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Speeding up NHS transition

Started by tesseract49, February 13, 2015, 07:56:12 AM

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Leila

Quote from: tesseract49 on February 17, 2015, 01:02:31 PM
I am still interested in this 'bridging endocrine treatment' thing. How easy would it be for me to get that? Could I threaten my GP with suicide or would that be bad.

Getting the bridging endocrine treatment granted is pot luck and wholly dependent on the decision of your GP. Each GP operates as a self employed medic offering primary care services to the NHS. They are not legally bound to follow guidelines to the letter.

Threatening behaviour is likely to get you nowhere fast. If you get no luck with your current GP, then you may want to ask another GP in the practice that you attend or failing that move to another practice in your local area.
Nobody's perfect ...   I'll never try,
But I promise I'm worth it, if you just open up your eyes,
I don't need a second chance, I need a friend,
Someone who's gonna stand by me right there till the end,
If you want the best of my heart, you've just gotta see the good in me.
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Cat

I can't say how easy it would be for you, because it depends entirely on your own case and circumstances and the attitude of your GP and surgery toward your situation.  I know it's possible in the right circumstances because I'm on bridging treatment right now, but it wasn't entirely straightforward.  What I think helped is that I was very firm and consistent in pressing for it but without being pushy or demanding, and also that I demonstrated (in their eyes) a strong certainty and commitment to transition from the outset (they are very wary of moving forward with HRT when they think the patient may be uncertain or has other confounding issues to deal with). 

Early last summer, I wrote to my GP saying that I had gone full time and would be contacting her soon to request a letter (for my passport change, etc.) and to ask for bridging treatment.  I wrote to her again 2-3 weeks later, once I had changed my name legally, and made those requests.  At that time I also drafted a lengthy statement of informed consent detailing that I was of sound mind (I'm sure that's debatable, but let's skip over that :p), understood the risks and limitations, and consented to starting treatment.  At that point I hadn't had my psych evaluation, so she said to come back after it and we would discuss treatment.  The psychiatrist said I was as clear cut a case as she had seen and that HRT was the next logical step for me.  I returned to my GP to discover that the practice managers had held a meeting where they'd decided that they weren't comfortable with it and wanted to leave it to the GIC.  At that point I was in a horrible place mentally.  My SO wrote to them explaining how badly my dysphoria was affecting my daily life and asking them to reconsider, given that my GIC appointment was still 10 months away.  After another practice meeting, my GP contacted one of the specialists at the GIC who said that they ought to consider treating me.  I had to attend a second psych appointment a few weeks later (that's normal but it should've been scheduled with the first one, only the admin staff hadn't booked it), after which my GP finally agreed to prescribe me HRT.

The whole process took about four months.  Given that I'm unlikely to get my GIC appointment before June 2015 and probably won't get a follow-up appointment where they might have prescribed hormones until September or so, it's been a lifesaver for me.  I've now been on HRT since October. 


One thing I would say is don't threaten them.  IMO, that is likely both to antagonise them unnecessarily and flag you as having mental health issues that need to be worked through before they're willing to offer endocrine treatment.  Do be prepared to be knocked back, and be ready to keep trying.  In the right circumstances, you may be able to convince them and turn an initial no into a yes.  Otherwise, as Leila says, you could try another doctor, or another surgery.  That was going to be my next avenue if I hadn't been successful with my current GP. 

And good luck. :)  I know how you must be feeling right now and it sucks, but hang in there.  It will all be worth it when you get the treatment you need.
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calicarly

Quote from: tesseract49 on February 17, 2015, 01:02:31 PM
I am still interested in this 'bridging endocrine treatment' thing. How easy would it be for me to get that? Could I threaten my GP with suicide or would that be bad.

I think the ladies are giving you some really useful info based on what  information about your situation you're giving out hun, the issue is: are you Full Time? That's a big point . Why?, I dont think I've heard of any GP giving bridging therapy to someone who isn't fulltime, as that shows you already have a certain level of commitment to your transition,. But like squircle said, even then it's no guarantee and your GP might flat out refuse. You could always try to access private care in either one of this cases only until the time comes you're seen by the GIC (I don't know how cheap or expensive it is, but if you're this set on it and can do it, it's a choice) Cat also just gave you really golden info on how she got around it.
Low dose HRT-2004
Full time and full dose HRT-2009
BA/Rhinoplasty-May 2013
FFS-Aug 2014
Body contouring-Jan 2015
GRS- Feb 2016
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tesseract49

I am full-time, kind of. I am full-time except for when I am with my family. I have changed most of my accounts and am in the process of changing my name legally. I am applying for jobs as my new identity and I have completely socially transitioned.
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Jayne

If you go through the NHS guidelines with a fine toothed comb you should see that they should no longer be allowed to insist on RLE as a requirement to begin hrt as many people need hrt to help in passing. This is due to cases of people facing violence if they don't pass, the NHS would then be liable for placing you in danger. I fought CHX for 2yrs due to not being able to use make up due to my eczema flaring because of make up, one month after these new rules I was started on hrt.
If possible you should request any clinic that isn't charing cross, trust me.
CHX failed to tell me that the nurse I was due to see last Feb had quit, 6 months later I still hadn't been given a new appointment!!

I requested a transfer to the laurels in Exeter, I was half way there last Thurs when they phoned to say my doctor had phoned in sick, she phoned me yesterday and my new appointment is this Thursday!!
Even if you have to travel the day before and pay for overnight accommodation it's worth the effort as the laurels can take months off your waiting times, this could cut years off your total treatment time.

CHX have made my transition take over 3 yrs whilst a ftm I know finished his transition in just over one year with the laurels, this is why I switched GIC
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SorchaC

Quote from: Jayne on February 17, 2015, 06:43:24 PM
If you go through the NHS guidelines with a fine toothed comb you should see that they should no longer be allowed to insist on RLE as a requirement to begin hrt as many people need hrt to help in passing. This is due to cases of people facing violence if they don't pass, the NHS would then be liable for placing you in danger. I fought CHX for 2yrs due to not being able to use make up due to my eczema flaring because of make up, one month after these new rules I was started on hrt.
If possible you should request any clinic that isn't charing cross, trust me.
CHX failed to tell me that the nurse I was due to see last Feb had quit, 6 months later I still hadn't been given a new appointment!!

I requested a transfer to the laurels in Exeter, I was half way there last Thurs when they phoned to say my doctor had phoned in sick, she phoned me yesterday and my new appointment is this Thursday!!
Even if you have to travel the day before and pay for overnight accommodation it's worth the effort as the laurels can take months off your waiting times, this could cut years off your total treatment time.

CHX have made my transition take over 3 yrs whilst a ftm I know finished his transition in just over one year with the laurels, this is why I switched GIC

I believe Jayne is right, I have a couple of friends from various areas of UK and they too visit Exeter simply because of the standard of treatment, I am led to understand that you can choose which GIC you visit if they are willing to accept you.

I do hope you can get some treatment as I know the waiting is way too stressful

Hugs

Sorcha  ;D
Full Time : July 2007,  ;D ;D
HRT : December 2007,
GRC, (Gender Changed on Birth Certificate) December 2009,  :eusa_clap:
SRS Dr Chettawut March 2015, ;D ;D
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mfox

Quote from: Cat on February 17, 2015, 01:47:27 PM
After another practice meeting, my GP contacted one of the specialists at the GIC who said that they ought to consider treating me.

Cat, your story sounds like so many UK experiences I've read, but with a happy outcome!  Which GIC did they work with?  Two GPs at my surgery also felt a little out of their depth and brought it to a practice meeting, with the same initial outcome; "We don't know how to help you, so we'll refer you, but the GIC waiting list is so long, don't expect their help either.".
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Jayne

At my last practice none of the gp's had any experience of gender reassignment so they assigned me a dedicated gp who read through the guidelines, it helps if your gp is interested in the whole process.
Feel free to speak to your practice manager to request a dedicated gp who is comfortable dealing with hrt, it is your right.
You also now have the right to request to be transfered to the GIC of your choice, there's a MTF in my lgbt group who waited for months and had no reply from CHX, she was reluctant to request a transfer at first fearing it would cause more delays, she's now over the moon that she took my advice.. The Laurels try to see new patients within 12 weeks, it beats CHX's 68 week wait.

Request to be sent a copy of EVERY letter related to your treatment, keep these letters safe as you may need them in the future. when a letter arrives take it straight to your surgery so they can take copy I always get my letters before my gp for some reason and this prevents your letters getting stuck in an in tray.

Final nugget of advice for now, any funding requests should be through "specialised commissioning" NOT exceptional funding, a gp made this mistake a couple of years ago and as a result I've been turned down for electrolysis funding 3 times!! My latest gp spotted this mistake so I'm now on my 4th attempt to get funding but this time its through the correct channels.
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jody2015

my gp is great but as he said its not a thing he has done before. i asked for estrogen t be added to my antiandrogen as ive been on it nearly a year and was a bit concerned about the health side. i have already been assessed by my psychiatrist who used to work in a gic clinic. ive had assessment as well by the psychologist at my mental health department.my gp and gum consultant back me fully. i simply asked the gic that since i had had all this instead of waiting to just tell them that what they want is already done and there is a health concern. i didnt for one moment think they would reply but last week they requested bloods to be taken by the gp.i still havnt been told why and havnt heard directly from them. my way into the gender service actually isnt that quick its been a few years since initially coming out and then sorting other problems out. i have found you have to be proactive without being pushy. dont go over the top and dont go in a state,they will just make you wait till they think you are more stable. remember being nice to people gats more done than just demanding your rights. every gic is different. and what they will allow is different. like i said my gp will prescribe hormones if they approve it. when i went on the antiandrogen he admited it was a first for him but liked a challenge. i do some of the work for him as i am cheeky and ask department what they want. he i like a lot of doctors he doesnt rush. he is used to me turning up and saying i need x and doc x has said ok for you to do just give him a ring. its amazing that in this age of emails they do insist on writing a letter. i do joke with him that im going to bring the service into the 21st century.
  this is just the way its turned out for me and things are slightly different than a lot of girls, i had /have bloods and health screening done regularly long before i started on this path so the local nhs system knows me.it is amazing what you can get done with a bit of thought,being nice and fluttering your eyelids.(havnt tried the last one yet lol) but also be ready for the things that just cant be rushed. we all want it now but for some thing there are reasons they wait.
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Cat

Quote from: mfox on February 18, 2015, 01:40:24 AM
Cat, your story sounds like so many UK experiences I've read, but with a happy outcome!  Which GIC did they work with?  Two GPs at my surgery also felt a little out of their depth and brought it to a practice meeting, with the same initial outcome; "We don't know how to help you, so we'll refer you, but the GIC waiting list is so long, don't expect their help either.".

Hi, mfox. :)  They work with Sandyford clinic in Glasgow, since I'm in Scotland.  I self-referred to Sandyford last June and then had my assessments done and funding provision approved but the wait for Sandyford was running at 12 months when I joined the list (and has increased since then I think), so I still have a few months before my initial consultation with them.  Thank heavens for happy outcomes!
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tlo4589

This thread has been incredibly informative. Thankyou to all those who've contributed! I have my initial GP appointment Friday and I feel much better prepared  ^-^

Toni x
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Squircle

Oh by the way, for anyone getting a referral for a GIC, the 'inspection of the sexual characteristics' or anything else that involves your GP poking your genitals isn't mandatory for a referral.
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Jayne

I went to The Laurels yesterday so i'll do some comparisons between the Laurels (Yay!!!) & CHX (Boo Hiss!!)

!ST APPONTMENT WAIT:
LAURELS
12wks ish, 1st appointment was cancelled due to the lovely woman being sick, replacement appointment 1wk 3 hrs later :)

CHX
up to 68 wks!! If they cancel you may get to see someone 6 months later :(

APPOINTMENT DURATION:
LAURELS
1hr

CHX
30 min, you feel like you've gone through a sheep dip

TIME TILL NEXT VISIT:
LAURELS
6wks

CHX
6mnths (if you're lucky & if they don't cancel repeatedly)

ATMOSPHERE
LAURELS
Relaxed & Friendly

CHX
Did I mention feeling like you've been through a sheep dip? Nuff said

SATISFACTION LEVELS SO FAR
LAURELS
5 stars, walking on air :)

CHX
Please refund ALL of my taxes that have gone into the NHS so I can pay to go private/elsewhere :(

CONCLUSION
LAURELS
Can't speak highly enough of them :)

CHX
Wouldn't touch them with someone elses 10ft long barge pole

I hope this helps clarify the difference from one clinic to the next & my thoughts on the 2 clinics i've been seen by

To sum up: CHX have wasted more than 2yrs of my life & in spite of London being cosmopilitan many people there are rude to trans people & I despise their GIC's shoddy, uncaring service.
I adore the service at Laurels plus the public in Exeter are used to trans people due to the clinic beingn a 5min wall from the shops, I recieved loads of friendly, supportive smiles from complete & utter strangers yesterday & didn't notice one single rude look all day (at least until I got home to Bristol)
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tlo4589

Thanks for that Jayne, I was hoping to hear how it went! You've definitely sold me on The Laurels.

Toni x
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Jayne

If you live far from there it would be a good place to get a room the night before, I got nothing but good vibes from the clinic & the shopping area.
i may move there
;D
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SorchaC

Quote from: Jayne on February 20, 2015, 09:42:45 PM

If you live far from there it would be a good place to get a room the night before, I got nothing but good vibes from the clinic & the shopping area.
i may move there
;D


You should also be able to claim a refund on expenses such as travel and even a hotel if it is essential and as Exeter is a fair distance for anyone not in South West it is fairly essential, I would speak to Laurels Admin as this will depend on your income as well but I was able to claim travel for my laser appointments in Newcastle when I was in Cumbria, Unknown to me when I went to see Tim Terry in Leicester from Cumbria I could have claimed that too but wasn't told until after.

Hugs

Sorcha  ;D
Full Time : July 2007,  ;D ;D
HRT : December 2007,
GRC, (Gender Changed on Birth Certificate) December 2009,  :eusa_clap:
SRS Dr Chettawut March 2015, ;D ;D
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Jayne

I knew about claiming travel expenses but forgot this time, doh!
The reason I said about thinking of moving to Exeter is because I felt so comfortable and accepted there.
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SorchaC

Quote from: Jayne on February 22, 2015, 04:43:57 PM
I knew about claiming travel expenses but forgot this time, doh!
The reason I said about thinking of moving to Exeter is because I felt so comfortable and accepted there.

I did my Sports Therapy Diploma in Torquay which isn't so far from Exeter, Nice part of the country and reasonably accepting from all i've heard

Hugs

Sorcha  ;D
Full Time : July 2007,  ;D ;D
HRT : December 2007,
GRC, (Gender Changed on Birth Certificate) December 2009,  :eusa_clap:
SRS Dr Chettawut March 2015, ;D ;D
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