i can not believe this. my headaches and accompanying symptoms got so bad last night I actually went to a hospital. I have a Glioblastoma. UN friggen believable........... had nothing to do with being smashed in the head last year. I guess it has been growing for a while. Looks like its time to die....un friggen believable. i am only 37 and i thought that i had years ahead of me. They say they can treat it with Chemotherapy along with surgery, but that the outcome is not predic table. There is no wasy in hell im going to die in a hospital. So its on now.......screw it. I am going to life my life to the fullest, im going to do all the crazy stuff I have always wanted to do but didnt want to pay the consequesces for......and that starts now, im going to paw-tay my bootie off!!!!!!!!!!!!!!!! hells yeah
I am sorry to hear this Kitty. But Don't give up. Try all you can to beat it.
I have a friend who just finished a round of treatments for throat cancer, and is now cancer free.
Do what you have to Sis.
Mondo Hugs
Oh my god. My heart goes out to you sister. Maybe they can't predict the outcome of treatment, but the sooner you start the better your chances... Please please don't give up. You can get chemo and still live life to the fullest.
Kitty
I am so sorry to hear your news. That is an awful thing to have to face.
I know the medical statistics of survival make for depressing reading, but just to give you hope, our next door neighbour had surgery for a similar condition a while back.
Five years on, despite what the statistics say, he is still alive - so as everyone has said - please don't give up. If you get treated you MAY survive. If you don't the average survival time is less than 3 months from the date of diagnosis (today).
Bottom line - it is your life to live as you choose, but if it was me, I think I might roll those dice one last time.
What ever you do - please make it count.
Jenny x.
Stay in the fight and please don't give up.
Get the treatments that you need, that along with a positive attitude can go a long way.
As positive as you can be under the circumstances anyway.
A cousin of mine was diagnosed with cancer a few years ago, they didn't give him much of a chance.. but he beat it... largely because he was willing to fight and not give up.
You can to, but you have to willing to fight and not give in. My heart goes out to you and I wish I knew the right words to say, just know that you aren't alone and that we are all here for you.
What Jenny said.
And Hugz...lots of internets hugglez.
Don't give up ... Numerous studies have shown hope and faith that you will get better does impact you!!!!
There must be something in the water -- seriously --- my daughters roomate got diagnosed with a brain tumor over x-mas and is sitting out this semester to have chemo & surgery. Then, a gal that I went to school with is going in to have surgery after 3 months of chem for a brain tumor. Kinda creepy how this issue keep popping up in my life
Kitty.
I can say this from having been a registered nurse.
When they talk about success rates, they are always a bit pessimistic. Not to put you off, but because of the way they are compiled.
The Drs who do these treatments hate failure. It affects their reputations not to mention their egos. (Apologies for the cynicism).
Now, go back there and accept whatever treatment they offer. Remember, they will offer what is appropriate. Do what they say. Trust them.
You can fight it Kitty! :'(
As the others have said Kitty
Stay in the fight and don't give up... Get the treatments done... Your a survivor and you can beat this thing
Hugs
- Virginia
What grade? location? size?
Have they offered to get you into some counseling? How do I say this .....Please Be careful..
How very terrible, I have had to watch someone go down after giving up the fight, and I can't say it will be anything near the experience that you expect it will be. If you choose to live it up and flame out, more power to you, but getting help while you try to enjoy what remains is the better way to go.
In any case, [[here's another internet hug]]
that's horrible- i'm so sorry! but please don't give up! you very well may beat this with treatment, and you'll have a full life a head of you then. *hugs* :icon_hug:
When you are facing something like this, you have to KNOW you won't lose. You aren't just a number or random statistic. .. at least, you aren't if you have the ability to believe in yourself.
The mind is EXTREMELY powerful in affecting our health and life. There are many many studies which show the very real effect the mind has. Did you know elderly die of old age more often AFTER an important event that they are looking forward to? Their wanting to see a wedding of their grandchild, or celebrate a birthday, or whatever other event is able to keep them alive. Or, the link between older couples where one dies soon after the other is killed (having given up living because of the loss of their partner).
If you know you will beat it, you give yourself a MUCH better chance of doing it. This is true in every aspect of life. ..from those who reach the gold in Olympics to those who learn to walk when statistically it is "impossible". Everyone who has overcome hardship are those who have not given up.
Do you want to live? Do you have things you still want to do? Then don't give up. Go at it like no one has before. Watch what you eat, exercise, get lots of sleep, have the doctors do the things they think will help .. doing these things is unusual, doing these things makes you outside of the norm, doing these things makes you part of that group that gets past it and lives a long life.
If you roll over and just give up on life, you will die. Giving up is just feeding your condition and letting your body fail. ..instead of using the power of the mind to help you, you are using it to guarantee your failure.
So, don't give up.. .you have already been through a lot in life, this is just one more bump in the road you will overcome.
So sorry to hear that. :(
Don't give up. If you don't fight it at all, then that hospital death you dread may come about just the same, but with more pain and less hope.
The reason there are treatment statistics is because people do survive it.
Stay strong!
Quote from: Rabbit on March 21, 2011, 07:39:09 PM
The mind is EXTREMELY powerful in affecting our health and life. There are many many studies which show the very real effect the mind has. Did you know elderly die of old age more often AFTER an important event that they are looking forward to? Their wanting to see a wedding of their grandchild, or celebrate a birthday, or whatever other event is able to keep them alive. Or, the link between older couples where one dies soon after the other is killed (having given up living because of the loss of their partner).
this is true. in atlanta there was a boxer who had a hole in his heart at one point, and the doctors told him he could never box again. he was a devout christian and believed god would heal him, and the hole in his heart closed up without medical intervention. he continued to box. so don't give up! the mind is very powerful, and you are not just another statistic. you CAN survive.
Rabbit put it very eloquently. Don't give up, you can beat this!
If you take the treatment the doctors offer you have a much better chance of making it than if you don't. I urge you to do so. A long fulfilling life could be what awaits you on the other side, but you'll never know if you don't try.
Well, ive been thinking about it all day. And though because I am an impulsive person and almost got crazy. I didnt, and havent. I am feeling ok right now. You know, you guys make it real difficult to be careless and self destructive. I will go back to the hospital and listen to what they have to say. ZThough i will tell you that i am soooooooooooo scared! I DONT THINK I HAVE EVER BEEN THIS SCARED IN MY Entire life. I wish more than anything i had someone that loved me to hold me and soothe me...... but i will get through this,,,,,,i hope
Just remember Kitty, you have brothers and sisters here who love you. And while we may not be able to be with you, we do think about you, in this time when you need us most.
Stay strong sister.
You are not alone Kitty... We are all with you... When you feel afraid, close your eyes a moment and visualize us there holding your hand with our arms around you
If someone is able to go and physically be there with Kitty... Please do so
My heart breaks for you.
I feel tears coming along as I type, because I can only imagine what you are going through.
Don't give up..... fight with all you have and you just might have a happy ending.
I am here... always if you need someone to talk to, or a virtual shoulder to lean on.
You are my sister, so few people know what we go through on a day to day basis.. but you do and for that I love you.
Don't hesitate to reach out, I promise I will always be around to help out anyway I can.
Nothing but the best.....
<hugs>
So sorry to hear this :(
Don't give up and try to stay positive, best medicine there is.
~Sara
Quote from: superkitty036 on March 21, 2011, 09:57:13 PM
Well, ive been thinking about it all day. And though because I am an impulsive person and almost got crazy. I didnt, and havent. I am feeling ok right now. You know, you guys make it real difficult to be careless and self destructive. I will go back to the hospital and listen to what they have to say. ZThough i will tell you that i am soooooooooooo scared! I DONT THINK I HAVE EVER BEEN THIS SCARED IN MY Entire life. I wish more than anything i had someone that loved me to hold me and soothe me...... but i will get through this,,,,,,i hope
Dear Kitty,
We are here for you all the time, there are people on at all hours of the night and day. There is no reason to be alone my friend. Take care you can beat this go for it. With treatment you have a chance, without, it is unlikely to just disappear. It is very frightening I know, but give it a go. Oncology staff are wonderful and know the horror you are going through.
All of my Love and Hugs
Cindy
I am so sorry to hear that kitty. My thoughts and prayers are with you. Stay strong.
Quote from: Virginia Marie on March 21, 2011, 10:38:44 PM
If someone is able to go and physically be there with Kitty... Please do so
if i were in LA, i'd totally be there.
so.... imagine me being there doing my lame attempt to make you laugh- i'ma gay nerd; it's easy to laugh at me :)
and please laugh if you can. you can get better! just stay strong - your mind is SO powerful! :)
Kitty, I always have found your posts so much fun, and you are always full of life! Don't let that beautiful spark you have run out of it's fuel! Fight this girl! We are all here for you!
MUCH MUCH MUCH LOVE
Girl sorry to hear about Tumor
be very possitive I had my self deal with a very bad cancer and im ok and well now
so was my sister and nephew and my mother with cancer a same time but they are now recover too
my sister go brain tumor was remove then chimo and she had recover
the surgery and chimo is horrible but we pass that . try to be very possitive we are very strong
and we can hundle many batles so dont give up
all the best God bless you
Wish I was there to give you a big hug too Kitty. We all want to read more posts from you, so hang in there and take whatever help they can provide. As Cindy said Oncology staff are vary caring people and will do all they can to help.
Lots of love and hugs, Sandra.
Jez, they arent pussy footing around with this. I will be admittted to the hospital tonight and they want to do a biopsy in the morning. im still scared, but,,,, well i just remembered that I am scheduled for my 16th hormone shot in the morning at 6:30am.....hhmmmm looks like the biopsy is going to have to wait another day.....i REFUSE to miss that shot, cuz if i miss that appt, I have to wait one whole month. You know i have thoughgt about it and I will fight this tumor. tHOUGH MY INITIAL REACTION IS ONE OF COWARDICE, fear, and panic,,,, I have a LOT of heart, im a fighter and I do believe i can not lose, I really do. PLus im WAY WAY WAY too stubborn to give up or concede in any way. I really am. That said, i have wondered if the hormones created this issue. See what happens, is the brfain is completely developed shortly after birth, and its cells go into a sleep like state where the cells stop dividing. When the dividing process is started back up a tumor is born. The speed at which the cells divide, is......i dont remember the words he used to explain, but in my own words, the faster the cells divide the worser the tumor.............however, if they tell me that its tyhe hormones, i Wwill NOT, stop. NO WAY JOSE!!!i may change type and delivery, but there is NO way i am going to watch myself become a man again. I have decided, that if it is the hormones i will continue my HRT AND fight the tumor with everything i have.....and if i lose the tumor battle, then at least i die a woman...... I dont want that to happen, i dont, but if i do, then i can live with that.....wrong words, if i lose that battle then im ok with it. At least I can go with peace of mind.....not that im all that cuz i know im not and am not saying that my transition is successful, cuz its not.....but there are enough changes now that i feel good about it . KNow what i mean? Yeah, my boobs could be bigger, my waist smaller, my face not so manly but I choose to look at it like i have WAY bigger boobs nows than when i started, sexier more feminine shaped hippies (hips) and my face has changed shape,,,,all of this starting dinosaur old (36) I am more feminine than a lot of women so im cool you know!!!!!
OK. IM good now.....im still scared, but my head is up, shoulders back and i am defiant as heck in the face of a tumor...please, a tumor cant kill me,,, i have no one here in LA, parents are dead, single child i am. Still, watch and check this out....i will fight, and fight to win. It has been 18 hours since i sxmoked the last cigarette i will ever smoke....in terms of food, well cant worry about that till i get paid on the 30th, but i have always eaten healthy......still feal scared,,,,,what if i stand no chance? what if this is all in vain? ok ok, still very very very scared
We are here for you.
If you need someone to talk too send me or any number of your friends here a PM.
You can live through this and I am confidant of your tenacity.
hugz and luv,
Cynthia
Kitty. Missing one dose isn't going to make a lot of difference. But missing your hospital appointment could.
Do the sensible thing and go to the hospital.
Spacial
i will make a huge difference in my head. Im serious, its critical that I get that shot.
OK love, but remember to tell the hospital. Explain why. Suggest you do it now
Not taking an estrogen shot won't turn you back into a man I understand why you feel such fear but you need to goto that apointment you will die very quickly if you don't start treatment right away. The quicker you act the better your prognosis.
:( I'm so sorry your put in this situation. *offers hugs*
Kitty, I agree with Spacial. Tell the hospital that you will be there after your shot. Or see if they will give you one. But the biopsy is more important than the shot. If you will be out in a day, just postpone the shot for a day.
it doesnt work that way, if i miss that shdot I have to wait until next month. but it doesnt matter cuz I just talked to my dr and rescheduled the biopsy for thursday
Thursday sounds fine for the biopsy. I really doubt one day one way or the other is going to make that much difference in the size of the tumor.
owwww kitty you've made me really sad, my very best wishes to you.
Good luck Kitty. You are certainly in my thoughts and prayers. I can understand the sentiment that you would rather go out a woman than a man as I feel the same. Positive thoughts and I hope you keep us updated on your progress.
And a fighter too, sock it to it :D
Quote from: Gabby on March 22, 2011, 05:13:56 PM
And a fighter too, suck it to it :D
hhmmmm, sounds interesting, though i am not sure exactly what you mean
Quote from: superkitty036 on March 22, 2011, 05:32:37 PM
hhmmmm, sounds interesting, though i am not sure exactly what you mean
knocking it out, what fighters do :)
I too get worried about missing a hormone dose...no matter how much I plan there is almost always some "unknown" factor which can mess me up. I think you are very brave..congrats on the no smoking thing.. keep up the hard work!
Kitty, I'm so very, very sorry to hear about your desease.
I do agree with all the others, go to the hospital and let's do somethimg about it.
Off course the outcome is unpredictable, with glioblastoma there are sad stories but also stories with succes and you could be one of them.
Let's hear first what the biopsy has to tell.
But one way or another you're in though times now and you need all the support you can get.
You have won one battle, so there is a chance you can win another.
Grab that chance honey.
I wish you all the luck you can have with the outcome of the biopsy.
many hugs and love
annette
Kitty I hope you recover from this setback.
Oh No, Kitty, although i dont know you sweetie i just want to say i am so sorry to hear about this. My thoughts are with you and please fight this. Hugs
I'm so sorry, Kitty. Fight it and be victorious! You're in my thoughts.
Once again Kitty; remember that you're in my thoughts and prayers. I'll be thinking about you Thursday. YOU ARE NOT ALONE!!!!!
Hugs
Beth
I'm wondering how the biopsy went
Kitty, I've only just discovered then post, but I hope that everything goes wonderfully! You're in my thoughts and positive they are!! <3 :) You will survive!! :D I know! I can tell you've got a ton of life in you! :D HUGS!!