Hi Laurie,
I'm back after a break and although we have talked I think it worthwhile to post this.
We know that we march a similar path and my break was associated with scans and checks and a 12 month anniversary with the thought of.. is it worth it? I live on borrowed time, how do I commit? how do I keep going? Is there anything worthwhile I can aim for or am I best just waiting for the inevitable call of ..It's back.
Firstly be cautious of shaving the Adam's Apple, I had the ultimate shave and the effect has been stunning
As for running out of time and is it all worth the struggle. Well we are in the same boat on that. For my scan yesterday I sat next to a woman who has a brain tumour as we had our radio-contrast lines put in. She looked poorly and she made a comment that I looked well, that was nice of her. I couldn't speak as my arms were being used, she looked a little taken aback until I got one hand free and could talk to her and apologise.
We had a nice chat and explained our circumstance and our fears, as only the living dead can. I told her of my frustration of not knowing whether to or how find a life to live.
She told me that her scan was to let her know when she should go in for end of life care. That was all she had left and she would go there alone.
She told me that I did have a voice and to go out and use it and not count the days; they count themselves.
I think I will take that lesson and try and live it. I won't count the days, maybe neither of us should.
Cindy