Can anyone please help ?
I am 6 months post op from CX mtf penile inversion, and have been in great pain since the operation. CX carried out an MRI at Xmas that showed "normal" & told me this week I have "hypersensitivity" to the vaginal nerve area - in summary I have been told that whilst nerve damage is usually the opposite of what I have (usually lowering the sensitivity after the op) in my case they have heightened sensitivity, and he said I am a very unlucky 1 in a 100 statistic. I have been virtually discharged from CX as he said he cant do anything as revision surgery could make it worse (something I do not accept) and now have go to under the pain unit at my local hospital and start Neurontin. I have googled post op grs hypersensitivity and neuropathic pain damage and am finding hardly any info linked to grs operation - can anyone tell me any materials on the web for help, and more importantly, does anyone know any transexuals that have experienced this, and come through ok long term.
Welcome to Susan's Place. I have heard about a case were the person stopped dilating because of pain but she didn't receive the same diagnosis that you did. I don't know if you have had an internal examination yet but if you haven't, you should. Granulation or improper healing could be the cause and if it is, it's easy to treat and can be done in the doctors office. Depending one what is causing the pain, a topical treatment might be a possibility. A gynecologist surgeon might be able to assist you with this.
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My prospective surgeon gave a number of 20% of patients will have hypersensitivity post op but only 1-2% will have it at 3 months out. I'm afraid she's correct, there's nothing you can expect to improve in a revision.
Hi Stephanie
I had extreme hypersensitivity for around 6 weeks. There is not much information out there, but there is no doubt that a pain control regime is vital, so if you're heading in this direction this is a good thing.
Anecdotal evidence suggests that some of us take up to a year for things to return to "normal" neurologically speaking, so treat your situation symptomatically and give it some more time.
Regards
J