I've already posted about this on ->-bleeped-<-... so:
QuoteFor some reason my physician didn't know about my congenital heart defect (pulmonic stenosis, regurg and enlarged right ventricle). I understand there will be adjustments to my T dosage when starting out but now she wants to only go with the "lowest therapeutic dose."
My H/H has been elevated, aside from that, for the most part I've been feeling great. I can actually function. I'm very worried that being on the lowest dose is going to bring my depression and anxiety back. My heart defect has not caused me problems since I was a baby.
My therapist said to let her know if I ever need my T letter (I've been doing informed consent). So I've been considering that. Looking for some insight.
Wondering if there are any guys that have a congenital heart defect or gone through something similar?
I have a very similar congenital heart defect (tetrology of fallot). I haven't started T yet, but plan to as soon as I get the go-ahead from my cardiologist (fingers crossed). I've been looking for any information I can get, but can't find much information specifically on the risks of testosterone use and CHD's. Generally I think risks of further heart disease become more aligned with cis dudes higher rates. Further, I've read that t increases red blood cell counts making the blood thicker, which I imagine our funky pulmonary valves don't appreciate, but I've also read a prescription for regular blood donations helps with that.
To make matters worse, I'm due for open heart surgery in the next 5-10 years to replace my pulmonary valve and worried about how that might affect top surgery.
Anyway, very curious what your experience has been like since you posted, if you care to share!
The thought of having one's T dropped back for any reason can be upsetting. Men tend to have a higher PCV (packed cell volume) than women. I'm not sure if this is why your Dr. is wanting to put you on a lower dose of T, but its something you should ask about. Its your body and you have a right to know the reason for the drop that is more specific. If it makes no sense to you, try an endocrinologist.
sam1234