Community Conversation => Transitioning => Gender Correction Surgery => Topic started by: jill610 on December 16, 2018, 08:59:48 AM Return to Full Version

Title: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on December 16, 2018, 08:59:48 AM
Oh the countdown is on! I am so excited that the preauthorizations and medical necessity determinations are out of the way. Not so excited that I have to be off E injections for a month, I get raging migraines during hormone swings and yeah they are starting to happen. Everything else stays put until a few days before hand.

I had BA back in October and I found this huge sense of... nothing afterwards. By that I mean that I no longer think of my breast's. They are there, it is part of me and I feel whole. Sometimes annoying sometimes not, but always just like it should be.

I am hoping that this has the same effect and I can finally live without this thought of being incomplete in the back of my head all_the_time.

So... starting to prepare supplies. I will be out in Scottsdale for over two weeks, mostly in the hospital and they supply near everything. I have chargers galore for that adventure and loose clothing. Any recommendations on what is better in those first few weeks? Pants seem... not useful? A robe. What else?

But mostly, once I get home, what should I be stocked up on?
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Dena on December 16, 2018, 09:41:22 AM
They have good WiFi so your portable devices should work well. If you have a bunch of chargers, you might consider a short extension cord. Most of the outlets are occupied by medical equipment and your not supposed to use an orange one so outlets can be a bit rare and far away. A cord 8-10 feet should be plenty. Mostly you want light entertainment as your head may be out of it for a few days. The menu is pretty good but make sure you get your food order in early. Also if you want a snack, the nurses have a few things at the nursing station. That can come in handy if your taking medication that upsets your stomach.

When you return home, you will be able to do short shopping trips but easy to prepare food will work into your schedule better. If you can, you might consider putting away frozen dinners of food you like to eat. Naturally you will need paper towels to clean up the dilation mess, lubrication jelly, pads, hand mirror, bar or soft soap to clean up with, toilet paper (bigger the package the better), a few old bath towels to lay on and a big box of heavy duty feminine pads.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Kendra on December 16, 2018, 03:56:12 PM
Jill I am excited for you!  Your future is about to start.

Quote from: jill610 on December 16, 2018, 08:59:48 AM
> So... starting to prepare supplies. I will be out in Scottsdale for over two weeks, mostly in the hospital and they supply near everything. I have chargers galore for that adventure and loose clothing. Any recommendations on what is better in those first few weeks? Pants seem... not useful? A robe. What else?

But mostly, once I get home, what should I be stocked up on?

I posted a detailed list on page 11 of this thread (https://www.susans.org/forums/index.php?topic=230213.200).   :)
Title: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: LizK on December 16, 2018, 11:45:20 PM
Quote from: jill610 on December 16, 2018, 08:59:48 AM
Oh the countdown is on! I am so excited that the preauthorizations and medical necessity determinations are out of the way. Not so excited that I have to be off E injections for a month, I get raging migraines during hormone swings and yeah they are starting to happen. Everything else stays put until a few days before hand.

I had BA back in October and I found this huge sense of... nothing afterwards. By that I mean that I no longer think of my breast's. They are there, it is part of me and I feel whole. Sometimes annoying sometimes not, but always just like it should be.

I am hoping that this has the same effect and I can finally live without this thought of being incomplete in the back of my head all_the_time.

So... starting to prepare supplies. I will be out in Scottsdale for over two weeks, mostly in the hospital and they supply near everything. I have chargers galore for that adventure and loose clothing. Any recommendations on what is better in those first few weeks? Pants seem... not useful? A robe. What else?

But mostly, once I get home, what should I be stocked up on?
Hi Jill

I am about 10 days post op and the things I use the most are

Phone...invaluable for keeping you sane when things get tough or boredom steps in

Back up batteries that you use in the hospital if you cant reach the plug to recharge your phone.

Ipad/tablet...not so easy to use in bed but much better for movies, utube etc A 2m + charging cable

Dena pretty much covered the Dialation stuff...I would add a small pack of "wet ones" or other pre-dampened towelettes and if you can get them some plastic backed Underpads to cover your towels with as they help contain the mess and can be tossed after a couple of uses

Once I get home I will put together a Dilation pack that I can just grab as I need to the first 6 months its a 3xDay dilation regime for my Surgeon

Stress Teddy...something to cuddle for those times when you need a bit of self comfort.

Patience and a good sense of humour [emoji3]

Hope that is of sone help

take care and congrats....not long now!!

Liz




Sent from my iPad using Tapatalk
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Lisa89125 on December 17, 2018, 12:25:33 AM
Hmm, Not really relevant or important. I believe the orange plugs are the isolated ground plugs for medical devices. The red plugs are the generator backup power plugs. My EE knowledge showing again.

Lisa
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on December 17, 2018, 04:08:17 AM
Quote from: Lisa89125 on December 17, 2018, 12:25:33 AM
Hmm, Not really relevant or important. I believe the orange plugs are the isolated ground plugs for medical devices. The red plugs are the generator backup power plugs. My EE knowledge showing again.

Lisa

Haha, yes I think that's correct lol.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Jessica_Rose on December 17, 2018, 05:02:40 AM
Awesome! My visit with Dr. Ley is on 5 April, so I'll definitely be watching this thread!
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Kendra on December 17, 2018, 09:18:59 AM
Quote from: Lisa89125 on December 17, 2018, 12:25:33 AM
> I believe the orange plugs are the isolated ground plugs for medical devices.

And orange is Soul Source dilator (https://www.soulsource.com/collections/grs-vaginal-dilators) size 4.  ;)
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: LizK on December 17, 2018, 12:39:35 PM
Quote from: Kendra on December 17, 2018, 09:18:59 AM
And orange is Soul Source dilator (https://www.soulsource.com/collections/grs-vaginal-dilators) size 4.  ;)



I didn't realise if but it would seem I have been given soulsource dialators...or exact replica's

I have 3 of them

The purple one I call "junior" and is the first one I have to use....next I graduate to Excalibur the blue one...From here I go to the largest one which I call Merlin(Its going to need magic to get that brute to fit [emoji23])

Take care

Liz


Sent from my iPad using Tapatalk
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Mariah on December 25, 2018, 09:27:05 AM
Comfortable clothing would be best. You don't want to wear anything to tight. They supply a lot of things at that clinic which is where i had mine. Hugs
Mariah
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on December 25, 2018, 10:55:15 AM
Quote from: Mariah on December 25, 2018, 09:27:05 AM
Comfortable clothing would be best. You don't want to wear anything to tight. They supply a lot of things at that clinic which is where i had mine. Hugs
Mariah
Any suggestions on comfortable clothes? I got a robe for Christmas and bought myself some T-shirt's and loose pjs.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Margarine on December 25, 2018, 05:32:21 PM
I wore dresses when outside the hospital. As part of my umm welcome bag, a nice robe was included from Dr. Ley. Bring comfortable shoes and slippers, try to get out of the hospital when you can will help getting use to movement for the trip home. You are in amazing hands there, be sure to order your meals three at a time. The media selection sucks on the TV, Netflix, Kodi or what ever on a laptop or pad helps.

If you like burgers Rehab burger is Amazing and in walking distance.


Take care,

Margaret

Quote from: jill610 on December 25, 2018, 10:55:15 AM
Any suggestions on comfortable clothes? I got a robe for Christmas and bought myself some T-shirt's and loose pjs.
Title: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on December 25, 2018, 05:37:56 PM
Quote from: Margarine on December 25, 2018, 05:32:21 PM
I wore dresses when outside the hospital. As part of my umm welcome bag, a nice robe was included from Dr. Ley. Bring comfortable shoes and slippers, try to get out of the hospital when you can will help getting use to movement for the trip home. You are in amazing hands there, be sure to order your meals three at a time. The media selection sucks on the TV, Netflix, Kodi or what ever on a laptop or pad helps.

If you like burgers Rehab burger is Amazing and in walking distance.


Take care,

Margaret
Thanks!

All the skirts and dresses I have are more for work so might need to hit the thrift shop! My outside of work is more jeans and leggings. My ex gave me a robe and some "recovery" items lol.

I have had two burgers in the last year... give me carrots and rabbit food and I'm a happy girl! With a side of local pickles of course.

I am going through spin withdrawal, dumb question how long do people usually take before getting back into their exercise routine?
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Mariah on December 25, 2018, 07:15:52 PM
Their care package includes robe. Clothing like skirts, sweats, pajamas, nightgowns are all really good. The key is to avoid tight clothing and for me it meant that I had to give up skinny jeans for a bit. Also you want your underwear to be able to breath so cotton is better for the moment. Hugs
mariah
Quote from: jill610 on December 25, 2018, 10:55:15 AM
Any suggestions on comfortable clothes? I got a robe for Christmas and bought myself some T-shirt's and loose pjs.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Anne Blake on December 25, 2018, 08:12:36 PM
It is getting close for you, congratulations! I agree with everything already mentioned. Dr. Ley is great, they supply a nice robe, I still use mine at home. The food at the hospital is good and the staff very good. Rehab burgers is good and just a short walk across the parking lot. Healing will seem to take forever and then you will realize that a year has past and life is appearing normal again.

Good luck with this and say hi to Dr. Ley for me.
Tia Anne
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Michelle_P on December 25, 2018, 09:43:14 PM
Jill, your doctors instructions will give you activity limits.  Make darn sure you follow these.

Exercises that elevate blood pressure, or put ANY pressure on the abdominal wall will be out for several weeks.  You may see things like limits of 5 lbs for lifting, or step limits for daily walking.  DO NOT try to push yourself.

I helped one gal through her post-op care, and just two days after she got out of the hospital she pushed herself too far, trying to walk several blocks.  The "W" incision between the anus and base of the labia majora tore open, necessitating a trip to the ER, and once stable, a medical transfer flight to her surgeon's hospital, where she remained for almost 4 weeks.  So, DO NOT push yourself.  (She's doing fine now.)
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Rachel on December 30, 2018, 04:04:37 PM
Congratulations Jill.

I recommend a few cell phone rechargeable batteries. Just in case you can not plug your cell phone in to charge.

You may think about some collagen supplements. I take it every day, 20 grams. It really helps with skin and connective tissue regrowth.   

Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on December 30, 2018, 04:13:14 PM
Thanks everyone! The countdown is on and I am an anxious ball of nerves, fear and anticipation. I am not a happy camper being off hormones for the last two weeks and that made the holidays so much more exciting lol.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Mariah on January 01, 2019, 09:53:26 PM
Within a few days of surgery you will be on hormones again since they will start you back up earlier than you expect. Hugs
Mariah
Quote from: jill610 on December 30, 2018, 04:13:14 PM
Thanks everyone! The countdown is on and I am an anxious ball of nerves, fear and anticipation. I am not a happy camper being off hormones for the last two weeks and that made the holidays so much more exciting lol.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: BritneyX on January 01, 2019, 10:04:36 PM
Quote from: jill610 on December 30, 2018, 04:13:14 PM
Thanks everyone! The countdown is on and I am an anxious ball of nerves, fear and anticipation. I am not a happy camper being off hormones for the last two weeks and that made the holidays so much more exciting lol.

Wish you all the best.  I have just begun my journey, so that point is way off for me.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 06, 2019, 07:35:45 PM
4 days, 9 hours.. the count is on!

So excited!!
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Jessica_Rose on January 06, 2019, 08:14:13 PM
I cannot imagine how excited you must be! My date with Dr. Ley is still three months away, but I am already starting to get excited. I wish you and Dr. Ley all the best this week!

Love always -- Jessica Rose
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: BritneyX on January 06, 2019, 08:28:09 PM
Quote from: jill610 on January 06, 2019, 07:35:45 PM
4 days, 9 hours.. the count is on!

So excited!!
I'm envious.  I wish you a speedy recovery and all the best in your new life change.
Title: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 09, 2019, 11:52:03 PM
Just got to my hotel in Phoenix, where I am so fortunate that my parents decided to come along. My dad has Alzheimer's and my mom is legally blind but it was important to them to be here for there daughter! Long flight from Philly, but uneventful.

Started today with the intent of being off from work, but that did not work out. Was on called from 7am till 9, went to CycleBar for a final workout before the long Haiti's, then picked my parents up from their house, more work calls, went to the airport, more work calls and  -here's a shocking plot twist- worked more on the plane. The airplane WiFi was not working which probably was for the best. Tomorrow I'll be working from the hotel room until noon, then a final call with HR at 2 (not about me,,, I may need to sever an employee) before heading off to the pre-op appointment. Then the fun begins! Looking forward to receiving my own kit, and getting anxious butterflies at this point.

Struggling a bit with Facebook, I am very non specific in my updates about why I'm out here; I suspect most of my "friends" think I'm on a business trip.

Getting excited and anxious! No more food for me until Saturday. It's been a year since I last fasted.

(https://uploads.tapatalk-cdn.com/20190110/81b9489dd8229315fc1214ba67d41193.jpg)
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Kendra on January 10, 2019, 12:02:12 AM
Jill I am so excited for you!!  You're almost there.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 10, 2019, 12:07:11 AM
@Kendra, thank you! I can't wait but honestly this week has been so stressful between tying loose ends off at work (actual name of my final meeting with my team tomorrow) and all the pre surgery jitters, it's all quite overwhelming!

I don't know why, but the idea that a dialotor will be inside me shortly is strangely intimidating all of a sudden.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 14, 2019, 06:18:30 PM
Susan's is back! Went down right as I had my surgeries. So on Friday, everything went as planned and I had GRS plus trachea shave, forehead/brow and hairline advance. Tomorrow (1/15) I go back in for chin, jaw and lip lift.

I was under for 11+ hours on Friday and my throat is still sore from the intubation tube. I expected some soreness but not a significant difficulty speaking. It was pretty bad.

I am absolutely over the moon with Dr Leys work so far. Obviously everything is new and all but so far she understood what I wanted to achieve and I am pleased. I said to my dad this morning after seeing my reflection in a door here that I finally see me. I see Jill, not a pretty boy or a boyish looking girl. I see me and that's so important to me.

For round 1 FFS, I had just one drain in the head which went across the forehead. Plus two others in the vagina and the Foley catheter. Dr Let says she got around 0.5-1.0" advance depending on location. My hair was washed in the OR but was still a dried bloody mess. I took my first shower today. POD and POD1 are both bed rest. I have been pretty mobile today and my vagina hurts.

And what a wonderful feeling, I have a vagina. I never thought this day would get here.

Last night Dr Ley came by and removed the drain in the head and redid the wrap. I finally got to see the trachea shave, which so far looks really good. The other drains got removed this morning. None were pleasant experiences.

Here's a few pics

Before

(https://uploads.tapatalk-cdn.com/20190115/a3a960eb31c942ac400d83a0426de00f.jpg)

POD1

(https://uploads.tapatalk-cdn.com/20190115/d44076b98f3a9928b41741044090aba1.jpg)

POD2 sporting my drain of course

(https://uploads.tapatalk-cdn.com/20190115/5aff2261580daddbf17c4c4c959ce162.jpg)

POD3(https://uploads.tapatalk-cdn.com/20190115/a02d285491f6323ab75900edb2f07146.jpg)(https://uploads.tapatalk-cdn.com/20190115/23eedb665b04708ee4104e8033d6ee85.jpg)
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: BritneyX on January 14, 2019, 06:35:15 PM
Quote from: jill610 on January 14, 2019, 06:18:30 PM
Susan's is back! Went down right as I had my surgeries.
We didn't want you to miss out on anything!  So glad to hear that you are doing well.  You look very optimistic and relaxed.  That is a an affirmative sign that all is well, in my honest opinion.  Of course, cutie pie Kiddos always help. :)  Take it easy for a while and your new normal will feel like it has always been.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Jennifer M on January 14, 2019, 08:44:37 PM
Quote from: jill610 on January 14, 2019, 06:18:30 PM
I have been pretty mobile today and my vagina hurts.

And what a wonderful feeling, I have a vagina. I never thought this day would get here.
I'm sure it feels wonderful to say that. You look great! Hope things keep going well!
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Kendra on January 14, 2019, 10:04:18 PM
JILL!!  I am so happy for you - and you are already looking so great on post-op day three!  Brow ridge and so much else is now a memory of the past.  Your wonderful future has started. 

Quote from: jill610 on January 14, 2019, 06:18:30 PM
Susan's is back! Went down right as I had my surgeries.
That explains it.  Shared anesthesia.   ;)
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Jessica_Rose on January 15, 2019, 06:09:19 AM
You are looking awesome Jill! So happy that everything has gone smoothly for you, and I wish you the best of luck today as well!!!

Love always -- Jessica Rose
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Allison S on January 15, 2019, 06:19:08 AM
Wow, that's such a big difference already... Your eyes are a lot more open. The only thing is the scar seems a bit low?

Sent from my VS501 using Tapatalk

Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Devlyn on January 15, 2019, 06:36:20 AM
Quote from: jill610 on January 14, 2019, 06:18:30 PM
Susan's is back! Went down right as I had my surgeries. So on Friday, everything went as planned and I had GRS...


(https://www.susans.org/forums/gallery/0/59100-190518195520.jpeg)

Congratulations!

Hugs, Devlyn
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 15, 2019, 06:46:22 AM
Quote from: Allison S on January 15, 2019, 06:19:08 AM
Wow, that's such a big difference already... Your eyes are a lot more open. The only thing is the scar seems a bit low?

Sent from my VS501 using Tapatalk

I think a lot of my hair is stillhard with blood and blends in. She took a full inch off at the center and mire that half an inch elsewhere. I am assuming I will still need some transplants in the temples and along the scar line.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 15, 2019, 08:20:07 AM
POD 4 Tuesday 1/15/2019

Sleeping last night was rough as the incisions in the scalp are becoming more prominent and painful to put pressure on. They have been giving me stuff to help me sleep but that hasn't been overly helpful.

The nursing staff here are wonderful and some of them are pretty passionate about the work they do for the trans community, which is great to see and hear. My parents who are hyper critical of doctors and hospitals have been very happy with Ley and the facility. Compared to some of what is going on in Philadelphia with one of their surgeons, this is really a terrific experience. I cannot imagine being discharged to a hot pitas room on day 2 or 3 or even 5.

Swelling is up in the face but is coming down a little in the vaginal area. Becoming a lot of aware of the packing inside and how stretched things are. It's very difficult to describe the sensations of all these new parts.

This afternoon around 1, I go back in for round 2 which will be the chin, jaw, and lip lift.

(https://uploads.tapatalk-cdn.com/20190115/28ae783ff918c752096cc6c172054c08.jpg)(https://uploads.tapatalk-cdn.com/20190115/7a33579581346ea504470957f994fb7a.jpg)
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: mm on January 15, 2019, 01:12:07 PM
You look great for just having surgery on Fri; hope today's surgery goes well for you also. Good luck and keep us updated.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: BritneyX on January 15, 2019, 05:49:11 PM
Love the positivity that is exuding from your aura.  It is a real encouragement for those of us contemplating such procedures. 
Title: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 15, 2019, 11:42:00 PM
Today's surgery is now in the books and I am high as a kite on pain meds.

THIS ONE HURT THE MOST

more than grs and forehead combined keeping mind my packing is still in. Overall I happy to be on the flip side and on the mend.

This post toook an hour to write(https://uploads.tapatalk-cdn.com/20190116/f1be2adbd9409124726bf76b48f87070.jpg) (https://uploads.tapatalk-cdn.com/20190116/36ad3aac469f5befd85d3d2e3a61ed32.jpg)
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: BritneyX on January 16, 2019, 04:06:39 AM
Glad to here that all is OK.  Can't wait till the big reveal!  Rest up, now.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 16, 2019, 10:05:24 PM
Day 4 was though, the pain was very very high and I think I only did a few laps around the floor. I had a few conversations earlier in the day that just wiped me out completely.

The packing comes out tomorrow which I'm both excited and anxious about.

(https://uploads.tapatalk-cdn.com/20190117/9caf973eb7bb22d14f3ab5b78f3b1c09.jpg)(https://uploads.tapatalk-cdn.com/20190117/79c0105813e5e2350b4e25c298c19cca.jpg)
Title: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 17, 2019, 01:59:50 PM
Today is POD 6

Which means :drum role: my vagina got unpacked and for the first time liberated.

It's there. It exists. It's ANGRY and it's mine!

First round of dialation is done and now onto that schedule.

Dr Let came in today and took out the sutures in the scalp, removed the trachea shave suture and pulled out the remaking drains.  Oh boy was that a fun time! Those drains are not pleasant coming out but don't walkways hurt. But sometimes they do. It's hard to describe.

I was scared of dialation but it was a nonevent, it went in just fine, stuck around for a bit helping be move gas around and then it came out. Hopefully they are all as uneventful

Face is super swollen. Hoping today is peak Day for that

Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: BritneyX on January 17, 2019, 06:08:09 PM
Quote from: jill610 on January 17, 2019, 01:59:50 PM
Today is POD 6

Which means :drum role: my vagina got unpacked and for the first time liberated.

It's there. It exists. It's ANGRY and it's mine!

First round of dialation is done and now onto that schedule.

Dr Let came in today and took out the sutures in the scalp, removed the trachea shave suture and pulled out the remaking drains.  Oh boy was that a fun time! Those drains are not pleasant coming out but don't walkways hurt. But sometimes they do. It's hard to describe.

I was scared of dialation but it was a nonevent, it went in just fine, stuck around for a bit helping be move gas around and then it came out. Hopefully they are all as uneventful

Face is super swollen. Hoping today is peak Day for that
Good to hear the recovery is on par.   How much longer do you have there at the hospital before you are released?
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 17, 2019, 06:52:20 PM
Drs Ley and Meltzer both keep you for 9 night. So I will be discharged on Saturday, spend a night at a hotel then some final sutures out Sunday morning and on a 5pm plane home.

Today was some big highs and lows. The swelling in my jaw is more than I was emotionally prepared for and I am having a hard time keeping a positive attitude.

Getting the packing out and the so far positive experiences with dilating helps pull me back up, but my body has been really beat up this week and I didn't fully appreciate how much.

I am however so glad I did bottom and face together and cannot imagine doing BA at the same time as bottom. Physically I had the hardest recovery from BA. I suspect emotionally that the face will be hardest because I'm currently ugly with all the swelling and that's crushing on me.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 19, 2019, 09:35:51 AM
Discharge day!

Very good spirits but already low on energy. They finally found an combination that is keeping the pain in control and helping with the swelling and sleeping. I have had a hard time finding sleep and now that I'm dialating that is even more difficult.

Almost all of the pain I still have is in my chin, which has been having a quagmire "giggity" minds look to it with all the swelling. That seems to be subsiding somewhat.

Dialation has been easy with #1 going in all 6.5 with no issues consistently.

Today the catheter comes out which I look forward to... and also learning which direction I will pee until the labiaplasty in July.

(https://uploads.tapatalk-cdn.com/20190119/e43c5e553ecb47b4236c459ab79016cd.jpg)(https://uploads.tapatalk-cdn.com/20190119/8e8324ed87fb7140e15f7d20442316f9.jpg)
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Kendra on January 19, 2019, 09:54:35 AM
Jill you look GREAT, barely more than a week after GCS and less than a week after full FFS procedures.  I hope you continue to feel better and I know you will.  It all gets easier from here. 
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 19, 2019, 02:25:21 PM
Quote from: Kendra on January 19, 2019, 09:54:35 AM
Jill you look GREAT, barely more than a week after GCS and less than a week after full FFS procedures.  I hope you continue to feel better and I know you will.  It all gets easier from here.
Thank you Kendra!

I am struggling a lot with my appearance. After they did forehead (1/11) and a before jaw (1/15) I had a few days to see that work alone and was very very happy with it. The swelling from the chin/jaw has me a bit depressed. I feel like I cartoon joke.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Rachel on January 19, 2019, 09:05:32 PM
Jill I am very happy for you. You are much braver than I am for doing FFS and GCS at the same time.

When I took the FFS bandages off in the bathroom of the extended stay hotel in Boston I cried. I had blood and sutures everywhere. I think traumatic is not overstating it. I had sutures everywhere and I said to myself I looked like Frankenstein. I was swollen and bruised and the stitches and staples were so exposed from lack of hair.

You look fantastic. You have come a long way in a short time and just need to know you are experiencing the worse right now. Every day it will be a little better. My jaw and chin work were by far the worst pain from transitioning.

I hope you heal fast,
Rachel
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: BritneyX on January 19, 2019, 11:46:55 PM
Jill, don't sweat the looks right now.  You body is just doing its job to heal and adjust.  It will be over before you know it.  We are all here to send you our positive Love to keep your spirits up. 
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 21, 2019, 05:12:00 PM
Thanks everyone

@Rachel I think I might need to agree on the chin, that is where I have the most persistent pain. I think the most pain at once was the submuscular BA.

The flight back yesterday was a bit challenging but I finally made it the airport Marriott in Philadelphia at 1am, dialated and them passed out.

Unfortunately the swelling is still pretty significant and I was unable to pee before leaving. So after two straight caths in the hope it would resold, I can home with a catheter that I will need to remove in a week. I was a bit mortified, but if that's the only complication then I'm doing good I guess.

My chin still hurts and my face is very swollen but on my first day back I had a vision appointment, went shopping at BJs to restock the house for the week, and am staying the night at my parents, who were with me in scottdale for half the trip.

Face is starting to come down a bit in swelling.

Yesterday at the airport

(https://uploads.tapatalk-cdn.com/20190121/e77a3a34753d5fc4e3881d793f93617c.jpg)

This morning
(https://uploads.tapatalk-cdn.com/20190121/1d388349ca08565ad959560b09a2531a.jpg)(https://uploads.tapatalk-cdn.com/20190121/ac4d57f73ba2c75814764bb13f8501e8.jpg)(https://uploads.tapatalk-cdn.com/20190121/30630c16ccd3824cf13f5b0076604e54.jpg)
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Rachel on January 22, 2019, 06:19:45 PM
Jill, you look great.

I had a catheter for two weeks. Make sure the tube does not impinge upon your clitoris. Use gauze under the tube and make sure it goes to the side of the clitoris. Use tape to hold it in place.

It took a good 3 months for the swelling to go down and a year for the final results.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 22, 2019, 08:19:33 PM
Quote from: Rachel on January 22, 2019, 06:19:45 PM
Jill, you look great.

I had a catheter for two weeks. Make sure the tube does not impinge upon your clitoris. Use gauze under the tube and make sure it goes to the side of the clitoris. Use tape to hold it in place.

It took a good 3 months for the swelling to go down and a year for the final results.

2 weeks after you got home? I will have it until sometime over the weekend, though I am nervous that I'm just going to be driving to the ER to have another one installed.
Title: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 24, 2019, 12:14:37 PM
POD 13

Still quite a lot of swelling in the vaginal area but am happy with depth so far at 6.5", which is pretty spot on what they told me to expect. Still on the #1 at 4x a day and supposed to step up to #2 on the 31st.

The catheter is still in and I made an appointment with the urologist I saw in the fall for Monday to have it removed. I have the stuff to remove it myself but want to avoid an ER trip if things are still swollen too much. Easy math $30 vs $900.

The swelling in my face is coming down but boy is it weird getting used to my forehead and top of my head being numb. It seems every day there is slightly less numbness but could totally be in my head.

Here's my POD12 selfies (I have a bi-daily post on fb with selfies)

(https://uploads.tapatalk-cdn.com/20190124/9dba936a3d54989b16a9a9c96fdc7a1f.jpg)(https://uploads.tapatalk-cdn.com/20190124/f43162b467baa8c3bd2dda1652a06be5.jpg)(https://uploads.tapatalk-cdn.com/20190124/731a47542e3b05cc93071f9ff6e31904.jpg)
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: BritneyX on January 25, 2019, 02:06:10 AM
Looking great!
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 25, 2019, 04:36:50 PM
So today had a perineal dehiscence during a bowel movement leaving about a .75-1" opening along the perineal incision line. Dr says it's common and it'll close by itself over the next few weeks and just to keep it clean and apply bacitracin.

I am definitely not a fan of having this open wound but boy did looking down and seeing all this blood freak me out. I'll admit, I was a bit scared and called my mom while waiting for the return call from the surgeon.

Eek!
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on January 28, 2019, 12:13:05 PM
Catheter came out today!

Happy Dance all around!

Still dealing with the perineal tear but the bleeding has reduced significantly to just an ooze now.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: ChrissyRyan on January 28, 2019, 12:13:47 PM
Quote from: jill610 on January 28, 2019, 12:13:05 PM
Catheter came out today!

Happy Dance all around!

Still dealing with the perineal tear but the bleeding has reduced significantly to just an ooze now.



Yay!   :)


Chrissy
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on February 03, 2019, 11:14:04 AM
A couple updates

I am still on 4x daily for another week, but stepped up to #2. Here's where it gets fun, in the expanded directions it has you using both for a while *if* the depth is less with the larger one. So I am 15min on #2 and 10 min on #1. I am fortunate that I did not need the tapered dialator  to get pst the pelvic muscle. The next step up will be in 2 weeks.

Swelling in my face has started to come down pretty good.  Here's a pic from yesterday at the Philly auto show, where I managed to talk ford into letting me and my club behind the ropes for a club and board pic. Being the president of the largest ford club in PA for the last six years makes that an easy phone call :)

(https://uploads.tapatalk-cdn.com/20190203/f4be584cae233e482d7aa4927becc19e.jpg)(https://uploads.tapatalk-cdn.com/20190203/84822f6cc624e6f4fa76337179d6bbd2.jpg)
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: Rachel on February 03, 2019, 06:22:34 PM
Jill you look great. It took me a while for the face swelling to go down 100%. I think it was 6 months to a year. I have about 90% of the feeling on top of my head now, maybe 100%. I forget how it felt pre-ffs.

I am glad you are doing well dilating. It will take time for the swelling to go down there too. Be carful walking around too much. You need to move but take it easy. 

I was closed up 6 days post op. There was a plan B if the graft died. I had my catheter in 13 days total. The packing was removed at day 6 (new packing was reinstalled) and I started dilating with no pressure at day 13 when the catheter was removed. Most of my graft survived and I had a revision a year later and I have another in April.
Title: Re: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: JudiBlueEyes on February 03, 2019, 06:49:52 PM
What a wonderful result Jill!  Looks like you had fun at the auto show.  Great smile!
Title: GRS and FFS with Dr Ley / Meltzer Clinic on Jan 11 2019
Post by: jill610 on February 13, 2019, 04:04:15 AM
Quote from: JudiBlueEyes on February 03, 2019, 06:49:52 PM
What a wonderful result Jill!  Looks like you had fun at the auto show.  Great smile!

I do enjoy the auto show, but it's a lot of ho him done that after 8 consecutive years of forced attendance.

So it's been a week or so, and lots of changes. Had a some meetings in NYC so here's my in my power bitch, don't mess with me suit. Certainly more feminine than before FFS. Still some scabbing on the incision, though easily covered with makeup now. Both pics from same trip, opposite directions with and without makeup.

(https://uploads.tapatalk-cdn.com/20190213/2d57a04858b598eebe98eaea499b8597.jpg)(https://uploads.tapatalk-cdn.com/20190213/a1554aaffaeae796e9a74157f23f8c55.jpg)

Numbness is improving daily though swelling is fairly static now. On the scalp, I have full sensation in the back and the side for the most part. The forehead I see small improvements but is mostly numb though I can feel the nerves healing at all times.

For bottom, the perineal dehiscence is improving. The leakage has mostly stopped and it is fully healed about 25% of the length. I see small improvements daily and am still using bacitracin twice daily along that line.

Swelling is down considerably and the sharp shooting pains of healing nerves has come on in full force. My brain is starting to remap location but twice this week I have had an unscratchable itch on a body part that no longer exists and once reached down idly in the shower to scratch ... I had to laugh when I discovered that I did that. I am finding humor in this whole experience.

I stepped up in dialator size again over the weekend and am now on #3. I havnt had much need for the tapered dialoators though it is a bit sore initially, I have had no real problems getting through the pelvic muscle and maintained 6.5" depth with all dots disappearing.

Tomorrow I go from 3x daily to 2x daily, so ima little nervous about things stiffeningup. We'll see.