Author Topic: Prolaryn Gel Injection  (Read 806 times)

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Offline ainsley

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Prolaryn Gel Injection
« on: March 26, 2017, 03:20:29 pm »
So, I had my VFS with Dr. Haben in Rochester last May.  I had a gap in the anterior portion of my vocal folds afterward that presented me with hoarseness, breathiness, and a lack of power.  This gap was not necessarily a direct surgery effect, but because I smoked for 17 years (quit in 1999), I am 49, and I had hoarseness before the surgery, the surgery just made this more pronounced since the webbing that took away my lower Hz also took away much of the folds that were touching.  That left me with just one small area that came together to create sound.  Here is the gap:



After the prolaryn inject last fri here is the picture:



No breathiness or hoarseness, and much more power.  My UHC insurance covered the injections.  The injection is a temporary solution and will need to be redone in several months.  There is a longer lasting one (prolaryn Plus, I believe) and it lasts a year or two.  My Dr. used the temp gel to see how mine reacted and gauge what to use in the long term injection that we will do next time, later this year.

I thought I would share this in case others have no idea about this solution, or if you have questions.  I am happy to answer.
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Offline kwala

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Re: Prolaryn Gel Injection
« Reply #1 on: March 26, 2017, 07:29:21 pm »
Thanks for sharing. I've recently had a prolaryn gel injection as well. In my case, scarring is much more of a problem than incomplete closure, so while I did gain power/volume my hoarseness still remains unchanged. Glad this this worked for you.

Offline ainsley

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Re: Prolaryn Gel Injection
« Reply #2 on: March 28, 2017, 09:19:58 am »
Thanks, Kwala.  I am sorry it was not the solution for you. 

I was not aware of it as an option.  Maybe I missed some posts of it here, and I did search for prolaryn with no results, so I was kind of excited when Dr. Haben told me there was hope.  I had my local ENT doctor do the injection, so I didn't have to travel to Rochester for it.   
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Offline GeekGirl

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Re: Prolaryn Gel Injection
« Reply #3 on: July 19, 2017, 11:34:01 am »
Thanks, Kwala.  I am sorry it was not the solution for you. 

I was not aware of it as an option.  Maybe I missed some posts of it here, and I did search for prolaryn with no results, so I was kind of excited when Dr. Haben told me there was hope.  I had my local ENT doctor do the injection, so I didn't have to travel to Rochester for it.

Hi ainsley,

Did you get the injection through the throat/neck or in through the mouth? I've read about both possibilities.

Offline kwala

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Re: Prolaryn Gel Injection
« Reply #4 on: July 19, 2017, 01:04:25 pm »
Hi ainsley,

Did you get the injection through the throat/neck or in through the mouth? I've read about both possibilities.

I can't answer for Ainsley but when I had it done they actually put me under and injected it through the mouth. It only took 15-20 minutes.

Offline ainsley

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Re: Prolaryn Gel Injection
« Reply #5 on: July 19, 2017, 01:11:56 pm »
Hi ainsley,

Did you get the injection through the throat/neck or in through the mouth? I've read about both possibilities.

They went through my mouth in the operating room under anesthesia.  It costs more that way, because of the hospital charges, but is easier for the Dr and the patient.  My insurance covered my injections.
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Offline GeekGirl

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Re: Prolaryn Gel Injection
« Reply #6 on: July 19, 2017, 05:03:39 pm »
Hmmm.... I would try this. I think I'll get an ENT appointment once I see my PCP next month.

Offline ainsley

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Re: Prolaryn Gel Injection
« Reply #7 on: July 20, 2017, 06:36:16 am »
Hmmm.... I would try this. I think I'll get an ENT appointment once I see my PCP next month.

Good luck and let me know how it goes.  I am interested.
I go in for followup injections in November of this year.  I will post info afterward. :)
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Offline GeekGirl

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Re: Prolaryn Gel Injection
« Reply #8 on: September 11, 2017, 11:06:56 pm »
Hello my peeps!

So, as promised, I'd report back on my PCP appointment, which I had today. My PCP immediately recommended Dr. Natasha Mirza at Penn who specializes in "voice gender reassignment surgery." Ohhhh... kay.... now I'm wondering who this doctor is and what she knows about the subject. Does anyone have any experience with her? On her expertise list...

    Difficulty Swallowing (Dysphagia)
    Dry Mouth (Xerostomia)
    Endoscopic Laser Surgery
    Endoscopic Zenker's Diverticulum Repair
    Esophageal Dilation
    Esophageal Strictures
    Esophagitis
    Gastroesophageal Reflux Disease (GERD)
    Granulomatosis with Polyangiitis
    Hyperparathyroidism
    Hyperthyroidism (Overactive Thyroid)
    Independent Medical Exam (IME)
    Laryngeal Stenosis
    Laryngectomy (Laryngeal Surgery)
    Laryngoscopy
    Larynx Cancer
    Lesbian, Gay, Bisexual and Transgender Health (LGBT)
    Sarcoidosis
    Second Opinion
    Sjogren’s Syndrome
    Therapeutic Endoscopy
    Vocal Cord Laser Surgery
    Vocal Cord Surgery
    Zenker's Diverticulum

and on a second expertise list:

Description of Clinical Expertise
Voice Disorders, including professional voice users
Spasmodic Dysphonia
Laryngeal diseases
Breathing dystonias
laryngeal diseases
Papillomatosis
Swallowing disorders
Office and Endoscopy suite procedures
Laser procedures
Botox injections
Taste and olfaction disorders

Aha, botox injections! I'm wondering now if this is the doctor here who might do Prolaryn as well. I guess only an appt will enable me to find out. It might be worth the $50 fee.

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