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UK-NHS Patients

Started by calicarly, April 13, 2014, 04:20:31 AM

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calicarly

Calling all UK- NHS patients, how long from referral from your GP till you finally got GRS?, for those of you still on the pathway, how long from referral from your GP to your first GIC appointment, and maybe even timescales to milestones like getting your GRC, etc?  Thanks for sharing with us your experiences! :)
Low dose HRT-2004
Full time and full dose HRT-2009
BA/Rhinoplasty-May 2013
FFS-Aug 2014
Body contouring-Jan 2015
GRS- Feb 2016
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big kim

#1
Saw my GP in August 1989,got referred to Caring Cross October 89, first appointment May 1991 got surgery December 1994.I hope times have improved!
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Beverly

Initial GP talk/referral to Charging Cross July 2012.

First GIC appt April 2013.

First surgical opinion April 2014, next one due in a few months so I expect surgery by Xmas or shortly thereafter.
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calicarly

Interesting timescales, seems the referral part of the process has lengthened but times after first visitar GIC to surgery have decreased... Any more people? Please share, thank you ladies.
Low dose HRT-2004
Full time and full dose HRT-2009
BA/Rhinoplasty-May 2013
FFS-Aug 2014
Body contouring-Jan 2015
GRS- Feb 2016
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calicarly

Low dose HRT-2004
Full time and full dose HRT-2009
BA/Rhinoplasty-May 2013
FFS-Aug 2014
Body contouring-Jan 2015
GRS- Feb 2016
  •  

kelly_aus

You might want to check how many surgeons are currently doing SRS for the NHS.
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Beverly

Quote from: kelly_aus on May 07, 2014, 06:47:17 AM
You might want to check how many surgeons are currently doing SRS for the NHS.
Well... since you ask. The same two who have been doing it for 10 years-ish are still doing it. Mr Thomas at Brighton/Charing, Mr Bellringer now at Parkside formerly at Charing. There is at least one additional surgeon (a lady this time, name unknown) who will be up and running at Charing shortly. There is a rumoured second "trainee" for Charing as well. In addition there is Mr Fenton in Wakefield who does not do a great deal of SRS but does contract to the local GICs in Sheffield or possibly Leeds.

So in summary - we still have the two we have had for a while with one definite extra and possibly another and Mr Fenton dipping in and out. Call it four on average and remember that the word "trainee" applies to someone who is already a skilled surgeon in their own right but is actually cross-training to a speciality.
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kelly_aus

I hadn't heard Bellringer was doing it at his new location.. And I thought Thomas only did 1 day a week?
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Beverly

Quote from: kelly_aus on May 07, 2014, 07:16:36 AM
I hadn't heard Bellringer was doing it at his new location.. And I thought Thomas only did 1 day a week?

Mr Thomas does one day per week at Charing and does his other operations at the Nuffield in Brighton.

Mr Bellinringer's website says " ... patients booked into clinics to see Mr. Bellringer, are being contacted to ask whether they wish to stay with Charing Cross, with inevitable delay before treatment, or transfer to Parkside." http://www.bellringers.pwp.blueyonder.co.uk/styled-10/index.html

I sometimes think that people outside the UK think our medical system is a complete basketcase, but those outside only hear the gripes, moans and whines some of which are caused by unreasonable demands not being met. I would far, far rather have surgery with a UK surgeon than one overseas. At least I know they are accredited and that a grievance procedure exists in case of surgical screw-ups
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HoneyStrums

15 mounths total

June last year Doctor visit
One mounth later psych evaluation, an refferal if apropriate
One mounth later I received a letter informing me the maximum number of patients had been met that year, and that I would definately be seen in the next finacial year.
Received a letter in may just gone, I have my first apoinment with the gender identity service in august.

We get six mounthst therapy amoungst other things. (Grooming is our own respocibility but salons and services are recomended)

We need to have been on hrt for atleast a year and to be active in to roll also in this time before srs. Vulantry work, and atending schools colages ect cetera count. Its so we can provide proof of social transition.

Time scales vary from patient to patient depending on personal needs :) and adjustments.

OT - currently the nhs receive funding for 160 patients a year.
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kelly_aus

I never said anything about the NHS being a basketcase.. But it appears I had incomplete info, which is why I asked the question the way I did.

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Beverly

Quote from: kelly_aus on May 07, 2014, 07:48:14 AM
I never said anything about the NHS being a basketcase.. But it appears I had incomplete info, which is why I asked the question the way I did.

It was a general comment, not directed at you. Sorry for any confusion.
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calicarly

Quote from: ctxpyg on May 07, 2014, 07:28:55 AM
Mr Thomas does one day per week at Charing and does his other operations at the Nuffield in Brighton.

Mr Bellinringer's website says " ... patients booked into clinics to see Mr. Bellringer, are being contacted to ask whether they wish to stay with Charing Cross, with inevitable delay before treatment, or transfer to Parkside." http://www.bellringers.pwp.blueyonder.co.uk/styled-10/index.html

I sometimes think that people outside the UK think our medical system is a complete basketcase, but those outside only hear the gripes, moans and whines some of which are caused by unreasonable demands not being met. I would far, far rather have surgery with a UK surgeon than one overseas. At least I know they are accredited and that a grievance procedure exists in case of surgical screw-ups

Yes, just a few days ago I clued myself up about the issue, apparently Bellringer has gone to Parkside as cpxty says, will still be doing NHS funded ops but only at the private hospital, Mr Thomas who was doing 1 day a week at charing cross and the rest of his work at Nuffield (he also takes NHS funded patients at Nuffield , particularly from Leeds GIC) is bumping up his days at Charing Cross to 2 a week while he is training 2 new surgeons, one (I believe her last name is Rajid) will be taking over Bellringer's permanent spot at Charing Cross and the other (name unknown, also in training) will be kept at Charing Cross until the backlog of people who were on the waiting list and not able or willing to go to Parkside is back to standard, after that he will be going private.

This big issue has only impacted Charing Cross patients, patients at other GIC's are being referred for surgery as normal, Leeds and Sheffield mainly refer to Mr. Thomas at Nuffield, Charing Cross should be back to business as usual and tackling the backlog from September....

I am not willing to go to Thailand for my GRS, why? It doesn't feel right to me and I want any need for revision to be able to be taken care of easily at home by the NHS. I am originally from the US, care in England by the NHS is not bad at all and can't believe when I hear people complain about it, back in California I ended up with a 2500 dollar bill just to visit the ER over some really bad cramps, people are scared of being picked up by ambulances cause even the ambulance trip is gonna put u in debt... And obamacare seems to be failing although it has helped many with pre existing conditions get help. So believe me , there's nothing wrong with the NHS, a few of the buildings are dated and all that, but who really cares, anyway I digress,

Quote from: ButterflyVickster on May 07, 2014, 07:45:46 AM
15 mounths total

June last year Doctor visit
One mounth later psych evaluation, an refferal if apropriate
One mounth later I received a letter informing me the maximum number of patients had been met that year, and that I would definately be seen in the next finacial year.
Received a letter in may just gone, I have my first apoinment with the gender identity service in august.

We get six mounthst therapy amoungst other things. (Grooming is our own respocibility but salons and services are recomended)

We need to have been on hrt for atleast a year and to be active in to roll also in this time before srs. Vulantry work, and atending schools colages ect cetera count. Its so we can provide proof of social transition.

Time scales vary from patient to patient depending on personal needs :) and adjustments.

OT - currently the nhs receive funding for 160 patients a year.

Hi Butterflyvickster!!

This post of yours is super interesting to me, because I was referred to the GIC maybe some 3 months after you, I'm eagerly waiting for my first appointment, which GIC where you preferred to btw? I'm gonna be going to Leeds GIC, when I got referred I was told about the long waiting list and about the 160 patients a year, I'm still waiting for news.  I don't mind being told it's gonna be December so long I finally get a date...


Carly x
Low dose HRT-2004
Full time and full dose HRT-2009
BA/Rhinoplasty-May 2013
FFS-Aug 2014
Body contouring-Jan 2015
GRS- Feb 2016
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Keroppi

I think the new surgeons being "up and running shortly" may be a bit optimistic. From what was put to me earlier this week, PT has already been training someone at Brighton anyway, and is now also training this new female surgeon at CX.

Having said that, CX Admissions are now actually giving out dates for surgery again, so things are moving again if slowly.
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HoneyStrums

Quote from: calicarly on May 08, 2014, 12:56:42 AM


Hi Butterflyvickster!!

This post of yours is super interesting to me, because I was referred to the GIC maybe some 3 months after you, I'm eagerly waiting for my first appointment, which GIC where you preferred to btw? I'm gonna be going to Leeds GIC, when I got referred I was told about the long waiting list and about the 160 patients a year, I'm still waiting for news.  I don't mind being told it's gonna be December so long I finally get a date...


Carly x


ikr that waiting omg. its even worse when it gets to a time you can start exspecting. and ill be leeds too fyi :p
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calicarly

Quote from: Keroppi on May 09, 2014, 06:32:27 PM
I think the new surgeons being "up and running shortly" may be a bit optimistic. From what was put to me earlier this week, PT has already been training someone at Brighton anyway, and is now also training this new female surgeon at CX.

Having said that, CX Admissions are now actually giving out dates for surgery again, so things are moving again if slowly.

I don't think September sounds like up and running shortly, it's still 4 months away!! Lol But it's good that your sources say they are starting to give out dates again, Charing Cross patients waiting for surgery referral can breathe again... :)
Low dose HRT-2004
Full time and full dose HRT-2009
BA/Rhinoplasty-May 2013
FFS-Aug 2014
Body contouring-Jan 2015
GRS- Feb 2016
  •  

El

First GP appointment in 2008, got no-where, was misinformed as was my GP.

Second attempt at GP at the end of 2009. Got referred to local gender specialist.

April 2010, first appointment with local specialists, wrote me a charing cross referral straight away.

At this point in time my local specialist has send 5 separate referrals to ChX. Repeatedly told they had no record of me being referred, 2 formal complaints made by my local specialists about the extreme delays. 9 months ago they finally sent me a consent form and appointment request form which i sent back to them. Got a letter from them last week saying I didn't send a consent form. Luckily a local endo has been prescribing me e-patches for the last year. So yea, I've been waiting over 4 years for my first ChX appointment. Not best pleased (understatement of the year)
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HoneyStrums

Quote from: El on May 14, 2014, 07:35:15 AM
First GP appointment in 2008, got no-where, was misinformed as was my GP.

Second attempt at GP at the end of 2009. Got referred to local gender specialist.

April 2010, first appointment with local specialists, wrote me a charing cross referral straight away.

At this point in time my local specialist has send 5 separate referrals to ChX. Repeatedly told they had no record of me being referred, 2 formal complaints made by my local specialists about the extreme delays. 9 months ago they finally sent me a consent form and appointment request form which i sent back to them. Got a letter from them last week saying I didn't send a consent form. Luckily a local endo has been prescribing me e-patches for the last year. So yea, I've been waiting over 4 years for my first ChX appointment. Not best pleased (understatement of the year)

I Was scarred of this hapening to me.
I Think seemed impatient all the times I was like I Need more details no letters yet. So I contacred the NHS GIS information center via email myself :).
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calicarly

Quote from: El on May 14, 2014, 07:35:15 AM
First GP appointment in 2008, got no-where, was misinformed as was my GP.

Second attempt at GP at the end of 2009. Got referred to local gender specialist.

April 2010, first appointment with local specialists, wrote me a charing cross referral straight away.

At this point in time my local specialist has send 5 separate referrals to ChX. Repeatedly told they had no record of me being referred, 2 formal complaints made by my local specialists about the extreme delays. 9 months ago they finally sent me a consent form and appointment request form which i sent back to them. Got a letter from them last week saying I didn't send a consent form. Luckily a local endo has been prescribing me e-patches for the last year. So yea, I've been waiting over 4 years for my first ChX appointment. Not best pleased (understatement of the year)

Omg that's right down scary!
Low dose HRT-2004
Full time and full dose HRT-2009
BA/Rhinoplasty-May 2013
FFS-Aug 2014
Body contouring-Jan 2015
GRS- Feb 2016
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Julieb1

I have friends on the nhs system and I have seen the problems they have/ had my advise is mange your transtion dont let the system mange your transtion don't let things drop or get delayed ask pester but be polite.

Xxx

Postop 19th march 2014
Dr sanguan
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