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UK ?

Started by SaiyaDarkfire, November 15, 2014, 11:24:44 AM

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Kimberley Beauregard

I'm a non-transitioner based in the East Midlands who plans on moving to Nottingham early next year.
- Kim
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Alexis2107

Quote from: SaiyaDarkfire on November 15, 2014, 11:24:44 AM
hey all is there anyone from the uk here ? ^.^

i know things are different in the usa to the uk as we have thge NHS and usa have to pay for everything as far as i know that is i could be wrong . ;D

Hey sweetie :)  I am from the USA, there's plenty of those from UK here.  In the US, insurance pays for transgender treatment such as HRT since the ever so popular "obamacare" was enacted.   I have a couple of trans women best friends from UK that tell me you have to prove it to be medically necessary for NHS to pay for it, but I could be wrong.  Good luck, and take care :)
~ Lexi ~

HRT 11/5/14
Full Time woman 3/12/15
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Squircle

I live in Manchester, and I am on the books at Leeds GIC. I was referred in June 2013 and had my first appointment in June of this year. They definitely won't prescribe hormones on your first, or even second or third visit. At Leeds, the first appointment is basically a getting to know you session and risk assessment. They'll ask you a load of questions about substance abuse, self harm etc. At this point you are just in the assessment phase, and not actually on the 'care pathway'. If you are still living as male at this point, you're assessment period will last longer. I had been full time for seven months beforehand, so my assessment period was two appointments; the first initial one and the 'decision' one where the 'lead professional' and a psychiatrist will both quiz you and make a decision on whether to treat you or not. I've met people in the waiting room whose assessment period had lasted two years, but these people had gone to their first appointments having not even come out to anyone. Basically they are looking for proof that you are serious about the entire thing.

At the end of your assessment period, if you are accepted onto the pathway, you will then have another appointment where they work out a care plan. If you want hormones at this point they will make an appointment for you with the endocronologist. I have been on hormone privately since February but I have my appointment with the NHS hormone clinic in December (there was a three month wait). On the same day I'll be getting my first referral for surgery. You need two opinions and the guy who used to do the second has retired so I'm looking at a six month wait for that one. They have told me to expect surgery in December next year. From what I have heard I think that might be optimistic, but I don't think the waiting time is three years.

Basically if you are committed to it and have already done things like name change and living full time in work or education you'll get through it all much faster.

Hope this helps. Did you know about Transgender Day of Remembrance on Sunday 23rd, 4.30pm in Sackville Gardens?
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Leila

Quote from: Squircle on November 15, 2014, 04:19:52 PM
-snip-
They have told me to expect surgery in December next year. From what I have heard I think that might be optimistic, but I don't think the waiting time is three years.

-snip-

Sorry to say it will equate to three years if you are referred for surgery at Charing Cross Hospital. There's no money in the NHS pot for funding and Imperial College NHS Trust are dragging their heels with the number of operations per month with one surgeon and another in training coupled with a waiting list of over 300+ and counting.

See here for further analysis http://uktrans.info/medical/48-other-medical-resources/252-imperial-college-healthcare-nhs-trust-charing-cross-grs-waiting-times


Nobody's perfect ...   I'll never try,
But I promise I'm worth it, if you just open up your eyes,
I don't need a second chance, I need a friend,
Someone who's gonna stand by me right there till the end,
If you want the best of my heart, you've just gotta see the good in me.
  •  

Squircle

Quote from: Leila on November 15, 2014, 04:33:28 PM
Sorry to say it will equate to three years if you are referred for surgery at Charing Cross Hospital. There's no money in the NHS pot for funding and Imperial College NHS Trust are dragging their heels with the number of operations per month with one surgeon and another in training coupled with a waiting list of over 300+ and counting.

See here for further analysis http://uktrans.info/medical/48-other-medical-resources/252-imperial-college-healthcare-nhs-trust-charing-cross-grs-waiting-times

You may be right, I certainly hope not, I'm just going on what I've been told at Leeds. I won't be going to Charing Cross for my GRS, but the alternative is still Phil Thomas in Brighton. I'll ask about waiting times next time I'm at Leeds in December.
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Leila

Quote from: Squircle on November 15, 2014, 04:50:15 PM
You may be right, I certainly hope not, I'm just going on what I've been told at Leeds. I won't be going to Charing Cross for my GRS, but the alternative is still Phil Thomas in Brighton. I'll ask about waiting times next time I'm at Leeds in December.

I know of someone else at Leeds GIC and she was recently bumped up the list to go to Brighton to see Dr Thomas. In her case it was a cancellation and the secretary at Leeds GIC rang around a number of possible candidates on the waiting list. The reason for the cancellation was that the previous patient hadn't met the pre-surgery requirements, so had to bail. That was at the end of September and she is now booked in for surgery in January. If you have been given the cleared funds to go Brighton, then the wait should hopefully be short, and certainly not as long as the poor souls referred to Charing Cross.

Sadly at a lot of the other GICs, they will only refer to Charing Cross. Apparently in Wales everyone is referred to Charing Cross.
Nobody's perfect ...   I'll never try,
But I promise I'm worth it, if you just open up your eyes,
I don't need a second chance, I need a friend,
Someone who's gonna stand by me right there till the end,
If you want the best of my heart, you've just gotta see the good in me.
  •  

Leila

Quote from: Leila on November 15, 2014, 01:12:36 PM
I have heard that Leeds had closed their books for the rest of this year, how true I do not know. At least two people who have been referred there have been six months plus with no sign of a first appointment.

If you are able to get a re-referral from your GP, Northampton GIC are currently running at 12 weeks wait time for an appointment.

It's looking really really bad for getting an appointment at Leeds GIC

Quote
Q1 2014/2015 - 218.9 days average wait to first appointment offered in quarter

Q2 2014/2015 - 353.2 days average wait to first appointment offered in quarter

The Service has been funded by NHS England to see approximately 160 new clients during 2014 / 15 financial year, all appointments for this year have been allocated therefore any new referrals received will be added to the NHS England waiting list. New assessment appointments will be allocated again next financial year once further funding is agreed.

http://uktrans.info/medical/78-information-from-specific-nhs-gender-identity-clinics/leeds-gender-identity-clinic/308-leeds-gender-identity-service-waiting-time-to-first-appointment-offered
Nobody's perfect ...   I'll never try,
But I promise I'm worth it, if you just open up your eyes,
I don't need a second chance, I need a friend,
Someone who's gonna stand by me right there till the end,
If you want the best of my heart, you've just gotta see the good in me.
  •  

Squircle

Yeah I've been given the choice of three: Oliver Fenton (can find no info on him), Phil Thomas at Brighton or Phil Thomas/Tina Rashid at Charing X. I spoke to a really nice lady at the hospital in Brighton and she said they do take referrals from Leeds so I'm pretty certain I want to go there. She said once funds have been cleared, the waiting list for them is 3-6 months depending on what conditions you need to meet (smoking, weight loss, whether you are circumsized etc). It's annoying that I have to wait so long for a second referral (unless they appoint someone in the meantime).
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SaiyaDarkfire

Quote from: Squircle on November 15, 2014, 04:19:52 PM
I live in Manchester, and I am on the books at Leeds GIC. I was referred in June 2013 and had my first appointment in June of this year. They definitely won't prescribe hormones on your first, or even second or third visit. At Leeds, the first appointment is basically a getting to know you session and risk assessment. They'll ask you a load of questions about substance abuse, self harm etc. At this point you are just in the assessment phase, and not actually on the 'care pathway'. If you are still living as male at this point, you're assessment period will last longer. I had been full time for seven months beforehand, so my assessment period was two appointments; the first initial one and the 'decision' one where the 'lead professional' and a psychiatrist will both quiz you and make a decision on whether to treat you or not. I've met people in the waiting room whose assessment period had lasted two years, but these people had gone to their first appointments having not even come out to anyone. Basically they are looking for proof that you are serious about the entire thing.

At the end of your assessment period, if you are accepted onto the pathway, you will then have another appointment where they work out a care plan. If you want hormones at this point they will make an appointment for you with the endocronologist. I have been on hormone privately since February but I have my appointment with the NHS hormone clinic in December (there was a three month wait). On the same day I'll be getting my first referral for surgery. You need two opinions and the guy who used to do the second has retired so I'm looking at a six month wait for that one. They have told me to expect surgery in December next year. From what I have heard I think that might be optimistic, but I don't think the waiting time is three years.

Basically if you are committed to it and have already done things like name change and living full time in work or education you'll get through it all much faster.

Hope this helps. Did you know about Transgender Day of Remembrance on Sunday 23rd, 4.30pm in Sackville Gardens?

i am female in and out of work
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Squircle

Quote from: SaiyaDarkfire on November 15, 2014, 06:53:07 PM
i am female in and out of work

In that case then, get a letter from your boss or someone in hr or something saying that you've been working as a female with a date of when this started. And get the name change done and change your name with something like a utility company or insurance or something. Or bank account. You can then take all of this as proof and they'll be much more likely to get you into the pathway quickly. They'll also back date the two years RLE to when you first went full time.

I know a girl who managed to get referral to both Leeds abd Nottingham. The latter gave her an appointment fairly quickly but she didn't hear anything from Leeds, so she's going to Nottingham now. I have no idea what it's like there but might be worth looking into?
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Kaylee

I got a referral from my GP for Leeds GIC back int July last year and finally have my 1st appointment booked in for 10th December...be prepared for a long wait there!
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big kim

In October 1989 I was referred to Charing Cross,I got my appointment in May 1991.Things did progress quickly after my first visit though
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crowcrow223

I'm with Daventry mental health centre and the wait was significantly shorter than the one for Leeds clinic. Do you girls know if she could potentially change her GIC? Just to make things quicker
If you're not on HRT, you can ask your gp for it, according to the guidelines you're entitled to it without having to visit GIC
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Squircle

Quote from: Kaylee on November 16, 2014, 04:25:09 AM
I got a referral from my GP for Leeds GIC back int July last year and finally have my 1st appointment booked in for 10th December...be prepared for a long wait there!

We will just miss each other... I have my next appointment on the ninth!
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Crissie22

I'm also in the north of the uk it's been about a month since I went to my gp I haven't heard anything yet I'm thinking of going back to see what's happening . It's interesting what's being said about the go possibly giving hormones I'll be asking about that

Chrissie Rose xx
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Beverly

Quote from: crowcrow223 on November 16, 2014, 05:32:43 AM
If you're not on HRT, you can ask your gp for it, according to the guidelines you're entitled to it without having to visit GIC

You can indeed ask your GP but there are few who agree to prescribe on their own. It is not unknown but it is rare.

As for the GUIDELINES repeat GUIDELINES - they ENTITLE you to nothing. They are not rules or laws.  The GICs have their own rules.

For Leeds they have appointments every 4 weeks and usually offer hormones on visit 3 or 4. For Charing they offer hormones on or after the second visit which is udually 4to 6 months after the first.

I know of no clinics offering hormones on the first visit.
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Cat

As regards GP prescriptions...

It can happen.  It should happen -- assuming the patient meets the criteria -- but unfortunately it isn't happening often enough.  I had to push for it, which I did by writing numerous letters highlighting the relevant passages in the Scottish protocol, the Royal College of Psychiatrists' guidelines and the WPATH Standards of Care.  Even then, the initial result of the practice meeting was a refusal.  They're cautious, and I can understand why up to a point, but once it's clear that the patient is stable and settled in their new gender role, has no comorbid/contraindicating conditions and has full capacity to give informed consent, it's just frustrating that most are still so reluctant to offer treatment.  It's driving people to self med... or worse in some cases.  I can understand the need to be certain of the diagnosis, but in clear-cut cases where all criteria have been met, I think general practice needs to catch up.

Ultimately, my SO wrote a letter to the practice manager outlining the debilitating effects dysphoria and lack of treatment were having on me, and this, along with our convincing my GP to contact the GIC and talk to an expert, made the difference.  The GIC doctor advised my GP that treatment ought to be an option in my case (assuming that the psych reports were in order, which they were), and I got my prescription almost five weeks ago. 

So it's worth a shot, but it's definitely pot luck and will depend a lot on your specific circumstances and how your GP and practice feel about it all.  If you think you have a case, though, it's worth pushing for it.
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Zoe Louise Taylor

I got reffered to porter brook clinic in sheffield in february,  and have my firat appointment on the 15th of December :)

If im being honest, I didnt mind the wait too much, as it gave me a chance to get things sorted out (coming out to freinds, electrolysis,  voice therapy, and gaining new freinds and confidence)
My advice would be to use the time wisely, and dont let the wait get you down :)

I do have a quick question, will a gic in the uk prescribe hormones if im not currently out at work? I live the rest of my time as female,  but dont currently work as female, as Im afraid of losing my job :/ ive been frantically applying for new jobs, but I really feel id be bullied if I were to come out at my current place :/

Zoe
X
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Squircle

Quote from: Zoe Louise Taylor on November 17, 2014, 12:03:55 PM
I got reffered to porter brook clinic in sheffield in february,  and have my firat appointment on the 15th of December :)

If im being honest, I didnt mind the wait too much, as it gave me a chance to get things sorted out (coming out to freinds, electrolysis,  voice therapy, and gaining new freinds and confidence)
My advice would be to use the time wisely, and dont let the wait get you down :)

I do have a quick question, will a gic in the uk prescribe hormones if im not currently out at work? I live the rest of my time as female,  but dont currently work as female, as Im afraid of losing my job :/ ive been frantically applying for new jobs, but I really feel id be bullied if I were to come out at my current place :/

Zoe
X

Based on what they've said to me at Leeds, they do put a pretty big emphasis on living your 'preferred role' in full time education or work. I know that definitely applies to the criteria for RLE, so there's a chance they may say no, but I don't know for sure, I think every gic is slightly different in how they interpret guidelines.
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speckyhailey

I'm based in the East Midlands, and I'm going to see the CAMHS in Leicester hopefully soonish (they've accepted my case and are giving me an appointment when one is available). Hopefully I can get referred to Tavistock and Portman soonish as well which has a four month waiting list according to Mermaids. They can prescribe oestrogen there I think and can definitely prescribe blockers and I believe I am old enough now to choose to have HRT anyway so I should hopefully be getting somewhere by summer time next year.

I've heard about clinics refusing to give treatment based on RLE and living in a preferred role however I also recall reading somewhere about this being classed as something like 'non-clinical delay' as the guidelines state it is not needed and can be challenged.
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