lol. I've honestly never thought about it. I tend to carry things in front of me rather than to the side because it hurts my hip.

I do hope you find some answers though and get some relief. I know what it's like to live a lot of your life not knowing what's up inside of you and dealing with ongoing health issues as a result.

Title: Re: I need to talk to someone
Post by: Dena on May 22, 2019, 07:09:48 PM
Quote from: Amoré on May 22, 2019, 01:27:47 AM
It sucks sometimes because one time I had really bad uti he told me I can't get uti because I am a male down there. I ended up in hospital a week later and it spreaded to my kidneys. Because we are transgender they think every pain is a fixation of the imagination. I am only trying to pretend to have uti because it is a disease only a woman gets.
Men can and do get UTI's, often when they don't drink enough water. One of the astronauts on Apollo 13 had a UTI because they mistakenly though they needed to stop discarding urine. Turned out they only needed to do it for a short time while earth was gathering tracking information.

When a male gets a UTI, it requires a full week of antibiotics to make sure the prostate is clear of the infection. A women is normally only given about a 4 days supply. This is why even after the surgery the doctor is made aware of you medical history when treating a UTI.
Title: Re: I need to talk to someone
Post by: Amoré on May 23, 2019, 10:41:07 AM
LOL yeah these doctors.

My endo want to see me to investigate the cause of the phantom periods.

The bump also that appeared on my pelvic floor during the phantom period.

Also to take a look at the cyst and all other strange stuff.

My hands are smaller than my sisters that came to visit and she is even shorter than me.

I am only 5 foot 4" she is 5 foot flat
Title: Re: I need to talk to someone
Post by: Lexxi on May 23, 2019, 11:14:02 AM
Quote from: Linde on May 21, 2019, 04:41:10 PM
The finger thing is an approximation.  I am intersex, I was tested, and I am more female than male.  The index finger of my right hand is about as long as the ring finger, the index finger of my left hand is a little bit longer than the ring finger.
A better test for identifying a more female skeleton is the way the arms are build.
If one holds the arms down to the side of the body, and now turns the lower arms such that the palms of the hands are facing forward, and now measures the distance between the body and the edge of the hand.
If the edge is more than about 6" away from the body, while still pressing the arms down to the side, it can indicate a female build (mine are about 11" away)

(https://i.imgur.com/0I3b0a3.jpg)

Linde,

Your answers continually impress me. When you say something I take it as gospel.

For almost my entire life I've known that I was born in the wrong body. As I got older and started doing some research, I learned about people who are born intersex, I had it fixed in my mind that that's what was wrong with me. Then I researched it a little bit and realized that couldn't possibly be the truth.

However, after your post about the hands being far away from the body like you showed in the picture, I got up and measured the distance for mine. It's almost 11 inches. Both of my ring fingers are longer than my index fingers though. Not by much, but they are longer.

Doing the measuring thing with my arms ended up sending me on another research fest, and it's possible that I found an answer. What I discovered is in the intersex spectrum I believe. It's called Mild androgen insensitivity syndrome. I have a lot of the symptoms that were indicated in the Wikipedia page for the syndrome. The only marker I missed was having a high voice. My voice is very deep. The only way I would ever be certain if that's what I have or not though is if I had my genetics tested, and I can't really afford that.

All of us want to be able to explain what makes us different. This could be it for me...or maybe not...I could just be grasping at straws too.

Lexxi
Title: Re: I need to talk to someone
Post by: F_P_M on May 23, 2019, 11:58:25 AM
I'm pretty sure i'm grasping at straws too with it, but I did read that PCOS which I have might be considered a sort of intersex condition and it brought me a degree of peace.

Certainly my body doesn't behave in the way it should. I've always said it's terrible at being female, much like my brain is.
It's like I have all the equipment but the actual programming is totally wrong.

I have a surprisingly small arm angle actually, considering how wide my hips are. Which is odd. Huh, go figure.

I was reading something about hyperplasia which sounded wierdly familiar but again, im probably just grasping at straws to understand WHY I am how I am.

I had my genes tested at one point by a doctor who then never explained WHY. It was pretty wierd and I only got told it was "xx" and that was all I got told. So wierd that she got so cagey about it. I mean, come on, it's MY genes you crazy lady.
I wonder if they're in my medical record and I could take a look... i'm not sure how much depth they went into beyond just chromosome typing though. But the fact my specialist was all "let's test your chromosomes" suggests she spotted something that made her suspicious because they do NOT just hand out dna tests on the NHS all willy nilly.
Title: Re: I need to talk to someone
Post by: Amoré on May 23, 2019, 12:55:28 PM
There is sometimes some funny moments like telling people I am transgender then they are like you are going to become a guy. I am like noooo I was a guy. They look at me all surprised and baffled. You can see their brain twisting and fizzling out and is about to burn out.  >:-)

So maybe there is some method behind this madness of the road of self discovery.
Title: Re: I need to talk to someone
Post by: F_P_M on May 23, 2019, 02:24:56 PM
Lol, that's the dream right there. To pass so well and be so thoroughly your correct gender that people get confused and think you're going to transition when you already did hah.

I doubt i'll ever achieve that, but hey, i'll take what I can get.

live that dream!
Title: Re: I need to talk to someone
Post by: Linde on May 23, 2019, 02:35:16 PM
Quote from: Lexxi on May 23, 2019, 11:14:02 AM
Linde,

Your answers continually impress me. When you say something I take it as gospel.

For almost my entire life I've known that I was born in the wrong body. As I got older and started doing some research, I learned about people who are born intersex, I had it fixed in my mind that that's what was wrong with me. Then I researched it a little bit and realized that couldn't possibly be the truth.

However, after your post about the hands being far away from the body like you showed in the picture, I got up and measured the distance for mine. It's almost 11 inches. Both of my ring fingers are longer than my index fingers though. Not by much, but they are longer.

Doing the measuring thing with my arms ended up sending me on another research fest, and it's possible that I found an answer. What I discovered is in the intersex spectrum I believe. It's called Mild androgen insensitivity syndrome. I have a lot of the symptoms that were indicated in the Wikipedia page for the syndrome. The only marker I missed was having a high voice. My voice is very deep. The only way I would ever be certain if that's what I have or not though is if I had my genetics tested, and I can't really afford that.

All of us want to be able to explain what makes us different. This could be it for me...or maybe not...I could just be grasping at straws too.

Lexxi
Thank you for the compliment Lexxi.  A certain amount of wisdom comes with age, and the other part comes from having made the living in medical stuff.

All the intersex stuff can be fully mixed up.  I am part Klinefelter (XXY), but I also have some androgen insensitive syndrome stuff inside me, and several other mutations.  Nothing in human biology is clear cut and black and white.

I almost feel that at the end of a creation day the upper being had a human body shell left and left over chromosomes from all kinds of people, and they took those chromosomes and threw them into the empty body, and at the end decided that this should be my body!  Maybe, the empty body of the next production run of humans was yours?

My body certainly was short changed on testosterone, because I never developed any secondary male sex characteristics.  But I also started puberty with the age of about 1 and never really finished it.  I have a semi high voice (lower range of the female frequency spectrum, as my natural voice), but yet I was 6' 1" tall, which means, a partly feminine looking, tall guy with a high voice!

Have you looked into this listing http://www.isna.org/faq/conditions  ?
Remember, you can have multiple conditions of those listed, or you could have a new, never really charted mutation!  They did not make a standard for intersex people, when it was decided that we should be some of the production runs!

It is OK to try to find out what funny body we have to deal with, I am still discovering little things that are know mutations, and of which I thought it was just normal  Green eyes is a mutation, there seem to be a few less people with green eyes than there are red haired people!
Not having wisdom teeth (not at all, not even any plans for them), is a mutation that was discovered in 2017, and I have it (I like that mutation), not being able to metabolize opioides (means I can't get high on them, but they don't work for me as pain killers), is another one I have, and I bet there are many more.

As you said, you can find out only if you are tested, you should talk with your doc, because some mutations might need to medically addressed to prevent later problems.

Good luck for you to find out who and what you are!
Linde
Title: Re: I need to talk to someone
Post by: Linde on May 23, 2019, 03:03:36 PM
Quote from: F_P_M on May 23, 2019, 11:58:25 AM
I'm pretty sure i'm grasping at straws too with it, but I did read that PCOS which I have might be considered a sort of intersex condition and it brought me a degree of peace.

Certainly my body doesn't behave in the way it should. I've always said it's terrible at being female, much like my brain is.
It's like I have all the equipment but the actual programming is totally wrong.

I have a surprisingly small arm angle actually, considering how wide my hips are. Which is odd. Huh, go figure.

I was reading something about hyperplasia which sounded wierdly familiar but again, im probably just grasping at straws to understand WHY I am how I am.

I had my genes tested at one point by a doctor who then never explained WHY. It was pretty wierd and I only got told it was "xx" and that was all I got told. So wierd that she got so cagey about it. I mean, come on, it's MY genes you crazy lady.
I wonder if they're in my medical record and I could take a look... i'm not sure how much depth they went into beyond just chromosome typing though. But the fact my specialist was all "let's test your chromosomes" suggests she spotted something that made her suspicious because they do NOT just hand out dna tests on the NHS all willy nilly.
As I wrote above, the map for intersex s not finally written yet, new variations can come up with every new born baby!
I bet they did with you Karyotype Testing, and that brought up the XX chromosomes.  But there are many versions of intersex that cannot be detected with Karyotyp testing (androgen insensitive syndrome is a well know one).  Many of those can only be identified with a thorough genome analysis, and that is very expensive and involved.  My conditions were discovered this way, but I am a member of the global genome mapping program.  There might be light at the end of the intersex discovery tunnel, though.  I am a test subject of a test series to find out if some or several of my conditions could be discovered with a rather cheap swap test (all those gene tests one can have done, are similar).  If they can find indicators in my swap results that point to conditions I have, the test analysis could be fine tuned and simple swap test could find quite a few intersex conditions in people.  Swap tests are cheap, and every better lab can analyse them once they know for what to look out for.
So, stand by folks, the solution might to be near for you to find out more about your body!
Title: Re: I need to talk to someone
Post by: Lexxi on May 23, 2019, 07:33:44 PM
Hi Linde,

You're quite welcome! Yes I've done a little bit of snooping around on that site. I didn't know that green eyes were a mutation though. I have green eyes and really like them. I like them because not only are they pretty, but they're pretty rare too. Well now I know I have at least one mutation in my body. lol

Thanks for the info,

Lexxi
Title: Re: I need to talk to someone
Post by: Linde on May 23, 2019, 09:09:09 PM
Quote from: Lexxi on May 23, 2019, 07:33:44 PM
Hi Linde,

You're quite welcome! Yes I've done a little bit of snooping around on that site. I didn't know that green eyes were a mutation though. I have green eyes and really like them. I like them because not only are they pretty, but they're pretty rare too. Well now I know I have at least one mutation in my body. lol

Thanks for the info,

Lexxi
See, here we go, both of us have green eyes, who knows what else you find out!
Title: Re: I need to talk to someone
Post by: Amoré on May 24, 2019, 02:36:47 AM
I can't really say green eyes is a mutation as my siblings and my father and mother have green eyes.
Title: Re: I need to talk to someone
Post by: F_P_M on May 24, 2019, 06:48:05 AM
I have some wierd mutations.

In my family hammer toes are common, we're born with them. The last knuckle of the toe appears to be fused so they don't actually straighten at all, meaning curly toes lol. I have hairy curly toes and it's very funny.

I'm allergic to just about everything, so is my father. FUN.

I don't produce enough SHBG which means that while my testosterone levels are very low, it's almost all free T. Even so, that doesn't explain the virilisation which my specialist thinks is just a genetic quirk. I have severe hiristism apparently (particularly on the lower body.) which is far beyond what they'd expect with T levels, even free T levels as low as mine.

I also don't produce much progesterone AT ALL. That's estrogen dominance caused by PCOS which is they think a genetic abnormality that messes up your pituitary gland and makes it respond strangely to certain hormones like insulin. But i'm not a typical PCOS person, my hormone levels don't quite match the standard criteria (T is too low for example) but it's the closest approximation they have to what's wrong with me so that's what they roll with.

I have natural blonde streaks in my hair which is another interesting mutation and my hairdressers dont' believe me it's natural because apparently the streaks are VERY obvious and VERY uniform. Wiiiierd.

I have a remnant of the Wolfian duct system that never fully dissolved as well. Which is interesting. My sister has a septated uterus so our theory is that my mother simply doesn't produce adequate quantities of the hormones required to get normal development in utero.

I remember when i hit puberty, which was early (I was 10) it came in sort of a double whammy. I developed female traits like breasts and curves and periods but I also started to develop a lot of body hair including facial hair, had really bad problems with excessive sweating (my father suffers this as well) and down below swelled... oddly. Ahem. tmi maybe but man, that labia does NOT look normal.
My voice is also fairly deep for a woman, or at least extremely rangy. But that said my mother has a very deep voice too. We're both tenors when we sing which is awesome.

I'm remarkably short, but that seems to be my father's side of the family again. He's 5'8 I think but his father was only 5'6 and my male cousins are about that tall too. I'm 5'2", I stopped growing at 12 and that was that. My friends who knew me as a kid like to joke that I haven't actually aged since 12. Bah.

Premature tooth development is common in my family as well. I had 3 teeth at three months old, I got my wisdom teeth between 12 and 14. But because i'm approximately the size of a dang 12 year old my jaw isn't big enough for all the billions of teeth I have so they're really crooked and damaged. (seriously, my eldest son's friends are all taller than me! and they're 12!)

My own kids developed teeth crazy fast too. 2 or 3 months old they started getting teeth and then rapidly gained till they had a full mouth of them at 1.
as a result, yes, we all wean early.
My kids all weaned at 4 months old, as I believe did I. Naturally, baby led weaning.
We're precocious little things clearly lol.

I process drugs REALLY fast, as in, I take painkillers and within an hour they're out of my system.
If i'm given strong pain meds they kick in slow but they metabolise out far quicker than they should. Same happens with alchohol, I seem to have hyper efficient kidneys or something.
It's annoying though because you can only take most painkillers ever 3-4 hours and mine run out after an hour and then I have to wait, in pain. It's frustrating.
Like COME ON kidneys, come on!

Similarly, i'm hyper ultra sensitive to hormones. ALL hormones apparently.
I can't take estrogen, it'll literally kill me (it causes my blood pressure to spike even at microdoses), progesterone makes me pukey, Picotin nearly killed me by triggering contractions far far too severe for my body to cope with (I went into SHOCK and started throwing up and bleeding and shaking and yeah, it was terrible)

This is part of the reason I want to start T at a very low dose, because given my reactions to other hormones over hte years, i'm concerned it's not just feminine hormones my body freaks out over.
See my natural hormone levels are very very low, like ridiculously low.
Even my estrogen which is high for me and causing a lot of problems isn't actually abnormally high, it's well within female average, but it's too high for ME and that is making me very very very sick.
Quite often when they do a blood test most of my levels come back as less than 1 of whatever measurment they're using.
but they also fluctuate wildly with no rhyme or reason. It's like my body is frantically trying to find the correct balance and keeps trying different mixtures but none of them work.

My biochemistry is very very very broken. but also because I produce such low quantities of hormones normally, my body is also HYPER sensitive to even microdoses and that makes things... tricky.

Oh and my right and left hands are different sizes and shapes lol. It's so wierd.
I'm also ambidexterous like my uncle. Which is cool.

And i'm hyper mobile according to my osteopath. Predominantly in the legs and hips. It means I can twist my leg around and tuck it under my rib without any pain and it freaks people out. I can do freaky things with my legs hahah. This is a problem though because it means i've got a messed up hip. I have too much relaxin in my system or something, and getting pregnant causes MORE relaxin to pump into you so my hips uh.. well they separated. One side of my pelvis went one way, the other side went the other, my leg popped out the socket repeatedly and it's left a lot of damage specifically on one side that's worn the socket down and means my hip pops out periodically and all the muscles clamp down to keep it in place and then I can't walk. *sigh*
hypermobility isn't that fun. Sure it's a fun party trick but it increases a lot of problems in later life. It's quite likely i'll need a hip replacement in 20 years time.
Dang.

Wierdly though i'm only hypermobile in my lower body. I can't twist my arms in strange ways so easily.

Oh and I have Lodosis of the spine which is apparently congenital.
It looks really wierd. Doesn't hurt or anything, just looks wierd. But i've had it as long as I can remember. This very very curved spine that means my lower body swings back like a heavy bottomed S.


re: eyes. Wierdly when I had kids of course we assumed they'd end up with black eyes like me. Husband is blue eyed and there was a chance I carried a blue gene from either parent (as my dad has a blue eyed mother and my sister from my mother is blue eyed so she clearly carries a blue gene) but what we did NOT expect was that all three kids would end up hazel eyed!
What?

Only hazel eyed relative I know is my mother's father. Middle kid has almost exactly the same eye colour, this bluish greyish green. The other two have brown hazel, meaning they look khaki coloured most of the time. A greeny brown colour like agate.
And i'm like "but.. how!??"

because my eyes are literally BLACK, they're such a dark brown you can barely see my pupils. These I inherited from my father and grandfather. (and are unusual in someone of my ethnicity so mmm. Interesting)
husband's are pure blue (both his parents have blue eyes).
And yet the children are ALL hazel eyed and we haven't a clue how that even happens. I must carry a hazel gene but man, that's just weird.

Also one of them has dead straight hair, also wierd because I have curly hair and husband has wavy hair. Where the hell did straight hair come from!??

Genetics are so wierd.

I admit i'm suuuuper curious about my genome. I also really want to see an xray of my freaky toes to see quite HOW this deformity actually works because it's super bizarre.
I mean I barely even have a little toe nail due to this deformity. I should take a picture hahaha, feet shouldn't look like this.
Title: Re: I need to talk to someone
Post by: Amoré on May 24, 2019, 08:31:59 AM
F_P_M you make my problems look like a walk in the park. ;D

All the best too you.

Maybe you are a chimera.

Title: Re: I need to talk to someone
Post by: F_P_M on May 24, 2019, 09:24:10 AM
haha nah, we all have our own issues and crosses we gotta bear I suppose.
At least I have a health system that's free.

I hope you do find an answer to what's going on with you.

Whoo Chimera! Can I breathe fire? *being ridiculous* that'd be so cool.
Title: Re: I need to talk to someone
Post by: Linde on May 24, 2019, 09:56:49 AM
Quote from: Amoré on May 24, 2019, 02:36:47 AM
I can't really say green eyes is a mutation as my siblings and my father and mother have green eyes.
No matter what, green eyes are considered to be a mutation.  There are a little less people with green eyes around , than there are people with red hair, which is also a mutation.
It can very well be that your father passed the mutation on to you.
The standard color of the human eye is brown, all other colors are  mutations, some are more common than the others.  Green and blue eyes are rather rare.
Title: Re: I need to talk to someone
Post by: F_P_M on May 24, 2019, 11:45:55 AM
Doesn't red hair come from neanderthal genes?
along with hayfever.

Thanks neanderthal ancestors! lol.

I mean technically pale skin, lactose tolerance and pale eyes are all mutations as they wouldn't have existed in the original humans coming out of africa.
lactose tolerance is actually surprisingly rare globally, it's just common in white people. Which I find facinating.

Hazel is a mutation too, something to do with refractive quality of the iris?
which is why they change colour.

Human evolution is really interesting I think.
Title: Re: I need to talk to someone
Post by: Linde on May 24, 2019, 01:57:54 PM
Quote from: F_P_M on May 24, 2019, 11:45:55 AM
Doesn't red hair come from neanderthal genes?
along with hayfever.

Thanks neanderthal ancestors! lol.

I mean technically pale skin, lactose tolerance and pale eyes are all mutations as they wouldn't have existed in the original humans coming out of africa.
lactose tolerance is actually surprisingly rare globally, it's just common in white people. Which I find facinating.

Hazel is a mutation too, something to do with refractive quality of the iris?
which is why they change colour.

Human evolution is really interesting I think.
I don't know with the neanderthal thing.  I was born and raised about 30 miles away from THAT neanderthal, but red haired people were not very common around home.  Of cause, all northern Europeans have a certain amount of neanderthal genes in our blood (darn fraternization).
But lactose tolerance is really something.  All mammals bite their offspring away when the time for milk is done, and they loose the tolerance for milk (see you cats and dogs), while we continue to feed our kids with milk.  It is almost ridiculous here in America, where you can see adults ordering milk as beverage in restaurants to have with their food.

Well, evolution is based on mutation, a trial and error system.  Those mutations that are good make the person to survive and pass them on.
Most of the stuff I seem to have is more on the error side, and I am glad that my son seems not to have gotten any of them!
Title: Re: I need to talk to someone
Post by: F_P_M on May 25, 2019, 06:26:11 AM
From what I remember of human evolution in archaeology (yeah I studied archaeology okay? lol) northern europeans developed lactose tolerance as a way to survive as they headed further north. There was less to eat so they had to make do with what they could access, a big one being goats milk from their herds. Being able to drink said milk without getting super sick was an evolutionary advantage and as a result ended up a dominant trait as those individuals survived to have kids.

What's interesting about milk production in humans, and I mean I assume this happens in other animals too is that you actually produce "weaning milk". It stops being sweet and becomes more and more savory and unpalletable in an attempt to 1: coax the infant toward solid foods that taste more similar to that and 2: to discourage them from drinking it as it's no longer as pleasant to drink.
Also fun thing about human milk, if you eat chillis it becomes spicy! ahahahah, it's SO FUNNY. The theory is this is to acclimatise the infant to the adult diet. But spicy milk is genuinely hilarious to me. It still tastes like milk but it's spicy, sweet but spicy. FUNNY. Poor babies.

As for Neanderthals, there's actually evidence there was at least 1 other, if not a couple of other human subspecies around at the same time too. So anatomically modern humans very much are a hybrid of several subspecies who were close enough to form viable offspring. We didn't just bonk the neanderthals, we bonked anything that looked close enough ahahahah.
Oh humanity.

What is interesting is that yeah, sometimes things that are detrimental but not detrimental enough to kill you end up passed on for centuries. Like hayfever. It's a disadvantage for sure, but not enough of one to stop those afflicted from reproducing and so it remains.

I remember reading that the theory behind why PCOS, an arguably very bad genetic defect exists in 10% of the population is because women who have it are subfertile but not totally infertile so in times of famine the fact they process fat and such differently means they're generally carrying more weight before the famine hits so survive the famine where the skinny fertile women either die of malnutrition or become utterly infertile due to malnourishment. Meanwhile with women with PCOS as their sugar and insulin levels in their blood drop and their weight drops, they start to ovulate. Not regularly sure, but enough that they have a better chance of getting knocked up than the malnourished women. So then they have babies who carry that defective gene.
Also pcos effects men but doesn't show up in them till later life because they haven't got a regular monthly cycle to disrupt and it doesn't mess up their fertility. So all those brothers and uncles etc of the pcos woman go on to have kids who carry the gene too. and they never know till they either have daughters or they reach older age and develop heart disease, diabetes and hypertension.

You never know you have it till you become diabetic. Which is pretty scary.

Now that said, as I mentioned, my PCOS doesn't really manifest like standard PCOS and there is the possibility it actually isn't pcos at all. Apparently CAS can emulate PCOS quite effectively as well but both of them are characterised by high androgen levels, which I do not have.
Maybe i'm just super special lol.


Title: Re: I need to talk to someone
Post by: Amoré on May 27, 2019, 01:24:27 AM
Shame F_P_M it must suck being super sensitive to hormones.

Me on the other hand is not that sensitive. They had to give me an implant after being baffled of being on two E patches and an oral estrogen and still had low E.

I have no T but E is still low other times my E is high again so it goes up and down.

I had High E for a male though. So it is if something is regulating the amount of E in my body.

We are planning on seeing an endo to examine me seeing as the doc did such a crap job and to see what is really going on she works with intersex patients.

I don't think judging by that I managed to have a child there is more than what I bargained for because what is the chance of having more in that situation as far as I know it can turn into one or the other or something in between. But having full two sets it is highly unlikely it would be then like having four arms.