Quote from: josie76 on August 17, 2017, 05:11:52 AM
Laurie, I'm so sorry about your granddaughters health. These conditions are personal to me. My wife and I had to make that choice no expectant parent wants on our first pregnancy.
Josie,
My heart goes out to you. I have nothing but sympathy and respect for your decision. I'll not pass judgement on what was an agonizing ordeal for you and your wife. My condolences on your loss.
Obviously my son in law and my daughter made a different decision and my grand daughter underwent 3 different operations within her first 24 hours in this world. she's had to undergo several more since. While mom and dad spent most of their days with Evanna in the 5 week following her arrival at her side in Seattle, I held down the home front taking care of my 4 other grand children 60 miles to the south. It was a rough time for all involved.
Evanna requires special attention at home and all the family take an active part in her care. I won't go into the details except to say furniture, feeding and sleep are all affected and require special needs. She require a cpap machine at night to help her breathe when he brain and/or body forgets. Even with the machine, doctors tell my daughter some day she'll just not wake. All this is sad and very hard on their family as you can imagine. But mom and dad are committed to giving her as full a life as they can while she's still with them. One has to love them for that. Of course I have others reasons to love them all.
Though her story is sad, it is not why I cry. I cry because I am not a part of it any more. I haven't been since the day after I came out to my daughter and her husband. I have not seen any of my grand kids since as I do not feel welcome there now. I've removed them from social media not because they've done anything wrong there but to help me and I don't think sharing my current posts with them would help them or be welcome. I came across that story and post while sneaking a peek into their life. I should not have done it. Though a true joy to behold, watching it served to remind me of what I'm missing.
The cost of what we do to be ourselves can be great indeed. My coming out only widened a long time wound in my daughter's relationship. A wound I've tried to close over the years only to seeing it is still raw and now infected. It's not all her doing nor is it all mine. But it is there. The door is closed between us again if it was ever really opened.
I'm sorry Josie for straying off into my own troubles. I'm sorry you and your wife had to endure what you have and there is no doubt in my mind you live with your son's memory held lovingly in your heart.
Hugs for your wife and you, Josie.
Laurie