Hi Kim,
Could I suggest you start at the top, and work your way down the heirarchy of Endocrinology in the UK. I really feel you've been hung out to dry for way too long and deserve some major action.
I may not have the right people, but I feel the following is a good starting point to get yourself heard.
At least start out by annoying them and you should be able to get someone who understands.
Remember the squeakiest door gets the most oil.
Professor Stephen Bloom. Is the Head of Division for Diabetes, Endocrinology and Metabolism, Chair of the Academic Section of Investigative Medicine at Imperial College London
Professor Graham Williams Professor of Endocrinology at Imperial College London
Dr Emma Hatfield is a Consultant in Endocrinology and Diabetes, and General Internal Medicine, at Imperial College NHS Trust one of her specialties is reproductive endocrinology
Dr Jeannie Todd is the Senior Endocrine Physician at Hammersmith Hospital. Her specialties are interested in all aspects of Endocrinology and Diabetes including thyroid, adrenal, PCOS, hirsuitism, prolactin and pituitary diseases, parathyroid disorders, calcium and bone metabolism and neuroendocrine tumours.
ST MARY'S St Mary's Hospital Praed Street Paddington London W2 1NY PHONE: 020 331 23793
HAMMERSMITH Ham House 3rd Floor Hammersmith Hospital DuCane Road London W12 OHS PHONE: 020 331 34823
CHARING CROSS 9th Floor, East Wing Fulham Palace Road London W6 8RF PHONE: 020 331 11065
Can I also suggest you visit the Endocrinology Society and ask for an interview, not for membership but for specific advice on your particular hormonal condition.
http://www.endocrinology.org/about/index.html Let us know how things go. And don't take No as an answer. Just keep saying, "Sorry. I don't understand" until you get someone who is going to do something about it. Hope this helps
Be safe, well and happy
Lotsa huggs
Catherine