Community Conversation => Transitioning => Orchiectomy and Penectomy => Topic started by: SforaNymph on April 03, 2018, 11:41:17 AM Return to Full Version

Title: Orchiectomy
Post by: SforaNymph on April 03, 2018, 11:41:17 AM
I had an Orchiectomy done on March 23rd, 2018. I have a few questions like did your doctors keep you on spironolactone? I keep hearing that testosterone never leaves the body. Also does anyone know how long it takes for the testosterone to lower in the body? I am just curious is all.

Thanks,
Sfora
Title: Re: Orchiectomy
Post by: Devlyn on April 03, 2018, 12:07:55 PM
Spiro was stopped before surgery for me. I  was tested for estradiol and testosterone levels 19 days post op and I was in perfect female ranges on both.

Hugs, Devlyn
Title: Re: Orchiectomy
Post by: SforaNymph on April 03, 2018, 12:19:05 PM
Hi, Thanks for the reply. I was tested a month before surgery and my T levels were still high. So my doctor up all my doses, and than I got my surgery and wanting to stop the spiro but I don't know how long it takes for the T-levels to drop completely.

Thanks,
Sfora
Title: Re: Orchiectomy
Post by: Devlyn on April 03, 2018, 12:27:34 PM
I had the orchi because my T actually went up on spiro. Three weeks after the surgery: girl. :)

You're probably in those ranges now.

Hugs, Devlyn
Title: Re: Orchiectomy
Post by: SforaNymph on April 03, 2018, 12:31:30 PM
Lol I hope they drop cause I hate taking spiro, lol. Have you seen a huge drop in your T-Levels now that your not on Spiro anymore?

Thanks,
Sfora
Title: Re: Orchiectomy
Post by: Kristinagl on April 03, 2018, 01:26:49 PM
I had my orchidectomy on the 5th and stopped taking spiro that day. 3 weeks later I had my blood work done and my testosterone was almost non existent. I just saw my endro and he said after the surgery you no longer require spiro. Soooo yeah....that's my 2 cents hope it helps
Title: Re: Orchiectomy
Post by: SforaNymph on April 03, 2018, 01:29:45 PM
H, Thank you Kristinagl that does help a lot. Mine keeps telling me to stay on it permanently, and I'm like I shouldn't need it anymore. I may get a second opinion from another endro.

Thanks,
Sfora
Title: Re: Orchiectomy
Post by: Chris8080 on April 04, 2018, 08:14:55 AM
Quote from: Devlyn Marie on April 03, 2018, 12:07:55 PMSpiro was stopped before surgery for me. I was tested for estradiol and testosterone levels 19 days post op and I was in perfect female ranges on both. Hugs, Devlyn

Exactly the same for me. Doc said I wouldn't need the spiro after surgery and since my script ran out a couple of weeks prior to surgery she didn't refill it. Happy days. Roughly a month and a half after surgery the estradiol and testosterone levels were at normal female levels.
Title: Re: Orchiectomy
Post by: Charlie Nicki on April 04, 2018, 08:36:53 AM
Quote from: SforaNymph on April 03, 2018, 12:19:05 PM
Hi, Thanks for the reply. I was tested a month before surgery and my T levels were still high. So my doctor up all my doses, and than I got my surgery and wanting to stop the spiro but I don't know how long it takes for the T-levels to drop completely.

Thanks,
Sfora

I'm having my orchi tomorrow and my doctor told me that once it's done, it takes 48 hours for the T to completely leave the body. So yeah you don't need spiro anymore. I will not be taking it after surgery...Can't wait!!! Those urges to pee all the time even waking me up in my sleep are so annoying.
Title: Re: Orchiectomy
Post by: SforaNymph on April 09, 2018, 03:36:56 PM
Hi Charlie,

Yah I am still taking spiro, proestrogen, and estrogen. The one thing I am noticing is my body hair is growing back faster since having the orchi, as well as erections, and so on, which I didn't have before the Orchi. Could it be possible to still have high T-levels even after testicles are removed?

Thanks,
Sfora
Title: Re: Orchiectomy
Post by: AnneK on April 09, 2018, 04:31:27 PM
Quote from: Charlie Nicki on April 04, 2018, 08:36:53 AM
I'm having my orchi tomorrow

How did it go?
Title: Re: Orchiectomy
Post by: Charlie Nicki on April 09, 2018, 07:24:50 PM
Quote from: SforaNymph on April 09, 2018, 03:36:56 PM
Hi Charlie,

Yah I am still taking spiro, proestrogen, and estrogen. The one thing I am noticing is my body hair is growing back faster since having the orchi, as well as erections, and so on, which I didn't have before the Orchi. Could it be possible to still have high T-levels even after testicles are removed?

Thanks,
Sfora

Hmm I don't think your T is higher, I don't think it's possible, but I wouldn't know for sure. Maybe talk to your doctor about it. About erections...well I've felt very...excited today and yesterday but I think it's psychological in my case, I just feel so much happier with my life and my body!
Title: Re: Orchiectomy
Post by: Charlie Nicki on April 09, 2018, 07:25:34 PM
Quote from: AnneK on April 09, 2018, 04:31:27 PM
How did it go?

Very well! I'm still a bit swollen but it doesn't hurt anymore and I'm just so happy to have the T out of my system :)
Title: Re: Orchiectomy
Post by: SforaNymph on April 09, 2018, 07:29:10 PM
Glad your surgery went well. I am consulting a different endocrinologist this Friday who is gonna take my blood, and so on. I do have to say that after my surgery being close to 3 weeks post op I am more happier than I was before surgery.

Sfora
Title: Re: Orchiectomy
Post by: Charlie Nicki on April 09, 2018, 07:33:18 PM
Quote from: SforaNymph on April 09, 2018, 07:29:10 PM
Glad your surgery went well. I am consulting a different endocrinologist this Friday who is gonna take my blood, and so on. I do have to say that after my surgery being close to 3 weeks post op I am more happier than I was before surgery.

Sfora

Did your scrotum shrink? Mine is still swollen so it's stretched and apparently the same size...I would really like it to shrink just a bit.
Title: Re: Orchiectomy
Post by: SforaNymph on April 09, 2018, 07:51:49 PM
Sadly no mine hasn't but my surgeon said over time it will shrink a little.

Sfora
Title: Re: Orchiectomy
Post by: Devlyn on April 09, 2018, 08:02:18 PM
The swelling and the "memory" of the skin take time to adjust to their final form. I have only a small percentage of what was there pre-surgery. Im 7 months post-op now.
Title: Re: Orchiectomy
Post by: Charlie Nicki on April 11, 2018, 08:06:30 AM
Quote from: Devlyn Marie on April 09, 2018, 08:02:18 PM
The swelling and the "memory" of the skin take time to adjust to their final form. I have only a small percentage of what was there pre-surgery. Im 7 months post-op now.
Good to know!! Right now for me it looks like there's a lot of extra skin lol... Not a pretty sight.

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Title: Re: Orchiectomy
Post by: Devlyn on April 11, 2018, 09:51:00 AM
I had a point where the scrotum skin actually looked the little
thing that dangles at the back of your mouth.  :laugh:
Title: Re: Orchiectomy
Post by: Charlie Nicki on April 11, 2018, 01:45:14 PM
Quote from: Devlyn Marie on April 11, 2018, 09:51:00 AM
I had a point where the scrotum skin actually looked the little
thing that dangles at the back of your mouth.  [emoji23]
Devlyn did you feel like there was something hard in there the first few days? I'm 6 days post op and I was in the shower and touched there and it feels like there is 2 hard things in there. I'm trying to stay positive and think that it must be scar tissue or something else that feels hard but I'm brain is freaking out thinking she might have placed 2 testicular implants... I mean that would be ridiculous especially because she knows I'm trans and I wanted the flatness but now I'm scared that that's what happened :( I got my appointment with her tomorrow and I'm scared to know the answer.

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Title: Re: Orchiectomy
Post by: Donna on April 11, 2018, 07:42:29 PM
One more week and I see the urologist to schedule an orchi. Then I can get some relief from the three balls fighting for space. My cyst on the right side is as big as my thumb now and always getting tangled in the cord. Hope my wait is not too long
Title: Re: Orchiectomy
Post by: Charlie Nicki on April 12, 2018, 01:33:45 AM
Quote from: Donna on April 11, 2018, 07:42:29 PM
One more week and I see the urologist to schedule an orchi. Then I can get some relief from the three balls fighting for space. My cyst on the right side is as big as my thumb now and always getting tangled in the cord. Hope my wait is not too long
Congrats! You'll be there soon.

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Title: Re: Orchiectomy
Post by: justine77 on April 12, 2018, 03:44:12 AM
Hi Charlie Nicki,  I think it may be early days yet. I had all sorts of strange sensations down there to start with. It wasn't until about 2 weeks down the line that the empty scrotum went completely flat.  Unfortunately there wasn't any notable shrinkage over the following 2 years and I've got the same dangly flap of skin down there as before.  Since I don't like the way it looks and am not going down the SRS route I'm having the empty scrotum completely removed in a few weeks time.    Justine x
Title: Re: Orchiectomy
Post by: Chris8080 on April 12, 2018, 07:09:46 AM
Quote from: Charlie Nicki on April 11, 2018, 01:45:14 PM
Devlyn did you feel like there was something hard in there the first few days? I'm 6 days post op and I was in the shower and touched there and it feels like there is 2 hard things in there. I'm trying to stay positive and think that it must be scar tissue or something else that feels hard but I'm brain is freaking out thinking she might have placed 2 testicular implants... I mean that would be ridiculous especially because she knows I'm trans and I wanted the flatness but now I'm scared that that's what happened :( I got my appointment with her tomorrow and I'm scared to know the answer.

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Charlie, they tie the ends of the cords into a knot, that's most likely what your feeling. In a few months time the cords should shrink up inside you. Seems I wasn't quite that lucky though. They left the right side much longer than the left, the left side is now gone at almost 7 months but the right side is still there. :( Scrotum has shrank but I had so much to begin with it's still fairly substantial.
Title: Re: Orchiectomy
Post by: Chris8080 on April 12, 2018, 07:14:36 AM
Quote from: justine77 on April 12, 2018, 03:44:12 AM
Hi Charlie Nicki,  I think it may be early days yet. I had all sorts of strange sensations down there to start with. It wasn't until about 2 weeks down the line that the empty scrotum went completely flat.  Unfortunately there wasn't any notable shrinkage over the following 2 years and I've got the same dangly flap of skin down there as before.  Since I don't like the way it looks and am not going down the SRS route I'm having the empty scrotum completely removed in a few weeks time.    Justine x

I would be most interested in your reporting how the scrotum removal goes for you. I've recently been considering the same thing but haven't yet looked into it.
Title: Re: Orchiectomy
Post by: Devlyn on April 12, 2018, 07:39:36 AM
Quote from: Charlie Nicki on April 11, 2018, 01:45:14 PM
Devlyn did you feel like there was something hard in there the first few days? I'm 6 days post op and I was in the shower and touched there and it feels like there is 2 hard things in there. I'm trying to stay positive and think that it must be scar tissue or something else that feels hard but I'm brain is freaking out thinking she might have placed 2 testicular implants... I mean that would be ridiculous especially because she knows I'm trans and I wanted the flatness but now I'm scared that that's what happened :( I got my appointment with her tomorrow and I'm scared to know the answer.

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As Chris said, youre feeling the knots. I  thought I was going to be stuck with them, but after a couple months they are barely noticeable. We're really seeing the YMMV come into play here. It's great that we're sharing our experiences. :)

Hugs, Devlyn
Title: Re: Orchiectomy
Post by: Charlie Nicki on April 12, 2018, 12:53:23 PM
Thanks girls. I thought I would share my update, I had the appointment with my urologist a couple of hours ago, and she told me that what I'm feeling is a bit of phybrosis which is basically scarred tissue forming and closing the ducts. She told me this is normal and will mostly disappear within 6 months. She also massaged the area a bit to prevent it from growing.

I'm glad my fears were absolutely irrational and made up in my mind lol.

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Title: Re: Orchiectomy
Post by: SforaNymph on April 12, 2018, 04:37:27 PM
I have my 4 week post op next Thursday, which I am excited for. I also get my blood test done tomorrow by my regular doctor to see where my hormones are at. I am hoping to stop spiro here in a week or so, once my blood test come back. Also I got a consultation for nose surgery for this year, which I am excited to get done ASAP.

Sfora
Title: Re: Orchiectomy
Post by: justine77 on April 12, 2018, 06:48:38 PM
Hi Chris8080,  I'll let you know how it goes.  Hi, Charlie Nicki, I'm sure you'll be fine, relax and give it time, Best Wishes,  Justine  xx
Title: Re: Orchiectomy
Post by: amydane on April 12, 2018, 10:23:38 PM
Quote from: Charlie Nicki on April 12, 2018, 12:53:23 PM
Thanks girls. I thought I would share my update, I had the appointment with my urologist a couple of hours ago, and she told me that what I'm feeling is a bit of phybrosis which is basically scarred tissue forming and closing the ducts. She told me this is normal and will mostly disappear within 6 months. She also massaged the area a bit to prevent it from growing.

I'm glad my fears were absolutely irrational and made up in my mind lol.

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I'm starting the beginning stages of planning for an orchiectomy. Do you mind sharing who did your surgery?

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Title: Re: Orchiectomy
Post by: SonadoraXVX on April 12, 2018, 11:40:13 PM
I so want to do the orchidectomy so bad, but I feel shrinkage of the scrotum tissue will limit amount of scrotal skin for a vaginoplasty. Any thoughts?
Title: Re: Orchiectomy
Post by: Charlie Nicki on April 13, 2018, 12:08:35 AM
Quote from: amydane on April 12, 2018, 10:23:38 PM
I'm starting the beginning stages of planning for an orchiectomy. Do you mind sharing who did your surgery?

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I live in Colombia, it was paid by my insurance and it's not a well known doctor. If you still want her details I can send them via PM.

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Title: Re: Orchiectomy
Post by: Charlie Nicki on April 13, 2018, 12:08:56 AM
Quote from: SonadoraXVX on April 12, 2018, 11:40:13 PM
I so want to do the orchidectomy so bad, but I feel shrinkage of the scrotum tissue will limit amount of scrotal skin for a vaginoplasty. Any thoughts?
I've heard that's not an issue.

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Title: Re: Orchiectomy
Post by: Devlyn on April 13, 2018, 05:59:33 AM
Quote from: SonadoraXVX on April 12, 2018, 11:40:13 PM
I so want to do the orchidectomy so bad, but I feel shrinkage of the scrotum tissue will limit amount of scrotal skin for a vaginoplasty. Any thoughts?

My surgeon said if I came back for vaginoplasty the previous orchi would simply shave ten minutes off the surgery time. He stressed the elasticity of the tissue involved. I  think the change in the medical system from big wide scars to little thin ones is the difference.

Bottom line, ask the surgeon to be sure.

Hugs, Devlyn
Title: Re: Orchiectomy
Post by: justine77 on April 24, 2018, 06:26:51 AM
Hi Chris8080,  I had the empty scrotum removed yesterday. I'm sitting on my bed with my knees up and my legs apart trying not fidget around. It's not painful but feels quite sore and looks bruised. After the stitches come out there will be a vertical scar from the base of the penis to the perineum. This should fade fairly soon leaving a smooth appearance. I'm hoping it will look there was never anything there.  I'll let you know how it goes, I'm glad to be rid of it.
Justine x
Title: Re: Orchiectomy
Post by: Donna on April 24, 2018, 06:46:19 AM
Well went in for my injection the other day and talked to the doc about the orchi. Got absolutely no push back. I go back and see him July 23 to get the second shot and schedule the removal. The injection has me heading to castrates T levels and I'll get that out of my system now which should help with my progress. Dropped The dutatriside yesterday as don't need it any more now. Removal should be done in August I'm hoping.
Going to talk with him about removing some of the excess skin during the procedure.
Title: Re: Orchiectomy
Post by: Chris8080 on April 25, 2018, 06:11:48 AM
Quote from: justine77 on April 24, 2018, 06:26:51 AM
Hi Chris8080,  I had the empty scrotum removed yesterday. I'm sitting on my bed with my knees up and my legs apart trying not fidget around. It's not painful but feels quite sore and looks bruised. After the stitches come out there will be a vertical scar from the base of the penis to the perineum. This should fade fairly soon leaving a smooth appearance. I'm hoping it will look there was never anything there.  I'll let you know how it goes, I'm glad to be rid of it. Justine x

Good for you. You wouldn't believe how good that sounds to me, I'm green with envy. Do have any idea what the cost was? I've no idea if my insurance would cover it though they did the orchi. Updates please on your recovery
Title: Re: Orchiectomy
Post by: justine77 on April 25, 2018, 12:05:58 PM
Hi Chris8080,  I had it done privately by a doctor from Stockholm (I'm of Swedish descent) who comes over to LA periodically. I waited several months for him as I preferred someone I knew personally. It cost $1500 but I've no idea what the going rate is, I suspect a lot more. I'm walking about today albeit a bit gingerly. I'll let you know things progress.
Justine x
Title: Re: Orchiectomy
Post by: AnneK on April 25, 2018, 12:34:30 PM
Quote from: Devlyn Marie on April 13, 2018, 05:59:33 AM
My surgeon said if I came back for vaginoplasty the previous orchi would simply shave ten minutes off the surgery time.

Will you get a discount for the time he saves?   ;)