Susan's Place Transgender Resources

Community Conversation => Transgender talk => Topic started by: alyms79 on May 31, 2010, 10:40:37 PM

Poll
Question: How many transgenders out there have been dianosed with fibromyalgia.
Option 1: yes votes: 3
Option 2: no votes: 2
Option 3: before transition votes: 2
Option 4: after transition votes: 0
Option 5: I believe be transitioning is the cause of my fibromyalgia votes: 0
Title: Transitioning and fibromyalgia
Post by: alyms79 on May 31, 2010, 10:40:37 PM
I transitioned in 2006 FtM.

Now in 2009 I was diagnosed with fibromyalgia.

I was wondering is there a connection with my transition?
Title: Re: Transitioning and fibromyalgia
Post by: LordKAT on June 01, 2010, 07:22:26 AM
doubt it.
Title: Re: Transitioning and fibromyalgia
Post by: cynthialee on June 01, 2010, 07:29:07 AM
Not likely. But who knows.
I deal with a rather debilitating fibromyalgia. I was diagnosed years before my transition so I doubt it is brought on by trasnition.
Fibro can be hell. hell enough to have me pretty much disabled for the last 3 years.

I would sugest you talk to your doc about Lyrica. I was unable to function until I went on the stuff.
Title: Re: Transitioning and fibromyalgia
Post by: Miniar on June 01, 2010, 10:14:36 AM
Lyrica did nothing to help me mind you, so don't expect miracles.

I have Fibro, had it for years. I can trace back my symptoms to teen years even.
I do believe, since Fibro is affected by stress, that being transgender can aggravate the symptoms or be a contributing factor.

I know that transitioning will be stressful for me, but I do believe that it will cause a reduction in the overall causes of stress (Getting rid of the parts that cause dysphoria for example) and as such should have a positive effect on my fibro, if it has any effect at all.

Title: Re: Transitioning and fibromyalgia
Post by: darklady on June 01, 2010, 10:21:46 AM
I have no fibromyalgia.
Title: Re: Transitioning and fibromyalgia
Post by: Sarah Louise on June 01, 2010, 10:31:16 AM
Lyrica has done little or nothing to help my diabetic neuropathy.  It works different for each person.

Sarah L.
Title: Re: Transitioning and fibromyalgia
Post by: cynthialee on June 01, 2010, 10:33:07 AM
Miniar,
I have to take a coctail of morphiene and lyrica to mellow out the pain now. On just Lyrica I still had a ton of breakthrough pain. The morphiene helps one to forget they hurt. lol

I definatly can tell it is agravated by stress as I flair every time I get stressed. Then the flair trigers depression .... vicious stuff.

There are a couple of other drugs they have just recently started ussing for fibro but the names of them escape me. (just had a convo with my doctor last week about it)



Post Merge: June 01, 2010, 10:35:52 AM

Quote from: Sarah Louise on June 01, 2010, 10:31:16 AM
Lyrica has done little or nothing to help my diabetic neuropathy.  It works different for each person.

Sarah L.
This is so true.
The comon dose they insist on is 3x higher than what mostly works for me. I seem to be hyper sensitive to it. I can't function at high dosages, I get way to foggy and feeling grogy. Lyrica is very much a ymmv drug.
Title: Re: Transitioning and fibromyalgia
Post by: darklady on June 01, 2010, 10:41:11 AM
Diabetic neuropathy and Fibromyalgia are so different diseases that why they are discussed in the same thread.  ???
Title: Re: Transitioning and fibromyalgia
Post by: Sarah Louise on June 01, 2010, 10:48:30 AM
They are not all that different Darklady.  Lryica is recommended for both conditions.

Sarah L.
Title: Re: Transitioning and fibromyalgia
Post by: darklady on June 01, 2010, 10:50:15 AM
OK. I am not a doctor I do not know about all  the treatments.