For your reference we submitted the following letter to American Psychiatric Association in July together with the communal statement.
Dear American Psychiatric Association,
Thank you for accepting comments regarding the revision of DSM.
Communal statement against psychopathologizing transgender people
In elaboration of our previous comments we are happy to announce that the communal statement on removal of transgender people from the psychiatric nosologies and alternatives for providing treatment, which can be found at
http://www.grevsen.dk/TS/SPGV.pdfhave currently obtained support from 33 associations world wide including organizations such as the Danish Association of Sexologists, the International Medical Cooperation Committee (Copenhagen department) and their nation wide education network SexEkspressen.
The statement concerns the proposed categories Gender Dysporia as well as the proposed category Transvestic Disorder.
Other initiatives against psychiatric classifications of transgender people
LGBT Denmark note several other international initiatives have been launched aiming to end psychopathologizing transgender people.
Survey
In a world wide survey on the opinions about Gender Identity Disorders carried out last year 55.8% of the replying organizations wanted the diagnoses to be removed, which is 2.7 times the number of organizations who wanted to keep it in the DSM.
Even considering only the replies from organizations who believed depathologization would affect access to physical care they were split roughly equal in the question.
[Vance Jr., Stanley R. , Cohen-Kettenis, Peggy T. , Drescher, Jack , Meyer-Bahlburg, Heino F. L. ,
Pfäfflin, Friedemann and Zucker, Kenneth J.(2010) 'Opinions About the DSM Gender Identity Disorder Diagnosis: Results from an International Survey Administered to Organizations Concerned with the Welfare of Transgender People', International Journal of ->-bleeped-<-, 12: 1, 1 - 14]
STP2012 initiative
The worldwide initiative STP2012 has currently obtained support from more than 270 organizations in their fight for depathologization of transgender and intersex people. The main demand of the initiative is:
"The removal of GID from the international diagnosis manuals (their next versions DSM-V and ICD-11)."
[STP2012 website
http://www.stp2012.info/old/en/objectives]
WPATH statement
The World Professional Association for Transgender Health issued a statement on May, 26 2010 wherein they note:
"The WPATH Board of Directors strongly urges the de-psychopathologisation of gender variance worldwide. The expression of gender characteristics, including identities, that are not stereotypically associated with one's assigned sex at birth is a common and culturally-diverse human phenomenon which should not be judged as inherently pathological or negative."
[
http://www.wpath.org/announcements_detail.cfm?pk_announcement=17]
British Psychological Society
The British Psychological Society expressed criticism about the Gender Dysphoria diagnoses as well as the Transvestic Disorder diagnosis in their comments on the DSM revision including the following objections:
Gender Dysphoria:
"We believe that classifying these problems as 'illnesses' misses the relational context of problems and the undeniable social causation of many such problems.
...
Of particular concern are the subjective and socially normative aspects of sexual behaviour. We are very concerned at the inclusion of children and adolescents in
this area. There is controversy in this particular area – the concept of a 'diagnosis' of a 'psychiatric disorder' disputed.
Labelling people who need help as 'ill' may make supportive and therapeutic
responses more difficult."
Transvestic Disorder:
"We believe that classifying these problems as 'illnesses' misses the relational context of problems and the undeniable social causation of many such problems.
...
of particular concern are the subjectiveand socially normative aspects of sexual behaviour. It is a matter of record that homosexuality used to be considered a symptom of illness. The Society would not be able to support considering sexual differences as symptoms of illness."
[
http://apps.bps.org.uk/_publicationfiles/consultation-responses/DSM-5%202011%20-%20BPS%20response.pdf]
German Human Rights Group
The German Human Rights Group Menschenrecht und Transsexualität in Germany declares:
"The United Nations should, in particular, demand that the APA, the American Psychiatric Association, delete the term "gender identity disorder" from the DSM without replacement and discontinue their practice of human rights violations against transsexual people."
[
http://atme-ev.de/index.php?option=com_rubberdoc&view=doc&id=209&format=raw&Itemid=53 p. 36]
ILGA-Europe campaign
The International Lesbian & Gay Alliance have joined the STP2012 initiative and recommended other organizations to do the same. They have also launched their own campaign, making posters with the title "Transgender people are not mentally ill" available worldwide.
The poster can be seen here:
http://www.ilga-europe.org/home/publications/reports_and_other_materials/two_posters_on_the_rights_of_trans_people_december_2009/transgender_people_are_not_mentally_illIn the Trans Rights Declaration adopted at Malta they declare among other demands:
"We observe with great concern that trans identities are still pathologized and considered a mental health condition. Given its strong implications on the living of trans people in Europe we therefore demand the removal of gender identity disorder from the International Classification of Diseases (ICD) and the Diagnostic and Statistical Manual of Mental Disorders (DSM)."
[
http://ilga.org/ilga/en/article/m8rJEPY1eN]
TGEU statement
Transgender Europe have joined the STP2012 campaign and issued a call for action asking other organizations to do the same. Among other things they note:
"We join the main demand of the campaign:
The removal of Gender Identity Disorder from the international diagnosis manuals."
[
http://tgeu.org/node/73]
IFGE-petition
The International Foundation for Gender Education collected 10.000 signatures in a petition to remove Transvestic Disorder from the DSM. The site has been taken down now, but the contact information of the organization is still present.
[
http://dsm.ifge.org/petition/]
Kelli Busey-petition
Kelli Busey have currently collected 1.918 signatures on her petition with this goal:
"American Psychiatric Association, please remove "302.85 Gender Identity Disorder in Adolescents or Adults" from the DSM-5"
[
http://www.change.org/petitions/remove-transgender-from-the-dsm-5]
Calling together to END TRANS AND INTERSEX PATHOLOGIZATION
Lynda Sheridan et al launched a Facebook groups against pathologizing transgender people, which currently hosts 1076 members.
[
http://www.facebook.com/group.php?gid=120317420674]
Professionals Concerned With Gender Diagnoses in The DSM
Although the group Professionals Concerned With Gender Diagnoses in The DSM have chosen to advocate for reform rather than removal of the diagnoses they did express in their statement that many of them would prefer to see the diagnoses removed:
"Our group of scholars struggled with the section of Gender Identity Disorder of Adulthood and new recommendations for Gender Incongruence (in adults). Many of us were concerned about the inclusion of this diagnosis in any form and would prefer to have it removed."
[
http://gidconcern.wordpress.com/statement-on-gender-incongruence-in-adults-and-adolescents-in-the-dsm-5/]
IDAHOT campaign
The International Day Against Homophobia & Transphobia is currently running a campaign under the name Cures that Kill, in which they state:
"Homosexuality and transsexualism are naturally occurring expressions of human diversity and are protected by the principles of liberty, equality and human dignity enshrined in the Universal Declaration of Human Rights and other international instruments.
...
Those who support the campaign "CURES THAT KILL" oppose the so called "therapies" which aim to "repair," or "correct," or "cure" homosexuality and ->-bleeped-<-."
[
http://www.dayagainsthomophobia.org/Sign-the-Petition,513]
Science behind the revisions
From a scientific perspective the circumstances surrounding the removal and later reintroduction of the impair and distress-criterion appears questionable.
In the first proposed revision the work group quoted three studies, which found that many transgender people do not suffer impair and/or distress and on that basis they omitted the B criterion.
"Although there are studies showing that adolescents and adults with the DSM-IV diagnosis of GID function poorly, this type of impairment is by no means a universal finding. In some studies, for example, adolescents or adults with GID were found to generally function psychologically in the non-clinical range (Cohen-Kettenis & Pfäfflin, 2009; Meyer-Bahlburg, 2009a). Moreover, increased psychiatric problems in transsexuals appear to be preceded by increased experiences of stigma (Nuttbrock et al., 2009). Postulating "inherent distress" in case one desires to be rid of body parts that do not fit one's identity is, in the absence of data, also questionable (Meyer-Bahlburg, 2009a)."
It is therefore very interesting how the work group later reintroduced the B criterion in the second proposed revision without quoting any new research!
The rationale seems to imply that a major reason for the reintroduction was that the proposed criteria did no longer fit the general criteria for a mental disorder:
"as the definition of "mental disorder" in the Introduction of DSM-IV-TR (American Psychiatric Association, 2000, p. xxxi), in addition to "present distress...or disability," includes "a significantly increased risk of suffering death, pain, disability, or an important loss of freedom," we added a correspondingly modified B criterion."
LGBT Denmark note that WPATH asked for a reintroduction of the B criterion, but their rationale for doing so was to narrow down the number of diagnosable people to those who might benefit from a diagnosis.
[
http://www.wpath.org/documents/WPATH%20Reaction%20to%20the%20proposed%20DSM%20-%20Final.pdf]
The current reformulation of the criterion does in no way narrow the diagnosis and is as such clinically irrelevant. It therefore seems plausible that the reason for the reintroduction was in fact to satisfy the general criteria for mental disorders, thus the reason to classify transgender people as mentally disordered is not that they are disordered per definition!
Treatment access and human rights
We understand from the rationale that the work group are themselves aware of the concerns regarding classifying transgender people as mentally ill:
"We also debated and discussed the merit of placing this condition in a special category apart from (formerly Axis-I) psychiatric diagnoses to reflect its unusual status as a mental condition treated with cross-sex hormones, gender reassignment surgery, and social and legal transition to the desired gender (particularly with regard to adolescents and adults). We chose not to make any decision between its categorization as a psychiatric or a medical condition and wished to avoid jeopardizing either insurance coverage or treatment access (Drescher, 2010)."
LGBT Denmark agree access to transition care is very important when dealing with transgender individuals.
In the issue paper Human Rights and Gender Identity, the European Commissioner for Human Rights proclaimed however:
"The first aspect in discussing health care for transgender persons is the existence of
international and national medical classifications defining transsexuality as a mental
disorder... Such classifications may become an obstacle to the full enjoyment of human rights by transgender people, especially when they are applied in a way to restrict the legal capacity or choice for medical treatment... Alternative classifications should be explored in close consultation with transgender persons and their organisations. From a human rights and health care perspective no mental disorder needs to be diagnosed in order to give access to treatment for a condition in need of medical care."
[
https://wcd.coe.int/ViewDoc.jsp?id=1476365]
Psychiatrist have often treated people who, due to their illness, were not able to act in their own interest and they may as such have a predisposition for acting paternalistic towards their clients. We understand that this attitude may also be present in the way psychiatrists respond to wishes from transgender people including the wish for a removal from the psychiatric nosology. Some psychiatrists may feel that transgender people are themselves not able to understand the implications of the removal from the psychiatric nosology.
Transgender people are however not cognitively impaired in any way by their ->-bleeped-<- so there is no reason to believe they are unable to understand the consequences of their wish and psychiatrist should not consider themselves in a position where they can neglect the wish of transgender people regarding for instance retaining or removing the psychiatric diagnoses concerning transgender people.
In light of the massively expressed wish for removal of Transvestic Disorder as well as the categories formerly known as Gender Identity Disorder within the transgender community as well as the fact that the phenomena don't satisfy the criteria for being mental disorders according to the research quoted by the work group we believe those categories should be removed from the Diagnostic and Statistical Manual of Mental Disorders.
Instead, in accordance with the recommendations from the Commissioner on Human Rights, alternatives should be sought in collaboration with the transgender organizations.
Existing alternatives
One such alternative, which is readily available, is to use the already existing somatic codes within ICD-10 for providing care. To clarify here are a few examples:
R49.0 Dysphonia
E34.9 Endocrine disorder, unspecified
Q97 Other sex chromosome abnormalities, female phenotype, not elsewhere classified
L68.0 Hirsutism
N64.9 Disorder of breast, unspecified
Q50.0 Congenital absence of ovary
Q52.0 Congenital absence of vagina
Q98 Other sex chromosome abnormalities, male phenotype, not elsewhere classified
N62 Hypertrophy of breast (Gynaecomastia)
Q55.0 Absence and aplasia of testis
Q55.5 Congenital absence and aplasia of penis
When the medical community considers a transgender man to be a man nothing should prevent the diagnosis of for instance gynaecomastia with the aim of top surgery and the diagnosis of absent testis and penis with the aim of bottom surgery.
In fact rejecting to treat a man for those conditions, because he is transgender might well be considered an act of discrimination.
Much clinical research suggests a biological etiology underlying ->-bleeped-<-. When one considers a transgender man to be a man one might consider him to be a man, who was so unfortunate to be born with XX-chromosomes instead of XY-chromosomes. According to this framework a transgender man with a male gender presentation i.e. a male phenotype, could be considered to have a chromosomal variation whereby he ended up with XX-chromosomes instead of the XY-chromosomes he was supposed to.
With a little creativity numerous possibilities arise for treatment within the somatic classifications, and we can attest that some practitioners actually use them already.
LGBT Denmark understands that the insurance coverage for transition care has grown since WPATH and AMA issued their statements in support of transgender care. We feel that the American Psychiatric Association could secure care even with a transition to using somatic codes by issuing a similar statement, in which it declares that there is solid documentation supporting the benefit and medical indication for transition care, but that transition care should no longer be understood as relating to a mental disorder, but rather as relating to a somatic problem, and that treatment should therefore be coded within the somatic classification.
LGBT Denmark also want to point out that there is a lapse between the revision of DSM in 2013 and the revision of ICD in 2015, which means that the ICD-10 classification Transsexualism will still exist for two years after the DSM revision allowing a smooth transition for the insurance policies.
Invitation to dialogue
By 2013 it will be 40 years since homosexuality was removed from the DSM. We believe it is time that the APA listens to the huge majority of organizations and drops transgender related diagnoses from the DSM as well.
LGBT Denmark would be happy to join a dialogue regarding alternative classifications for transition care and the implementation hereof.