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Tiny Monster in my Head

Started by Liminal Stranger, March 27, 2013, 03:26:37 AM

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Liminal Stranger

Today I learned that benign most definitely doesn't have to mean harmless when it comes to tumors. I mean, you'd think a tiny 5 millimeter blob of fatty tissue that was likely there from birth wouldn't really be doing much, right? Apparently not.

For the first time since it was found in an MRI back more than three years ago, my neurologist blatantly came out and said that to doctors, that would usually indicate a malformation (no kidding, doc), that the area of the brain it's in (near the pituitary stalk) is chock full of hormonal messengers, and that it has very likely been screwing up my growth with whatever it's secreting, and is also a probable physical cause for all the crazy problems with my motor skills.

Now, good Doctor, why not tell us that a mite bit earlier so we could at least try something to counteract whatever it's telling my brain? I get that I'll probably never have the dexterity of an average human being because it's literally a substitution of the proper cells for fatty tissue, but maybe something like growth hormone would have worked, it was worth a shot (no pun intended). It still might be, considering that against all odds I actually did grow recently. But the fact still stands that he's been saying it's harmless this whole time, and all of a sudden my mother asked because she read about brain tumors near the pituitary gland secreting things, and he just went ahead and said all of that.

Weird.




"And if you feel that you can't go on, in the light you will find the road"
- In the Light, Led Zeppelin
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Contravene

I can understand your frustration. When I was younger I had to put up with a lot of incompetent psychiatrists who kept cycling me through all types of medications and experimenting with the doses. It ended up adversely affected my physical health and my mental health permanently. Now I make it a point to research all of my options myself and get second opinions whenever I need any medications or medical attention.

Even though your tumor is still causing you problems, it's at least good that it isn't cancerous. HGH still may work for you too. A family member of mine was taking it a few years ago and actually grew a little from it. It's very rare for that to happen but it's certainly possible.
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Blaine

You really have all kinds of rotten luck, don't you? I agree that you should get a second opinion on this, especially if this is the same neurologist you've been seeing since it was first noticed. If they're just now seeing it as a potential problem... I hope you have better luck now, at least for a little while!
I did my waiting! Twelve years of it! In [my head!] Azkaban!
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Liminal Stranger

Thanks, guys. Contravene, that sounds awful...no one should have to be put through that. I hope those doctors never do the same to anyone else. As for Brain Buddy, it took an incidental finding of it to get someone to take a look- and then we discovered that imaging from my other main neurologist had shown it since my very first MRI at the tender age of nine, but no one had bothered to even tell us! If only we had tried HGH back then, it was right before I stopped growing. Now I don't know how much height I'd gain from it.




"And if you feel that you can't go on, in the light you will find the road"
- In the Light, Led Zeppelin
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