I originally had srs with suporn and because of ongoing harassment I struggle with aftercare and lost depth.
I am trying to figure out what my options are. From seeing a surgeon in the UK I wasn't happy with the fact that all he offered was investigative surgery with the view of making a hole big enough to douche.
I was told that colon was an option but he seemed reluctant to consider that as an option. I don't feel happy that A: it's difficult to clean at the moment and B: that sex isn't an option and that depth is an issue.
I know colon isn't ideal but I would like to figure what what my options are and how good/bad colon is?
Have you asked the Suporn clinic about it?
Quote from: AnonyMs on June 20, 2016, 02:20:30 PM
Have you asked the Suporn clinic about it?
No the aftercare and advice Sophie provided has been appalling and she is the reason I am in this mess so I wouldn't ever turn to them for advice and their advise to everyone is that if you close depth you need sigmoid colon and they don't offer that
Quote from: mythaisrs on June 20, 2016, 03:25:25 PM
No the aftercare and advice Sophie provided has been appalling and she is the reason I am in this mess ...
I know how Sophie can be... but how is Sophie the reason for your loss of depth? Im curious. You had post-op care class while you were there, and you were instructed dilation technique, right?
If a problem is only partial vaginal depth loss, for example if you have normal functional width first 4 inches, this can be resolved with revision with smaller skin graft, at the end of vaginal canal. However if didnt managed to follow prescribed dilation regimen, and you lost depth and width of practically whole vaginal canal (and vaginal entrance), than there just isnt much that can be done with simple patching. And the only real option is full vaginoplasty. There isnt just sigmoid colon option (although it is most common approach), jejunum flap can also be used. I would suggest you look into that.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4771847/
You could contact Dr. Littleton from Brazil, he even posted about this once or twice on this forum.
Quote from: mmmmm on June 20, 2016, 03:55:39 PM
I know how Sophie can be... but how is Sophie the reason for your loss of depth? Im curious. You had post-op care class while you were there, and you were instructed dilation technique, right?
If a problem is only partial vaginal depth loss, for example if you have normal functional width first 4 inches, this can be resolved with revision with smaller skin graft, at the end of vaginal canal. However if didnt managed to follow prescribed dilation regimen, and you lost depth and width of practically whole vaginal canal (and vaginal entrance), than there just isnt much that can be done with simple patching. And the only real option is full vaginoplasty. There isnt just sigmoid colon option (although it is most common approach), jejunum flap can also be used. I would suggest you look into that.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4771847/
You could contact Dr. Littleton from Brazil, he even posted about this once or twice on this forum.
I have the original email from Sophie somewhere where she advises that it is totally safe to stop dilating and it turns out it wasn't safe. I wouldn't make such claims if I couldn't back them up.
My input on this might be iffy but I don't have enough information to know if it's impossible at this stage or not. CIS women sometimes have defects where they don't have sufficient vaginal size. The procedure used with them is a number of dilators of different size to enlarge the vagina to it's proper size. The dilators are a bit different that the ones we use but if there is suffice room to get the smaller one in, it might be possible to recover what you have lost. It will take months to accomplish it because it's a slow process. Someone who is knowledgeable about CIS gynecology may be able to advise you on this. I ran across this a long time ago and really don't know all the details.