Susan's Place Transgender Resources

Hi everyone.  So I was watching discovery health last night and it was so sad! It was about a young woman with a pituitary tumor. She was attractive, lived with her boyfriend and had a normal life. Then she started growing and started looking very masculine. The tumor was causing growth hormones to go haywire.  I guess it also caused her vocal cords to grow because her voice got deeper. Her boyfriend told her she looked like a guy and moved out. People started laughing at her when she was out in public and kids always asked if she was a boy. They treated her tumor and stopped her from growing any more but she is now 6'7 and has size 14 feet.

I can't even imagine being a Cis woman and being identified as trans all the time. She had a normal life and it was totally destroyed. I cried when I watched it. I just can't even imagine how horrible it would be to have your life ruined that way. It's totally horrible!

I don't find it so hard to imagine. Doesn't that very thing happen to many of us? I'm sure she feels a dysphoria similar to ours.

:

April 22, 2015, the day of my first face to face pass in gender neutral clothes and no makeup. It may be months to the next one, but I'm good with that!

Being transgender is just a phase. It hardly ever starts before conception and always ends promptly at death.

They say the light at the end of the tunnel is an oncoming train. I say, climb aboard!

Think outside the voice box!

Quote from: Dee Marshall on November 25, 2017, 07:36:18 AM
I don't find it so hard to imagine. Doesn't that very thing happen to many of us? I'm sure she feels a dysphoria similar to ours.

:

April 22, 2015, the day of my first face to face pass in gender neutral clothes and no makeup. It may be months to the next one, but I'm good with that!

Being transgender is just a phase. It hardly ever starts before conception and always ends promptly at death.

They say the light at the end of the tunnel is an oncoming train. I say, climb aboard!

Think outside the voice box!

We do suffer the same GD. But what I find so sad is that she had a normal life as a female and it was taken away from her.

Quote from: Julia1996 on November 25, 2017, 07:15:01 AM
Hi everyone.  So I was watching discovery health last night and it was so sad! It was about a young woman with a pituitary tumor. She was attractive, lived with her boyfriend and had a normal life. Then she started growing and started looking very masculine. The tumor was causing growth hormones to go haywire.  I guess it also caused her vocal cords to grow because her voice got deeper. Her boyfriend told her she looked like a guy and moved out. People started laughing at her when she was out in public and kids always asked if she was a boy. They treated her tumor and stopped her from growing any more but she is now 6'7 and has size 14 feet.

I can't even imagine being a Cis woman and being identified as trans all the time. She had a normal life and it was totally destroyed. I cried when I watched it. I just can't even imagine how horrible it would be to have your life ruined that way. It's totally horrible!

Hi Julia,

Just wondering why no one figure this out earlier.  Even though it would spike her growth, it wouldn't happen overnight.  A friend had this happen to him when he was a teenager.  His crappy family doctor never sent him to a specialist but eventually another doctor figure it out and he was operated on to remove the tumor.   This happened 40 years ago, I would figure by now doctors would be better at spotting this sort of thing. 

Take care,
Paige :)

It's amazing how long we can go with a broken endocrine system and not be diagnosed correctly.   

I was put on testosterone at age 15. The actual problems, including a prolactinoma and my messed up neuroendocrine system were not identified until age 63. Almost 50 years of misdiagnosis and improper medication.


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Quote from: Julia1996 on November 25, 2017, 07:40:11 AM
We do suffer the same GD. But what I find so sad is that she had a normal life as a female and it was taken away from her.

You are right to pity her.  Yes, trans people can also suffer, but that does not negate her suffering.  Besides, it is sometimes more sad to lose something than never to have it.  Then there are the stares and comments she cannot avoid, the loss of her boyfriend and the difficulty of finding love again,  and the physical problems resulting from her rapid growth.  There must also be the fear that the condition will return.

I'm sad for her but am also sad for our culture that has so degraded that it has become fashionable to ridicule those with medical conditions.


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Quote from: Paige on November 25, 2017, 08:14:30 AM
Hi Julia,

Just wondering why no one figure this out earlier.  Even though it would spike her growth, it wouldn't happen overnight.  A friend had this happen to him when he was a teenager.  His crappy family doctor never sent him to a specialist but eventually another doctor figure it out and he was operated on to remove the tumor.   This happened 40 years ago, I would figure by now doctors would be better at spotting this sort of thing. 

Take care,
Paige :)

Unfortunately, this sort of stuff is still far too common. My brother was having thyroid issues, and they shuffled him around between a ton of supposed specialists (ACA plan issues for one on that) until it was finally diagnosed properly. Meanwhile, it was completely messing him up. And then, when he was actually placed on medication, the doctor dropped the ball entirely and my brother had to do a ton of independent research to figure out why he felt so crappy all of the time, only to find evidence it had to do with not being given the proper dosages of his meds. The doctor then basically told him he was crazy, until my brother showed him the research he had uncovered. Then he was shifted around doctors again, you know... because networks are stupid. And finally, finally, after over 2 years managed to become stabilized not including the time he delayed going to the doctor originally. Which if something even remotely similar happened here, she could have been looking at years of unmitigated hormone issues.

A couple of nights ago I watched some special on tv that was telling about how so many modern things today are effecting people. They spoke of girls hitting puberty at 7 years old and boys growing breasts. Both sexes having gender problems. All sorts of things which they supposedly tracked down to food additives, pesticides, personal hygiene items and such.

If this is true it's sad that money is the root of so many problems in areas nobody will ever act upon to repair. They'll let people suffer just to keep the almighty dollar coming in.

Whether trans or cis, it's sad what happens when people have gender problems, regardless of the reason.

The thing is even the person who graduates 424 out of 424 is called Doctor. 

Quote from: DawnOday on November 25, 2017, 07:44:07 PM
The thing is even the person who graduates 424 out of 424 is called Doctor.

A priest who dropped out of med school told me a joke with that as the punchline.
"What do you call someone who graduates last in their class in med school? Doctor."

Quote from: Deborah on November 25, 2017, 12:02:57 PM
I'm sad for her but am also sad for our culture that has so degraded that it has become fashionable to ridicule those with medical conditions.

Honestly I don't think it has. We've come a long way from the days of Victorian freak circuses and people using their medical conditions as a way to make a living because there was no illness or disability welfare whatsoever to help them. There will always be - unfortunately - a part of the human psyche that treats people with any illness as a sort of pariah, I mean I think that's an inbuilt animal mechanism (fear of the different,fear of the unknown, fear of the "other") but at least we don't see things like leper colonies in the civilized world any more. At one time if you weren't killed at birth for being different, you'd spend your days living as a homeless outcast with no prospects whatsoever of taking part in normal society.

We face problems but at least we have a chance these days. I really don't think it's all that fashionable to ridicule the ill or the disadvantaged either. Not compared to how it was in the last century.

Quote from: Roll on November 25, 2017, 10:37:35 PM
A priest who dropped out of med school told me a joke with that as the punchline.
"What do you call someone who graduates last in their class in med school? Doctor."

She went to drs when she first noticed she was growing. Since she was already in her late 20s they didn't believe her and accused her of seeking attention. Finally a Dr believed her but didn't know why she was growing. By the time a Dr figured it out she was already 6'7. That is just tragic. They did manage to stop her from growing anymore but the damage was already done.

One thing I wonder only doctors could really answer. But then again, most probably wouldn't for professional courtesy or such.

It just seems like today so many people are getting misdiagnosed and given wrong meds and such. I had two friends who died from a misdiagnosis. Both were Vietnam vets who died from Cancer. Cancer was never the diagnosis however.

I mean, is it a money or insurance issue? Is it just a lack of training now of days? Is it a problem with a lack of true concern from doctors; or are doctors being micromanaged and hindered by insurance companies?

I don't want to appear the prophet of gloom, but it seems these things are on the rise.

Or am I just completely wrong and only seeing part of a picture?

Do any medical people here have an answer to this?

Quote from: Dianne H on November 26, 2017, 09:06:18 PM
One thing I wonder only doctors could really answer. But then again, most probably wouldn't for professional courtesy or such.

It just seems like today so many people are getting misdiagnosed and given wrong meds and such. I had two friends who died from a misdiagnosis. Both were Vietnam vets who died from Cancer. Cancer was never the diagnosis however.

I mean, is it a money or insurance issue? Is it just a lack of training now of days? Is it a problem with a lack of true concern from doctors; or are doctors being micromanaged and hindered by insurance companies?

I don't want to appear the prophet of gloom, but it seems these things are on the rise.

Or am I just completely wrong and only seeing part of a picture?

Do any medical people here have an answer to this?

The biggest issue is a shortage of properly trained physicians, as fewer and fewer people are entering the profession and more are retiring early. Most practices and hospitals are switching over to a model based around physician's assistants and nurse practitioners. There is also a renewed administrative focus on getting people in and out as fast as possible, making it a numbers game on seeing the most patients per hour with the highest value billing codes possible. The actual doctors are usually hidden behind a wall of subordinates. (I've met my dermatologist once in going on 3 years, not joking.) Not that they would do much good either in some of these cases.

Having said that, there will always be misdiagnosis--and that has actually fallen in recent years. Unfortunately, it does often take a specialist for a proper diagnosis, and sometimes getting your foot in the door is a problem in and of itself. Insurance requires referrals, GPs may think they can handle it, patients worry about extra costs, etc. (A friend of mine's father died because he simply didn't want to get something checked out worrying about finances, for instance.)

Quote from: Dianne H on November 26, 2017, 09:06:18 PM
One thing I wonder only doctors could really answer. But then again, most probably wouldn't for professional courtesy or such.

I think that there is too much professional courtesy in the medical profession.  I used to work with medical databases.  I won't violate trust by mentioning specifics but I saw things that gave me pause. 

It is a pity that doctors tend not to pass judgment on each other.  That is how Dr Harold Shipman got away with murder for so long.  He was finally caught because he tried to fake a will, not because anyone officially challenged his death rate.   It is a pity that things have been arranged so that Dr Shipman's medical record can't easily be compared with those of other doctors.  I hope that some government organisation is doing in secret what can't be done publicly.

It is also a pity that all GPs, for instance, are presumed to be equally qualified.  That makes more sense in the German system, where I understand that students can wait until they feel ready before taking their exams.  It doesn't make sense in the English system, where students have to take their exams at specified times, then go out into the world with whatever knowledge they had when they scraped through.  The German exam system may cost more money in invigilation, but the benefit is having a country where graduates are confident and knowledgeable.

To be fair, I think that medicine is still very much in the trial and error stage.  I was diagnosed with glaucoma but the specialist told me that he couldn't be sure without an autopsy.  I decided not to wait for the proof and let him treat me straight away.

Quote from: Dianne H on November 26, 2017, 09:06:18 PM
One thing I wonder only doctors could really answer. But then again, most probably wouldn't for professional courtesy or such.

It just seems like today so many people are getting misdiagnosed and given wrong meds and such. I had two friends who died from a misdiagnosis. Both were Vietnam vets who died from Cancer. Cancer was never the diagnosis however.

I mean, is it a money or insurance issue? Is it just a lack of training now of days? Is it a problem with a lack of true concern from doctors; or are doctors being micromanaged and hindered by insurance companies?

I don't want to appear the prophet of gloom, but it seems these things are on the rise.

Or am I just completely wrong and only seeing part of a picture?

Do any medical people here have an answer to this?

Everything now is based on a script or Chinese menu. One from column A and one from column B. Medicine by guesstimet.