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I'm on spiro and the highest amount of EV one can get rx'd.  Possible TMI

This morning i woke up with leg cramping in my lower left calf, rubbed it, pain left.

Had blood in my stool for the last three days, today i wiped and it was excessive, and the blood in the stool was extremly red. and alot on wiping too.  slight blood was also noticed in urine because of discoloration.

I have no ulcers, I have no drug use.  I didnt want to go (and still dont), but my sister who is nurse told me I have to go :(

So now, I am off to the hospitol, to see that everything is ok.  I have had upper thigh bruising for the last month but nothing bad.

I'm terrified this is going to effect my HRT. :( That is all i am scared about.  And I *hate* hospitols.  But- here we go, off to the hospitol- pray that everything is ok for me. 

Best wishes for a quick recovery.

Best wishes and hoping for nothing major.

Hugs
Izz

*hugs*

Hoping for the best!

Which thigh had the bruising? Same as the cramp in the left calf? (Just curious, not a medical person)

Best wishes, keep us posted. Hugs, Devlyn

The Docs should find the source of blood loss, hoping it is a simple fix. They may cut back  the amounts of your hrt. I'm not a medic though.
Best wishes for a speedy recovery.
Jamie

Thanks, ladies, I'm back. The D something test for bloodclots showed none in my leg or elsewhere.

I dont do anal play alone-or with the wife....

Ultrasound was next, do to abdominal cramping......(shocker inbound)- revealed a utererus lining thats angry lol?  apparentlly the 47xxy is incorrect slightly, and more indepth then thought. heh. the small bleeding had to escape somewhre and the way things are with internal organs found their routing.  so wtf. I'm beyond confused at that stuff, but explains why the high doseage of EV is working so fast. A cups halfway into month two.....amongst other changes.....like these magical out of no where cramps.  No hemroids, no internal rips, fissures, etc.  ->-bleeped-<-s just routed in a funky ass manner internally.  makes me wonder how complex srs will be and all that.  but i dont get why shock hrt would jump start and reanimate a cycle that i never had since i was 18- when male pubrty hit.  never bled before, from 11 up, just extreme cramps. *shrugs* It'll be an interesting endo appt next month on this.  but luckily, no clotting found, so yay!

The doctor then proceded to ask if i had a penis (lololol) cuz my charts and everything say female, and the whole uterus thing- he never had somone who was intersexed.  I just infomed the receptionist i was 47xxy and im here for a possible blood clot.  The gender marker for male never made it once, to anything....even my return to work note has gender marker F as well as my bracelet thingy.

and this should not effect my hrt unless the endo feels otherwise, which most likely will include even lower doses of spiro. *shrugs*....

the 47xxy thing hit me with a whole "this all makes sence", in the past...... the ultrasound there about showing a uterus, has me even more confused.  Would it mean still xxy?  or does it implicate something deeper?  I'm lost how that could form like that internally. 

But the good news is no clots, everything is fine, better safe then sorry.  Thanks for the concern ladies.  A whole new can of question now arrises, however.....

Quote from: Beth Andrea on August 21, 2013, 04:45:38 PM
*hugs*

Hoping for the best!

Which thigh had the bruising? Same as the cramp in the left calf? (Just curious, not a medical person)

my inner upper thighs get random bruising now for the last few monthes since hrt started- its not iron deficiency as im on a womans multi vit daily....I'm thinking its just bruises show easier now that skin has thinned out....

It's a DVT test or Deep Vein Thrombosis. Wow you have some pretty unique health issues.

Considering that you at least went in to get checked out good on you. ;)

Dayna, from what I've heard mosaicism is really common with Klinefelter's.

*googles* ... wow.

Okay so it's usually a mosaic of xy and xxy cells.  And Wikipedia says there are fewer than 10 recorded cases of xxy/xx mosaic.  Or maybe something else entirely.

Looks like you have one heck of a "my first period" story.  Not many women make medical history with theirs.

Quote from: Christine167 on August 22, 2013, 01:41:33 AM
It's a DVT test or Deep Vein Thrombosis. Wow you have some pretty unique health issues.

Considering that you at least went in to get checked out good on you. ;)

the large inner thigh bruise is a DVT? :/ edit: I just goggled images, of DVT's, nothing that was shown looked anything like my upper inner thigh bruise- the cramp in my lower leg was when I woke up, which I rubbed like a dummy and shouldn't have.  the bleeding I thought I was having was compounded with worry from the whole "oh ->-bleeped-<- I coulda moved a clot".  def no clotting.  just angry uterus from larger then life E doses.  one of the admins knows my dose, which is confirmed the legal max for a female...

but ya def. good I went in and got it checked out, life or death things can be scary, and its always better to place safe and see, then ignore it and that be it.....

one of those things that comes with the territory for us all.  if you get those warning signs that are all over the material on our meds, follow the right procedure.  it usually ends up being nothing in the end.  well, for me, it was, but not anything bad or serious.  I was told to stay away from Tylenol, or aspirin, I forget which. 

so ya hope people can walk away with a lesson here, which is- if somethings not right don't risk your life thinking it isn't, and if it isn't, hey, you did the right thing checking. We may want this change, but its no good if we aren't alive to live it <3

~Dayna 

Quote from: musicofthenight on August 22, 2013, 02:25:05 AM
Dayna, from what I've heard mosaicism is really common with Klinefelter's.

*googles* ... wow.

Okay so it's usually a mosaic of xy and xxy cells.  And Wikipedia says there are fewer than 10 recorded cases of xxy/xx mosaic.  Or maybe something else entirely.

Looks like you have one heck of a "my first period" story.  Not many women make medical history with theirs.

ya, im gunna bringt up with my endo.  it def scared me....called in the gf who had me wipe and was like, ya we need to go get that looked at, talked to my sister who is nurse trained and was like yup, you are caling off work.  kinda scary that it happened, but kinda relieved at the same time.  not sure in the long run what this is going to mean with my whole HRT, but the huge injection amounts weekly definitely woke something up....

I was terrified to go, crying, because if it was a blood clot that woulda meant bye to HRT and I wouldn't be able to handle that.  they'd have to put me away or something, heh.  luckily, it was this.  somewhat baffled.  but ya, the look on my face had to be priceless.  cuz when he was like you know you have a uuterus right? and I was just staring at him like huh? and hes like "do you understand my question? did you know you have a uterus?", I was like, uhh, I know I was xxy but didn't know *that*.  so now I gotta ask the endo about this.  I don't get how a uterus can be there considering the down below....which is slightly different ill give it that but ya.  I almost crapped when he asked if I ahd a penis.  not only do I despise that word, but the literal way he asked it was in genuine curiosity.  which, I couldn't blaim him on after the whole ultrasound dealy o.  heh.

I wouldn't really call it a "period" considering that requires the egg cycle and all that, and last I checked I didn't have ovaries to produce that.  just an irritated uterus lining, but from what no clue, meh.  sometimes I love my body to death, and sometimes, it confuises me ->-bleeped-<-less. the more I go along HRT the more things happen in such a short time frame and the more the whole IS stuff surprises me.  kinda makes me wonder "what's next??" 

A period is shedding of the uterine lining, nothing to do with eggs or ovaries. The shedding is cyclic.

Quote from: LordKAT on August 22, 2013, 03:21:19 AM
A period is shedding of the uterine lining, nothing to do with eggs or ovaries. The shedding is cyclic.

well then it seems the cycle the endo wanted to jump start or was hoping to jump start has happened. heh. kind of an embaressing story or way to put it out there, but this is my life so hey :) the lesson still stands though for everyone in the end though, if something extremely abnormal to what you are used to happens, go get it checked out :)

ya I was under the impression that the way the cycle worked was ovaries helped produce eggs, and then they travelled via fallopian tubes, and if they don't fertilize, then you bleed.  *shrugs* guess I was wrong, not a first time for me heh. kinda cool to know that all this cramping wasn't in vain. I don't know how much more often this is gunna happen, I don't wanna go running up to the er each time freaking out.

The hormone cycle does release an egg and send it down the fallopian tube. Your uterus says hmm, no embryo attached so sheds.  If you have no ovaries, obviously an embryo didn't attach and it sheds.

Quote from: LordKAT on August 22, 2013, 03:35:20 AM
The hormone cycle does release an egg and send it down the fallopian tube. Your uterus says hmm, no embryo attached so sheds.  If you have no ovaries, obviously an embryo didn't attach and it sheds.

makes sense. Ill say it is def. different to experience non the less.  but hey the doctor who saw me, and all the nurses were friendly as hell.  he only called me "he" once, and apologized for it too.  other then that the intake nurse was kind of rude, she was like "what are you getting a sex change?" and I said, yes, actually, I am, and im also intersexed.  But after that, everything went smooth.  all in all it was a 9/10 trip to the er, if I had to rate it as anything.  Doesn't mean anything more or less to me in the end, just that hey, I have a uterus.  which is pretty cool and all.  doesn't change me in the long run, except now everything I went through from 11-18 pretty much makes sense.  first time I ever had any bleeding though, for sure.  wonder if my endo is going to drop down my dose of EV now or if he is going to keep it super high up there, guess we shall see next month?

Also, thanks for the info on that lord kat :)

PrincessDayna, hrt sure did shake up your body, getting such bleeding going. Did the dr say everything about seeing ovaries on the mri?  Is the blood coming out of a separate opening or is it with peeing and bm's?

Wow... I am really glad You turned out fine - I supposed this means "fine" for You, does it? Intersex, huh? :)
But Your post made me think about something - I used to have the same story with stool - not periodically, but there were times when it was quite... annoying. Blood tests and usual stuff did not show up anything. I am glad my genetic test for possible intersex condition is due to be done within this week or the next one.
I will keep following Your situation with great and personal interest :)

Having a blood clot should t mean coming off HRT completely. There are a number of treatments and implants that can be used to keep the most harmful effects at bay.

The key two harmful effects being a big piece of clot breaking off and bursting in your heart which moves the refuse to your lungs where it blocks the blood flow of oxygenated blood back got the heart and having a piece break off and cause a stroke.
Those are the biggies and plenty of patients have come across my table, gotten an IVC filter installed to catch the big clots, and continued living while smoking and/or using birth control medications. So relax about the clots. I think you have enough worries without that single problem. ;)

Princess, but does this mean that You - theoretically - could get pregnant???

Dont think so on pregnancy, no ovaries.  no way to produce an egg, and the ultra sound techs only words were "the doctor will talk with you"

I was so doped up and out of it with everything.  I remember my sister holding my hand after exams began, but I was so doped up and out of it, I remember the bigger questions, and I remember her rubbing my stomach as I fell asleep..and the above stuff.

and yes, somehow it routed out via the only method it could, but the bleeding from there was very "minor" and "nothing to be concerned about"....apparently the body will reabsorb whatever minute amounts there were from the uterus.  it isn't a full on period, so to speak. they gave me a small script of some Norco things and some Xanax for nerves and some other med, the one that made me floaty and drowsy, and sent me home when the tests showed no clotting of the traditional worrisome nature. 

and how this was without a dose of progesterone is beyond me.  maybe the body just makes its own levels of that? idk,,,,

it was just scary, and doesn't feel good in the bigger picture of cramping. 

and in the end doesn't change my view of myself.  im still me, 47xxy, mtf, dysphoric and transitioning on along.  I wont really have much more to go on until I talk with my endo this next month and see what he says. 

Dayna, there is nothing to be ashamed about.  You were born intersexed.  Starting on HRT might have activated things that laid dormant for most of your life.

I suggest you continue to work closely with your endocrinologist, and perhaps a geneticist, until you get these things worked out.  You seem to be more of a woman than you ever thought - literally.

Dayna, didyou know that you had a uterus prior to this experience?  BTW, I'm XXY too.

ya that's wy when the bleeding started I called the wife in the bathroom freaking, and then my sister, and we talked of the day and earlier how I rubbed my sore calf when I woke up and we went right on off to the er.  just in case and all.

and nope, didn't know prior I had a uterus.  ive known I was IS and diagnosed xxy, but ya, that's about it.  last night was a shocker its why when the doctor was like, did you know....? I just stared at him and hes like do you understand what im saying? lol!

and no, im far from ashamed of who I am!  im proud.  I just don't think it makes me any more or less of a woman.

Quote from: Glitterfly on August 22, 2013, 09:14:42 PM
How did you find out you were IS? Did you have any external signs? I'm just curious! Someone asked me once if I was IS and that got me thinking... Would you know if you were IS/had an extra chromosome? Or would you only find out if you specifically tested for it?

min you, this is different from dysphoria as ive always id'ed personally female, since earliest memories.  but when I was 11 I had cramping till 17 ish, I didn't get body hair then till around 18- and always had what could be defined as a female shape to my bones, I.e very very high prominent hips.  I was improperly diagnosed as add due to learning difficulties, etc....other warning signs of klinefelters can be like breast growth, lack of facial hair, being really tall/skinny, etc etc, but they vary per individual I believe.  what matters is the genetic testing that shows the 47th chromosome being xxy.  a lot of people with it don't even know they have it, or it can get incorrectly diagnosed under other things, like gynomastakia or whatev.

keep in mind not all is people are dysphoric, some lead happy norma male lives.  one thing that stands out and hard, is that no IS person can birth children, in either direction, most of the time, atleast not 47xxy.  sterility is usually what leads into the testing. 

but ya, I was tested for it when I explained my condition of gender dysphoria, and when my body was examined, all sorts of other questions arose, like the above.  genetic testing ultimately is the factor that says if you for sure IS or not, unless of course you have a true genetal variation of both sexes, which is extremely extremely rare.

Really interesting.  I have Kleinfelters too.  I used to fantasize that maybe I had a vagina burried somewhere.  Lol.

Did you have cramping regularly one a month or random? I used to have a lot of cramping when I was young. For some reason always borderline anemic too.

Glad all is working out. Do the docs advise the uterus is ok? Any chance you have ovaries somewhere?

Quote from: -Emily- on August 23, 2013, 02:19:26 PM
Can I ask what sort of cramping? Was it like spasms down in the stomach - guts almost turning inside out and feeling like You are going to throw up but never being able to? Mostly in the mornings?

P.S. Is being sterile a mandatory requirement for an IS condition?

Um sort of, take constipation cramps, multiply em by 100' and curled up crying, and everything below the ribs hurt n u got it. 


And ya it's very rare somone is IS and not sterile....I don't think u can be fertile or whatever when ur IS, it's an effected major sex chromosome...

And to the previous question cramps started around age 11-lasted till male puberty but never any bleeding.  But then I never had this amount of E running through me either....

Quote from: Rosa on August 23, 2013, 01:55:50 PM
Really interesting.  I have Kleinfelters too.  I used to fantasize that maybe I had a vagina burried somewhere.  Lol.

Did you have cramping regularly one a month or random? I used to have a lot of cramping when I was young. For some reason always borderline anemic too.

Glad all is working out. Do the docs advise the uterus is ok? Any chance you have ovaries somewhere?

Ya klinefelters is def something to have...heh. It was once a month in my youth, but sometimes I'd skip a month or two, and it was regular, I.e some times it was a day sometimes 3-4 days, doubt it on ovaries but ima ask for testing to see about ova-testes now.....and ya just said it was as normal as it could be, given the circumstances, they didn't want to test further, just gave me meds for pain, and nerves, and off I went with a new gender marker heh.  Wonder if I can use that at sec of state for my liscence birth cert and all?

Ok, so you don't have ovaries but could you be a surrogate?  Not saying you want to, and you probably don't know the answer for sure.  Feel free to tell me to mind my own business I'm just curious.

Quote from: Alice In Genderland on August 23, 2013, 03:02:49 PM
Ok, so you don't have ovaries but could you be a surrogate?  Not saying you want to, and you probably don't know the answer for sure.  Feel free to tell me to mind my own business I'm just curious.

Not 100% sure on this one, since I'm on hrt I'd still need estrogen and there's no telling the effects on a fetus if I had too much or two little?  Considering I'm on huge amounts, an admin knows n thinks my rx'd level is insane-it would prolly put a baby in huge risk if a fetus would even grow...not sure I'd be willing to risk a life like that....in fact I wouldn't...though I'd love to b a mother!!

As for the other parts, not sure how a surgical srs below would handle to the pressures of childbirth.  I'm sure there are c sections, but to me it just all seems to much risk on another life for me to experience that.  Prolly would require one hell of a specialized team of doctors!

Quote from: PrincessDayna on August 23, 2013, 03:12:39 PM

Not 100% sure on this one, since I'm on hrt I'd still need estrogen and there's no telling the effects on a fetus if I had too much or two little?  Considering I'm on huge amounts, an admin knows n thinks my rx'd level is insane-it would prolly put a baby in huge risk if a fetus would even grow...not sure I'd be willing to risk a life like that....in fact I wouldn't...though I'd love to b a mother!!

As for the other parts, not sure how a surgical srs below would handle to the pressures of childbirth.  I'm sure there are c sections, but to me it just all seems to much risk on another life for me to experience that.  Prolly would require one hell of a specialized team of doctors!

Definitely a lot of risk, but who knows where science will lead!

Quote from: -Emily- on August 23, 2013, 03:44:40 PM
Well, that is what the Cesarean surgery is for...

I still don't think the risks are worth it on a fetus though....my body cannot produce the right hormones for a pregnancy without hrt.  While I admit there is a tiny possibility of even getting or being a surrogate, and don't get me wrong-I'd love to, there is a certain responsibility with it all, and it wouldn't seem in the best interests of a child to risk it's life, just for the name of science.  Maybe if time goes on and more scientific developments happen I'd inquire about it, but this is seeming that I may need a Gyno as well as an endo now, not 100% sure, I'll have to talk to my endo.  But as for pregnancy, I think it's too much to risk
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