Susan's Place Transgender Resources

Ok I was going through that paper that comes with every prescription you get (what's it made of, side effects, what to look out for ect). I just noticed for my e, tell your doctor if you have: epilepsy. Now she knows I'm epileptic we discuss what other medication I'm on and when my last seizure was. My neuro knows I'm now on hormones, what and how much. And I pick everything up at the same chemist

I'm aware that they can cause me more seizures (the hard way). Is this just a blanket warning or something else I should be concerned about

It's a blanket warning, your medical team is aware of what you are doing and would take that into account. Drug description warnings put everything possible on them to cover the manufacturer against liability.

If you do notice an increase or a change in seizures tell your medics immediately of course.

Although I have helped a couple of epileptic people in the past, I really only have a limited understanding of epilepsy

I am however rather familiar with a person who copes with narcolepsy and a form of autism and also has to hit an inhaler on a daily basis so they can breath

They get several pages of warnings and such along with all their scripts

Sure, it is all blanket warnings and such but nothing to take lightly

It is always best to discuss such things with your doctor

Thank you Cindy. Thank you V M

This was part of the reason why I had to stop last time, and while I'm in a good place mentally now I am not sure how I would cope if I wasn't able to transition at all due to my epilepsy. (I shouldn't complain it hasn't effected me much,  I'm able to hold down a full time job, but when it hits me it hits me hard)

I know that bio-identical progesterone, especially when taken orally, exerts anti-epileptic effects through the action of its metabolite allopregnanolone at the GABA receptor. That's why one tends to become so sedated and sleepy when taking it orally. 

I have a history of early adolescent epilepsy, for which I took medication. Over time, I was able to withdraw from medication with no ill effect, and have been seizure free for some time. With this as part of my history, my endo was very conservative in my initial dosage and increased very gradually over time. There was frequent blood work and meeting with the endo to ensure there were no neuro changes. Make sure you let the endo know of your history.