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Apppointment booked

Started by Emily LeGoth, July 27, 2026, 07:57:08 AM

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Tills

With respect @Lori Dee you've only confirmed what I said. It might be best practice, as I said, fine. But to describe is as "dangerous" (@Devlyn) not to do so smacks of the kind of gatekeeping and bullying that drags back our community. Using language like that is unhelpful.

There's always a balance between safety and, forward momentum. I generally err on the side of safety, hence why I don't advocate DIY treating and argue that blood tests are important along the way to monitor levels. Best practice in the UK means you blood test 6-weeks after starting hormone therapy, and then again at 3 months. Once levels settle testing can be every 6-months or, as now in my case, every 12 months.

I repeat what I said: in a normal healthy adult there is no absolute requirement to test bloods prior to commencing HRT. It's not done for cis females and there's no absolute need to do it for us either. And, with the greatest of respect Lori Dee your suggestion that it's needed because they might suddenly discover the patient to be intersex is a little bit absurd. We should not base decisions for the majority on extremely rare instances that might be present in a tiny minority who somehow had no idea all their life that they were intersex. That's like putting motor oil in the engine of your 4-cylinder Nissan Micra only to discover that it's a V8 Ford Mustang. As is the comment that if you only start testing after you start, and then find levels to be too high you won't know the cause. That's not particularly medically sound.

@Stottie Girl you said that "liver function, kidney function and Potassium levels etc these DO need to be known before starting the meds". No they don't. In a normal healthy adult there's no absolute reason to start running those tests prior to starting. There are loads of medications we can be prescribed as adults that may affect liver and kidney function. We're surely not about to suggest that unless full blood tests are taken prior to these they are acting "dangerously"? Or is that the way this world is now headed? Control.

But you highlighted what I meant: there are 2 red flags why in your case testing would be advisable: 1. your heart condition (I hope you can get this checked) 2. you are DIY-ing,

There's far too much control and coercion out there, and our community suffers from this more than most. And far too many people sticking their oar in: witness for example the way non-experts in the UK stopped UK puberty-blockers in adolescents which had already been approved by medics in the know, and then they even stopped the compromise trials designed to test their safety! Witness too the way my hormones were blocked by another layer of bureaucrats (https://www.susans.org/index.php?topic=253232). Now that was dangerous. So understand, that as someone who has been on the receiving end of recent totally unnecessary gatekeeping and roadblocking, I am particularly twitchy on this topic. Stick another layer of testing in front of a healthy adult patient and you're roadblocking. We really don't need another bunch of bullies standing in our path.

Test levels as you go along, of course. The most important test for a normal healthy adult is not one before you start. It's the one at 6 weeks. Test them before you even start, thus putting another roadblock in the way at the hands of so-called professionals? Nope. It's unnecessary in a normal healthy adult and just exacerbates delays in treatment, significantly contributing to dysphoria. The baseline can be taken 6-weeks after starting which is the approach I was given by the NHS.

Presumably few of you on here are suggesting that when my official NHS Gender Identity Clinic first prescribed me hormones without prior blood tests they were acting "dangerously" ... ?

xx
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Karen_A

Quote from: Tills on Yesterday at 11:42:43 PM@Stottie Girl you said that "liver function, kidney function and Potassium levels etc these DO need to be known before starting the meds". No they don't.

If they are going to be prescibed Spironolactone, there is a reason to test for potassium as it is a potassium sparing diuretic IIRC. Too high potassium levels can be dangerous.

Lori Dee

@Tills

I am sorry that you feel that gathering health data is a form of gatekeeping. Checking the oil on any engine before adding more is not gatekeeping.

In military service, I had to have a physical exam every year. The first one was before I was sworn into service. I never thought of that as gatekeeping.

Every time I see a new dentist, the first thing they do is take X-rays. I never thought of that as gatekeeping.

Knowing the current situation before you change something is always a good idea. Especially when it comes to hormones or anything else affecting the various glands of the endocrine system. Since this is a twitchy subject for you, I will stop here.
My Life is Based on a True Story <-- The Story of Lori
The Story of Lori, Chapter 2
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Tills

A lot of ex-military on here and in positions of leadership. Hmmm. That has several effects. Military people are used to drill and disciplines, rule and order, things being done by the book, and very regular check ups. 'You're a soldier now' etc. etc. And with that comes a tendency to want to push others around. Just saying. But occasionally it's noticeable.

Our community are gentle souls and don't need overbearing control, which is also a symptom of our age.

I do also think that Americans are a bit more risk-averse on healthcare than many others, partly because of a highly litigious culture. And partly because if you can make people pay for something (tests, meds they don't really need etc.) then you make more bucks, and can exercise greater control. Again, just saying. It's a tendency so don't take umbrage.

There's a balance here of course. But as I stated: in a normal healthy adult there is no absolute requirement to conduct blood tests before commencing HRT. Doesn't happen for cis females in the UK. Doesn't need to happen for us females (or males) either. Didn't happen for me under the official lead of the National Health Service Gender Clinic and I'm very fine with that. They did right.

The essence of this is that if you're a normal healthy adult with good HR, weight, and blood pressure ... just let the gender specialists get on with treatment. Then test after 6 weeks.

Relax. It's ok!

xx

p.s. and Lori, of course you don't need to run blood tests before every time you prescribe medication. All meds change the body, that's what they are supposed to do! Goodness me that way lies a dystopian nightmare. Unless you run one of the labs, in which case you'll be driving to work in a Ferrari F80 let alone that Ford Mustang.
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Tills

#24
Since analogies and metaphors seem to be all the rage, here's one.

When I visited Israel with an inter-faith group we were in Yad Vashem holocaust museum and our guide asked us if we thought Jews were special people. 'No' I replied. 'Why?' said the guide. 'Because that's precisely where the problems start. If you treat a group as special then they can be singled out, made to feel different, bullied, persecuted.' She nodded at the group and said, 'That is exactly right. Once you make out we are special you start down a road that can end here.'

Transgender people are not special and we don't need to be singled out for special treatment. Every single medicine ever made changes the body, that's what they are designed to do, yet they don't routinely run blood tests before prescribing every medication.

Don't make out we're some special case. We're not. We're normal. We are just another kind of human being. Don't treat us any differently.

xx
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Stottie Girl

@Tills Hi Tills, Chill baby! I wasn't trying to upset the apple cart there and I did not use the word "Dangerous". What I am saying is it's probably "best practice" to do them. I did not know I would react the way I did having Ectopic beats brought on by first Cyproterone then Spiro. Maybe there is something that would have meant these were not prescribed in the first place? I don't know and my GP's seem disinterested in finding out so I will need to wait until I see a private endo to be sure but I strongly suspect dangeously high levels of Pottassium was the issue with Spiro, I'm unsure what the Cypro cause was. A doctor might have picked up additional risk factors with baseline bloods. Like I say not "Dangerous" but probably "best practice" It should maybe be optional but GP's are so risk averse it's no wonder they send you for them. I suppose, how do you truly know you are healthy unless they check thoroughly?
A wise man once said don't judge a man until you've walked a mile in his shoes, that way when you judge him you're a mile away and you have his shoes!

Never trust a man who, when left alone in a room with a tea cozy, doesn't try it on - Billy Connolley
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Tills

Oh I'm chilled about this, which is kind of my point Sarah ( @Stottie Girl ). There shouldn't be a major drama made about beginning HRT and we shouldn't be treated any different from any other medication. All medicines ever made change the body, which is what they are designed for. We're not somehow special, or any more special than any other patient receiving meds.

I hope you can get your heart situation checked. That's the kind of thing I'd be on to if it were me.

I'd also want to emphasise that in a normal healthy adult before starting HRT far more important than running blood tests are measuring weight, BMI, heart rate, and blood pressure. Those are important indicators of risk factors. Which is why they are all routinely performed for cis females.

I kind-of think I've put across in a fairly reasonable way my views on this. So I'll step out now. I just hope @Emily LeGoth that you can get underway with this soon. Very best wishes for you.

xx
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