Dropped Spironolactone 2 months ago, just got my blood work back

[Deborah]

The first year I would get lightheaded from the spiro but that doesn't happen anymore.  I think my body adjusted to it and found a work around.


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[Harley Quinn]

The first year I would get lightheaded from the spiro but that doesn't happen anymore.  I think my body adjusted to it and found a work around.


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I still get it after 2+ years. I don't foresee it going away.

[Harley Quinn]

Victoria, your doctor and my doctor must be reading the same studies.  Mine is tapering me off slowly from Spiro too.  She says my e levels are now high enough to suppress t production on their own.  I'm all for that, less drugs in my system.  My total t measured 8 ng/ml and e at 355 pg/ml last week.  I'm on pellets for e.  I will miss the salt cravings too.  Interesting about bp though.  Isn't Spiro supposed to lower bp?  Mine didn't change much at all.

Bari Jo

Nope, my doctor likes Spiro. I asked to come off it. And my E is considerably lower than yours. Spiro does lower my BP. Dizzy and fainting spells are quite the norm for me. It's exacerbated by the pinched nerve in my spine and I get dizzy spells 20x a day. It gets old... 😣 but, I just have to hold out for SRS and then I'll be Spiro free again.

[KathyLauren]

Interesting about bp though.  Isn't Spiro supposed to lower bp?  Mine didn't change much at all.

Yes.  Spiro's primary medical use is as a medication for lowering blood pressure.  The androgen suppression is normally just a side-effect.  Our use is off-label, where we want the androgen suppression and the blood pressure reduction is a side-effect.

My blood pressure went from a textbook 120/80 pre-HRT to 90/65 on my first checkup.  Since then, I am better about keeping hydrated, so it is more normal now: 110/70 on my last checkup.  I do occasionally get light-headed if I stand up too fast, or first thing in the morning, when I haven't had any water yet.

I'd love to quit spiro.  I hate having to modify my water intake depending on how long before I can take a bathroom break.