Surgery Goal Weight Achieved
Despite only doing two walks this week and being very stressed all week I manged to lose the last 400 grams that put me over the top for my surgical goal weight of BMI < 30....its now 29.9. I qualify for surgery
Total Lost total of 15.5 kg since Sept 2017 but the majority has been lost from Jan 2018 at which point I was 104Kgs I am now 90.6.
I want to now work on a buffer of 5kg and get to my second goal which is 85kg.
GCS?? Really...when?
So I called this morning Andy Said pretty much that the problem is the report saying I need an ICU bed and there is only one hospital I can do that at and we have to wait for the list to come up and then I can see if there is a spot. It would be remiss of me not to follow the advice of your pain specialist...... All sounds pretty fair to me I thought
I went on to tell to him that I understand perfectly what the issue is with the ICU bed and how he has to follow this and I appreciate how hard they are working to fix this but maybe I need to fix this issue over the ICU bed and see his reasoning behind this. I went on to say to him that I could not understand my Dr's reasoning and wanted to talk to him about this...if my Dr came up with an alternative or was willing to reconsider his postion could we still do the 28th...Yes was the answer
I then asked if he could please set my Mind at ease...if the 28th won't work ,when can we do it and went on to ask ..."would it be like march April or as late as Nov -Dec next year."
He began to chuckle, he understood what was going on I think and then said, Oh no I mean before Xmass or probably at worst January because many list get cancelled in January...they release the surgery lists slowly and some lists may be empty which he can then slot me in...however and this next peace of information explains the disconnect between me and the support staff....they have only released lists up till Mid November this year so far and they are full but there is the rest of November and Decembers lists to be release and if there is a space he will grab it. I think the office staff understand this but I never knew it so when I say I want a date I mean next month or next year (the staff are think I am meaning next week or the week after) I don't care when it is just give me a date. I am thinking its like filling in a Calendar...is that date free?...yup, so I can go ahead and book that theatre....it's not how it works at all. The reason she can't give me a date is because the hospital has not released what dates are available.... At worst its going to be sometime January providing there is a list available and Andy said to me he will grab any list he can to do including before the 28th. I said to him I understood with great clarity what the issues were but it was somewhat more reassuring knowing its not going to be next November. I can live with a delay but its the uncertainty that give me anxiety...he has promised that someone will get back to me with an update today.
So the issue remains the same however knowing how the process is working means it can change very quickly. I told Andy that I could be ready earlier if needed as well. I need to speak to my pain guy and see what is going on and if there is another way we can deal with this....I have sent him an email and his other secretary has sent him an email asking him to contact me urgently. If I can get him to look at another way of doing this rather than an ICU bed then the 28th can go ahead. In the mean time they will proceed with the ICU bed
What do I know
The surgical lists are being released slowly over the next week or so and as soon as there is a spot I will get it.
The simplest way to do this is to find another way to manage without an ICU bed....I need to speak to my pain management Dr if I can ever get a hold of him...he is interstate today but I know where he will be on Tuesday.
There is no longer any point in me contacting Mr Ives Rooms and I won't be. I believe Andy when he says he will call.
I will continue with my prep(I started up walking again 2 days ago) and await a new Date...I am not even going to chase my pain management guy. He has 2 emails one of which is requesting he calls me so we shall see. Its likly going to be a terrible waste of everyones time and resources but one which I will be helpless to stop.
I intend to get back on with my life.
Liz
PS: I will update again after talking withthem this afternoon.
