Adrenal overdrive (trauma) and problems after SRS

[galaxy]

Hello everyone,

hope some people here can help me to get more details and ideas.

I have 3 main problems/questions:

Adrenal overdrive:
Its a known fact that your adrenal glands temporarly goes into overdrive after SRS. Mostly this goes down after a few month. I'm 10 month postOP and my adrenal is still producing too much adrogenes and i dont belief it will go down at anytime. Is it a trauma in some sections? DHEAS for example is higher than shortly after SRS - no signs of decreasing. The problem of this desease is that too much androgenes causes more bodyhair, hairloss, a more masculin face ... you all know it. Actually I'm taking dutasteride dialy to reduce the effects. Dont know if it works ...

Thyroid:
After having another research i was found this topic here:
https://www.susans.org/forums/index.php/topic,137577.msg1662608.html#msg1662608
"EVERYONE TRANSITIONING needs to be aware of our risk for THYROID DISEASE!!!"

I'm not sure. I also have a light thyroid underfunction but i would'nt see the reason here for my massive andrenal overdrive. All in all this is mysterious. My andrenal glands get no order to produce more androgenes - ACTH is very low. On the other hand I cant belief that i should have an cancer. WHAT gives the production order?

Prolactin:
The next mysterious thing is my prolactin level and its trigger-sensity is very high (levels still around 150ng/ml,  I have no prolactinoma, stopped CPA a few weeks ago). Does anyone no if prolactin triggers the andrenal androgene production? Could this be a missing link?

Taking CPA will rise my levels up to 200 ng/ml. How could it be? This is a big problem in the treatment of hyperandrogenism caused by the andrenal glands why i have to take another antiandrogene or something like dutasterid. As you can see - its a cycle. The treatment of one problem will cause another one.

I'm very sad about this development after SRS ... 

Mod edit: No dosages as per Terms of Service #8

[Dena]

I am always wary of one size fits all solutions to problems and I am not medically trained, but has your doctor considered a pituitary tumor. The Pituitary gland controls a major portion of the things that go on in the body and a problem there could explain the weird mix of symptoms that you are having.

[galaxy]

No, ive no prolactinoma (see above). The high prolactin was caused by Androcur, serum levels decrease at the moment. The problem isnt the high prolacin but the adrenal overdrive.

[.Christy]

Consult your doc and get some imaging studies done to rule out tumors of the pituitary gland and adrenals.

[galaxy]

I dont think its a cancer. My doc still doesnt know what's up there. Thats why iam asking here.

[Dena]

Not all the growths in the body are cancer. In addition, it could be a malfunctioning Pituitary gland that is throwing the balance of your body out. Hormones are not always controlled by the gland that produces them. Often the Pituitary gland sends out a control hormone that regulates the gland that produces the hormone. When you have more than one level that's incorrect, you want to look for a common cause and the Pituitary gland is a good place to start.

[galaxy]

Not all the growths in the body are cancer. In addition, it could be a malfunctioning Pituitary gland that is throwing the balance of your body out. Hormones are not always controlled by the gland that produces them. Often the Pituitary gland sends out a control hormone that regulates the gland that produces the hormone. When you have more than one level that's incorrect, you want to look for a common cause and the Pituitary gland is a good place to start.

Like I said:

My andrenal glands get no order to produce more androgenes - ACTH is very low.

I had an MRT 1 week ago - theres nothing in my head.

Why should any unnormal growth (f.e. hyperplasmia) exactly started with SRS? I'm convinced that its has to do with SRS. As far as i know prolactin increases production of andrenal androgenes - so it could be another reason. But why my prolactin is so high? Ive no prolactinoma, no CPA ...? Only estrogen and progesterone. 

[galaxy]

Androgenes destroy my body and nobody can help. I mean everybody asks why i want to commit suicide -> that is the reason. Cause nobody can help me - no doctor, no specialist, no facebook group, no german board, no english board. Nobody from 7 billion people is able to help me. Thats why i dont want to live anymore. Its that simple. 

[Rachel]

Perhaps KayXo would have some thoughts on the subject. You may want to PM her.

[galaxy]

Do you really think a PM will change anything? SRS destroyed my life. In every case.

[Rachel]

KayXo is very knowledgeable. Yes, I do think it will make a difference.

I was thinking about this problem. I am not a doctor so this is just my thoughts. Perhaps Spironolactone would make your brain think you no longer need higher levels of T and reset your adrenals to normal.

Anyhow, the real solution is to see other endo's till you find one that can help you.